Pinderfields. Macmillan Information centre report. Quarter 2

Transcription

1 Pinderfields Macmillan Information centre report Quarter 2 1

2 July-September 2017 The Mid Yorkshire Hospitals NHS Trust provides care to the communities of Wakefield, Pontefract and North Kirklees, a population of over 550,000 people; the areas of South Leeds, North Yorkshire, Barnsley and Doncaster are also served by the Trust. Services are provided from the three hospital sites: Pinderfields Hospital; Dewsbury and District Hospital; and Pontefract Hospital. The Trust, which is one of the largest providers of cancer care in the Yorkshire and Humber Strategic Clinical Network (YHSCN) recognises that cancer information for patients, relatives and carers is an essential element of care and will support services to make the patient/carer experience better. Our Macmillan Cancer Information Centre provides a visible central point of access to support, information, advice and signposting not only for those patients (and their carers) who are on a cancer pathway, but to those undergoing investigation who have not yet had the opportunity to see a Clinical Nurse Specialist. It also provides support to patients living with and beyond cancer who may benefit from survivorship and selfhelp programmes of care, raise awareness and meet the information needs of the general public. The information centre builds upon the principles set by the NHS Cancer Reform Strategy in order to offer excellence in the delivery of service. It promotes lifestyle changes and cancer awareness in the local community to focus on prevention and early diagnosis. The following is a report on Macmillan service user data collected in July to September The report shows a high number of referrals (267) were received directly from Cancer Nurse Specialists in the trust and that welfare rights was the most frequently requested support. Patients who are at the palliative care stage of the cancer are the most frequently support service users and more than 674 people had contact with the centre for the 3 month period. 2

3 Total number of contacts to the centre NB: 674 contacts to the centre, 377 Females, 297 Males. Contacts can be face to face, , phone or letter. Time spent with service users NB: average visit is between minutes over 202 contacts exceeded 30 minutes 3

4 Level of intervention NB: See Appendix 1 for Levels of Intervention Criteria the chart shows level 3 is highest, this requires referrals to be made to other sources of support. Level 4 requires 2 or more referrals to be made. Type of service user 4

5 NB: 439 service users were patients who have cancer, 96 service users were carers of patients and 59 were family How heard about service NB: Cancer Nurse Specialists referred 267 patients into the centre. The average time spent dealing with the CNS referrals is 30 minutes. Cancer site 5

6 NB: Lung remains the highest which is similar throughout all quarterly reports. Cancer Nurse Referrals NB: the chart shows that the lung cancer nurses placed the highest number of patients. The PAL after the cancer site is an indication that the palliative care team made the referral for that cancer site. Percentages of patients contacting the service 6

7 referred on the pathway per clinical site NB: the chart shows that a large number of patients with lung, Upper GI, Gynae, and head & neck cancer, who accessed the service, were referred via their cancer nurse. Stage of Pathway NB: Receiving Palliative care and undergoing treatment are significantly higher than the other stages and this is similar to the previous quarter. Type of support required Emotional 7

8 NB: 170 service users used the centre as a place to come to talk about their issues and get support with 38 specifically looking for counselling and 1 with relationship issues. Practical NB: 372 service users required information about benefits, 144 required local services information and 92 required practical information about travel. Clinical 8

9 NB: the side effect of treatment were the most common clinical concern Actions or outputs NB: 116 service users required help completing forms and 16 applied for the Macmillan grant. This requires a minimum of 40 minutes to complete so an average of 88 hours were spent completing forms. Signposts 9

10 NB: the centre provided 25 signposting back to Healthcare professionals and CNS for signs or symptoms which ensured health wellbeing for patients. Referrals NB: 219 referrals were made to Welfare Benefits team to help complete forms. The minimum disability benefit received is 82.30pw so the centre helped claim in benefits for those patients for the year in quarter 3. Drop in sessions 10

