Report by - DAN O'CONNOR Churchill Fellow. To investigate the causes of Endometriosis

Save this PDF as:

Size: px
Start display at page:

Download "Report by - DAN O'CONNOR Churchill Fellow. To investigate the causes of Endometriosis"

Transcription

1 Report by - DAN O'CONNOR Churchill Fellow To investigate the causes of Endometriosis I understand that the Churchill Trust may publish this Report, either in hard copy or on the internet or both, and consent to such publication. I indemnify the Churchill Trust against any loss, costs or damages it may suffer arising out of any claim or proceedings made against the Trust in respect of or arising out of the publication of any Report submitted to the Trust and which the Trust places on a website for access over the internet. I also warrant that my Final Report is original and does not infringe the copyright of any person, or contain anything which is, or the incorporation of which into the Final Report is, actionable for defamation, a breach of any privacy law or obligation, breach of confidence, contempt of court, passing-off or contravention of any other private right or of any law. Signed Daniel O Connor Dated 31 May

2 INTRODUCTION The Fellowship journey started with the VIII World Congress of Endometriosis in San Diego, USA, from the 24 th - 27 th February This meeting was attended by some 800 delegates world wide and the content was excellent, but the networking opportunities were splendid and links were established with workers in Endometriosis in the United States, Iceland, Holland, Belgium and Turkey. Existing links with other workers with whom I have been in contact were reinforced by one on one meetings at the Conference. A valuable new contact with a New Zealand colleague working on education programs for adolescents with endometriosis was established. The following aspects of the causes of endometriosis were pursued in depth - epidemiology, infertility in endometriosis, further work on the genetics of endometriosis, the role of dioxins in the cause of endometriosis, and the demography of endometriosis, in particular, the enlarging field of endometriosis in adolescent females. Centres visited to expand these areas of work were with Dr Dan Martin, Memphis, Tennessee; Professor Dan Cramer, Harvard University, Department of Obstetrics and Gynaecology, Boston; Dr Lindsay McMillan, London; Professor David Barlow and Dr Stephen Kennedy, Nuffield Department of Obstetrics and Gynaecology, Oxford University; Professor P S Boulter, Penrith, Cumbria; and Professor Philippe Koninckx, Catholic University, Leuven, Belgium. My sincere thanks due to the Selection Committee, Churchill Trust Queensland who believed in me and put my name forward and gave me the opportunity to achieve the Churchill Fellowship 2002, and my sincere thanks also due to each of my hosts, not just for their personal kindness and hospitality but for the great generosity in sharing with me new work, scientific discoveries of significance, and taking me into their various departments in most open and privileged ways. Everywhere I went people were very interested to hear of the Churchill Fellowship and the concept of an award that had no strings attached was something so novel as to be almost unbelievable to some of the more hard bitten scientific researchers. Two young researchers asked me somewhat tongue in cheek whether it was possible to extend Churchill Fellowships to both the United states and United Kingdom! Finally, acknowledgements to my wife and family who have been very patient with me during these various research activities and whose wholehearted support has made it possible for me to enjoy the experience. Also my hard working secretary, Julie Bennett, who did the hard miles in getting me organised and is now doing the even harder miles of restoring some cogent sense to my various notes.

3 EXECUTIVE SUMMARY DANIEL T O'CONNOR Gynaecologist Queensland Endometriosis Research Institute St Andrew's Place, 33 North Street, Spring Hill, Qld 4000 Ph: Fax: investigation into the causes of endometriosis. Hypothesis = a percentage of women are born with a genetic predisposition to develop endometriosis and in the reproductive years "cofactors" operate causing the development of the full blown disease. It is possible that the disease known as endometriosis is in fact several diseases with different genetic profiles and different manifestations. HIGHLIGHTS OF FELLOWSHIP STUDY TOUR AND LESSONS LEARNED 1. Primarily Australia is in the forefront in research endeavours in endometriosis. 2. The Churchill Fellowship enhances the profile and reputation of recipients and is highly respected overseas opening many doors and offering exceptional opportunities to gain privileged information. 3. With regard to Causes of Endometriosis, the following important areas were covered with my hosts - It is important that further detailed epidemiological research into risk factors for endometriosis be carried out. The downstream research which will follow our Genes in Endometriosis project in Brisbane should produce amongst other things a possible blood screening test for endometriosis comparable to the detection of tumour markers in diseases such as ovarian cancer. There is increasing evidence that toxicants are probably contributing cofactors in the development of endometriosis and this is being pursued by the new Dioxins in Endometriosis research team established between the National Research Centre

4 for Environmental Toxicology and the Queensland Endometriosis Research Institute in Brisbane in January The contentious overseas claim that mothers may inadvertently give their daughters endometriosis by breast feeding them will require further investigation and this is already under way by the new research team in Brisbane. The concept that endometriosis causes infertility may need to be reversed and in fact infertility may lead to endometriosis, especially where progesterone deficiency is a factor. This is seen in polycystic ovary disease for instance and it is felt that progesterone protects against endometriosis. Surgery for ovarian endometriosis needs to minimise the threat of potential oocyte damage in the residual healthy ovarian tissue following removal of cysts. Various techniques have been studied with this in mind and will be introduced into clinical practice. Research into the reduction of adhesions following laparoscopic treatment for endometriosis shows that the addition of oxygen to the pneumoperitoneum gasses may be of great help in this regard. The Genes in Endometriosis research study started in Brisbane in 1993 is the world's largest such study ever undertaken and the recent collaboration with Oxford University Department of Obstetrics and Gynaecology in this regard will result in a major scientific contribution when the results are published later this year. The opportunity to forge bonds with our collaborative workers in Oxford is mutually advantageous and a major highlight of this trip. A significant personal highlight of the trip was time spent with Professor Peter Doherty at the St Jude Children's Cancer Hospital in Memphis and I was encouraged by the fact that he believes too many Australians retire too early at 65 and that very worthwhile research can and should be done by those who are over 65 if they are capable, believe in their project, have perseverance, and are passionate about what they are doing.

