COPING WITH POTS RESULTS FROM SURVEY. Georgina Hardy

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Randolf Daniels
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1 COPING WITH POTS RESULTS FROM SURVEY Georgina Hardy

2 Rationale and Aim Why I did it RATIONALE: currently no literature on coping with POTS, little on physical activity levels & quality of life AIM: quantify the influence of physical activity (PA) levels and coping strategies on quality of life (QoL) in women with POTS RESEARCH QUESTIONS: 1) Level of PA and most frequently used coping strategies? 2) Relationships between all 3 variables? 3) Predict QoL from coping strategies / PA levels?

3 Methodology RECRUITMENT: Advertised on social media by PoTS UK. PARTICIPANTS: 302 women over the age of 18, living in the UK. METHODS: online questionnaire with 3 sections -coping -physical activity -quality of life

4 A bit about coping Lazarus and Folkman (1984) Stressor (demand) Appraisal (evaluation) Responses (emotions) Coping (strategies) Individual differences e.g. mental toughness, personality factors, gender

Types of Coping Problem focused coping = efforts to alter / manage the problem that is causing stress Active coping Positive Reframing Acceptance Emotional Support Instrumental Support

5 Types of Coping Problem focused coping = efforts to alter / manage the problem that is causing stress Active coping Positive Reframing Acceptance Emotional Support Instrumental Support Planning Humour Religion Emotion focused coping = regulation of emotional responses that arise from the stress Self-distraction Denial Substance Use Behavioural Disengagement Venting Self-blame

6 Methodology - measures Coping Strategies The Brief COPE - 14 subscales: self-distraction, active coping, denial, substance use, use of emotional support, behavioural disengagement, venting, positive reframing, planning, humour, acceptance, religion and self-blame questions 2 for each subscale - Answers on scale of 1 (I don t do this at all) to 4 (I do this a lot) - Higher score = higher use of strategy

7 Methodology measures Physical Activity Levels International Physical Activity Questionnaire (IPAQ) - Frequency, intensity and duration - Over last 7 days days per week & number of minutes per session - Categories: vigorous, moderate, walking

8 Methodology measures Quality of Life The 36 Item Short-Form Health Survey (SF-36) Physical Component: - Physical functioning - Bodily Pain - General Health - Role limitations due to physical health Mental Component: - Energy/fatigue - Emotional well-being - Social Functioning - Role limitations due to emotional health 36 questions relating to 8 subcategories

Methodology - Statistical Analysis Completed in SPSS Final sample of 275 after removing outliers Spearmans correlation direction and strength of relationship Main

9 Methodology - Statistical Analysis Completed in SPSS Final sample of 275 after removing outliers Spearmans correlation direction and strength of relationship Main analysis: two hierarchical regression analyses for PCS and MCS controlled for age by entering first, then PA, then coping strategies that were found to be correlated to QoL

10 RESULTS

11 Quality of Life Mental (39/100) higher than physical (27/100) component score Physical component 11% of QoL predicted by PA and coping strategies Mental component 24% of QoL predicted by PA (walking and vigorous) and coping All small to moderate effects as so many other variables affect QoL. Future research

12 Coping & Quality of Life Most and least used strategies Subscales M SD Problem focused coping Active coping Positive reframing Acceptance Emotional support Instrumental support Planning Humour Religion Emotion focused coping Self-distraction Denial Substance use Behavioural disengagement Venting Self-blame Positive Predictor - Positive reframing Negative predictors - Self-blame - Substance use Predictors only in mental component

13 Physical Activity and Quality of Life 20% no PA at all Walking most common form of PA Category M SD Vigorous Moderate Positive Predictors - Vigorous PA - Walking Walking Total PA Minutes per week

14 Walking is just as effective as vigorous exercise for increasing QoL So what? Filled gap in literature Use of problem focused coping strategies more effective than emotion Possible benefit of psychological interventions to increase QoL by decreasing self-blame and increasing positive reframing Reiterates the importance of exercise

15 Main Points for POTS Patients Coping - increase use of positive reframing (look at things in a more positive light) - minimise self-blame Physical Activity - Increase physical activity levels every little helps!

Avoidant Coping Moderates the Association between Anxiety and Physical Functioning in Patients with Chronic Heart Failure

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