@pfforg JOIN THE CONVERSATION FIND US ON SOCIAL MEDIA AT HASHTAGS. #PFMonth #BlueUp4PF. #PulmonaryFibrosis #MakeEveryBreathCount

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Edwina Richards
5 years ago
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1 JOIN THE CONVERSATION Each September, the Pulmonary Fibrosis Foundation (PFF) celebrates Pulmonary Fibrosis Awareness Month. This initiative relies heavily on social media participation to spread the word about pulmonary fibrosis (PF) all over the world. One of the first steps you can take is to follow and interact with us on our social media channels. In 2017, our awareness efforts reached more than 915,000 people on social media thanks to YOU! This year, we want awareness of pulmonary fibrosis to reach more than 1 million people. Will you help us spread awareness this September? Find us online with our handle, and use the hashtags below to start getting social! FIND US ON SOCIAL MEDIA AT HASHTAGS #PFMonth #BlueUp4PF #PulmonaryFibrosis #MakeEveryBreathCount

GET INFORMED: 30 FACTS IN 30 DAYS One of the best ways to spread awareness about pulmonary fibrosis is to educate others about the impact of this devastating disease.

2 GET INFORMED: 30 FACTS IN 30 DAYS One of the best ways to spread awareness about pulmonary fibrosis is to educate others about the impact of this devastating disease. Each September, the PFF launches 30 Facts In 30 Days via social media. This campaign shares trusted, medically accurate facts about PF. Be sure to follow us on social media for daily facts about PF and the Foundation. Thanks to your likes, shares, comments, and re-tweets last year, our 30 Facts In 30 Days series reached more than 400,000 people throughout September! #PFMonth #PFMonth #PFMonth

SHARE YOUR STORY: PORTRAITS OF PF The PFF is about people.

Last year, our Portraits of PF series reached more than 279,000

Our Portraits of PF series on Facebook will expand to a much more

greater volume of stories of our patients, caregivers, family

3 SHARE YOUR STORY: PORTRAITS OF PF The PFF is about people. Over 200,000 people fighting this disease have a story, and we would like to help share their stories. Sharing your story with the PFF is a powerful way to spread awareness. We hope to share as many stories as possible on social media. Last year, our Portraits of PF series reached more than 279,000 people across social media. Our Portraits of PF series on Facebook will expand to a much more frequent format in September so that we can best accommodate a greater volume of stories of our patients, caregivers, family members, those who have lost a loved one, friends, and medical professionals during that time. We invite you to share YOUR story in honor of yourself or your loved one. Send an to socialmedia@ now and we can help you get started!

GO BLUE WITH #BLUEUP4PF #BlueUp4PF is a social media and fundraising campaign

PF, we encourage you to show your support by wearing as much blue as you can,

In 2017, your efforts in this campaign helped spread our message to more than

There are several ways to participate in this campaign.

You can also personalize our printable sign to tell us where you are going

to go blue instead by changing their evening lighting to blue.

4 GO BLUE WITH #BLUEUP4PF #BlueUp4PF is a social media and fundraising campaign started by Diane Reichert, a PFF Ambassador and dedicated PF advocate who passed away in In celebration of her tireless spirit and in honor of all people living with PF, we encourage you to show your support by wearing as much blue as you can, taking a photo, then posting about it on social media using #BlueUp4PF! In 2017, your efforts in this campaign helped spread our message to more than 128,000 people via the PFF s social media channels. There are several ways to participate in this campaign. One activity is wearing a blue wig, or going all out and dyeing your hair blue. You can also personalize our printable sign to tell us where you are going blue. If blue isn t quite your color, you can ask a local building or landmark to go blue instead by changing their evening lighting to blue. Don t forget your PFF Breathe Bracelet! Bracelets are for sale at Shop-PFF.com and make a great awareness accessory. Download the selfie sign at bit.ly/pfmonth, and send pictures to us on social media or socialmedia@.

5 TELL US WHERE YOU ARE GOING BLUE In this global effort to spread awareness, we want to know where you are participating. Download and print our selfie sign, fill in your city, state, or organization, snap a photo, and let the world know! Download the selfie sign at bit.ly/pfmonth. Don t forget to wear blue! Whether you re going blue solo or with friends and family, use this selfie sign to fill in your city and state to let the world know where you are going blue. Do you want your organization, school, healthcare center, religious institution, or community center to join you in going blue? Use this selfie sign to fill in the name of your organization and take a group photo.