5 DISSEMINATION OF FRUITS OF MY FELLOWSHIP This will be via scientific papers in appropriate national and international journals; by using the media to provide information to the population at large; by incorporating information in my present role of lecturer in Continuing Medical Education meetings; and providing feedback to fellow researchers on the work we are doing in relation to what is happening overseas and for the planning of future research projects. I would recommend that Churchill Fellowships should be more widely advertised and the Churchill Trust should receive ongoing financial support from all areas of the community and government so that its funding basis is enhanced and more Fellowships can be awarded across all aspects of life in Australia. I would hope ultimately to be in a position to present research data to governments so that more funding can be made available for the detection and prevention of endometriosis. It is obviously preferable to be able to prevent endometriosis rather than needing to treat it surgically and until the cause of endometriosis is established, prevention cannot be accurately attempted. My final recommendation would be that the government and population at large must be made aware of the significance of endometriosis to the women in our community and I believe that they should be offered hope in the work we are doing looking for a cause for this condition.

THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA

THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA Report by Kirsty Wright 2003 Churchill Fellow To investigate improved methods of DNA profiling for use in forensic casework and disaster victim identification.

More information

The Winston Churchill Memorial Trust of Australia

The Winston Churchill Memorial Trust of Australia The Winston Churchill Memorial Trust of Australia To undertake advanced studies in transcultural mental health education and cross cultural family therapy Report by: Christine Senediak I understand that

More information

Summary of Results of a Survey of New Zealand Participants in IIMHL Exchanges 2003 to By Janet Peters

Summary of Results of a Survey of New Zealand Participants in IIMHL Exchanges 2003 to By Janet Peters Summary of Results of a Survey of New Zealand Participants in IIMHL Exchanges 2003 to 2007 By Janet Peters January 2008 2 Executive Summary After five years of New Zealand s participation in IIMHL leadership

More information

Breathing Fresh Air into the System

Breathing Fresh Air into the System Breathing Fresh Air into the System The Adult Cystic Fibrosis Patient Advisory Committee and the Adult Cystic Fibrosis Team working together to achieve meaningful change Douglas Porter Born in 1969 I was

More information

AWARENESS, DIAGNOSIS & TREATMENT FOR SUFFERERS OF MAST CELL ACTIVATION SYNDROME

AWARENESS, DIAGNOSIS & TREATMENT FOR SUFFERERS OF MAST CELL ACTIVATION SYNDROME AWARENESS, DIAGNOSIS & TREATMENT FOR SUFFERERS OF MAST CELL ACTIVATION SYNDROME WHAT IS MAST CELL ACTIVATION SYNDROME? Mast Cell Activation Syndrome (MCAS), is a newly recognised disease (2007). The mast

More information

Our fundamental point is that policies directed towards early intervention must focus primarily on schools (Chamberlain and MacKenzie, 1998, p87).

Our fundamental point is that policies directed towards early intervention must focus primarily on schools (Chamberlain and MacKenzie, 1998, p87). Schools as sites for Early Intervention and Prevention Our fundamental point is that policies directed towards early intervention must focus primarily on schools (Chamberlain and MacKenzie, 1998, p87).

More information

Guidelines for performing gynaecological endoscopic procedures

Guidelines for performing gynaecological endoscopic procedures Guidelines for performing gynaecological endoscopic procedures This statement has been developed by the Women s Health Committee. It has been reviewed by the Endoscopic Surgery Advisory Committee (RANZCOG/AGES)

More information

Australian Political Studies Association Survey Report prepared for the APSA Executive

Australian Political Studies Association Survey Report prepared for the APSA Executive Australian Political Studies Association Survey 2017 Report prepared for the APSA Executive September 2017 1 Survey of the Australian Political Studies Association Membership 2017 Table of Contents 1.

More information

My handbook. Easy English

My handbook. Easy English My handbook Easy English Wellways National Consumer and Carer Advisory Committee 2017 helped write your handbook. Thank you! Wellways Australia Limited 2018 In your handbook We are Wellways...5 Who is

More information

A Story That is Still Being Written: Our Tale of Developing Co-Produced Services for People with Personality Disorder in Birmingham

A Story That is Still Being Written: Our Tale of Developing Co-Produced Services for People with Personality Disorder in Birmingham A Story That is Still Being Written: Our Tale of Developing Co-Produced Services for People with Personality Disorder in Birmingham Speakers - Birmingham & Solihull Mental Health Foundation Trust (BSMHFT):

