State Public Health Autism Resource Center (SPHARC)

Transcription

1 State Public Health Autism Resource Center (SPHARC) Kick-off and Welcome Call September 22, :00-3:00 PM, ET Dial for Audio: (888) Passcode: Brief Housekeeping Notes Press *6 to mute/unmute your line. Please mute your phone lines now and adjust the volume on your computers. If you need to step away from the phone, please do not put the call on hold. Hang up and join again. Submit questions/comments the call in the chat box at the lower, right-hand side of your screen. Or use the raise your hand function to let presenters know you wish to speak. Today s call will be recorded. The recording will be available at: Agenda Welcome & Roll Call Updates from HRSA Developmental & ASD Screening, Referral and Diagnosis SPHARC Environmental Scan AMCHP & SPHARC What s new/ Upcoming Activities & Resources Technical Assistance Needs & Activities Wrap-up and Next Steps 1

2 AK Welcome New Grantees! Welcome Back Continuing and Former Grantees! CA OR WA NV ID AZ UT MT WY CO NM ND SD NE KS TX OK MN IA MO AR LA WI IL MS IN MI TN AL KY OH GA WV SC VT PA VA NC FL NY NH DC ME MD CT NJ DE RI MA HI Non-Grantee Current State Autism Planning Grantees Former State Autism Planning Grantees Former Planning/Current Implementation State Autism Grantees Current State Autism Implementation Grantees Former State Autism Implementation Grantees Continuing State Autism Implementation Grantees Maryland Parent s Place of Maryland North Carolina University of North Carolina at Chapel Hill Oregon Oregon Health & Science Center Virginia Virginia Commonwealth University Maryland Parent s Place of Maryland Continuing State Autism Planning Grantees Arkansas University of Arkansas System Massachusetts University of Massachusetts New Hampshire NH Department of Health and Human Services Texas University of Texas Health Science Center at Houston New State Autism Implementation Grantees Arkansas - Arkansas Children's Hospital Research Institute Georgia - Georgia State University Research Foundation Iowa - The University of Iowa Michigan - Michigan Department of Community Health Minnesota - Minnesota Department of Health Former State Autism Implementation Grantees Alaska Alaska Department of Health and Social Services, Division of Public Health Colorado Autism Society of Colorado Connecticut - Connecticut Department of Health Hawaii Hawaii Pediatric Association Research and Education Foundation Illinois The Autism Program of Illinois (TAP), Hope Institute for Children and Families Maine Maine Department of Health and Human Services, Maine Center for Disease Control, Division of Family Health, Children with Special Health Needs Mississippi University of Southern Mississippi Missouri University of Missouri Thompson Center for Autism and Neurodevelopmental Disorders New Jersey Statewide Parent Advocacy Network (SPAN) of New Jersey New Mexico University of New Mexico s Center for Development & Disability New York New York State Department of Health, Bureau of Early Intervention North Dakota Minot State University Ohio Ohio Department of Developmental Disabilities Rhode Island Rhode Island Department of Health and the Autism Project of Rhode Island Utah Utah Department of Health, Title V Children with Special Health Care Needs Program Vermont Vermont Department of Health Washington Washington State Department of Health, Title V Children with Special Health Care Needs Program Wisconsin Wisconsin Department of Health Services, Division of Public Health, Title V CYSHCN Program Former State Autism Planning Grantees Delaware University of Delaware Georgia Georgia State University Research Foundation Maryland The Parents Place of Maryland Tennessee Tennessee Disability Coalition 2

3 HRSA Updates SPHARC Environmental Scan: State Developmental & ASD/DD Screening Activities Overview of findings from the SPHARC environmental scanning process Qualitative data set of state screening activities Strategies & key components Insight into state capacity Foundation for tools, resources to share best practices Coming soon! Environmental Scan Methodology Qualitative analysis ATLAS. ti source documents: HRSA Grant Narratives Act Early Systems Grant Reports/Summit Plans State Plan/Taskforce Report/Guidelines/ Resources TVIS key word search Code categories: Screening tools Guidelines/ Recommendations Screening process Screening coordination efforts Family Involvement Health equity Data collection/quality Funding Challenges 3