11 Drop in sessions are held every Thursday at the Cavell unit Dewsbury hospital and every Friday 9-12 at Pontefract hospital haematology unit. Dewsbury drop in 6 patients attended the drop in during quarter 3 for additional support. Pontefract drop in 5 patients attended drop in at Pontefract hospital for support. Case study example What happened? Patient s carer attended the Macmillan centre at Pinderfields for support. His wife had recently being admitted to hospital with metastatic bowel cancer and he wanted emotional support and to find out more about cancer services and support available for his wife. Action completed Macmillan staff member visited the patient on the ward and provided emotional support to patient and carer. The patient was also struggling to understand what she has being told on the ward about her cancer and wanted someone to come and speak to her. A referral was made to the colorectal team and a CNS visited the ward later that day to provide support and discuss her cancer. Following the visit the CNS made a referral with a DS1500 to the Macmillan centre, who then contacted the patient to sort a blue badge and benefits. The conversation highlighted issues that the patient was having at home, so a referral was made to the Age UK team to provide a home visit to complete an assessment and arrange support. The patient was then readmitted and visited the centre for support as his wife had further metastasis and was very poorly. Emotional support was provided and the CNS was advised that the patient was in hospital, so a further visit to the patient could be arranged on the ward. Outcome The patient and carer felt supported and informed about diagnosis and treatment and were able to access further support and financial advice. This helped to reassure them and gave them contacts within the hospital that can help as well as looking after their emotional wellbeing. 11

12 Compliments received in writing at the centre I visited the Macmillan centre last year when my Mum was diagnosed with incurable cancer. The staff member helped by listening to me and my concerns and explained the different options for care at end of life. This helped me to make arrangements for my Mum and ensured that at end of life, she was supported. Thank you for visiting my Dad today, it helps me knowing that somebody is seeing him whilst I am so far away from him in Spain! I understand that he was happy and receptive when he spoke to you, which is good and he is very much looking forward to going to the Rosewood centre next week. Compliments from Staff I just wanted to let you know that I have seen the patient we discussed a few weeks ago and she said that you had managed to get in touch with her. She was very complimentary about the support she received and found it of great use. Outreach events Detail of event Date Lung cancer group- Wakefield hospice Marks & Spencer Castleford awareness stand Macmillan coffee morning Look Good Feel Good The Look Good feel Good Masterclass was help on the 30 th August 2017 at Pinderfields Education centre and 5 ladies attended for pampering and make up advice. Feedback from the ladies was that they had gained confidence as a result of the Masterclass and had enjoyed meeting other breast cancer patients and the experience was very enjoyable. The Masterclass was facilitated by a member of the Macmillan Information centre team and had 3 beauty therapy volunteers providing advice to the breast cancer patients. The sessions for Look Good Feel Good have now being cancelled by the organisation and future sessions will be held at Wakefield Hospice, patients can book directly or through the Macmillan centre. Penny Brohn Emotional wellbeing & Stress course 12

13 The emotional wellbeing and managing stress workshop are held at the Mid Yorkshire trust education centre and patients learn skills such as mindfulness, relaxation and goal setting to help them to cope with living with and beyond cancer. The sessions are 2.5 hours and are held each month; a total of 12 people attended the workshops for support and help managing stress and emotional wellbeing. Headscarves service The Macmillan centre at Pinderfields now has a stock of head scarves available for a suggested donation. This will provide a place for patients to try on scarves without the need to travel or order online. Patient participation The Macmillan manager attended the patient participation group on the 12 th July and 22 nd September; to report data for the centre and receive feedback on patient surveys and the overall service provided to those affected by cancer. Staff Training Advanced communication skills training (2 days July) Living with and beyond cancer conference (September) Appendix 1: Macmillan Levels of Intervention Criteria LEVEL 1 Interaction of five minutes or less(face-to-face, telephone or ) Specific enquiry (likely to be single topic) Outcome will be answering enquiry verbally, provision of one or two items of information, or signposting Worker/volunteer takes no further action Further contact unlikely LEVEL 2 One to one interaction that involves discussion (face-to-face or telephone) to assess person s information needs Worker/volunteer provides verbal support as part of interaction to enable user to understand the information in order to be reassured, make a decision, or take action User requires information involving more than one topic Outcome will be formal referral or some other further action by the worker/volunteer following the visit 50% possibility of further support required at follow up stage LEVEL 3 One to one interaction that involves discussion (face-to-face, telephone) to assess person s information needs Worker/volunteer provides verbal support as part of interaction to enable user to understand the information in order to be reassured, make a decision, or take action 13

14 User has complex or multiple issues that cross at least two information areas (e.g. cancer information and finance) Outcome will involve at least one further action by the worker/volunteer other than or as well as referral More than 50% chance of further support required at follow up LEVEL 4 One to one interaction that involves discussion (face-to-face, telephone) to assess person s information needs Worker/volunteer provides verbal support as part of interaction to enable user to understand the information in order to be reassured, make a decision, or take action User has complex or multiple issues that cross at least two information areas including therapeutic or treatment decisions/actions Follow-up action by worker/volunteer is essential within one week At least one further action at follow up expected 14