More information

AWARENESS, DIAGNOSIS & TREATMENT FOR SUFFERERS OF MAST CELL ACTIVATION SYNDROME

AWARENESS, DIAGNOSIS & TREATMENT FOR SUFFERERS OF MAST CELL ACTIVATION SYNDROME AWARENESS, DIAGNOSIS & TREATMENT FOR SUFFERERS OF MAST CELL ACTIVATION SYNDROME WHAT IS MAST CELL ACTIVATION SYNDROME? Mast Cell Activation Syndrome (MCAS), is a newly recognised disease (2007). It is

More information

Volunteering Strategy

Volunteering Strategy Volunteering Strategy 2015-2020 There are few better examples of good citizenship than the giving of time and effort to improve the wellbeing of others. Tom Halpin, Chief Executive Sacro is built on a

More information

COUNTRY OF ORIGIN FOOD LABELLING

COUNTRY OF ORIGIN FOOD LABELLING COUNTRY OF ORIGIN FOOD LABELLING By Luke Dale, Partner, Daniel Kiley, Senior Associate and Megan Peake, Law Clerk, HWL Ebsworth Lawyers Overview The Federal Government has recently issued new requirements

More information

Guidelines for performing gynaecological endoscopic procedures

Guidelines for performing gynaecological endoscopic procedures Guidelines for performing gynaecological endoscopic procedures This statement has been developed by the Women s Health Committee. It has been reviewed by the Endoscopic Surgery Advisory Committee (RANZCOG/AGES)

More information

THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA. Report by Anthea Vreugdenhil Churchill Fellow

THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA. Report by Anthea Vreugdenhil Churchill Fellow THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA Report by Anthea Vreugdenhil 2005 Churchill Fellow To investigate the development and delivery of physical exercise programs for people with senile dementia

More information

National Relay Service: The Deaf Perspective DISCUSSION PAPER

National Relay Service: The Deaf Perspective DISCUSSION PAPER National Relay Service: The Deaf Perspective DISCUSSION PAPER Purpose This discussion paper National Relay Service: The Deaf Perspective has been written with the intention of generating feedback from

More information

I think women coming together and speaking is really great. Hearing other women s stories was very inspiring. To hear what they have been through and

I think women coming together and speaking is really great. Hearing other women s stories was very inspiring. To hear what they have been through and I think women coming together and speaking is really great. Hearing other women s stories was very inspiring. To hear what they have been through and come out the other side confident and strong in themselves.

More information

Research Scholarships for PhD Students

Research Scholarships for PhD Students Research Scholarships for PhD Students Guidelines and Conditions 2012 Closing date: 5pm 1 October 2012. Late or incomplete applications will not be accepted. Please note that this is the date for your

More information

FRONTIERS IN REPRODUCTIVE ENDOCRINOLOGY AND INFERTILIIT

FRONTIERS IN REPRODUCTIVE ENDOCRINOLOGY AND INFERTILIIT FRONTIERS IN REPRODUCTIVE ENDOCRINOLOGY AND INFERTILIIT This copy is presented as a service to the medical profession by LEE FOUNDATION SINGAPORE DEDICATION This book is dedicated to our wives and families

More information

SPONSORSHIP OPPORTUNITIES

SPONSORSHIP OPPORTUNITIES CONFERENCES SPONSORSHIP OPPORTUNITIES World Polycystic ovarian syndrome Congress October 18-19, 2018 Abu Dhabi, UAE our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions PCOS2018 provides a wide

More information

Global Business Executive Sarina Russo Group Scholarship Emerging Entrepreneurs Development Program. Lectures and Field Work

Global Business Executive Sarina Russo Group Scholarship Emerging Entrepreneurs Development Program. Lectures and Field Work Global Business Executive Sarina Russo Group Scholarship Emerging Entrepreneurs Development Program Lectures and Field Work James Cook University Brisbane Australia 2009 1 My name is Ang Tshering Sherpa

More information

A Career in Geriatric Medicine

A Career in Geriatric Medicine A Career in Geriatric Medicine About Geriatric Medicine Geriatric medicine is an exciting and rapidly growing specialty in which the UK is a world leader. It is currently one of the largest specialties

More information

MOVEMBER FUNDED MEN S HEALTH INFORMATION RESOURCES EVALUATION BRIEF. 1 P age

MOVEMBER FUNDED MEN S HEALTH INFORMATION RESOURCES EVALUATION BRIEF. 1 P age MOVEMBER FUNDED MEN S HEALTH INFORMATION RESOURCES EVALUATION BRIEF 1 P age Contents 1. Purpose... 3 2. Background... 3 3. beyondblue, the national depression and anxiety initiative... 4 4. Movember funded

More information

REGISTER TO ATTEND THIS FREE EVENT. brisbane diamantina health partners

REGISTER TO ATTEND THIS FREE EVENT. brisbane diamantina health partners BDHP Brain and Mental Health Conference Translational research in Neuroscience: Bridging the gap between basic science and clinical practice Tuesday 28 August 2018 Bancroft Auditorium QIMR Berghofer Medical

More information

PCC4U. Uptake of the PCC4U Resources. Funded by the Australian Government through the National Palliative Care Program

PCC4U. Uptake of the PCC4U Resources. Funded by the Australian Government through the National Palliative Care Program Issue No. 19 July 2010 The Australian Government has committed to improving the quality of care provided to Australians at end of life, by supporting the inclusion of palliative care education as an integral

More information

Page down to learn how RYDA can support your school curriculum

Page down to learn how RYDA can support your school curriculum Page down to learn how RYDA can support your school curriculum Road Safety & Schools Teachers are under increased pressure to provide additional life skills along with the traditional academic curriculum.

