Day 1 24 th September (Saturday)

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1 Day 1 24 th September (Saturday) Time Spina Bifida International Forum Speakers Registration Breakfast MedArt Photo exhibition and Slideshow Session 1: Opening Ceremony Moderator: Dr. Eddie Cheung (Co-Chairman, SBIF) Welcome Address Dr. Hon. CH Leong GBM GBS OBE JP (International Advisor, SBIF) Opening Address by Guest of Honour Dr. Hon. Ko Wing-Man BBS JP (Hong Kong SAR Government, Hong Kong) Opening Address by Guest of Honour Associate Director, National Health and Family Planning Department of Suzhou Opening Address Prof. Gabriel Leung, GBS JP (University of Hong Kong, Hong Kong) Opening Address Prof. Francis Chan, (Chinese University of Hong Kong (CUHK), Hong Kong) Vote of Thanks Dr. John Ngan (Board Chairman, MedArt, Hong Kong) Ribbon cutting, Photo and Souvenir presentation Prof. Wen JianGuo, Prof. Gabriel Leung, Prof. David McLone, Dr. Hon. Ko Wing- Man, Dr. John Ngan, Dr. Hon. CH Leong, Prof. Wang Jian, Prof. Francis Chan, Prof. Timothy Brei Session 2: Public Session A Moderators: Prof. Gabriel Leung BBS JP (Hong Kong University, Hong Kong), Prof. Wang XiaoDong (Suzhou), Dr. Mark Chan Keynote Lecture: Spina Bifida an overview MedArt Lecture: Not Forgotten Prof. David McLone Dr. John Ngan Lunch MedArt Outreach Introduction Mr. Benedict Ng (MedArt, Hong Kong) Session 3: Public Session B Moderators: Prof. Francis Chan (CUHK), Prof. Wang Jian (Suzhou), Dr. Christopher Yu

2 The Road to Independence Prof. Timothy Brei, (University of Washington & Spina Bifida Association, USA) Q&A Promising Frontiers in Molecular Research in Spina Bifida Dr. Chandra Shekhar Mayanil Q&A Tea Break Session 4: Combined Scientific Session - the need for multidisciplinary approach Moderators: Prof. David McLone (USA) Prof. Zhou Yun (Suzhou), Prof. Wen JianGuo (Zhengzhou), Dr John Ngan (Hong Kong) Management of Children with Spina Bifida from Infancy to Adulthood Dr. Robin Bowman, Myelomeningocele Closure MedArt Experience Dr. Wang Hangzhou Tethered Spinal Cord Multi-disciplinary Evaluation and Diagnosis Q&A Dr. Elizabeth Yerkes, Dr. Robin Bowman & Dr. Luciano Dias, Tea Break Role of an Orthopaedic Surgeon in Follow-Up and Preservation Functions: An Introduction Dr. Luciano Dias, Detection of Neurologic Complication by Regular Neurology Charting Ms. Nicole Hroma, The Multidisciplinary Spina Bifida Clinic Dr. Timothy Brei, (University of Washington & Spina Bifida Association, USA) Discussion and Round-up for Day Gala Dinner

3 Day 2 25 th September (Sunday) Time Spina Bifida International Forum Speakers Concurrent Breakout Sessions Concurrent Session 5: Paediatric Surgery and Urology Breakout Session Moderators: Dr. Ho Lap Yin (HK Urological Association, Hong Kong), Prof. Wang Jian (Paediatric Surgery, Suzhou), Dr. Michael Leung (Hong Kong) The High Risk Bladder Dr Elizabeth Yerkes, Diagnosis and Treatment of Neurogenic Bladder due to Spina Bifida: Zhengzhou Experience An Audit of Urologic Management of Spina Bifida Clinic in Suzhou Bowel management for social fecal continence in spina bifida patients Prof. Wen JianGuo, (First Affiliated Hospital of Zhengzhou University, Zhengzhou) Dr. Xia Hong Liang, (Soochow University Affiliated Children s Hospital, Suzhou) Dr. Jayant Radhakrishnan (St Matthew Lutheran Home, Illinois, USA) Management of Incontinence Dr Elizabeth Yerkes, Management of the adult spin bifida patient Dr. Ho Lap Yin (Hong Kong) Round Table Discussion Case Presenters: Dr. Xia Hong Liang, Dr. Peter Yip Discussants: Dr Elizabeth Yerkes, Dr. Jayant Radhakrishnan, Prof. Wen JianGuo, Dr. Michael Leung, Dr. Lawrence Lan, Dr. Peter Yip, Prof. Zhou Yun Moderator: Dr. John Ngan Concurrent Session 6: Neurosurgery Breakout Session Moderators: Dr. Chen Min (Neurosurgery, Suzhou), Dr. YC Po (HK Society of Neurological Surgery, Hong Kong) To Shunt or Not to Shunt? Dr. Robin Bowman, Topic to be confirmed Dr. Chandra Shekhar

