The EU-GENIE Intervention. Anne Kennedy University of Southampton

Transcription

1 The EU-GENIE Intervention Anne Kennedy University of Southampton

2 EU-GENIE What it is and how to do it UK Case study findings How and why does it work?

3 EU-GENIE Online Intervention Map social network/personal community in circle diagram Complete on-line preference questionnaire Link interests to database and Google map of local activities and resources

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6 Systems of support GPs Nurses Occupational therapists Psychiatrists Podiatrists Pharmacists Diabetologists Rheumatologists Cardiologists Neurologists Physiotherapists People with LTCs Health trainers Social prescribers Traditional healers Faith healers Herbalists Social workers Legal agents (police, lawyers) Religious or spiritual leaders Supervisors (bosses, teachers) Community wardens Support groups Lunch/Tea clubs Internet-based discussion groups Religious groups Ethnic groups Sports groups Other social groups Spouse/Partner Children Grandchildren Parents Siblings Other relatives Friends Pets Neighbours Colleagues Classmates Acquaintances

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8 If I was struggling, which one would I talk to? It would be my daughter, the first port of call...the GP wouldn t to them I m just another figure aren t I? The Minister comes around occasionally. And if I needed help I think I could get it from there. We cut out all the processed food and my wife does a lot I was told off by one nurse and threatened with injections if I didn t pull myself together Then any appointments I ve got at the hospital she checks my correspondence. She works in finance so any forms want filling in she will do that for me. When we go out in a taxi I have to make sure they send if it s the minibus the one that s got 3 steps that go up because there s no way I can get up that other one so I have to explain but I don t now because they know I m lucky because I only use a certain company and if I m going he says is it for you and I say yes and he ll say OK and he knows, he said we ve got you on file for a long time. you feel that you re a burden, there s a tendency to snap at your family, and I find when we re going to the group I switched off from all this and I m going and have a bit of a laugh and fun, and yesterday we had a chap coming and singing folk songs and, your mind s taken off I walk the dog, I mean that s like 3 miles a day cos I wouldn t be walking three miles without the dog (laughs) I mean without the dog the exercise would be probably drastically cut.

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10 Questions Categories I am interested in doing creative things Activities READING AND CREATIVE WRITING ARTS AND CRAFTS DRAMA AND MUSIC I would like to know more about social activities Activities SOCIAL CLUBS I would like to learn more about my health Health HEALTH CONDITIONS I would like to lose weight Health WEIGHT MANAGEMENT I would like to get fitter Health FITNESS AND EXERCISE SWIMMING WALKING AND OUTDOOR ACTIVITIES Learning I would like to learn new skills or complete a course I look after someone e.g. a relative Support SUPPORT FOR CARERS EDUCATION AND LEARNING I don't see other people very often Support SUPPPORT FOR YOU COUNSELLING SUPPORT FOR YOU BEFRIENDING I would like to know more about things that will help me remain independent I would like to know more about community transport I would like to help other people Independent living Independent living Volunteering HOME SUPPORT FINANCIAL AND BENEFITS ADVICE COMMUNITY TRANSPORT

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12 UK Case Study Case study with 15 participants living with type 2 diabetes Intervention facilitated in a community setting by non-health care professionals (Health Trainers, Care Navigators, researcher) Two training days with Health Trainers, Care Navigators and managers Video recording of intervention, researcher observation, postintervention interview Follow up: 2 week telephone interview; 6 month face to face interview; 12 month telephone interview Intervention video and evaluation interview analysed using Normalisation Process Theory to establish the acceptability and relevance of the tool

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14 Findings All participants increased their engagement in local community activities Raised patient s awareness of their personal network (navigation and negotiation) Weaker ties are valued and seem to be more durable overtime Importance of visual image (of network and Google map) to enable engagement Highlighted the importance of collective efficacy

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20 How EU-GENIE Works 1. Positive disruption of established ways of getting selfmanagement support through seeing and engaging with network map. 2. Reflection on who is in a network opens up possibilities for thinking about different ways of getting support. 3. Finding out preferences for enjoyed activities is important in the process of reconstructing self-management support. 4. Reversing the focus on the self to focus on others in a network assists with reflection and reviewing options. 5. Facilitation helps the process especially where there is partnership and reciprocity within the discussion. 6. Access to definitive resources via a reliable database is needed to connect to and mobilise broader selfmanagement options.

21 It s useful to see that one thing leads to another. The intervention led to talking to (health trainer), and then talking to (health trainer) led to seeing the poster and that led to the table tennis and now that s going to lead on to Pilates. So there is a general progression. So yes, I have benefitted quite a bit..that has happened and you can quite easily track it from one to the other to the other. And here I am talking to you, looking at charts and things I think overall the whole thing has been a benefit ID07 GENIE video clip

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