More information

TulalipCares.org. Tulalip Charitable Contributions Funds Distribution Report

TulalipCares.org. Tulalip Charitable Contributions Funds Distribution Report TulalipCares.org Tulalip Charitable Contributions Funds Distribution Report NAME OF AGENCY: DATE OF AWARD: ADDRESS: CONTACT: The Moyer Foundation 2017 Q3 2426 32nd Ave. W., Suite 200; Seattle, WA 98199

More information

Massachusetts Alzheimer s Disease & Other Dementias Online Training Program 2017

Massachusetts Alzheimer s Disease & Other Dementias Online Training Program 2017 Massachusetts Alzheimer s Disease & Other Dementias Online Training Program 2017 Final Evaluation Report from Boston University April 2018 1 I. INTRODUCTION Boston University s Center for Aging and Disability

More information

BDHP Chronic Disease Theme Forum

BDHP Chronic Disease Theme Forum BDHP Chronic Disease Theme Forum Friday 15 June 2018 Translational Research Institute (TRI), Woolloongabba, Brisbane, Queensland REGISTER TO ATTEND THIS FREE EVENT Metro South Hospital and Health Service

More information

A Framework for Optimal Cancer Care Pathways in Practice

A Framework for Optimal Cancer Care Pathways in Practice A to Guide Care Cancer Care A for Care in Practice SUPPORTING CONTINUOUS IMPROVEMENT IN CANCER CARE Developed by the National Cancer Expert Reference Group to support the early adoption of the A to Guide

More information

Use your Will to beat blood cancer

Use your Will to beat blood cancer Use your Will to beat blood cancer 1800 620 420 leukaemia.org.au How to leave a Gift in Will Your Will is the only way you can confidently ensure your affairs will be handled in the way you wish them to

More information

RCSI PHYSIOTHERAPY AT A GLANCE RCSI DEVELOPING HEALTHCARE LEADERS WHO MAKE A DIFFERENCE WORLDWIDE

RCSI PHYSIOTHERAPY AT A GLANCE RCSI DEVELOPING HEALTHCARE LEADERS WHO MAKE A DIFFERENCE WORLDWIDE RCSI PHYSIOTHERAPY AT A GLANCE RCSI DEVELOPING HEALTHCARE LEADERS WHO MAKE A DIFFERENCE WORLDWIDE WHY PHYSIOTHERAPY The aim of the School of Physiotherapy is to educate professionally safe, competent,

More information

Press Release 9 May 2017

Press Release 9 May 2017 Press Release 9 May 2017 To: The Management Committees of all Racing Pigeon Federations, Combine Entities, Country Clubs, One-Loft Races, Fancy Pigeon Associations and Subscribers to ANRPB Inc. Re: Update

More information

batyr: Preventative education in mental illnesses among university students

batyr: Preventative education in mental illnesses among university students batyr: Preventative education in mental illnesses among university students 1. Summary of Impact In an effort to reduce the stigma around mental health issues and reach out to the demographics most affected

More information

Electroconvulsive Treatment (ECT)

Electroconvulsive Treatment (ECT) California s Protection & Advocacy System Toll-Free (800) 776-5746 Electroconvulsive Treatment (ECT) October 2002, Pub #5398.01 The purpose of this brochure is to tell you about your legal rights regarding

More information

HREC/17/RCHM/334 RCH HREC 37278A. ANZ CLARITY Establishment of a National Juvenile Idiopathic Arthritis Biobank.

HREC/17/RCHM/334 RCH HREC 37278A. ANZ CLARITY Establishment of a National Juvenile Idiopathic Arthritis Biobank. HREC Project Number: Research Project Title: Principal Researchers: HREC/17/RCHM/334 RCH HREC 37278A ANZ CLARITY Establishment of a National Juvenile Idiopathic Arthritis Biobank. Associate Professor Justine

More information

HIGHER DEGREE RESEARCH

HIGHER DEGREE RESEARCH HIGHER DEGREE RESEARCH Your research can change the world The science of integrative medicine NICM is an exciting and unique place to study. It brings together robust infrastructure, state-of-the-art

More information

Autism Advisor Program NSW

Autism Advisor Program NSW Information Sheet What is the Autism Advisor Program? The NSW Autism Advisor Program offers the following support to families: information about autism spectrum disorders information about family support

More information

Dispute Resolution and Psychology

Dispute Resolution and Psychology Dispute Resolution and Psychology Author: Mark England mark_england@swiftdsl.com.au (02) 8234 8831 Affiliations: Founding Committee Member/Acting Chair, Australian Psychological Society(APS) Dispute Resolution

More information

The Ovarian Cancer Action Research Centre

The Ovarian Cancer Action Research Centre The Ovarian Cancer Action Research Centre ovarian.org.uk Beating ovarian cancer through collaborative research Ovarian Cancer Action is the UK s leading ovarian cancer charity, funding research and raising

More information

INTRO. Some of the impact so far 74% Staying on rates & positive destinations

INTRO. Some of the impact so far 74% Staying on rates & positive destinations NOV 2015 INTRO A big thanks to all those that managed to make our mentor update sessions, it was fantastic to see so many of you there. We hope you enjoyed hearing about the progress and the impact we

