Monday, October 16, Registration 7:45am 8:30 am Program Time 8:30 am 4:30 pm

Transcription

1 The 10th Annual Monday, October 16, 2017 Registration 7:45am 8:30 am Program Time 8:30 am 4:30 pm JOINT PROVIDED BY THE ALS ASSOCIATION NORTH CAROLINA CHAPTER, KERI S CRUSADE AND SOUTHERN REGIONAL AHEC Sheraton Chapel Hill Hotel 1 Europa Drive Chapel Hill, NC KEYNOTE SPEAKER RICHARD BEDLACK MD, PhD Register Now! eventdetail.aspx?eventid=52457

2 Description: The conference is specifically designed to meet the educational needs of interdisciplinary healthcare teams and caregivers who work with individuals diagnosed with Amyotrophic Lateral Sclerosis (ALS). ALS, also known as Lou Gehrig s Disease, is a progressive neuromuscular disease that affects nerve cells in the brain and the spinal cord. The complex and progressive nature of the disease requires expert intervention from diagnosis and throughout the course of the disease. Target Audience: Neuropsychologists, Nurse Practitioners, Nurses, Speech Language Pathologists, Physical Therapists, Occupational Therapists, Respiratory Therapists, Recreational Therapists, Social Workers and Nursing Assistants, persons living with ALS, caregivers and others interested in learning more about this disease. Objectives: Upon completion of this educational activity the participant will be able to: 1. Define the progress being made in overcoming barriers to achieving a cure for ALS 2. Recognize early signs of respiratory impairment in ALS and appropriate interventions for providing respiratory support in the patient with ALS 3. Utilize a systematic approach called ALS Untangled to review alternate therapies 4. Discuss the nature of the stress reaction and the opposing relaxation response including relation techniques using guided imagery 5. Describe the multi-faceted approach to address the specific findings related to progressive weakness, risk of contractures/secondary pain syndromes, and declining mobility issues in order to optimize function over the course of ALS 6. Discuss a multi-disciplinary approach to providing the ALS patient and family members with advanced care planning, palliative end of life care, and the ethical issues surrounding the course of the disease 7. Explore the role of the Occupational Therapist regarding quality of life/leisure/community accessibility for the ALS patient in the home health setting 8. Discuss the increased nutritional needs for patients with ALS including dysphagia management and feeding tubes Conference and Track 1 Speakers Stacey Asnani, MSW, LCSW, ALS Clinic Coordinator/Social Worker Duke University Medical Center Richard S. Bedlack, MD, PhD, Associate Professor Duke University ALS Clinic Medical Director Duke University Health System Linda Cates, MS, PT, NCS Senior Physical Therapist Duke University Medical Center Jeffrey B. Feldman, Ph.D Associate Professor, Department of Neurology Wake Forest School of Medicine Director, Center for Integrative Medicine Winston-Salem, NC Lisa Hoskins, MSW, LCSWA Director of Care Services The ALS Association North Carolina Chapter Raleigh, NC Francesca Monachino, OTR/L, CBIS Occupational Therapist II Duke University Medical Center Connie C. Paladenech, RRT, RCP, FAARC Co-Manager Pulmonary Function Laboratories ALS Clinic Respiratory Therapist Wake Forest University Baptist Medical Center Winston-Salem, NC Susan Steves, RN, LDN, Dietician Duke University Medical Center

3 October 16, 2017 Sheraton Hotel, Chapel Hill, NC Track One Agenda: Healthcare Professionals Only 7:45 am Welcome Table & Registration Open Joint Partners with The ALS Association North Carolina Chapter, Keri s Crusade and Southern Regional AHEC Pre-Conference Refreshments & Exhibits Lobby Area 8:20-8:30 am Explanation of Track 1, Track 2 & General Information Amsterdam-London Ballroom Lynn Sanderson, BSW, Care Services Manager, The ALS Association North Carolina Chapter Continuing Education Units (CEU s) Explanation/Evaluation Process Andrea Novak, PhD, RN-BC, FAEN, Southern Regional Area Health Education Center 8:30-8:45 am Welcome/Introductions Jerry Dawson, President & CEO, The ALS Association North Carolina Chapter Harold Brown, Jennifer Lassiter and Gwen Farmer, Keri s Crusade for ALS Denise Kirkland, Board Member, The ALS Association North Carolina Chapter 8:45-9:30 am Step up to the Plate: Respiratory Therapists as Members of the ALS Multidisciplinary Team Connie C. Paladenech, RRT, RCP, FAARC, Co-Manager Pulmonary Function Laboratories, ALS Clinic Respiratory Therapist, Wake Forest University Baptist Medical Center 9:30-10:30 am Keynote: ALS Update: Signs of Progress, Reasons for Hope Richard Bedlack, MD, PhD, Associate Professor, Duke University Health System 10:30-10:45 am Morning Beverage Break Lobby Area 10:45-11:45 am Keynote: Untangling the ALS X-Files Richard Bedlack, MD, PhD, Associate Professor, Duke University Health System 11:45 am-12:20 pm A Practical Relaxation Technique for Stress Management Jeffrey B. Feldman, PhD, Associate Professor, Department of Neurology, Wake Forest School of Medicine, Director, Center for Integrative Medicine 12:20 pm Plated Lunch Served Amsterdam-London Ballroom 12:20-12:30 pm Plenary Sue Humphries Award Presentation Non-Credit Bearing Activity Lisa Hoskins, MSW, LCSWA, Director of Care Services, The ALS Association North Carolina Chapter

