Epilepsy Care Plan. Name. Date of Birth. Address. Telephone. Example Epilepsy Management Plan. Epilepsy Care Plan date

Transcription

1 Appendix 2 Example Epilepsy Management Plan Epilepsy Care Plan Name Date of Birth Address Telephone Epilepsy Care Plan date This care plan is intended to be used as a complete document: non-relevant pages may be removed if Mandatory pages are 1 and either 13, 14 or 15 (i.e. the relevant emergency plan). Circle below the page numbers that are included in this plan Page 1 of 15

2 People involved in care: Family/Carer Community nurse: Address Address Telephone Telephone Care Provider GP Address Address Telephone Telephone Consultant Other Address Address Telephone Telephone Name D.O.B dd/mm/yy This management plan is intended to be used as a complete document: non-relevant pages may be removed if Page 2 of 15

3 Epilepsy Medication Name Dose Times Rescue medication Name Dose Please check medication recording sheet for most up to date list of medication used to treat other health conditions. Name D.O.B dd/mm/yy Page 3 of 15

4 Seizure descriptions: Type A Before seizure During seizure Duration: After seizure Type B Before seizure During seizure Duration: After seizure Name D.O.B dd/mm/yy Page 4 of 15

5 Type C Before seizure During seizure Duration: After seizure Type D Before seizure During seizure Duration: After seizure Name D.O.B dd/mm/yy clinically appropriate Page 5 of 15

6 Triggers: Additional information e.g. frequency/pattern Sudep discussed? Yes No If no, document reason in notes name D.O.B dd/mm/yy Page 6 of 15

7 Seizure Diary :Year. Jan Feb Mar Apr May Jun Jul Aug Sept Oct Nov Dec Name D.O.B dd/mm/yy Page 7 of 15

8 First Aid for Seizures involving a fall or loss of consciousness If has a seizure please Do this Make. comfortable Make sure the airway is clear Support and protect the head Move objects that could be harmful Loosen tight clothing and remove any glasses Talk to him/her and give reassurance Follow the emergency protocol DO NOT Put anything in his/her mouth Restrain any movements Move him/her unless in danger Give anything to eat or drink until he/she is fully awake Following a seizure Put him/her in the recovery position when the movements have stopped Stay with him/her. until he/she is fully awake but forat least 30 minutes Record details in file and diary Name D.O.B dd/mm/yy Page 8 of 15

9 First Aid for Focal (Partial) Seizures If. has a seizure Do this Guide him/her away from any danger DO NOT Restrain him/her Stay with him/her until fully recovered Be calm and reassuring Explain anything he/she may have missed Follow the emergency protocol Act in a way that could frighten him/her Attempt to bring him/her round Assume that he/she. is aware of what is happening Give anything to eat or drink until he/she is fully awake Following a seizure Explain anything he/she may have missed Record details in file and diary name D.O.B dd/mm/yy Page 9 of 15

10 If.has an increase in the frequency of seizures please record them on the seizure chart and contact GP, consultant or epilepsy nurse for advice. Capacity assessment/best interests decision Please include here details of any relevant decisions made. Additional Information Name D.O.B dd/mm/yy clinically appropriate Page 10 of 15

11 SUDEP Information sheet What is SUDEP? Sudden Unexpected Death in Epilepsy is when a person with epilepsy dies suddenly with no other cause to their death found. People with a learning disability and epilepsy have a higher risk of SUDEP. The risk is lowered in those with well controlled seizures. An audit identified the following risk factors for SUDEP: If you are a young adult If you do not take your epilepsy medication as directed If there are sudden changes to your epilepsy medication If you only have seizures at night when you are sleeping or when you wake up If you have tonic clonic seizures Ways to reduce your risk of SUDEP: Take your epilepsy medication when you should. Have clear guidelines of epilepsy medication changes from your GP, Consultant or epilepsy nurse. Keep an accurate diary of your seizures, the frequency, duration and description if possible. Do not drink too much alcohol Access epilepsy services It is not yet certain whether alarms or monitors, which may alert others if you are having a seizure, are effective in preventing SUDEP. Please discuss with your doctor/nurse/care team if you are considering buying one. More information is available online at: name D.O.B dd/mm/yy Page 11 of 15

12 Record of staff who are trained to administer Rescue Medication Name Date of training Training provided by Name D.O.B dd/mm/yy Page 12 of 15

13 Emergency Epilepsy Plan Emergency Protocol NO PRN (rescue) medication.. is not prescribed any PRN medication CALL AN AMBULANCE (dial 999) (request a paramedic ambulance) if he/she or or or or has a convulsive seizure ( jerks or thrashes ) that lasts longer than.. has another seizure without recovering has injured himself/herself becomes cyanosed ( blue around lips) If you become concerned about him/her Other advice: Prescribing Doctor Nurse date date Patient Carer Name D.O.B dd/mm/yy Page 13 of 15

14 Emergency Epilepsy Plan Emergency Protocol with PRN medication Protocol for the administration of Rectal Diazepam Seizure type/s: Usual duration of seizure: After how long or how many seizures should rectal diazepam be given? Dose of rectal diazepam (in mgs) When to call for an ambulance. Who to contact/inform (e.g. family member, carer) Special instructions Review date: Prescribing Doctor Nurse date date Patient Carer Name D.O.B dd/mm/yy clinically appropriate Page 14 of 15

15 Emergency Epilepsy Plan Emergency Protocol with PRN medication Protocol for the administration of Buccal Midazolam (Specify Brand) Seizure type/s: Usual duration of seizure: Brand name of Midazolam After how long or how many seizures should Buccal Midazolam be given? Dose of Buccal Midazolam (in mgs) When to call for an ambulance Who to contact/inform (e.g. family member, carer) Special instructions (e.g. should procedure be witnessed, situations when Midazolam should not be used) IMPORTANT!!!!! When Buccal Midazolam is administered for the FIRST TIME, dial 999 for an ambulance. Review date: Prescribing Doctor Nurse date date Patient Carer Name D.O.B dd/mm/yy This management plan is intended to be used as a complete document: non-relevant pages may be removed if clinically appropriate Page 15 of 15