More information

THE POWER OF SONG an evaluation of the With One Voice program

THE POWER OF SONG an evaluation of the With One Voice program THE POWER OF SONG an evaluation of the With One Voice program Research conducted by Dr Elizabeth Branigan Dr Christopher Barker Creativity Australia s input by Ross Maher This research was made possible

More information

Caring for Someone with an Eating Disorder. nedc.com.au

Caring for Someone with an Eating Disorder. nedc.com.au Caring for Someone with an Eating Disorder nedc.com.au 2015 This work is copyright. You may download, display, print and reproduce this material in unaltered form only (retaining this notice) for your

More information

TASC. Services Booklet

TASC. Services Booklet TASC Services Booklet Our vision is Social Justice for All. Our mission is to provide legal, advocacy and social services to vulnerable and marginalised members of our communities. To provide a voice and

More information

Autism Advisor Program NSW

Autism Advisor Program NSW What is the Autism Advisor Program? Information Sheet The NSW Autism Advisor Program offers the following support to families: information about autism spectrum disorders information about family support

More information

OPENING STATEMENT Executive Summary

OPENING STATEMENT Executive Summary OPENING STATEMENT Executive Summary Context of the Inquiry 1. On 12 March 2015, the Home Secretary established a statutory inquiry into the extent to which institutions in England and Wales have discharged

More information

To watch We All Belong please visit:

To watch We All Belong please visit: 1 PRESENTER S NOTES - LIFE Before Death Documentary Screening 1. Screening We All Belong as a curtain raiser >> We have found that the Short Film We All Belong from the award-winning LIFE Before Death

More information

Trauma-Informed Approaches. The Nelson Trust women s residential treatment service

Trauma-Informed Approaches. The Nelson Trust women s residential treatment service Trauma-Informed Approaches The Nelson Trust women s residential treatment service The Nelson Trust The Nelson Trust is a Gloucestershire based charity. We were established in 1985 to provide residential

More information

Case Study EANM. (The European Association of Nuclear Medicine)

Case Study EANM. (The European Association of Nuclear Medicine) Case Study EANM (The European Association of Nuclear Medicine) Christian Mutschlechner (pictured right) is one of the most highly-respected, senior executives within the international congress meetings

More information

Across the Board: Boardmaker in Leeds Library and Information Service

Across the Board: Boardmaker in Leeds Library and Information Service Across the Board: Boardmaker in Leeds Library and Information Service Implementation report www.leeds.gov.uk/boardmaker Jason Tutin Digital and Learning Development Manager Leeds Library and Information

More information

Health Education. Health Education. Regional Oncology Communications and Health Promotions

Health Education. Health Education. Regional Oncology Communications and Health Promotions Regional Oncology Communications and Health Promotions International Cancer Conference The International Cancer Conference was established in 2003 and has existed for 9 years. It was the first conference

More information

SPONSORSHIP OPPORTUNITIES

SPONSORSHIP OPPORTUNITIES CONFERENCES SPONSORSHIP OPPORTUNITIES International Conference on WOMEN S HEALTH, REPRODUCTION AND FERTILITY April 08-09, 2019 Abu Dhabi, UAE our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions

More information

Poster Session HRT11420 Innovation Awards November 2014 Melbourne

Poster Session HRT11420 Innovation Awards November 2014 Melbourne Poster Session HRT11420 Innovation Awards November 2014 Melbourne When You Don t Know Where To Turn... Presenter: Claire Crocker, Director Delegates: Cathie Agg, Manager Patient Advocate Institute Anna

More information

Rett Syndrome RTT. Nordic Conference on Rare Diseases. Friðrik Friðriksson, father of a girl with RTT rettenglar.yolasite.com

Rett Syndrome RTT. Nordic Conference on Rare Diseases. Friðrik Friðriksson, father of a girl with RTT rettenglar.yolasite.com Rett Syndrome RTT Nordic Conference on Rare Diseases Friðrik Friðriksson, father of a girl with RTT rettenglar.yolasite.com 1 Guðrún Sædal This is a picture of our girl a few weeks after she was born.

More information

IMPLANT DENTISTRY IN AUSTRALIA: THE PRESENT AND FUTURE

IMPLANT DENTISTRY IN AUSTRALIA: THE PRESENT AND FUTURE IMPLANT DENTISTRY IN AUSTRALIA: THE PRESENT AND FUTURE Ying Nan Guo BDS, BScDent Hons School of Dentistry, Faculty of Health Sciences The University of Adelaide Thesis submitted in partial fulfilment of

More information

Motivational Research

Motivational Research 1 Introduction It is widely accepted that motivation has the potential to influence three aspects of our behaviour choice, persistence and effort. Put simply, motivation determines what we do, how long

More information

THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA

THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA THE WINSTON CHURCHILL MEMORIAL TRUST OF AUSTRALIA Report by OLIVIA GEMMELL 2007 Churchill Fellow THE SIR WILLIAM KILPATRICK CHURCHILL FELLOWSHIP to study mentoring programs for hearing impaired children/adolescents

More information

ZEN PARENTING RADIO MEDIA KIT 2018

ZEN PARENTING RADIO MEDIA KIT 2018 ZEN PARENTING RADIO MEDIA KIT 2018 ZEN PARENTING RADIO In 2011, we decided to pursue our passion to share the philosophy of living what you want your kids to learn with other parents. And Zen Parenting

