Nuestra Casa: Achievements and lessons learned in conducting an ACMS strategy

Transcription

1 Nuestra Casa: Achievements and lessons learned in conducting an ACMS strategy Dr. Eva Moya, Dr. Blanca Lomeli and Bruno Poncon Project Concern International SOLUCION TB Innovative ACMS to address TB and TB-HIV challenges 41st Union World Conference on Lung Health November 14, 2010 Berlin, Germany

2 Project Objectives Increase TB detection and cure rates. Improve collaboration between TB, HIV and Diabetes Mellitus programs to reduce risk of infection and increase information and co-morbidity detection. Promote a person-centered approach in health services and in the community. Mitigate stigma and discrimination in TB, HIV and DM care.

3 Scope and Locations Initiated in Tijuana and Mexicali in Baja California in 2004 Expanded to 12 states in 2008 The focus in is on TB co-morbidity management (TB/HIV & TB/DM) ṠTB Participating Jurisdictions

4 Strategies Recruitment and training of dedicated health workers for TB care DOTS Team PATB ACMS Advocacy, Communication and Social Mobilization SSA Strengthen Skills and competencies of health personnel, PATB and project stakeholders

5 Text best practices

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9 Background Photos courtesy of Oaxaca In 2007: Damien Schumann developed the TB/HIV Shack representing a typical South African, low-income dwelling, to raise awareness about one of the settings where TB and HIV/AIDS coexist. In 2009: Project Concern International, USMBHA, Mexico s National TB Program with financing from USAID Mexico, took on the adaptation of the TB/HIV Shack to Mexico and develop Nuestra Casa Nuestra Casa resulted from the need to reinforce the ACSM efforts for the prevention and control of TB in Mexico.

10 The TB/HIV Shack

11 Photos courtesy of Reynosa TB SOLUCION Project Representation Stories of the struggle to phase the social reality and surrounding conditions of TB Stories of hope, resilience and stigma dealing with TB; personal stories as well as stories of entire communities taking action

12 Nuestra Casa

13 Nuestra Casa is: A Touring Project for TB ACSM A three-dimensional house which reflects the life and stories of people affected by tuberculosis, their surroundings and their messages of reality and hope. Photo: Courtey of Medicina Social Comunitaria An ACSM tool to promote action among decision makers, health care providers, and the public in general to get involved to prevent the spread of TB, reducing the number of cases and deaths caused by it.

14 Nuestra Casa, a place where persons affected by TB interact with local, state, national and international decision makers

15 Between October 2009 and June 2010, there were four exhibitions in Mexico and two in the U.S. More than 23,900 persons from all backgrounds visited the Nuestra Casa.

16 5. Tijuana 900 visitors 1. El Paso, Texas: 3000 visitors 4. Reynosa: 800 visitors 6. Centers for Disease Control and Prevention Global Odyssey Museum: 17,000 visitors 3. Oaxaca: 700 visitors th UNION Conference in Mexico: more than 1500 visitors

17 Exhibition Comments "I am now rethinking my career path so that I can do research to contribute to the efforts to combat TB. Also, I want to go abroad so that I can actively help out. Atlanta, Georgia Spirit of change starts with your presence here at Nuestra Casa Union International Conference on Tuberculosis and Lung Health, Cancún México [Nuestra Casa] It touched my heart. You guys opened my eyes to the illness. So glad I came by to see it. Oaxaca, México It's a very emotional presentation, though somewhat shocking. Sometimes it is necessary to take these steps to let people know the reality of such a common, yet deadly, problem. Reynosa, Tamaulipas México

18 It was a great experience with contradictory feeling[s]; it shows the pain of the people who suffer from TB and gives the strength to remove the disease from our community. Oaxaca, México Very interesting, it urges all of us to be informed and put a stop to TB. Tijuana, México Nuestra Casa profoundly moved our audiences at the Global Health Odyssey Museum at the Centers for Disease Control and Prevention. From public health professionals from around the world to young people, individuals left the exhibition with an emotional understanding of the challenges of TB prevention, and the connection between the disease and issues of poverty. Damian Schumann, the South African artist who worked with TB Photovoice participants and the border communities affected by TB along the U.S.-Mexico border, highlighted how persons affected by TB can b tell public health stories in innovative, meaningful and emotionally resonating ways. Louise E. Shaw, Curator, Global Health Odyssey Museum

19 Media and Press

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23 Lessons Learned ACMS strategies need to effectively raise awareness, mobilize community members and leaders, and empower and engage PATB, to successfully prevent and control the diseases and its repercussions. In addition, a person-centered approach to service delivery is required to improve detection, treatment, adherence, cure, and to mitigate all forms of stigma related to TB. Nuestra Casa is a powerful communication, advocacy and social mobilization intervention to increase social and political will to improve TB prevention and control and to mitigate stigma. Community participation, as well as involvement of TB affected persons has increased and is now fundamental for successful social mobilization.

24 Lessons Learned The TB Photovoice testimonies and photographs are now part of the mobile exhibit. Partnerships and collaborative actions are essential. Through partnerships, six exhibitions were launched, multiple advocacy events were organized, in-kind contributions were secured (i.e., media, health and academic sectors) and commitments from policy and decision makers for TB/HIV care were established. Financial resources are necessary to mobilize, disseminate and amplify the touring exhibition beyond local communities.

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26 Thank you Gracias For more information: