2016 Osteogenesis Imperfecta Foundation National Conference 50,000 Lives, One Unbreakable Spirit CONFERENCE SPONSORSHIP OPPORTUNITIES

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1 What is Osteogenesis Imperfecta? July 21-24, 2016 Swan and Dolphin Orlando, Florida Osteogenesis imperfecta (OI) or as it is commonly called brittle bone disease is a genetic disorder of connective tissue characterized by fragile bones. There are an estimated 25,000 50,000 people living with OI in the US today. OI can be diagnosed in utero or at birth and ranges in severity from a person who will experience a few fractures to those who may have hundreds in a lifetime. People living with OI often have muscle weakness, hearing loss, fatigue, joint laxity, scoliosis, brittle teeth, and short stature. Restrictive pulmonary disease occurs in more severely affected people. What is the Osteogenesis Imperfecta Foundation National Conference? With attendees, the OI Foundation s biennial National Conference is the largest national informational and social event for families and individuals living with osteogenesis imperfecta. Attendees include parents of children and teens who have OI, adults who have OI, children and teens who have OI, siblings, spouses of people who have OI, other relatives and friends, health care providers of many types. Some attendees are coping with a new diagnosis or new complication, and others are looking to update their existing information. The conference program offers a series of plenary sessions, topic information sessions and workshops, peer to peer seminars, an exhibit hall showcasing products and services for individuals managing a disability and social events. Why Participate? The OI Foundation National Conference draws attendees many of whom report the Exhibit Hall as an important feature of the conference Families and individuals are looking for new products, services and information to help improve their lives. The OI Foundation answers over 6,000 inquiries annually from families and individuals seeking information and resources. Opportunities to interact with healthcare professionals who treat patients living with osteogenesis imperfecta Sponsorship Opportunities Your partnership as a sponsor of the OIF National Conference is critical to providing OI patients and families simultaneous access to resources found nowhere else in the world. By gathering OI patients, families, physicians and other individuals specializing in treating, diagnosing and living with osteogenesis imperfecta the OIF National Conference has literally changed the lives of thousands of OI patients over the past 45 years - especially those who have multiple diagnoses or are newly diagnosed - by connecting them to resources not found in their local communities. For the 2016 OIF National Conference we are offering the following levels of sponsorship to our supporters: Presenting Sponsor Camp Unbreakable Spirit Sponsor Awards Banquet Sponsor National Conference Underwriter Patron Sponsor Promotions Sponsor Breakout Session Sponsor Exhibitor Sponsor Program Book Sponsor A detailed summary of the benefits each sponsorship opportunity offers is on the following pages. For more information about opportunities at the 2016 OI Foundation National Conference, please contact Juliet Sarau at or jsarau@oif.org.

2 Presenting Sponsor - $25,000 The Conference Presenting Sponsor will receive the following sponsor benefits: Opportunity to be represented and interact with patients (through exhibit booth/table, announcement in event program book and meet and greet functions) at the OIF National Conference, July in Orlando, FL (800+ attendees expected) Limited to TWO sponsorships as of 12/1/2015 only ONE is available. Announcement opportunities through the Osteogenesis Imperfecta Foundation s social media* accounts Full-page ad in the Osteogenesis Imperfecta Foundation s electronic and print newsletters; quarterly Breakthrough newsletter and monthly electronic OIF E-News (distribution 11,000+.) All benefits granted sponsors at the $15,000 Conference Underwriter level (excepting recognition at a conference general session) Recognition as a sponsor of the OIF National Unbreakable Spirit Walk-n-Wheel at the $10,000 Titanium level. Camp Unbreakable Spirit Sponsor - $20,000 The Camp Unbreakable Spirit Sponsor will cover the expense of the specialized child care services for the children of conference participants under the age of 12. The OI Foundation offers an age appropriate place for kids with OI and their siblings with specialized professional care and daily activities for each peer group so that parents may attend educational sessions. The Camp Unbreakable Spirit Sponsor will receive the following benefits: The Camp Unbreakable Spirit Sponsor's Logo will be featured on the Camp Unbreakable Spirit participant t-shirts and program materials Full-page ad in Conference Program book Full-page ad in the Osteogenesis Imperfecta Foundation s quarterly electronic and print newsletter, Breakthrough All benefits granted sponsors at the $15,000 Conference Underwriter level (excepting recognition at a conference general session) Recognition as a sponsor of the OIF National Unbreakable Spirit Walk-n-Wheel at the $10,000 Titanium Sponsor level Awards Banquet Sponsor - $20,000 The Awards Banquet on Sunday, July 24, is the highlight of the Conference for many attendees! Join us as the OI Foundation presents the Humanitarian Award and recognizes our top Walk-n-Wheel fundraisers. This sponsor is welcome but not obligated to participate in award activities. The Awards Banquet Sponsor will receive the following benefits: Recognition as the featured sponsor/host for a seated dinner served for 600 OIF National Conference Attendees on the final day of the conference Sponsorship of dinner will be noted by listing sponsor name and logo on Dinner Program Materials Logo featured AV and table signage at the Awards Banquet Sponsors are welcome, but not obligated to greet conference goers as they arrive. A program of the evenings activities will be placed at each participant s seat and this sponsor will be highlighted on the back cover of the program Full-page ad in Conference Program book Full-page ad in the Osteogenesis Imperfecta Foundation s quarterly electronic and print newsletter, Breakthrough Announcement opportunities through the Osteogenesis Imperfecta Foundation s social media* accounts All benefits granted sponsors at the $15,000 Conference Underwriter level (excepting recognition at a conference general session)

3 National Conference Underwriter - $15,000 The OIF National Conference hosts 5 sessions attended by all registrants. As a National Conference Underwriter, you will be featured as the sponsor of one of these 5 sessions. Underwriter Sponsors for the conference will be recognized for their support with the following sponsor benefits: Featured sponsorship of one of the following sessions at the conference attended by all OIF Conference Attendees: o Opening Session o Sunday Plenary Session o Talent Show o Pre-Awards Dinner Reception o Saturday Plenary Session Sponsors are welcome, but not obligated to greet conference goers as they enter the room and have a representative address the audience for 2 minutes at the event Logo will also be included on signage at the Medical Consultations Sessions held on Friday morning, prior to the official opening of Conference. In 2014 over 100 patients were seen by 12 physicians in 8 specialties thanks to this once in a lifetime day of consultations organized by the Osteogenesis Imperfecta Foundation. The event has literally changed the lives of thousands of OI patients over the past 10 years - especially those who have multiple diagnoses or are newly diagnosed. Sponsorship will be noted by listing sponsor name and logo on session signage in room AV display Half-page ad listing sponsor name, description, website and logo in Conference Program Book Exhibit Hall Space and opportunity to distribute product and marketing materials to 600 to 800 OIF Conference Attendees for the duration of the conference Half-page ad in the Osteogenesis Imperfecta Foundation s quarterly electronic and print newsletter, Breakthrough Recognition in select Osteogenesis Imperfecta Foundation social media* updates Recognition as a sponsor of the OIF National Unbreakable Spirit Walk-n-Wheel at the $10,000 Titanium level Patron Sponsor - $10,000 Start out the day with conference goers by sponsoring breakfast on Saturday, July 23 rd or Sunday, July 24 th. Sponsors are welcome, but not obligated to greet conference goers as they enter the room for a casual and friendly start to their day at the conference! Patron Sponsors will be recognized for their support with the following sponsor benefits: Co-Sponsor/host for buffet breakfast served in the Exhibit Hall for 600 to 800 OIF National Conference Attendees Sponsorship of breakfast will be noted by listing sponsor name and logo on signage at the breakfast Exhibit Hall Space and opportunity to distribute product and marketing materials to 600 to 800 OIF National Conference Attendees for the duration of the conference Half-page ad listing sponsor name, description, website and logo in Conference Program Book Half-page ad in the Osteogenesis Imperfecta Foundation s quarterly electronic and print newsletter, Breakthrough Recognition in select Osteogenesis Imperfecta Foundation social media* updates for the event Recognition as a sponsor of the OIF National Unbreakable Spirit Walk-n-Wheel at the $5,000 Gold level

4 Promotions Sponsor - $7, Osteogenesis Imperfecta Foundation National Conference The feature benefit of this sponsorship is the prominent display of your logo on the OIF National Conference giveaways provided to all conference attendees at registration (examples: Lanyards to hold credentials, Conference T-shirt, Water Bottles, Conference Program Book, etc.) - limited to three sponsorships. Patron Sponsor will be recognized for their support with the following sponsor benefits: Logo recognition on the conference giveaway of the sponsor s choice (lanyard, t-shirt, program book, water bottle, etc.) Half-page ad listing sponsor name, description, website and logo in Conference Program Exhibit Hall Space and opportunity to distribute product and marketing materials to 600 to 800 OIF National Conference Attendees for the duration of the conference Half-page ad in the Osteogenesis Imperfecta Foundation s quarterly electronic and print newsletter, Breakthrough Recognition in select Osteogenesis Imperfecta Foundation social media* updates for the event Recognition as a sponsor of the OIF National Unbreakable Spirit Walk-n-Wheel at the $5,000 Gold level Breakout Session Sponsor - $5,000 The feature benefit of this sponsorship is the prominent display of your logo at the individual conference breakout session of the sponsor s choice. Breakout Session Sponsors will be recognized for their support with the following sponsor benefits: Signage with company logo outside of conference breakout session (or specialized conference track ie. Women s Forum, Young Adult focus, etc. of the sponsor s choice) Quarter-page ad listing sponsor name, description, website and logo in Conference Program Exhibit Hall Space and opportunity to distribute product and marketing materials to 600 to 800 OIF Conference Attendees for the duration of the conference Quarter-page ad in the Osteogenesis Imperfecta Foundation s quarterly electronic and print newsletter, Breakthrough Recognition in select Osteogenesis Imperfecta Foundation social media* updates for the event Exhibit Sponsor - $2,500 Exhibitors at the OIF National Conference interact with conference participants personally, while showcasing and demonstrating their products and services. Exhibit space will be open to conference participants from the Opening Session on Friday, July 22 nd to the Sunday, July 24 th Dinner Reception. Exhibitor Sponsors will be provided the following sponsor benefits: Exhibit Hall Space and opportunity to distribute product and marketing materials to 600 to 800 OIF National Conference Attendees for the duration of the conference Ad listing your company name, description, website and logo in Conference Program Sponsors are welcome, but not obligated to greet conference goers as they browse exhibits over the course of the 3 day conference!

5 National Conference Program Book Advertiser - $1,000 Every Conference attendee receives a program book, so your ad will provide significant visibility to your organization at an affordable price. Ads should be grayscale and 300 dpi or better, please. Sponsors already receive this benefit at no additional cost. Sponsorship noted by listing sponsor name, description, website address and logo in Conference Program. o Full-page ad (live area: 8.25 w x h) $1000 o Half-page ad (live area: 8.25 w x 5.25 h) $750 o Quarter-page ad (live area: 4 w x 5 h) $500 Please Note Program book ads and company logos must be e mailed to Development@oif.org no later than May 14, Liability insurance, naming the OI Foundation as an additional insured and in amounts not less than $1,000,000/ $1,000,000 (per person and per aggregate) must be purchased by each exhibit table. Proof of insurance shall be furnished to OI Foundation by June 15, 2016 * OIF Social Media presence consists of: Official Facebook (5,000+ members), OIF Facebook Forum page (6,000+ members) Official OIF Twitter feed (1,500+ followers) and OIF official website, (30,000-50,000 unique visitors per month.)

6 Sponsor & Exhibitor Information This is how your information will appear in OI Foundation publications. Please print clearly and return both pages, along with your Breakthrough Newsletter ad (if applicable), program book ad and company logo, by May 14, 2016, to ensure inclusion. 1. Company Information Company Name Contact Title Address City/State/Zip/Country Phone Fax Website Signature Date 2. Total Amount this Order: Authorized Signature: Name (please print): Date: Title: 3. Payment Invoice Upon receipt of this signed agreement you will be invoiced and payment is due 30 days from receipt of invoice. Credit Card - If paying by credit card please fax this signed agreement to the attention of Juliet Sarau at OIF Headquarters: FAX: AMEX MasterCard Visa Discover Credit Card No: Exp. Date / Signature Print Name Check - If paying by check, make check payable to Osteogenesis Imperfecta Foundation in U.S. dollars and drawn on a U.S. bank. Send check along with this form to: OIF Attn: 2016 OIF National Conference Sponsorship 804 Diamond Avenue, Suite 200, Gaithersburg, Maryland 20878

7 Please provide contact information for Event Logistics and Exhibit Related Correspondence, if different from the contact on previous page: Name Title Address Phone Number Names of those staffing Exhibit table Description for the Conference Program (100 words for Sponsors/50 words for Exhibitors) Please your company logo in high resolution format and your company's description (75 words or less) to Your logo will be published on the Conference website and program. Proof of insurance enclosed (Y/N)? If no, Certificate of insurance will be forwarded to OIF by June 16, 2016 We will not have an exhibit space and do not need insurance Please send your signed sponsorship agreement and payment to: Osteogenesis Imperfecta Foundation, 804 W. Diamond Avenue, Suite 210, Gaithersburg, MD Phone: ~ Fax: ~ E mail: events@oif.org

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