More information

Cancer Control Council Evaluation and Monitoring Framework

Cancer Control Council Evaluation and Monitoring Framework Cancer Control Council Evaluation and Monitoring Framework Table of contents 1. Purpose...1 2. Background...1 3. Clarification of key tasks...2 4. International evaluation and monitoring frameworks...3

More information

Pediatric HIV/AIDS training course February 23-25, 2013

Pediatric HIV/AIDS training course February 23-25, 2013 Pediatric HIV/AIDS training course February 23-25, 2013 St. Jude Children s Research Hospital Memphis, TN Dear Delegate, The American Academy of Pediatrics and the Committee on Pediatric AIDS are delighted

More information

24 October Ms Erin Gough NSW Department of Justice Level 3, Henry Deane Building 20 Lee Street SYDNEY NSW 2001

24 October Ms Erin Gough NSW Department of Justice Level 3, Henry Deane Building 20 Lee Street SYDNEY NSW 2001 24 October 2016 Ms Erin Gough NSW Department of Justice Level 3, Henry Deane Building 20 Lee Street SYDNEY NSW 2001 By email to: nsw_lrc@justice.nsw.gov.au Dear Ms Gough Re: Review of the Guardianship

More information

BREAST AUGMENTATION. Your complete guide to breast augmentation and enhancing your silhouette.

BREAST AUGMENTATION. Your complete guide to breast augmentation and enhancing your silhouette. BREAST AUGMENTATION Your complete guide to breast augmentation and enhancing your silhouette. (07) 3257 7950 drsamuelyang.com.au CONTENTS What is a Breast Augmentation? 3 Breast Augmentation Considerations

More information

Peer Work Leadership Statement of Intent

Peer Work Leadership Statement of Intent Peer Work Leadership Statement of Intent A National Professional Association for Mental Health Peer Workers Peer work leaders from Queensland, Victoria and NSW and colleagues from the USA participated

More information

The British Psychological Society. Promoting excellence in psychology. Belonging to DHP.

The British Psychological Society. Promoting excellence in psychology. Belonging to DHP. The British Psychological Society Promoting excellence in psychology Belonging to DHP www.bps.org.uk/dhp Member Networks further the development of psychology in specialist areas through the exchange of

More information

Social Workers in Redcar and Cleveland Join our team to make a difference

Social Workers in Redcar and Cleveland Join our team to make a difference Louise Principal Social Worker Redcar & Cleveland is a place that values staff and has offered me numerous opportunities for career development. I have worked as a front line social worker in children

More information

WHAT ARE ISN GLOBAL OUTREACH PROGRAMS?

WHAT ARE ISN GLOBAL OUTREACH PROGRAMS? WHAT ARE ISN GLOBAL OUTREACH PROGRAMS? The International Society of Nephrology (ISN) has assembled a committed group of volunteers dedicated to building health equality worldwide. By making the knowledge

More information

This survey is for people with a lived experience (consumers) to contribute to the development of the draft Strategic Plan for Mental Health in NSW.

This survey is for people with a lived experience (consumers) to contribute to the development of the draft Strategic Plan for Mental Health in NSW. A survey for people with a lived experience of mental illness (consumers) to inform the development of the draft Strategic Plan for Mental Health in NSW This survey is for people with a lived experience

More information

THE LAW - CONCEPTION USING DONOR EGGS OR SPERM

THE LAW - CONCEPTION USING DONOR EGGS OR SPERM Assisted Conception Unit 11 th Floor, Tower Wing Guy s Hospital, Great Maze Pond London SE1 9RT Tel:.020 7188 2300 Fax: 020 7188 0490 THE LAW - CONCEPTION USING DONOR EGGS OR SPERM Introduction If you

More information

RESEARCHER DEVELOPMENT DAYS 2018/2019. Thursday 29 November ICH Wolfson Centre Room A. (Ground floor)

RESEARCHER DEVELOPMENT DAYS 2018/2019. Thursday 29 November ICH Wolfson Centre Room A. (Ground floor) RESEARCHER DEVELOPMENT DAYS 2018/2019 Thursday 29 November 2018 ICH Wolfson Centre Room A (Ground floor) UCL Great Ormond Street Institute of Child Health 30 Guilford Street London WC1N 1EH DELEGATE PACK

More information

Peer Support Association. Strategic Plan and Development Strategy

Peer Support Association. Strategic Plan and Development Strategy Peer Support Association Strategic Plan and Development Strategy Outcomes of the Strategic Development Day for Peer Supporters 29 th November 2014 Hosted by CoMHWA and Carers WA Executive Summary This

More information

E-Newsletter Samples For The Cutaneous Lymphoma Foundation

E-Newsletter Samples For The Cutaneous Lymphoma Foundation Strategic marketing results that build your bottom line. Jen Viano Copywriter/Marketing Consultant Cell: 248.703.9297 jen@jenvianocopywriting.com www.jenvianocopywriting.com E-Newsletter Samples For The

More information

How will being a member of Physio First benefit you?

