Patton Gives Back First Annual

Size: px

Start display at page:

Download "Patton Gives Back First Annual"

Florence Edwards
6 years ago
Views:

Patton Gives Back First Annual 5K and Family Fun Day To benefit Parent Project Muscular Dystrophy In honor of Elliott and Henry Johnson Date: October 31, 2009 Time: 8:30 am Place: Charles F.

1 Patton Gives Back First Annual 5K and Family Fun Day To benefit Parent Project Muscular Dystrophy In honor of Elliott and Henry Johnson Date: October 31, 2009 Time: 8:30 am Place: Charles F. Patton Middle School Kennett Square, PA Events: 5K walk/run, Toddler Trot, Kids Dash, Games, Crafts, Clown, Prize Hunt, Costumes For more information please contact: Marcia DiGregorio (610) ext 3882

Our Mission To improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion.

2 Our Mission To improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. About Duchenne muscular dystrophy (Duchenne) Duchenne is the most common fatal genetic disorder diagnosed during early childhood. Duchenne is a progressive muscle disorder that causes loss of muscle function and independence. Duchenne affects approximately one out of every 3,500 boys and 20,000 babies born each year worldwide. Duchenne manifests primarily in boys because the affected gene is found on the X- chromosome. There are approximately 15,000 young men with Duchenne alive today in the United States. Duchenne can occur during any pregnancy regardless of family history. To date, there is no cure or treatment to stop the progression of Duchenne, and young men with Duchenne typically live only into their twenties. About Parent Project Muscular Dystrophy (PPMD) Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy. In part because of the efforts of PPMD, families affected by Duchenne have better access to state-of-the-art care information, research is moving forward at an accelerated pace, and legislation now exists funding Duchenne research and outreach programs. Parent Project Muscular Dystrophy is not only a name that reflects our grassroots origins, parent-let focus and passion, but also a name recognized around the world as the leader in the Duchenne community. Parent Project Muscular Dystrophy holds the highest ethical standards and consistently receives high marks from watchdog organizations. Parent Project Muscular Dystrophy is the only Duchenne organization that takes a comprehensive approach in the fight against Duchenne funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options.

3 A message from the Johnson Family: Hello, we are the Johnson Family: Paul, Joanna, Elliott and Henry. In the summer of 2007, we received the news that our first son Elliott, now 5 years old, had Duchenne muscular dystrophy. That news devastated us, but it wasn't over. Soon after we learned that our youngest son Henry (3) also had Duchenne. So in a matter of a month our lives were turned upside down and we were struggling to cope. As we learned more about this disorder, we began to feel more and more powerless and isolated. We felt like the sun would never shine again in our home. But in our very darkest hour, so many people reached out to us, willing to do anything to help. Because of that, we started to have hope. We started to believe that we could fight this. We started to believe that we could make a change that would end Duchenne. In our efforts to make that change, we became involved with Parent Project Muscular Dystrophy (PPMD). PPMD is an organization founded by parents, like us, who when faced with this diagnosis refused to believe that nothing could be done to help their sons. Their commitment to fight Duchenne is unwavering. This past December, Elliott, along with 170 other boys worldwide, began a year-long clinical trial for an experimental drug. However, this potential treatment will only help approximately 15% of the boys with Duchenne. There needs to be research to find treatments that will help the other 85% of the boys. PPMD is currently helping to fund research of treatments needed to make a change for this and future generations of boys. But those efforts can only continue through the financial support of others. Elliott knows his muscles are different; but to him that just means that he can't run as fast or jump as high as his friends. He isn't aware of what the future will hold for him or his little brother, Henry. We are striving for a reality where they never have to learn what that could be. Hopefully with your support they and many other boys and young men won't have to. So from our family to yours, we'd like to thank you for supporting Patton Gives Back - Run For Our Sons 5K and Parent Project Muscular Dystrophy. Please know that your efforts are helping to change the future for boys like Elliott and Henry and bringing hope to families like ours. A message from the student members of Patton Gives Back: Being a part of the Patton Gives Back Club has really opened our eyes to opportunities. We realized that there are so many less fortunate people in this world and in our community in need of help. Being 14 years old, who we are is still unclear. However, being a part of this club has taught us a valuable lesson on the people we want to become. We have learned that through giving we get so much more in return. We have learned that together we are more than ourselves. We think it is our turn to come together to make it better. We think it is our way of showing we care. We are a team working together for one common cause. Together We Can End Duchenne!

4 Sponsor Information A link to the event s website will be posted on the Unionville Chadds Ford School District website. ( ) Bronze level: $250-$499 A Bronze sponsor will get the following benefits: Their company name displayed on the Parent Project Muscular Dystrophy website. ( ) Sponsor provided coupons included in race day packet One complimentary race day admission Silver level: $500-$749 A Silver sponsor will get all of the benefits of Bronze sponsorship plus: Sponsor name on billboard at finish line Two complimentary race day admissions Gold level: $750-$999 A Gold sponsor will get all of the benefits of Silver sponsorship plus: Sponsor name on t-shirt Sponsor provided banner hung on race day Three complimentary race day admissions Platinum level: $1,000 + A Platinum sponsor will get all of the benefits of Gold sponsorship plus: Top billing to sponsor name on billboard at finish line Sponsor name in bold on t-shirt Four complimentary race day admissions Sponsor name included in all promotional materials including press releases if accepted by media outlet

5 Sponsor Registration Form Patton Gives Back First Annual Run For Our Sons Thank you very much for donating to PPMD. We sincerely appreciate all you have done. Please fill out the information below: Contact Information: Company Name: Contact Name: Street Address: City, State, Zip: Phone Number: Address: Donation Level: Bronze - Silver- Gold- Platinum- Donor Signature: Questions? Please contact: Marcia DiGregorio 760 Unionville Road Kennett Square PA Phone: ext 3882 Fax: Checks made payable to Parent Project Muscular Dystrophy ( PPMD is a 501c3 charity and all donations are tax deductible. PPMD is a part of the Better Business Bureau, National Health Council. PPMD is rated as a 4 star charity on the site charity navigator.

6 In-Kind Donation Form Patton Gives Back First Annual Run For Our Sons (Donations of goods or services, i.e.: food, location, or any material items donated for the event) Thank you very much for donating to PPMD. We sincerely appreciate all you have done. Please fill out the information below: Date: Donor Information: Company Name: Street Address: City, State, Zip: Corporate Contact: Phone Number: Address: Fax: Donation: Item Description: Declared Value: $ Donor Signature: Please Mail, Fax or form to: Attn: Marcia DiGregorio 760 Unionville Road Kennett Square PA Fax: mdigreg@ucfsd.org Parent Project Muscular Dystrophy is a 501(c) (3)-{# }

To benefit Parent Project Muscular Dystrophy In honor of Elliott and Henry Johnson

To benefit Parent Project Muscular Dystrophy In honor of Elliott and Henry Johnson Date: April 21, 2018 Time: 9:00 AM race time (8:00 AM registration opens) Place: Charles F. Patton Middle School Kennett