Youth Rally 2016 & Beyond

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1 Youth Rally 2016 & Beyond Living Independently for Tomorrow You Are Not Alone Rally is a unique opportunity for young people with a range of conditions affecting the bladder and bowel systems to 2016 Youth Rally Campers Seattle, WA Learn Reflect Grow Emote LAUGH SHARE BE THEMSELVES! YOUTH RALLY MISSION: To provide an environment for adolescents living with conditions of the bowel and bladder that encourages self-confidence and independent living. to as many kids as possible! Youth Rally is a recognized 501(c)(3) organization all donations are tax deductible all donations to support programming and camper sponsorship! CAMPER SPONSORSHIP AVAILABLE: no child is ever turned away due to financial hardship 1

2 Rally Goals: Promote self confidence Provide mentorship Foster peer-to-peer learning HAVE FUN!!! On-site Education: Medical Diagnoses Condition Management Self-esteem Social Issues & Team Building Making good decisions Preparing for High School/College Youth Rally Committee, Inc 9/29/16 4 Who are Youth Rally Campers?? Youth Ages with ANY affliction to their bowel and/or bladder systems! Many are living with: Ostomy surgery Continent diversion Bladder augmentation Incontinence over 54 types of boweland bladder conditions (to date)!! The Youth Rally has been successful thanks to the ongoing support of it s many community partners: and so many more, Youth Rally Committee, Inc 9/29/16 including individuals like YOU! 2

3 The Youth Rally "Staff" 100% Volunteer!! Counselors living with the same conditions as the campers (many of them former campers Nurses specializing in the treatment of these conditions (some of whom live with them too!) Behavioral health specialists Photographers. All of them MENTORS! Youth Rally Committee, Inc An Inside Look inside Youth Rally 2016 July 25 th 30 th University of Washington,Seattle The 2016 Youth Rally Marks Our 38 th Year 128 Campers 16 Nurses 39 Counselors 11 Counselors-in-Training 14 Administrative Staff Campers came from throughout the United States Staff came from the United States, Canada & Belgium 3

4 Several Staff Members arrived on Thursday the week prior.. Thursday -- Sunday Dorm/Infrastructure Set-up Counselor & Staff Orientation Preparing for the Campers 10 Youth Rally Committee, Inc 9/29/16 A Full-day Counselor and Staff Orientation on Sunday Continuing Education Policy & Procedure Medical Information Working with children Program Information Theme integration Set up Supplies Offices Rooms/Lounges Crafts Monday Camper Arrival Day Campers Arrive by Air & Car GetSettled into Dorm Rooms Yearbook Portrait Hand In or Make Door Signs Meet Individually with Rally Nurse Free Time To Get Acquainted Camper Orientation Campus Rules 12 4

5 Camper Arrivals Opening Night Bowling Party Theme was Crazy Hair and Wacky Wear Rally Tuesday Morning: Medical Education Session Medical Diagnosis Discussion Groups Afternoon: Free Time on Campus Evening: Introduction to Journaling 15 Youth Rally Committee, Inc 9/29/16 5

6 Medical Education Session Medical Conditions Self-image Understanding Group Discussions by Diagnosis Campers break into small groups Grouped by diagnosis Counselors facilitate Join the group with their own diagnosis Share personal experience Can relate to campers Nurses lead groups Answer medical questions Offer guidance and support Medical Diagnosis Discussion Groups 6

7 Rally Camper Diagnosis Youth Rally serves over54 Diagnosis of Bowel & Bladder disorders Here is a partiallist: Anal Rectal Malformation Crohn s Disease Chronic Bowel Obstruction Alagille & Byler s Syndrome Cloacal Exstrophy Spina Bifida Bladder Exstrophy Hirschsprung s Disease Ulcerative Colitis Neurogenic Bowel and/or Bladder Post Urethral Valves GI Dysmotility Short Bowel Syndrome Polyposis Syndrome Duplicate Renal System Neurofibromatosis Free Time Activities Introduction to Journaling 7

8 Rally Wednesday Morning: Fitness Center Afternoon: Self-esteem Sessions & JournalingActivity Evening: Talent Show & Lip Synch Battle Fitness Morning Self-Esteem Sessions & Journaling Activity 8

9 Rally Has Talent! Rally s First Lip Synch Battle! Rally Thursday Our Full-day Field Trip to Seattle s Green Lake 27 Youth Rally Committee, Inc 9

10 Field Trip to Green Lake Field Trip to Green Lake Rally Friday Morning: Motivational Speakers Thank You Notes & Evaluations Afternoon: Free Time & Beauty Shop Evening: Rally Dance and Graduation 30 Youth Rally Committee, Inc 9/29/16 10

11 Motivational Speakers Thank You Notes & Evaluations Rally Beauty Shop 11

12 Rally Dance and Graduation This year s theme was Under the Sea Rally Dance and Graduation Rally Dance and Graduation 12

13 Saturday departures Until Next Year! Feedback comes in many forms The Youth Rally leadership team (100% volunteer) receives positive letters, s and Facebook comments from campers, caregivers, and parents throughout the year! Feedback is important! The Youth Rally leadership team (100% volunteer) is continually updating programs and operations to remain innovative, progressive, and forward-thinking 13

14 Comments from a new camper:..i had never flown alone before, orgone somewhere without knowing someone I cried a little on the plane ride there. Once off the plane, I saw a Rally shirt and was able to breathe alittle. The Counselor was there to lead the way. As soon as I got on the bus I saw the white "YOU ARE NOT ALONE" bracelets, I knew I was safe and going to have a good time. That one little thing just about made me cry. The whole week helped me tobecome more confident and independent. Thankyou Rally! I cannow sayi am well. If one is not emotionally healthy, its more difficult to be physically healthy. I hope to be a CIT this coming year More Camper Comments: I had the time of my life at Rally All the friends I met at Rally really helped me (emotionally) I would neverbe so happy with myself until I went to Rally. Thank You to everyone!! Rally is the best thing that ever happened to me with my medical things It gave me the confidence to do what I want in life... taught me that I can do more than I thought I could I just want to thank everyone for the time I had.it changed my life. I came back a whole different person. My mom couldn't believe the new me. I told her that I didn't care what people thought of me anymore. I am who I am, and I can't change that, and I wouldn't change it either. Youth Rally Parents Say: I did want to take a minute to thank you and the rest of the amazing staff at the Youth Rally. Since this wasour first year joining the group, we did not knowwhat to expect I must tell you on behalf of my husband and myself a big Wow! goes out to all of you. Our daughter is having such a great time and I just want to thank you for that. I know how much hard work goes into Rally on yourend. You reallydo make a difference -- not just the kids lives, but the parents as well. It's really hardfor some of us to let go of our kids and "turn it over". 14

15 ME1 Social Media allows you to keep up with us during the week! QUOTES FROM PARENTS: It has only been 24 hours but I can see by the video, as well as the feeling in my soul, which says my son is in great hands with all of you. I look forward to tomorrow's video. I forgot to thank you for thewonderful advantage you all supplied the parents with by letting us see what a good time the kids were having everyday seeing our daughter having so much fun and smiling and laughing I haven't been able to see that for a longtime. Youth Rally 2017 San Diego, California July 17 th 22 nd, 2017 San Diego State University How You Can Help Tell your patients Tell your friends! Send your child Visit our Amazon Wish List Sponsor a program event Like us on FaceBook Sponsor a camper Volunteer! learn how at DONATE! 15

16 Slide 43 ME1 Mallar, Emily, 09/30/16

17 Visit our website! SEE YOU IN 2017! 16

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