EDNF 2011 Conference. Kathleen Zonarich, PT

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1 EDNF 2011 Conference Kathleen Zonarich, PT

2 Ini$al Considera$ons: Get approval from your doctor or physical therapist before starting any exercise program. This presentation is meant for those with Classic or Hypermobility EDS (HEDS). If there are any cardiac/ vascular issues, please discuss appropriate exercise levels with your doctor, specific to you. This presentation is only meant to serve as a general template for an Individual Exercise Program. The specific exercises mentioned are not intended to be used by everyone. (consult your PT/doctor)

3 Benefits of Exercise for the General Popula$on: Combats chronic diseases such as: Osteoporosis Diabetes Hypertension High cholesterol Maintains weight Increases energy levels

4 Benefits of Exercise for the General Popula$on (cont.): Improves mood Better sleep Fun Decreases stress Boosts immune system Enhances physical relationships Benefits of Exercise for the General Population also apply to the EDS Population!

5 Recommenda$ons for the General Popula$on: Aerobic Exercise: AND 2 hours and 30 minutes per week of moderate intensity aerobic exercise ; or 1 hour and 15 minutes per week of vigorous aerobic exercise Muscle Toning/Strengthening: 2 or more days a week (Landr0, 2010)

6 Exercise Guidelines for the Disabled Popula$on: Research (Lee, 2003) indicates that individuals with disabilities may have benefits from as little as 30 minutes of slow exercise per day/ 5 days a week Start out slowly, build your program at your own pace Over time your body will adapt to your exercise routine, therefore you need to change your program to continue to challenge yourself (Lee, 2003)

7 Overall Exercise Goals for the EDS Popula$on: Increase Function Limit Disability Use Appropriate Pacing /Sequencing Follow Success before progress model (Kerr, 2004)

8 Specific Goals for Exercising in the EDS Popula$on: Maintain/Regain normal range of motion Correct and prevent movement dysfunction by retraining of: Postural control Postural alignment Proprioception Balance (Kerr, 2004)

9 Specific Goals of Exercising in the EDS Popula$on (cont): Achieving joint stability: Neutral joint position is most stable Core stability needs to be developed first Proximal to distal stability should follow Create and Follow an Individualized Exercise Program (Kerr, 2004)

10 Basic forms of muscle ac$on: Isometric Istonic Isokinetic

11 Types of Exercise: Aerobic Anerobic Resistive Against gravity Free weights Therabands Body weight

12 Components of a Balanced Exercise Program for the EDS Popula$on: Warm up Strengthening ROM/Flexibility Cardio Balance Proprioception Coordination Cool Down

13 Types of exercise that work well for the EDS popula$on: Aquatic- warm water better (90 degrees) Tai Chi Low- impact Cardio (aerobic) Pilates Yoga Wii

14 Exercise guidelines related to EDS: Get approval from your doctor/therapist to start a normal exercise program Normal ROM- perform exercise in normal range of motion. AVOID: hyperextension Resistive exercises- can make joint instability more severe Isometric ex- if too much force is applied, it can be bad for hypermobile joints High impact- not recommended Proper form/body mechanics are essential (Levy, 2010)

15 Tips for successful exercising: Do the exercises in front of a mirror Progress when you have success with current level No pain, no gain NOT for EDS Okay to have muscle soreness up to two days after exercise, but you should not feel new pain or an increase in pain Slow and steady wins the race Have control throughout movement; if something doesn t feel right, stop

16 Exercise Program Sample 1 (HEDS 12 year old girl) 12 year old girl No Physical Education in school Frequent joint dislocations, especially at knees Weak core muscles Severe pronation of feet Varying joint pain throughout body on daily basis

17 Exercise Program 1: Guidelines Begin with no resistance due to joint instability and frequent dislocations Core exercise to be the main focus, then develop exercise for extremities Low reps to begin, progress to higher reps then drop reps down and increase resistance slightly, build back up to higher reps Focus to be in this order: Stabilization Proximal Distal (Tinkle,2010)

18 Exercise Program 1: Core Pelvic tilt (start with 5 reps each) Abdominal crunches with arms crossed over chest Rotational abdominal crunches with arms crossed over chest Prone leg lifts Prone opposite leg/arm lifts Prone superman Prone plank - 10 seconds Side plank - 10 seconds

19 Exercise Program 1: Legs (start with 5 reps each) Short arc quads Wall squats Straight leg raise (supine) Standing exercises (hold on to kitchen sink as needed) Hip flexion Hip abduction Hip extension Ham curls Heel raises

20 Exercise Program 1: Arms (Start with 5 reps each) Standing Posi$on Arm circles Wall push ups Ball exercises: (small light weight playground ball) Rowing Circles (clockwise and counter clockwise) Push ball up over head Push ball out in front Full arc in front overhead and down to hips Bicep curls Shoulder height abduction/adduction

21 Exercise Program 1: Balance (stand at kitchen sink/hold on as needed) Start with 30 second holds if able Stand on one leg Stand on one leg with eyes closed Standing tree pose Star fish against the wall Warrior Raise up on toes

22 Exercise Program 1: Frequency How Often: Cardio 2-3 days per week Exercises 3 times per week with one day rest between each specific exercise type General Considerations: Exercises do not have to be done in one block of time If you are at a lower level, break up the exercises throughout the day or alternate arms and legs on different days, etc.

