EMERGING THERAPIES FOR BLOOD CANCERS:

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1 EMERGING THERAPIES FOR BLOOD CANCERS: Case Studies Adherence, Ethics and Other Nursing Management Challenges CONTINUING EDUCATION IS OFFERED FOR THIS ACTIVITY

2 CONTENTS Welcome Agenda Program Overview Faculty Biographies Katherine A. Breitenbach, BA, RN Mary C. Byrne, NP, MSN, BSN, AOCN Marc I. Epstein-Reeves, RN, BSN, OCN Faculty Disclosures Presentations Blood Cancer Advances and Treatment Challenges Truth-Telling and Clinical Trials Stem Cell Transplantation, Treatment Adherence and Financial Challenges References Notes EMERGING THERAPIES FOR BLOOD CANCERS: 1

3 WELCOME On behalf of The Leukemia & Lymphoma Society (LLS), thank you for joining us for Emerging Therapies for Blood Cancers: Case Studies Adherence, Ethics and Other Nursing Management Challenges, a continuing education activity originally presented in San Diego, California. LLS would also like to thank our esteemed speakers for sharing their time and expertise. Through this activity, they will describe emerging trends from advancement of treatment for blood cancers, define treatment adherence challenges, identify ethical challenges of treatment in helping patients with treatment adherence, and formulate education and communication strategies to address nursing management challenges. This workbook includes the presenters slides and will help guide you through the activity. If you would like to receive 1.75 continuing education hours, please complete the online learning assessment and evaluation. We hope that you will find this activity informative and rewarding. Sincerely, Anita Welborn, LMSW Vice President, Patient Services Operations The Leukemia & Lymphoma Society 2 EMERGING THERAPIES FOR BLOOD CANCERS:

4 AGENDA Welcome & Introductions Anita E. Welborn, LMSW Vice President, Patient Services Operations The Leukemia & Lymphoma Society Blood Cancer Advances and Treatment Challenges Mary C. Byrne, NP, MSN, BSN, AOCN Oncology Nurse Practitioner Cancer Care Associates Redondo Beach, CA Truth-Telling and Clinical Trials Katherine A. Breitenbach, BA, RN Clinical Research Nurse Section of Hematology/Oncology University of Chicago Medical Center Chicago, IL Stem Cell Transplantation, Treatment Adherence and Financial Challenges Marc I. Epstein-Reeves, RN, BSN, OCN Stem Cell Transplant Patient Intake Coordinator Section of Hematology/Oncology University of Illinois at Chicago Chicago, IL Question-and-Answer Session EMERGING THERAPIES FOR BLOOD CANCERS: 3

5 PROGRAM OVERVIEW Program Goal Advances in treatment for several types of blood cancer are improving outcomes for many patients. However, new therapeutic strategies are also adding to the challenges for nurses who care for these individuals. Treatment adherence and disease control may be undermined by the combined challenges that come with current treatments, various aspects of the healthcare system and ubiquitous financial concerns. This symposium will use case studies to explore physical, psychosocial, economic and cultural barriers to adherence. Discussions will include providing clinical trials education for under-represented populations, dealing with the double-edged sword of truth-telling, and weighing in on the ethical use of online social networking sites. Attendees will gain insights into patients perceptions of their disease and treatment and learn practical strategies for helping patients adhere to treatment in this complex era. Target Audience This activity has been designed to meet the educational needs of nurses, social workers and other healthcare professionals involved in the care of patients with blood cancers. Educational Objectives At the conclusion of this program, participants should be able to: Describe emerging trends in the advancement of treatment for blood cancers Define treatment adherence challenges Identify ethical challenges in helping patients with treatment adherence Formulate education and communication strategies to address nursing management challenges Continuing Education Information Nurses and Healthcare Professionals Approval for nurses has been obtained by the LLS National Office under provider number CEP 5832 to award 1.75 continuing education contact hours through the California Board of Registered Nursing. The Leukemia & Lymphoma Society (LLS), provider number 1105, is approved as a provider for social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education Program (ACE). Approval Period: 12/ /2011. LLS maintains responsibility for the program. Social workers should contact their regulatory board to determine course approval. Social workers will receive 1.75 CE clinical clock hours. Upon completion of this program and submission of the activity evaluation, a certificate of completion will be issued to you via or US mail within 30 days of receipt. Support Statement This program is supported by Cooperative Agreement Number 5U58DP from the Centers for Disease Control and Prevention. Its content is solely the responsibility of The Leukemia & Lymphoma Society and does not necessarily represent the official views of the Centers for Disease Control and Prevention. 4 EMERGING THERAPIES FOR BLOOD CANCERS:

6 FACULTY BIOGRAPHIES Katherine A. Breitenbach, BA, RN Clinical Research Nurse Section of Hematology/Oncology University of Chicago Medical Center Chicago, IL Katherine A. Breitenbach, BA, RN, is a clinical research nurse in the section of Hematology/Oncology at the University of Chicago Medical Center. In her current position, she coordinates the care of patients with acute lymphocytic leukemia (ALL), acute myelogenous leukemia (AML) and acute promyelocytic leukemia (APL), maintains protocol adherence for patients on clinical trials and works closely with the bone marrow transplant program to ensure continuity of care for patients. Ms. Breitenbach graduated magna cum laude from Luther College in Decorah, Iowa, with a Bachelor of Arts in Nursing, and is currently enrolled in a dual Master of Science program in Adult and Geriatric Advanced Practice Nursing at the University of Illinois in Chicago, Illinois. Ms. Breitenbach is an Oncology Nursing Society Chemotherapy and Biotherapy Provider and a member of the Honor Society of Nursing, Sigma Theta Tau International. EMERGING THERAPIES FOR BLOOD CANCERS: 5

7 FACULTY BIOGRAPHIES Mary C. Byrne, NP, MSN, BSN, AOCN Oncology Nurse Practitioner Cancer Care Associates Redondo Beach, CA Mary C. Byrne, NP, MSN, BSN, AOCN, is an oncology nurse practitioner for Cancer Care Associates, an oncology practice located in Redondo Beach, California. Ms. Byrne is a graduate of Georgetown University in Washington, DC, where she earned a bachelor of science degree in nursing and a master of science degree in the family nurse practitioner program. She is a Certified Family Nurse Practitioner and an Advanced Oncology Certified Nurse (AOCN). Prior to joining Cancer Care Associates, Ms. Byrne was a specialist RN on the bone marrow transplant service at Georgetown University Medical Center and a nurse practitioner at the Jonsson Comprehensive Cancer Center at University of California, Los Angeles (UCLA). In her current role at Cancer Care Associates, Ms. Byrne works with a team of six oncologists, providing supportive care for patients undergoing chemotherapy and serving as a research study coordinator and data manager for multiple oncology clinical trials. In addition to her clinical work with patients, Ms. Byrne lectures extensively on cancer treatment and symptom management and is a preceptor for the UCLA School of Nursing s nurse practitioner program. 6 EMERGING THERAPIES FOR BLOOD CANCERS:

8 FACULTY BIOGRAPHIES Marc I. Epstein-Reeves, RN, BSN, OCN Stem Cell Transplant Patient Intake Coordinator Section of Hematology/Oncology University of Illinois at Chicago Chicago, IL Marc I. Epstein-Reeves, RN, BSN, OCN, is the Stem Cell Transplant Patient Intake Coordinator in the Section of Hematology/Oncology at the University of Illinois at Chicago in Chicago, Illinois. After graduating from Rutgers University with a dual degree in urban planning and environmental policy, Mr. Epstein-Reeves enrolled in an accelerated bachelor of science in nursing program at Johns Hopkins University, from which he graduated in He completed a fellowship in 2007 at the University of Chicago s MacLean Center for Clinical Medical Ethics and is currently enrolled in the adult nurse practitioner program at the University of Illinois at Chicago. Mr. Epstein-Reeves is an Oncology Certified Nurse and serves on the Ethics Committee at the University of Illinois Medical Center. In his current role as the Bone Marrow/ Stem Cell Transplant Patient Intake Coordinator, he evaluates patients for autologous and allogeneic stem cell transplantation and performs searches of related and unrelated potential donors. EMERGING THERAPIES FOR BLOOD CANCERS: 7

9 FACULTY DISCLOSURES Disclosure of Conflicts of Interest All faculty participating in continuing education activities by The Leukemia & Lymphoma Society are expected to disclose to the activity participants any significant financial interest or other relationships with the manufacturer(s) of any commercial product(s) discussed in their presentations. Faculty also are expected to disclose any unlabeled or investigational uses of products discussed in their presentations. Katherine A. Breitenbach, BA, RN, has asked that we advise participants in this activity that she has no affiliations with commercial interest to disclose. Mary C. Byrne, NP, MSN, BSN, AOCN, has asked that we advise participants in this activity that she has affiliations with Novartis Oncology (Consultant, Speakers Bureau). Marc I. Epstein-Reeves, RN, BSN, OCN, has asked that we advise participants in this activity that he has no affiliations with commercial interest to disclose. 8 EMERGING THERAPIES FOR BLOOD CANCERS:

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42 REFERENCES Katherine A. Breitenbach, BA, RN Coalition of Cancer Cooperative Groups. Baseline Study of Patient Accrual Onto Publicly Sponsored U.S. Cancer Clinical Trials: An Analysis Conducted for the Global Access Project of the National Patient Advocate Foundation. Available at: cccg.pdf. Accessed April 21, Swanson M, Ward A. Recruiting minorities into clinical trials: toward a participant-friendly system. J Natl Cancer Inst. 1995;87: EMERGING THERAPIES FOR BLOOD CANCERS: 41

43 NOTES 42 EMERGING THERAPIES FOR BLOOD CANCERS:

44 Mission Statement The Leukemia & Lymphoma Society s mission: Cure leukemia, lymphoma, Hodgkin s disease and myeloma, and improve the quality of life of patients and their families For information on leukemia, lymphoma and myeloma, call The Leukemia & Lymphoma Society s Information Resource Center at (800) or visit The Leukemia & Lymphoma Society 1311 Mamaroneck Avenue White Plains, NY VL

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