How will being a member of Physio First benefit you? How will being a member of Physio First benefit you? Physio First s membership benefits About Physio First Our Big 5 unique benefits PPHYSIO FIRST BIG 5 UNIQUE BENEFITS HYSIO FIRST BIG 5 UNIQUE BENEFITS

More information

2015 NADTA Conference Pre-Education Committee Book Club Everyday Bias, Howard J. Ross, Suggested Group Discussion Questions

2015 NADTA Conference Pre-Education Committee Book Club Everyday Bias, Howard J. Ross, Suggested Group Discussion Questions 2015 NADTA Conference Pre-Education Committee Book Club Everyday Bias, Howard J. Ross, Suggested Group Discussion Questions 1. After reading this book, which research examples stand out the most in your

More information

British Society for Immunology. Corporate Membership Packages

British Society for Immunology. Corporate Membership Packages Corporate Membership Packages Become a corporate member and support the immunology community Activities that our corporate members support Our members come from 56 countries around the world. Immunology

More information

Acquittal Report Impact 100 Caring Blokes Urban Griller BBQ School

Acquittal Report Impact 100 Caring Blokes Urban Griller BBQ School Acquittal Report Impact 100 Caring Blokes Urban Griller BBQ School Completed By: Jenny Saibu Events and Communications Coordinator 25 September, 2015 Parents of Children with Special Needs Inc. Level 4,

More information

UNDERSTANDING THE CHALLENGES OF HERITAGE SIGNERS. Needs Assessment Report

UNDERSTANDING THE CHALLENGES OF HERITAGE SIGNERS. Needs Assessment Report UNDERSTANDING THE CHALLENGES OF HERITAGE SIGNERS Needs Assessment Report Prepared for the Rehabilitation Services Administration by: Trudy Schafer, MA, MIP, Center Director Dennis Cokely, Ph.D., Principal

More information

Insight. Mental Health Week Edition. October 2017

Insight. Mental Health Week Edition. October 2017 ACACIA: The ACT Consumer and Carer Mental Health Research Unit October 2017 Volume 2, Issue 2 Insight Mental Health Week Edition October 2017 Join the ACACIA team at the 2017 Mental Health and Wellbeing

More information

The Secretary 09 February 2018 Queensland Law Reform Commission PO Box George Street Post Shop QLD 4003

The Secretary 09 February 2018 Queensland Law Reform Commission PO Box George Street Post Shop QLD 4003 The Secretary 09 February 2018 Queensland Law Reform Commission PO Box 13312 George Street Post Shop QLD 4003 Re: Submission to the Queensland Law Reform Commission s Review of Queensland s Laws relating

More information

U3A Chairman s Annual Report. It was a great honour to be appointed your Chairman for 2017/2018.

U3A Chairman s Annual Report. It was a great honour to be appointed your Chairman for 2017/2018. U3A Chairman s Annual Report It was a great honour to be appointed your Chairman for 2017/2018. It came at a time when our U3A was looking towards the 15th Anniversary of its formation and the 10th Anniversary

More information

Building teacher capacity in the use of captioned multimedia for curriculum access. Christchurch, Anne McGrath Catholic Education Office, Sydney

Building teacher capacity in the use of captioned multimedia for curriculum access. Christchurch, Anne McGrath Catholic Education Office, Sydney Building teacher capacity in the use of captioned multimedia for curriculum access Christchurch, 2016 Anne McGrath Catholic Education Office, Sydney Prepared captions (offline captions) the ideal 2 Why

More information

The NHS Cancer Plan: A Progress Report

The NHS Cancer Plan: A Progress Report DEPARTMENT OF HEALTH The NHS Cancer Plan: A Progress Report LONDON: The Stationery Office 9.25 Ordered by the House of Commons to be printed on 7 March 2005 REPORT BY THE COMPTROLLER AND AUDITOR GENERAL

More information

Snoring & Obstructive Sleep Apnoea Cadaver Dissection Course

Snoring & Obstructive Sleep Apnoea Cadaver Dissection Course Princess Alexandra Hospital Department of Otolaryngology - Head & Neck Surgery Brisbane, Queensland Snoring & Obstructive Sleep Apnoea Cadaver Dissection Course 28 & 29 June 2017 Main Speakers: Prof. Stuart

More information

Good Practice in Action 072 Commonly Asked Questions. Unplanned endings within the counselling professions

Good Practice in Action 072 Commonly Asked Questions. Unplanned endings within the counselling professions Good Practice in Action 072 Commonly Asked Questions Unplanned within the counselling professions 2 Good Practice in Action 072 Commonly Asked Questions Resource Good Practice in Action 072: Commonly Asked

More information

Spring 2018 Newsletter

Spring 2018 Newsletter Spring 2018 Newsletter A MESSAGE FROM THE PRESIDENT: Change is in the air on a daily basis in Tennessee when it comes to the weather, and this spring has been no exception. Your TAASLP Executive Council

More information

AAA. Report #9 Study Update. - Principal Investigators Marsha Mailick Seltzer, Ph.D.

AAA. Report #9 Study Update. - Principal Investigators Marsha Mailick Seltzer, Ph.D. AAA Adolescents & Adults with Autism A Study of Family Caregiving Report #9 Study Update - Principal Investigators Marsha Mailick Seltzer, Ph.D. Jan S. Greenberg, Ph.D. Waisman Center University of Wisconsin

More information

PSYCHOLOGY at Rhodes University

PSYCHOLOGY at Rhodes University PSYCHOLOGY at Rhodes University PSYCHOLOGY is the study of human experience and behaviour. It is a social science that offers an analysis of the range of human emotions, abilities and thought processes.