23 Exercise Program Sample 2 (HEDS 40 year old female) 40 year old female Chronic dislocations of hips Bilateral knee pain Pronation of both feet Upper extremity weakness Sub-luxing right shoulder Desk job Unsuccessful attempts to exercise in the past with increased pain

24 Exercise Program 2: Guidelines Begin with no resistance due to joint instability and frequent dislocations Core exercise to be the main focus, then develop exercise for extremities Low reps to begin, progress to higher reps, then drop reps down and increase resistance slightly, build back up to higher reps. Begin with 5 reps. Focus to in this order: Stabilize Proximal Distal (Tinkle, 2010)

25 Exercise Program 2: Core Supine Pelvic tilt Bridging Knee roll Arm reach between knees Arm reach to opposite knee

26 Exercise Program 2: Legs Supine Quad sets Ham sets Glut sets Heel slides Hooklying hip abduction/adduction Hip abduction Prone Knee flexion Sidelying Hip extension

27 Exercise Program 2: Arms Supine Shoulder Flexion Shoulder abduction Bicep curls Internal/external rotation Horizontal shoulder abduct/adduction Sitting Same as above will make it more challenging Ball catch (closer to center of body is easier) Prone Elbow extension with arm hanging off bed

28 Exercise Program 2: Balance Sitting balance unsupported Balloon toss Ball toss (more challenging) Standing balance (holding on to sink as needed) Static stand Eyes open/closed Unilateral stand Eyes open/closed Low level yoga pose Standing tree with toe on floor rather than at knee

29 Exercise Program 2: Frequency How Often: Cardio: 2-3 days per week Exercises: 3 day per week with 1 day of rest between each specific exercise type General Considerations: Exercising does not have to be done in one block of time If you are at a lower level, break up the exercises throughout the day or alternate arms and legs on different days, etc.

30 General Exercise Progression Guidelines: (in order of easiest to hardest) Abdominals Sitting on ball or chair reclined On floor against gravity Arms crossed over chest Arms at side of head Arms over head extended Medicine ball at chest Medicine ball with extended arms

31 General Exercise Progression Guidelines: (in order of easiest to hardest) Arms/Legs Supported by surface (gravity eliminated) Partial range of motion Full range of motion Against gravity range of motion Use of body weight for resistance Light weight resistance Heavier weight resistance Machines

32 General Exercise Progression Guidelines: (in order of easiest to hardest) Balance Sitting Sitting balance supported Sitting balance unsupported Dynamic sitting balance Standing Static Supported Unsupported Hard surface to soft surface Dynamic Hard surface to soft surface Bilateral to unilateral

33 Resources on the Internet Exerciseismedicine.org Provides exercise videos and self assessment tool for individuals with diseases Health.gov/paguidelines 2008 Physical Activity Guidelines for Americans Provides personalized exercise program with demonstration (For the EDS population- flexibility should be only within normal range)

34 Ques&ons??? now or later..

35 Works Cited: Kerr, PT, Rosemary. "Management of the Joint Hypermobility Syndrome: the Therapist's Contribution." Jointandbone.org. Joint and Bone: Musculoskeletal Disease Online, 30 Sept Web. 3 July < www_jointandbone_org_rodgrah.htm>. Landro, Laura. "The Hidden Benefits of Exercise - WSJ.com." Business News & Financial News - The Wall Street Journal - Wsj.com. Wall Street Jounal, 5 Jan Web. 03 July < online.wsj.com/article/sb html>. Lee, Thomas, and P. Skerrett. "ViewNewsletter." Harvard Heart Letter. Harvard Health Publication Newsletter, 15 Aug Web. 03 July < viewnewsletter.aspx?nlid=2>. Levy, MD, Howard. "Ehlers-Danlos Syndrome, Hypermobility Type - GeneReviews - NCBI Bookshelf." Ncbi.nlm.nih.gov. National Center Biotechnology Institute: National Institute of Health, 14 Dec Web. 03 July < Tinkle, Brad T. Joint Hypermobility Handbook: a Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Greens Fork, IN: Left Paw, Print. q Images: Origin=EC &CTT=6&ver=12&app=powerpnt.exe

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