4 What s in the data set? Challenges and barriers to comprehensive, effective developmental screening systems Strategies and activities states are implementing to increase screenings and improve systems for screening and early identification How states are coordinating systems of screening and care How states a tracking, measuring, collecting and using data Efforts to address health equity Efforts to involve and engage families State guidelines and recommendations (including evidenced-based practices and/or screening tools) Strategies for funding and sustainability of developmental screening efforts Ex.: Strategies to Increase Screenings by Providers Main Themes Analysis Trainings for Providers & Early Childhood Professionals Increase Awareness & Education Trained Parent Partners / Educators Learning collaboratives / Intensive TA Resources / Toolkits Quality Improvement Physician Champions Provider Incentives Policy Levers Thematic Analysis, cont d Early signs of ASD/DD Trainings for Providers & Early Childhood Professionals POPULAR TOPICS Screening, referral and evaluation process (state/community specific resources) How to use/ implement validated screening tools Implementing in the practice: guidelines, periodicity, billing codes, data collection Screening in the Medical Home Working with families 4

5 Examples of State Goals/Performance Targets, Process Measures and Outcomes of Improved Developmental Screening Systems Goals/Performance Targets Process Measures Improved Systems Outcomes Ensure that children are screened, evaluated, diagnosed, and subsequently referred for treatment in a timely manner Increase the number of Medicaid and SCHIP enrollees under the age of one year who receive at least one screening Decrease the average time between screening and diagnosis Use standardized assessment tools for screening and diagnosis Increase the number of qualified primary care professionals who can administer developmental screenings Increase knowledge and skills of developmental screenings for non-medical professionals (e.g. early childhood educators and childcare personnel) and for parents The percent of pediatric primary care providers using validated screening instruments (e.g. ASQ, M-CHAT) The percent of primary care providers that conduct routine age-specific developmental screenings in their practice The number of referrals by providers or child care professionals The number of trainings provided on developmental screening tools and methods and number of providers /professionals reached Pre- and post-test changes in knowledge and skills related to screening, identification and management of ASD The average wait time between screening and diagnosis Improved systems of care for children with ASD/DD and their families by expediting the process of screening, evaluation, diagnosis and referral processes Numerous technical assistance and professional development opportunities offered to professionals and families regarding evidence-based screening, diagnostic, referral and treatment strategies for ASD/DD Increased knowledge and skills related to screening, identification and management of ASD in medical practices and in the community Increased number of autism screening for children ages zero to six enrolled in the state health insurance program Increased provider, family and community awareness of the importance of early screening and identification of ASD/DD Note: This does not represent recommended goals and measures that a state should use. These are a collection of examples from various states to highlight ways programs may measure success of efforts and assess outcomes. Next Steps & Timeline Dissemination Resource Development MCH 3.0 Structural/Process Measure Examples 5

6 AMCHP & SPHARC Overview/Updates 16 P r i m a r y P u r p o s e : Increase the capacity of states, particularly Title V programs, in developing and implementing systems of care for children and youth with autism spectrum disorders and other developmental disabilities (ASD/DD) through resource development, technical assistance and peer learning. State Public Health Autism Resource Center (SPHARC) Key Activities Developing and managing SPHARC website Facilitating communication between state autism grantees through Peer-to-Peer Exchanges and meetings Providing technical assistance to state grantees and other public health agencies through topical calls/webinars MARCH 13, 2009 LOREM IPSUM DOLOR 18 6

7 State Public Health Autism Resource Center Activities for Orientation for New Grantees Workshops & Grantee Meetings Topical TA Calls for Grantees (bimonthly) Virtual Office Hours (bimonthly) Mentorship/replication site visits Peer-to-Peer Exchange Collection and dissemination of best practices Developmental & ASD/DD Screening Project Technical Assistance/Mentorship Project To foster the spread of effective and promising MCH practices Grantees can request technical assistance support to: Learn how to implement or adapt a specific practice to improve systems of care for children and youth with ASD/DD in their state. Connect with a current or former grantee Peer-to-Peer Exchange Maryland 2014: Screening and Beyond: Improving Systems for Developmental Screening and Early Identification 8 states (AR, CO, CT, MD, MS, ND, OH and VA) Goal: to share resources, challenges and successes related to improving developmental and ASD/DD screening, early identification and related systems of care Resources now available: Presentations State Developmental Screening Profiles 7

8 SPHARC Public Website GroupSpaces - 8

9 Technical Assistance Discussion Examples of TA Needs Strategies to train providers (esp. screening/diagnosis) Involving families as partners Best Practices / Peer examples Cultural competency Standards for care coordination Transition to adulthood for youth with ASD Collective Impact Collaborating with research partners Data & evaluation: Data sharing models Cost-effectiveness of integrating data systems Tracking measures 26 Questions and Next Steps 9

10 Healthy Children. Healthy Families. Healthy Communities. T h a n k Yo u! Kate Taft Sr. Program Manager CYSHCN ktaft@amchp.org (202) Treeby Brown Associate Director Child and Adolescent Health tbrown@amchp.org (202)