More information

Continuing Education for Peers and Supervisors: Disclosure May 3, 2010

Continuing Education for Peers and Supervisors: Disclosure May 3, 2010 Continuing Education for Peers and Supervisors: Disclosure May 3, 2010 Minority AIDS Initiative/HRSA: Peer Education Training Sites & Resource Evaluation Center To improve HIV-related health outcomes for

More information

With A Little Help From Our Friends: The Strengthening Families Programme (UK), a success story.

With A Little Help From Our Friends: The Strengthening Families Programme (UK), a success story. SSA Conference 2009 (AERC) With A Little Help From Our Friends: The Strengthening Families Programme 10-14 (UK), a success story. Dr. Debby Allen 1. Introduction 2. Our initial interest in the Strengthening

More information

upcoming graduation ceremonies - you have all deserved it for your hard work and perseverance!

upcoming graduation ceremonies - you have all deserved it for your hard work and perseverance! upcoming graduation ceremonies - you have all deserved it for your hard work and perseverance! Continuing Development Professional Contents: SMS Alerts "Strive not to be a success, but rather to be of

More information

Consultation on proposed changes to prescribed qualifications

Consultation on proposed changes to prescribed qualifications 11 July 2016 Dear practitioner Consultation on proposed changes to prescribed qualifications The Dental Council (the Council) has undertaken educational reviews of two dental specialist programmes during

More information

MEMORY ASSESSMENT AND RESEARCH CENTRE (MARC) RESULTS OF THE 2012 MARC FEEDBACK QUESTIONNAIRE AUDIT

MEMORY ASSESSMENT AND RESEARCH CENTRE (MARC) RESULTS OF THE 2012 MARC FEEDBACK QUESTIONNAIRE AUDIT N.B. This project was first delivered in 2012 by the then Dementias and Neurodegenerative Diseases Research Network (DeNDRoN). MEMORY ASSESSMENT AND RESEARCH CENTRE (MARC) RESULTS OF THE 2012 MARC FEEDBACK

More information

Justice Research and Statistics Association CODE OF ETHICS

Justice Research and Statistics Association CODE OF ETHICS Justice Research and Statistics Association CODE OF ETHICS Created 1994 Revised 2004 Revised August 2012 Justice Research and Statistics Association 777 North Capitol Street, N.E., Suite 801 Washington,

More information

17IS PLENARY PRESENTATION

17IS PLENARY PRESENTATION 17IS PLENARY PRESENTATION CREATING COMMUNITY: CHANGING THE WORLD OF MENTAL HEALTH Joel Corcoran, Executive Director, Clubhouse International Good Afternoon! Well that was certainly a powerful morning.

More information

The Hon. Andrew Stoner MP Deputy Premier of NSW Minister for Trade and Investment Minister for Regional Infrastructure and Services

The Hon. Andrew Stoner MP Deputy Premier of NSW Minister for Trade and Investment Minister for Regional Infrastructure and Services Friday 8 November 2013 The Hon. Andrew Stoner MP Deputy Premier of NSW Minister for Trade and Investment Minister for Regional Infrastructure and Services MEDIA RELEASE WARNING ISSUED TO INTERNATIONAL

More information

THOUGHTS, ATTITUDES, HABITS AND BEHAVIORS

THOUGHTS, ATTITUDES, HABITS AND BEHAVIORS THOUGHTS, ATTITUDES, HABITS AND BEHAVIORS Ellen Freedman, CLM Law Practice Management Coordinator Pennsylvania Bar Association I ve been thinking a lot lately about how we think, what we think, and what

More information

ANNUAL REPORT PWR! VISION Communities where individuals with Parkinson disease have access to Exercise as Medicine.

ANNUAL REPORT PWR! VISION Communities where individuals with Parkinson disease have access to Exercise as Medicine. ANNUAL REPORT 2016 PWR! VISION Communities where individuals with Parkinson disease have access to Exercise as Medicine. PWR! MISSION To develop and implement worldwide access to Parkinson-specific neuroplasticity-principled

More information

Alternative Approaches to the Commissioning and Provision of Children s Statutory Social Care Services

Alternative Approaches to the Commissioning and Provision of Children s Statutory Social Care Services Policy Briefing December 2013 102 Alternative Approaches to the Commissioning and Provision of Children s Statutory Social Care Services Introduction Over the last twenty years, there has been a rapid

More information

Peer Support Worker. Position description. Section A: Position details. Organisational context

Peer Support Worker. Position description. Section A: Position details. Organisational context Position Description February 18 Position description Peer Support Worker Section A: Position details Position title: Employment Status: Classification and Salary: Location: Hours: Peer Support Worker

More information

Mr Chris Chapman ACMA Chair The ACMA PO Box Q500 Queen Victoria Building NSW July Dear Mr Chapman

Mr Chris Chapman ACMA Chair The ACMA PO Box Q500 Queen Victoria Building NSW July Dear Mr Chapman Mr Chris Chapman ACMA Chair The ACMA PO Box Q500 Queen Victoria Building NSW 1230 24 July 2012 Dear Mr Chapman Broadcasting Services Act 1999: caption quality next steps The Australian Communications Consumer

More information

Saving Lives, Bringing Hope

Saving Lives, Bringing Hope Saving Lives, Bringing Hope Donor Impact Report 2014 About Singapore Society Our Vision: To be the leading charitable cancer organisation in Singapore and the region, with a reputation for effective programmes

More information