DECLARE SEPTEMBER PF AWARENESS MONTH IN YOUR COMMUNITY Declare

elected official for a signature and official declaration.

local newspaper, and email socialmedia@ to let us know about

A downloadable Microsoft Word version of the template is

6 DECLARE SEPTEMBER PF AWARENESS MONTH IN YOUR COMMUNITY Declare the month of September Pulmonary Fibrosis Awareness Month in your city or state. Fill in our free proclamation template and submit it to your elected official for a signature and official declaration. Then share your proclamation on social media, send it to your local newspaper, and socialmedia@ to let us know about your accomplishment! A downloadable Microsoft Word version of the template is available at bit.ly/pfmonth. By reaching out to your elected officials to declare September as Pulmonary Fibrosis Awareness Month, you helped spread the message to 107,000 people!

7 PERSONALIZE YOUR FACEBOOK PROFILE Let your friends and family on Facebook know that you support Pulmonary Fibrosis Awareness Month! Download our cover photo and profile pictures from bit.ly/pfmonth. learn more and donate at Use a #BlueUp4PF selfie!

LEAD THE WAY AT THE PFF WALK We re thrilled to announce the national expansion of the PFF Walk!

WASHINGTON, DC: Sunday, October 14, 2018, National Harbor VIRTUALLY: Walk with us anytime, anywhere!

story with others who have been affected by pulmonary fibrosis. Can t make it to one of the three locations?

8 LEAD THE WAY AT THE PFF WALK We re thrilled to announce the national expansion of the PFF Walk! Build a team, raise funds, and lead the way toward a world without pulmonary fibrosis in three locations and virtually! NEW YORK CITY: Saturday, June 23, 2018, Central Park CHICAGO: Saturday, September 15, 2018 Diversey Harbor WASHINGTON, DC: Sunday, October 14, 2018, National Harbor VIRTUALLY: Walk with us anytime, anywhere! The PFF Walk offers an unprecedented opportunity to unite the community and provides a platform to share your story with others who have been affected by pulmonary fibrosis. Can t make it to one of the three locations? You can join forces with other patients, families, and friends of the pulmonary fibrosis community and register for our virtual walk. Register today at PFFWalk.org! For questions or more information, please contact Emily at esmith@.

9 HOST OR ATTEND AN EVENT Find a local event in your community, or host one of your very own! Events are a great way to connect with others in the PF community. For a full listing of events or to donate to an event, please visit our events calendar. Here are some event ideas to get you started: JEANS DAY Get your company involved with a dress down day, week, or even month! For a set donation amount, coworkers can #BlueUp4PF and wear denim or as much blue as they can. Talk to your HR department or manager to begin the process. AND SO MUCH MORE Marathons, half-marathons, 5Ks, triathalons Bake sale, garage sale, art sale 5K WALK/RUN Gather your friends, family, neighbors, colleagues, and community for a walk or run event! Contact your local park to get more information about selecting a date and if you ll need permits or insurance for the event. You can make this a large-scale event and get your community involved, or keep it more personal and do a small picnic. Block party Food, beer, wine tasting ONLINE LETTER WRITING CAMPAIGN Start an online fundraising page and reach out to your friends and family asking them to donate. You can ask for donations in lieu of gifts for birthdays or anniversaries, or in honor of PF awareness month! Open mic, karaoke party Bowling party You can t go wrong when it comes to hosting a Team PFF Event if you can think of it, you can use it to help the pulmonary fibrosis community. For more resources on planning your event, check out the Event Leader Guide. We are here to help. Reach out to Jackie Williams, Development Manager, at or jwilliams@ so we can help you get started!

10 ABOUT PF AND THE FOUNDATION ABOUT PULMONARY FIBROSIS Pulmonary fibrosis (PF) is a devastating group of progressive diseases that cause scarring in the lungs, limiting oxygen intake. As a result, the brain, heart and other organs do not get the required oxygen needed in order to function properly. There is no known cure for PF. ABOUT THE PULMONARY FIBROSIS FOUNDATION The Pulmonary Fibrosis Foundation (PFF) mobilizes people and resources to provide access to high quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives. The PFF collaborates with physicians, organizations, people with PF and caregivers worldwide. The Pulmonary Fibrosis Foundation has a three-star rating from Charity Navigator and is a Better Business Bureau accredited charity. For more information, visit or call 844.TALK.PFF ( ) or / from outside the U.S.

Provide incentive prizes for the individual Pancreatic Cancer Action Network to advance research, support patients and

Provide incentive prizes for the individual Pancreatic Cancer Action Network to advance research, support patients and CREATE A COMPANY TEAM the opportunity to MAKE A DIFFERENCE Every year, in communities across the country, thousands of people participate in PurpleStride, one of the signature awareness events for the