Cancer Policy Advocate Training (CPAT) June 25-26, 2015 Washington, DC Washington Court Hotel. Agenda

Transcription

1 Cancer Policy Advocate Training (CPAT) June 25-26, 2015 Washington, DC Washington Court Hotel Agenda Background Advances in cancer research have contributed to overall improvements in cancer survival rates, although progress in some cancers still lags. In addition, investigators are realizing meaningful progress toward development of targeted or personalized treatments. Despite the impressive achievements in cancer research and therapy development, the cancer care experience remains a difficult one in many ways. Cancer survivors require more than cutting edge therapies to achieve optimal outcomes. For a quality cancer care experience across the continuum of care, cancer survivors require an informed decisionmaking progress, early incorporation of palliative care, psychosocial support, and timely referral to hospice. Survivors also need a plan for monitoring and follow-up care after active treatment. The cancer care system does not in all cases provide care that integrates all of the critical elements of quality care. Neither is the cancer care system adjusting rapidly enough to the complex health care needs of survivors who may suffer significant late and long-term effects from cancer and cancer treatment. The system is further strained by the increase in the number of cancer survivors; there will be a 30% increase in the number of cancer survivors by The 2015 Cancer Patient Advocate Training program will focus on the needs of cancer survivors from diagnosis to treatment and through long-term survivorship care and will consider policy activities that might foster or support reforms to make the cancer care system more responsive to survivors needs. Thursday, June 25, :30am-9:00am 9:00am-10:00m Registration and Breakfast Welcome and Introductions Objectives for the Training Shelley Fuld Nasso, MPP NCCS, CEO Executive Room, Lower Lobby Level 10:00am-11:30am Late and Long-Term Effects: Recent Research Findings Elizabeth Goss, JD Turner & Goss, LLP (Moderator)

2 Understanding of the late and long-term effects of cancer and cancer treatment has significantly increased in recent years, as the result of groundbreaking research, including longitudinal monitoring and evaluation of cancer survivors. This research has provided valuable information about the side effects of specific treatment regimens and has also helped to identify the appropriate schedule and system for monitoring survivors for late and long-term effects. However, cancer care delivery and payment systems are not always responsive to the needs of survivors, and cancer treatments still require refinements to reduce immediate and long-term toxicities. This panel of speakers will provide critical background on the late and long-term effects that confront two specific populations of survivors: lymphoma survivors and childhood cancer survivors. These presentations will help to frame the discussions for the remainder of the training program by providing important scientific and clinical background about survivorship. Lymphoma Survivors: Late and Long-Term Effects Carrie Thompson, MD Assistant Professor of Medicine Mayo Clinic Childhood Cancer Survivors: Accelerated Aging Melissa Hudson, MD Director, Cancer Survivorship Division Co-Leader, Cancer Prevention & Control Program St. Jude Children's Research Hospital Predicting Risk for Second Cancers in Survivors of Childhood Cancer Monica Gramatges, MD Associate Professor Department of Pediatrics Section of Hematology-Oncology Baylor College of Medicine 11:30am-12:00pm 12:00pm-1:00pm 1:00pm-2:30pm Lunch Survivorship Care Planning and the Delivery of Coordinated Care Shelley Fuld Nasso, MPP NCCS (Moderator) Clinicians and researchers have made significant strides in identifying systems of care and tools to help in the management of the late and long-term effects that cancer survivors experience. Many experts have focused on the development of written survivorship care plans that would detail the treatment that survivors have received and also identify a specific plan for monitoring and intervention related to late and long-term effects. Leaders in the field have also identified

3 issues related to the delivery of survivorship care. Finally, cancer care payment systems are not fully responsive to the way in which optimal survivorship care is delivered. This panel will discuss the state of survivorship care and reforms to the health care system that would foster survivorship care of higher quality. Mary McCabe, RN, MN Director, Cancer Survivorship Initiative Memorial Sloan-Kettering Cancer Center Deborah Mayer, PhD, RN, AOCN, FAAN Professor, School of Nursing Director of Cancer Survivorship UNC Lineberger Comprehensive Cancer Center Kenneth David Miller, MD Division of Hematology / Medical Oncology The Alvin & Lois Lapidus Cancer Institute at Sinai Hospital 2:30pm-3:00pm 3:00pm-3:15pm 3:15pm-4:45pm Break Cancer Care Workforce Challenges: Can System Changes Enhance Survivorship Care? Elizabeth Goss, JD Turner & Goss, LLP (Moderator) In the report, Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis, the Institute of Medicine (IOM) suggested a looming cancer care crisis. The report focused on the entire cancer care spectrum, including the period of survivorship care, and identified critical steps that must be taken to reform the cancer care system. Prior to the IOM report, the American Society of Clinical Oncology (ASCO) had completed a comprehensive review of the cancer care workforce needs of the 21 st century that identified some serious gaps in the manpower necessary to provide quality cancer care in the future. ASCO recommended a series of important changes in training and continuing medical education to assure a cancer care workforce for the 21 st century. This panel will consider how the push for change reforms of the overall cancer care system and reforms in workforce recruitment and training can also take into account the special needs of long-term cancer survivors. Keith Argenbright, MD Associate Professor Simmons Comprehensive Cancer Center Department of Clinical Science

4 UT Southwestern Medical Center Tracy Gosselin, PhD, RN, AOCN Associate Chief Nursing Officer Ambulatory Services & Oncology Duke University Health System 4:45pm-5:00pm 5:00pm-5:15pm Wrap Up & Adjourn Friday, June 26, :30am-9:00am 9:00am-9:30am 9:30am-11:00am Registration and Breakfast Welcome, Recap, and Overview of the Day Will New Value-Based Cancer Care Payment Systems Foster Better Survivorship Care? Shelley Fuld Nasso, MPP NCCS (Moderator) As experts in survivorship care are considering system reforms that might be especially responsive to the needs of long-term survivors, major payment and delivery reforms are underway in the cancer care system. This panel will consider ongoing cancer care reforms and practice transformation and how reformed care systems are taking the needs of survivors into account. The panel will consider whether there can be synergies between ongoing cancer care delivery and payment reforms and newly designed systems of care for survivors. John Sprandio, MD Consultants in Medical Oncology and Hematology, P.C. David Lofye Vice President of Government Affairs LIVESTRONG Foundation 11:00am-11:30am 11:30am-12:30pm Lunch

5 12:30pm-2:00pm Addressing Disparities in Survivorship Care Elizabeth Goss, JD Turner & Goss, LLP (Moderator) Researchers have identified disparities in access to and completion of survivorship care that are comparable to disparities in access to active treatment. Barriers to quality survivorship care may relate to poor patientphysician communication, limited access to care networks providing survivorship care, and difficulties completing long-term follow-up and survivorship care. This panel will describe the disparities in survivorship care that currently exist and identify reforms in delivery and payment for care that might address these disparities. Panelist Victoria Blinder, MD Assistant Attending Physician Memorial Sloan-Kettering Cancer Center Elmer Huerta, MD Director, Cancer Preventorium Washington Cancer Institute MedStar Washington Hospital Center Ana Maria Lopez, MD, MPH, FACP Associate Vice President for Health Equity and Inclusion, University of Utah Health Sciences Center Director, Cancer Health Equity, Huntsman Cancer Institute Professor of Medicine, University of Utah School of Medicine 2:00pm-2:30pm 2:30pm-3:00pm 3:00pm Closing Remarks Shelley Fuld Nasso, MPP Adjourn