MINUTES OF THE TRUSTWIDE CARERS FORUM Conference Room, Jenner House, Chippenham 11 April am 1pm

Transcription

1 MINUTES OF THE TRUSTWIDE CARERS FORUM Conference Room, Jenner House, Chippenham 11 April am 1pm Present: Sally Wood, Patient Experience Manager, (SW) - Chair Teresa Bridges AWP Involvement Coordinator Wilts (TB) Linda Hutchings, Head of Patient Safety Systems (LH) Simon Gerrard, AWP Communications team (SG) Stuart Wood, Administrator (StW) Tricia Long, Carer Rep, Wilts (TL) Duncan McGibbon, BaNES Forum (DM) Neil McIntosh, Carers Support Centre, Bristol and S.Glos (NM) Sally Luxton, Carer Associate Trainer (SL) Diane Barkham, Swindon Carers Centre (DB) Laura Wells, Wiltshire Carers Support (LW) Derek Dominey, S Glos (DD) David Walker, Carer (DW) Mary Marchant, Carer (MM) Clare Abrahams, BaNES Carers Centre (CA) Lynne Newbury, Bristol Mental Health (LN) Apologies: Andrew Dean, Director of Nursing and Quality (AD) Ivor Bermingham, Involvement Coordinator, Swindon (IB) Alison Cox, carer (AC) Marion Dixon, AWP, Carer Lead North Somerset (MD) Becca Pike, Carer Lead, BaNES (BP) Penny Stanbury, IC Specialised Services, (PS) Luisa Suarez, Involvement Coordinator, Secure Services (LS) Jo Collins, PALS Manager (JC) Bev Nottingham, Keep Safe, Keep Sane, BaNES (BN) Lee Rawlings, Involvement Coordinator, BaNES (LR) Hazel Fowler, Rethink Carers Lead, Trowbridge (HF) Jaqui Justice, Phoenix Carers CEO (JJ) 1. Welcome, introductions, apologies: 1.1 Apologies given for Andrew Dean who was unable to attend. 2. Minutes of meeting held on 13 January 2016 and Matters Arising: It was confirmed that the minutes were an accurate record of the last meeting, with one amendment; add e to Derek Dominy for correct spelling Dominey. 2.1 Discussion around s being listed on the bottom of the minutes some people weren t happy with this at the previous meeting. It was decided that, from the next meeting onwards, attendees would inform us if they did NOT want their s listed. Otherwise they would be listed in the minutes. Action: to put this into place starting from the next meeting. 2.2 SG opened a discussion around the carer s charter. NM raised that she did not want the charter to change without the carers knowledge, to which others agreed. SG assured everyone this would not occur. TL noted that the implementation of the charter was as important as the wording of the charter itself, and suggested creating Page 1 of 5

2 some laminated displays containing key words from the Charter and placing them around wards and clinical environments. Action: LH to consider this as part of the implementation plan that is being put together for the next meeting. 2.3 Further discussion around the implementation plan. Agreement that it will be coproduced to give the carers input, and decided that this should be a timed plan to ensure its completion. SW suggested the deadline is set for the Carers Forum meeting taking place during Carers Week Monday 6 th June. Action: SG stated he will bring a plan from the Comms team to the next meeting on the 24 th May, and that anyone who wants to become a media spokesperson regarding the Carer s Charter should speak to him. 2.4 TL raised a general dissatisfaction with the attitudes of some staff towards carers, and how the issue of confidentiality can be a barrier to care. He said that the Charter is important to help keep staff informed about how to work effectively with carers, to which many others present agreed. 2.5 General dissatisfaction also raised from TL and DM about the uncertainty surrounding the AWP consultation and members of the carers forum not being sure who they can liaise with. LH explained that, following the departure of Lu Duhig, and pending the results of the consultation, there is no dedicated AWP carers lead, but that she is covering this post in the interim period, supported by Sally Wood. 2.6 All other actions from the previous meeting were completed. Agenda items this meeting: 4. The Service User and Carer Engagement and Involvement Strategy 4.1 LH explained that the existing strategy was due to expire this year and reported that Andrew Dean wished to launch a consultation on the content of the new strategy. LH had highlighted key components of the existing strategy in a slide show but stated that it was important that people did not feel constrained and felt able to comment in any way they wished. DW noted that the wording (ie I feel proud because we have improved mental health services ) feels somewhat patronizing, and suggested these statements are more aims for the future than goals we have already achieved. DM stated that the issues for carers and service users should not be mixed. A feedback mechanism would be established so that individuals could make their comments on the new strategy. Involvement Coordinators will have an important role in contacting individuals and groups in their areas., 4.2 Action: It was noted that SDAS need to be added to slide 4 featuring all the different localities that comprise the Carers Forum, and the group/s at South Glos need to be clarified. 4.3 It was raised that there is no dedicated involvement lead in Bristol for carers, only for service users. Action: LH to clarify with Bristol how the carers lead role is being covered. Page 2 of 5