4 Track 1 Agenda Continued 12:30-12:40 pm Plenary Our Personal Journey with ALS Non-Credit Bearing Activity pals and cals 12:40-1:15 pm Lunch Break Continues/Visit Exhibitors 1:15-1:55 pm Physical Therapy for Individuals with ALS Linda Cates, MS, PT, NCS, Senior Physical Therapist, Duke University Medical Center 1:55-2:35 pm Caring for the Patient with ALS Stacey Asnani, MSW, LCSW, ALS Clinic Coordinator/Social Worker, Duke University Medical Center 2:35-2:50 pm Afternoon Refreshment Break Lobby Area 2:50-3:30 pm Practical Advice and Tips From the ALS Clinic OT for Your Clients and Their Caregivers Francesca Monachino, OTR/L, CBIS, Occupational Therapist II, Duke University Medical Center 3:30-4:10 pm Nutrition Care for pals Susan Steves, RD, LDN, Dietitian, Duke University Medical Center 4:10-4:30 pm Time for Questions & Answers and Wrap-Up Lisa Hoskins, MSW, LCSWA, Director of Care Services, The ALS Association North Carolina

5 October 16, 2017 Sheraton Hotel, Chapel Hill, NC Track Two Agenda People Living with ALS and Caregivers Only Non-Credit Bearing 7:45 am Welcome Table & Registration Open Joint Partners with The ALS Association North Carolina Chapter, Keri s Crusade and Southern Regional AHEC Pre-Conference Refreshments & Exhibits Lobby Area 8:20-8:30 am Explanation of Track 1, Track 2 & General Information Amsterdam-London Ballroom Lynn Sanderson, BSW, Care Services Manager, The ALS Association North Carolina Chapter Continuing Education Units (CEU s) Explanation/Evaluation Process Andrea Novak, PhD, RN-BC, FAEN, Southern Regional Area Health Education Center 8:30-8:45 am Welcome/Introductions Jerry Dawson, President & CEO, The ALS Association North Carolina Chapter Harold Brown, Jennifer Lassiter and Gwen Farmer, Keri s Crusade for ALS Denise Kirkland, Board Member, The ALS Association North Carolina Chapter 8:45-9:30 am Step up to the Plate: Respiratory Therapists as Members of the ALS Multidisciplinary Team Connie C. Paladenech, RRT, RCP, FAARC, Co-Manager Pulmonary Function Laboratories, ALS Clinic Respiratory Therapist, Wake Forest University Baptist Medical Center 9:30-10:30 am Keynote: ALS Update: Signs of Progress, Reasons for Hope Richard Bedlack, MD, PhD, Associate Professor, Duke University Health System 10:30-10:45 am Morning Beverage Break Lobby Area 10:45-11:45 am Keynote: Untangling the ALS X-Files Richard Bedlack, MD, PhD, Associate Professor, Duke University Health System 11:45-12:20 pm A Practical Relaxation Technique for Stress Management Jeffrey B. Feldman, PhD, Associate Professor, Department of Neurology, Wake Forest School of Medicine, Director, Center for Integrative Medicine 12:20 pm Plated Lunch Served Amsterdam-London Ballroom

