Appendix 2: The Somatoform Dissociation Questionnaire (SDQ-20 and SDQ-5) 1
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1 Rebuilding Shattered Lives, Second Edition by James A. Chu, MD Copyright 2011 John Wiley & Sons, Inc. Appendix 2: The Somatoform Dissociation Questionnaire (SDQ-20 and SDQ-5) 1 The 20-item Somatoform Dissociation Questionnaire (SDQ-20; Nijenhuis et al., 1996) evaluates the severity of somatoform dissociation. The SDQ-20 items were derived from a pool of 75 items describing clinically observed somatoform dissociative symptoms that in clinical settings had appeared upon activation of particular dissociative parts of the personality and that could not be medically explained. The items pertain to both negative (e.g., analgesia) and positive dissociative phenomena (e.g., site-specific pain). Each individual item asks about the frequency that a particular somatoform dissociative symptom is experienced using a Likert 5-point scale, ranging from 1 = this applies to me NOT AT ALL to. The respondent is also asked to indicate whether a physician has connected or bodily experience with a physical disease. In clinical practice the relevant item score can be adjusted to 1 when physical disease is indicated, the medical diagnosis has been checked with the physician who assigned it, and this diagnosis seems valid. The SDQ-20 score, which may range from 20 to 100, is obtained by sum of the individual item scores. The SDQ-20 discriminates between dissociative identity disorder, dissociative disorder NOS, somatoform disorders, and other psychiatric diagnostic categories. Scores over 30 are significant for the presence of somatoform dissociation. In studies using this scale, most patients with DID scored over 50, most of those with DDNOS scored over 40, and most of those with somatoform disorders scored over 30. The five-item SDQ-5 was derived from the SDQ-20, and includes the items 4, 8, 13, 15, and 18. The five items as a group discriminated best between patients with dissociative disorders and nondissociative psychiatric comparison patients. The scores can range from 5 to 25. Scores over 8 indicate significant somatoform dissociation and a probable dissociative disorder. Nearly all dissociative disorder patients score over From The Scoring and Interpretation of the SDQ-20 and SDQ-5 (Nijenhuis, 2010). 282
2 Appendix 2: The Somatoform Dissociation Questionnaire 283 The versions of the SDQ that follow are for use by clinicians who are interested in assessing their patients for somatoform dissociation. If used for research purposes, standard demographic information is also gathered including age, sex, marital status and years of education. SDQ-20 This questionnaire asks about different physical symptoms or body experiences, which you may have had either briefly or for a longer time. Please indicate to what extent these experiences apply to you in the past year. For each statement, please circle the number in the first column that best applies to YOU. The possibilities are: If a symptom applies to you, please indicate whether a physician has connected it with a physical disease. Indicate this by circling the word YES or NO in the column Is the physical cause known? If you circle YES, please write the physical cause (if you know it) on the line. Example: My teeth chatter I have cramps in my calves If you have circled a 1 in the first column (i.e., This applies to me NOT AT ALL), you do NOT have to respond to the question about whether the physical cause is known. On the other hand, if you circle 2, 3, 4, or 5, you MUST circle NO or YES in the Is the physical cause known? column. Please do not skip any of the 20 questions. Thank you for your cooperation. Here are the questions:
3 284 APPENDIX 2: THE SOMATOFORM DISSOCIATION QUESTIONNAIRE 1. I have trouble urinating 2. I dislike tastes that I usually like (Women: at times other than during pregnancy or monthly periods) 3. I hear sounds from nearby as if they were coming from far away 4. I have pain while urinating 5. My body, or a part of it, feels numb 6. People and things look bigger than usual 7. I have an attack that resembles an epileptic seizure 8. My body, or a part of it, are insensitive to pain 9. I dislike smells I usually like 10. I feel pain in my genitals (at times other than sexual intercourse) 11. I cannot hear for a while (as if I am deaf) 12. I cannot see for a while (as if I am blind) 13. I see things around me differently than usual (for example, as if looking through a tunnel, or merely seeing part of an object) 14. I am able to smell much better or worse (even though I do not have a cold) 15. It is as if my body, or part of it, has disappeared
4 16. I cannot swallow, or can only swallow with great difficulty 17. I cannot sleep for nights on end, but remain very active during the day 18. I cannot speak (or only with great effort) or I can only whisper Appendix 2: The Somatoform Dissociation Questionnaire I am paralyzed for a while 20. I grow stiff for a while Nijenhuis, Van der Hart & Vanderlinden, Assen-Amsterdam-Leuven SDQ-5 This questionnaire asks about different physical symptoms or body experiences, which you may have had either briefly or for a longer time. Please indicate to what extent these experiences apply to you in the past year. For each statement, please circle the number in the first column that best applies to YOU. The possibilities are: If a symptom applies to you, please indicate whether a physician has connected it with a physical disease. Indicate this by circling the word YES or NO in the column Is the physical cause known? If you circle YES, please write the physical cause (if you know it) on the line. Example: My teeth chatter I have cramps in my calves
5 286 APPENDIX 2: THE SOMATOFORM DISSOCIATION QUESTIONNAIRE If you have circled a 1 in the first column (i.e., This applies to me NOT AT ALL), you do NOT have to respond to the question about whether the physical cause is known. On the other hand, if you circle 2, 3, 4, or 5, you MUST circle NO or YES in the Is the physical cause known? column. Please do not skip any of the 20 questions. Thank you for your cooperation. Here are the questions: 1. I have pain while urinating 2. My body, or a part of it, are insensitive to pain 3. I see things around me differently than usual (for example, as if looking through a tunnel, or merely seeing part of an object) 4. It is as if my body, or part of it, has disappeared 5. I cannot speak (or only with great effort) or I can only whisper Nijenhuis, Van der Hart & Vanderlinden, Assen-Amsterdam-Leuven. Used with permission.
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