3 4.4 The aims highlighted in the E&I strategy were discussed; felt generally that the wording should be softer and less corporate, ie heard not captured, possibly adding the phrase family friendly. It was also felt that the aims should be in the future tense people will be engaged rather than people are engaged. Lastly, it was agreed that the specific goals featured on slide 7 were useful and not an overload of information as they provide more tangible outcomes for the E&I strategy. 5. Review of the Work Plan 5.1 The implementation plan for the new carers charter was discussed previously in the meeting and as such was not discussed here. 5.2 Action: The Triangle of Care to feature on the agenda of the next meeting. 6. Any other business 6.1 DM brought up a report which criticises AWP s openness with patients and carers, and also stated that criticisms from the Care Quality Commission are never being discussed. Action: LH to discuss this list and AWP s place on it at the next Carer s Forum Meeting. 6.3 SW thanked Derek Dominey for his many years of representing the views of South Glos carers in the organisation, as he is stepping down from involvement following this meeting. Actions Item Responsible Details Response 2.1 Meeting chair Starting from the next Carers Forum meeting, to remove from these minutes the addresses of any attendees who inform us they do NOT want their addresses listed. 2.2 LH To include the rollout of the new carers charter in the workplan of the group. 2.3 SG To complete a plan for the comms team re: the implementation of the charter, and to bring this to the next meeting on the 24 th May. 4.2 LH SDAS to be added to slide 4 featuring all the different localities that comprise the Carers Forum, and the team/s at South Glos to be clarified. 4.3 LH To raise the issue of a dedicated lead for carers in Bristol with the locality. Page 3 of 5

4 5.2 Meeting chair 6.1 LH The Triangle of Care to feature on the agenda of the next meeting. LH to agenda the list regarding AWP s openness which DM raised at the meeting. Contact details for the Carers Forum AWP Carer Leads Newlands Anning, Swindon Kate Chisholm-Mitchell, Service Manager, S Glos Joi Demery, Bristol Marion Dixon, Consultant Psychologist, N Somerset Calum Meikeljohn, Secure Services Carol Bowes, Head of Quality, Wilts Becca Pike, Ward Manager, BaNES AWP Staff Jo Collins, PALS and Complaints Manager Lu Duhig, Service Improvement Facilitator, Carers Simon Gerard, Communications Simon Stacey, Manager Alder Unit, Rehab newlandsanning@nhs.net kate.chisholm-mitchell@nhs.net Joi.Demery@nhs.net marion.dixon1@nhs.net calum.meikeljohn@nhs.net Carol.Bowes@nhs.net rebeccapike@nhs.net jo.collins5@nhs.net lu.duhig@nhs.net simon.gerard@nhs.net simon.stacey1@nhs.net AWP Involvement Coordinators Ivor Bermingham, Involvement Coordinator, Swindon Teresa Bridges, Involvement Coordinator, Wiltshire Stephen Budd, involvement Coordinator, North Somerset Lee Rawlings, Involvement Coordinator, BaNES Emily James, Involvement Coordinator, R&D Gareth Sharman, SDAS Penny Stanbury, Involvement Coordinator, SDAS and Specialised Luisa Suarez, Involvement Coordinator, Secure i.bermingham@nhs.net teresa.bridges@nhs.net stephenbudd@nhs.net l.rawlings@nhs.net emilyjames2@nhs.net garethsharman@nhs.net p.stanbury@nhs.net Luisa.suarez@nhs.net Carers Alison Cox, Bristol, eating disorder service Hazel Fowler, Trowbridge carers support group David Kirkman Tricia Long, Wiltshire Sally Luxton, Wiltshire Bev Nottingham, B&NES, Keep safe Keep sane Bernice Robbins David Stevens, Trustee, Wilts Carers Centre alison.cox@bbc.co.uk rethink15@outlook.com dk007b7124@blueyonder.co.uk tricialong@live.com Sallux42@yahoo.co.uk bev@planetman.co.uk Bernice.robbins@icloud.com drdavidstevens@yahoo.com Page 4 of 5

5 Local Authority and Voluntary Sector Colleagues Karen Allen, Rethink, Bristol Diane Barkham, Swindon Tom Blowers, Carers Centre, Wiltshire Tom Fox-Proverbs, B&NES Carers Centre Neil Mcintosh, Bristol and S. Glos Carers Centre Margaret Price, Rethink, Bristol Maureen Waite, Carers Centre Wiltshire Karen Walters, Carers Programme Lead, Wiltshire Council Chief Executives of Carers Centres Jacqui Justice, Crossroads, N Som Sonia Hutchison, BANES Carers Centre Catharine Hurford, Carers Centre Wiltshire Keith Sinclair, Carers Centre, Bristol and S. Glos Young Carers Workers Julie Collar, Swindon Young Carers Jacqui.Justice@crossroadscaresw.org.uk Sonia.Hutchison@banescarerscentre.org.uk Catharine@carersinwiltshire.co.uk KeithSinclair@carerssupportcentre.org.uk Julie.Collar@swindoncarers.org.uk List updated May 2016 Page 5 of 5