6 Track 2 Continued 12:20-12:30pm Plenary Sue Humphries Award Presentation Non-Credit Bearing Activity Amsterdam-London Ballroom Lisa Hoskins, MSW, LCSWA, Director of Care Services, The ALS Association North Carolina Chapter 12:30-12:40pm Plenary Our Personal Journey with ALS Non-Credit Bearing Activity Amsterdam-London Ballroom Pals and Cals 1:30 4:30pm Track 2 Facilitator Vienna and Brussels Ballroom Kate Spanier, MS, Senior Care Services Coordinator, The ALS Association North Carolina Chapter Track Two Agenda Please note that these times are very flexible They are provided to give you a general time frame 1:30-2:10pm Enjoy basic chair yoga Pam Callaway, Yoga Instructor 2:10-2:50pm Safe Moves for Pals Beth Silberman, MS, PT, Duke University Health System Melissa Werz, OTR/L Duke University Health System 2:50-3:30PM 3:30-4:10pm Afternoon Refreshment Break and Visit Exhibitors Lobby Area Strategies to Manage Communication and Swallowing Changes in ALS Kevin Caves, ME, ATP, RET, Rehab Engineer, Duke University Health System Laurie Edwards, MS, CCC-SLP, Duke University Health System Meredith Nye, MS, CCC-SLP, Duke University Health System Participating in ALS Clinical Research Studies Karen Grace, RN, Clinical Research Coordinator and ALS Clinic RN 4:10 4:30pm Time for Questions & Answers and Wrap UP. Kate Spanier, MS, Senior Care Services Coordinator, The ALS Association North Carolina Chapter

7 Registration: Healthcare Professional Registration (credit/ CEU): $100l; after October 2, 2017 $125 Full-time Students: $50 Person Living with ALS: $0 (No credit/no CEU) and One (1) Caregiver of Person Living with ALS: (No credit/no CEU): $0 Each Additional Caregiver of Person Living with ALS (No credit/no CEU): $50 Continuing Education Credit: Participants must attend 100% of this activity to receive credit. CNE: 6.5 Contact Hours Southern Regional AHEC is an approved provider of continuing nursing education by the North Carolina Nurses Association, an accredited approver by the American Nurses Credentialing Center's Commission on Accreditation. CEU: 0.7 Contact hours: 6.5 for Social Workers and Licensed Professional Counselors or Behavioral Health Specialists. NCBPTE Credit: 6.0 hours As part of the NC AHEC system, SR-AHEC is an NCBPTE approved provider of continuing competence with regards to activities directly related to physical therapy. Respiratory Credit: 6.50 hours Program Approval number: Speech-Language Pathologists: Southern Regional AHEC will issue Certificates of Completion only; the participant must self-track and record the certificate for ASHA Certification documentation. Location: Sheraton Chapel Hill Hotel 1 Europa Drive Chapel Hill, NC Blocked Rooms are available on a first come, first served basis at a reduced rate of $105 plus taxes at the Sheraton for October 15th through October 16th. booking link for Conference: ALSAssociationNCChapter or call and advise that you wish to reserve a room for the Conference. Contact Lynn Sanderson, BSW at or lynn@alsnc.org for any issues with hotel. Directions: The Sheraton Chapel Hill hotel is centrally located between University of North Carolina and Duke University off of US 501 at above address. A private area will be available for nursing mothers. ADA Statement: The ALS Association North Carolina Chapter is fully committed to the principle of equal educational opportunities for all individuals and does not discriminate on the basis of any characteristic protected by federal or state law. If you require any of the auxiliary aids or services identified in the Americans with Disabilities Act in order to participate in this program, please call us at no later than ten business days before the program. Inclement Weather: Call regarding the inclement weather schedule. Questions: For Healthcare Professionals contact: Andrea Novak, Andrea Novak, PhD, RN-BC, FAEN, Southern Regional Area Health Education Center at or to Andrea.Novak@sr.ahec.org. For People Living with ALS and their Caregivers contact: Lynn Sanderson, BSW, at or lynn@alsnc.org.

8 REGISTRATION FORM : Event # HEALTHCARE PROFESSIONALS ONLY Track 1 Deadline for Registration October 2, 2017: $100 After October 2, 2017: $125 Student Registration fee: $50 Online Registration link: Telephone Registration: Call with a Visa or MasterCard. Fax Please Circle One: Dr. Ms. Mrs. Mr. Name Credentials: Last 4 of Social Security # XXX -XX Home Address City State Zip Home County Home Phone Employer Job Title Specialty Area Work Address City State Zip Work Phone Please circle one: Vegetarian Meal Non-restricted Meal Food Allergies: Please circle one T-Shirt Size Small Medium Large Extra Large 2X 3X Mail with Payment to: ATTN: Registrar, SR-AHEC, 1601 Owen Drive, Fayetteville, NC Payment Information: Amount enclosed: $ Check Make Payable to SR-AHEC MasterCard or Visa #, Expiration Date Name on Card Signature Office use only: Check Auth# Date From Amount $

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