4 Local data HKNS Concurrent Session 7: Physiotherapy Workshop Moderators: Mr. Samson Kwong Mayanil, Role of Physiotherapists Ms. Nicole Hroma, Muscle Group Charting Ms. Nicole Hroma, Concurrent Session 8: Orthopaedic Breakout Session Moderators: Prof. Wang Xiao Dong (Orthopaedics, Suzhou), Dr. Evelyn Kuong, Dr. Fong Chi Ming (Paediatric Orthopaedic Chapter of the Hong Kong Orthopaedic Association) General talk about functional levels, gait analysis and braces (30 min) 2. The orthopedic approach to hip subluxation and dislocation (20 min) 3. Crouch gait and rotation deformities (30 min) 4. Foot deformities (30 min) 5. Adult Spina Bifida (10 min) Dr. Luciano Dias, Concurrent Session 9: Paediatric Breakout Session Moderators: Dr. Sam Yeung (Senior Council Member and Convenor, Child Neurology Conference, Hong Kong), Prof. Li Xiazhong (Chief of paediatric nephrology, Suzhou), Dr. Eddie Cheung A teenaged spina bifida case with psychological issue Dr. Jasper Chin-pang Chow (HKCNDP) Round Table: Role of pediatricians in caring spina bifida children Moderator: Dr. Eddie Cheung (MedArt) Prof. Li Xiazhong (Suzhou), Dr. Sam Yeung, Dr. Chow Chin Pang, Dr. Mark Chan (MedArt), Concurrent Session 10: Habilitation Breakout Session Moderators: Prof. David McLone Growing up with spina bifida: a parent perspective HK Spina Bifida Association The Spina Bifida Association: a support group for patients, families and healthcare workers HK Spina Bifida Association Spina Bifida in China: Perspective of field workers International China Concern Camp Independence: American perspective Prof. David McLone

5 Tea Break Concurrent Session 11: Bring Home Message Moderators: Dr. John Ngan, Prof. David McLone (Northwestern University, Choir Convocation: Prayer for the Children and the Healer Welcome Back/Announcements Dr. John Ngan Paediatric Dr. Sam Chak-Ming Yeung (The Hong Kong Society of Child Neurology and Developmental Paediatrics) Neurosurgery Dr. Chen Min (Suzhou) Urology Prof. Zhou Yun (Paediatric Urology, Suzhou) Paediatric Surgery Dr. Michael Leung (Queen Elizabeth Hospital) Orthopaedic Dr. Evelyn Kuong Physiotherapy Mr. Samson Kwong Habilitation Mr. Alan Young (Spina Bifida Association, Hong Kong) Closing (Presentation of Souvenir & Group Photo) Day 3 26 th September (Monday) Travel to Suzhou Day 4 27 th September (Tuesday) Time Spina Bifida International Forum Speakers Session 13: Suzhou Forum (conducted in Chinese and English) Moderators: To be confirmed Welcome Soochow Universoty Affiliated Children s Hospital Spina Bifida (Prognosis-From Neurosurgery, Health Policy to Camp Prof. David McLone

6 Independence) Management of Children with Spina Bifida from Infancy to Adulthood Tethered Spinal Cord Multi-disciplinary Evaluation and Diagnosis Dr. Robin Bowman, Dr. Elizabeth Yerkes, Dr. Robin Bowman, Dr. Luciano Dias, Tea Break The Multidisciplinary Spina Bifida Clinic Prof. Timothy Brei (University of Washington & Spina Bifida Association, USA) Management of Urinary Incontinence in Spina Bifida Children Dr. Elizabeth Yerkes, Role of an Orthopaedic Surgeon in Follow-Up and Preservation Functions: An Introduction Dr. Luciano Dias, Dr. Chandra Shekhar Mayanil Lunch Session 14: Simulated Spina Bifida Clinic (conducted in Chinese and English) Moderators: Prof. Zhou Yun, Dr. John Ngan, Dr. Eddie Cheung Panel Discussants: Dr. Robin Bowman, Dr. Elizabeth Yerkes, Dr. Luciano Dias, Prof. Timothy Brei (University of Washington & Spina Bifida Association, USA) & Ms. Nicole Hroma Patient Review (Paediatric, Neurosurgery, Orthopaedic, Urology & Physiotherapy) Case Discussion Case Discussion Case Discussion Case Discussion Agreement Signing Ceremony

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