National Plan to Address Alzheimer s Disease

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1 National Plan to Address Alzheimer s Disease

2 On May 15, 2012, the Obama Administration released our country s first-ever National Alzheimer s Plan. What is this plan? Why is it needed? And how will it affect you?

3 Alzheimer s in America 5.4 million people 1 in 8 aged in 2 aged 85+ Every 68 seconds

4 Alzheimer s in Maryland Residents age : 78, : 86, : 100,000 28% increase

5 A new concern One in 7 people with Alzheimer s live alone and are left to fend for themselves. Up to half have no identifiable caregiver.

6 Alzheimer s is not just memory loss. Alzheimer s kills.

7 Alzheimer s is the 6th leading cause of death in the United States. 5% to 15% of all deaths in older people are a result of Alzheimer s. Alzheimer s is the only one of the top 10 causes of death without a way to prevent, cure, or even slow its progression. Nearly one-third of seniors who die in a given year have been diagnosed with Alzheimer s or another dementia.

8 Alzheimer s disease and mortality

9 With Alzheimer s, it s not just those with the disease who suffer. It s also their caregivers.

10 Caregiver statistics

11 Caregiver statistics

12 Caregivers in Maryland YEAR NUMBER HOURS VALUE , ,882,421 $2,459,654, , ,654,020 $3,670,312, , ,144,389 $3,843,789,991

13 The graying of America means the bankrupting of America. Alzheimer s is a major reason why.

14 The cost of Alzheimer s Average per person Medicare costs for people with Alzheimer s and other dementias: 3 times higher Average per person Medicaid costs for people with Alzheimer s and other dementias: 19 times higher

15 Federal research investment $5.8 $ NIH Research Funding In Billions of Dollars $3.1 $.450 Cancer Heart Disease HIV Alzheimer's Disease

16 Research investment results Change in Number of Deaths, Based on preliminary 2008 mortality data HIV Stroke Heart Disease Prostate Cancer Breast Cancer Alzheimer s Disease

17 National Alzheimer s Plan As required by the bipartisan National Alzheimer s Project Act (P.L ), unanimously approved by Congress, the Department of Health and Human Services has released the first-ever National Alzheimer s Plan.

18 What is the National Plan to Address Alzheimer s Disease? Five overarching goals: Prevent and effectively treat Alzheimer s disease by Enhance care quality and efficiency. Expand support for people with Alzheimer s disease and their families. Enhance public awareness and engagement. Improve data to track progress.

19 To support an effective National Alzheimer s Plan, the President has asked Congress to commit additional resources in the fight against Alzheimer s disease. An additional $100 million for Alzheimer s research, care and support in the FY2013 budget for: $80 million for medical research; $10.5 million for caregiver support; $ 4.2 million for public awareness; $4 million for provider education and outreach; and $1.3 million for data collection.

20 What does the Plan include to advance Alzheimer s research? $50 million in additional Alzheimer s research funding at the National Institutes of Health (NIH) in An additional $80 million in research funding proposed for the FY2013 budget. Specific strategies and priorities needed to reach the goal of preventing and effectively treating Alzheimer s by Expansion of international outreach to governments and public-private partnerships to enhance collaboration and coordination of research efforts.

21 How does the Plan increase public awareness and encourage early detection and diagnosis? Nationwide public awareness campaign to: 1. educate about the disease and reduce stigma 2. encourage early detection and diagnosis $4 million set aside for the campaign in 2012 An additional $4.2 million requested for FY2013

22 How does the Plan improve quality of care for those with Alzheimer s? $2 million for health care provider education about Alzheimer s through Geriatric Education Centers. Clearinghouse of dementia care curricula and practice recommendations for providers across the care continuum. New training materials on high-quality, person-centered care for individuals with Alzheimer s for the nursing home workforce.

23 How does the Plan improve quality of care for those with Alzheimer s? New approaches developed to coordinate care in different settings by different providers. New models developed to improve care when people with Alzheimer s transition from one care setting to another. Identification of barriers to accessing long-term services and supports by those with younger-onset Alzheimer s disease.

24 What does the Plan include to support family caregivers? The Administration on Aging will work with state governments to develop dementia-capable long-term services and supports for caregivers. A better system of assessing caregiver needs and connecting caregivers to services and evidence-based interventions. An additional $10.5 million to support Alzheimer s caregivers requested in FY2013 budget.

25 Does the Plan ensure accountability? For each provision of the Plan, a federal agency has been assigned responsibility to ensure the provision is implemented. The Plan sets specific implementation dates, identifying what will be achieved and when.

26 Learn more at

27 Maryland State Plan More than 30 states currently are involved in developing their own State Government Alzheimer s Disease Plans Virginia State Plan released in December 2011 DC State Plan in process Maryland State Plan in process

28 The Alzheimer s Association OUR VISION: A world without Alzheimer s OUR MISSION: To eliminate Alzheimer s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

29 The National Capital Area Chapter 5 Counties in Maryland Calvert Charles Montgomery Prince George s St. Mary s 11 counties in Virginia District of Columbia

30 Our programs and services One of 70 chapters nationwide providing service and support to our local community: 24/7 Helpline Robust websites (both national and local) Education programs Family care consultation Support groups Safety services Early-stage engagement Professional training

31 24/7 Helpline million+ served since ,000 calls each month Calls taken by: General information specialists Masters prepared care consultants 53% increase in calls last year

32 Award-winning web site:

33 Caregiver Center Get Day to Day Help Get Support Plan for the Future

34 Alzheimer s Navigator Map out a plan to approach Alzheimer s Step by step guidance Alzheimer s disease information you can trust Programs and services in your community

35 ALZConnected.org New Online Community Launched February 2012 Thousands of users 10 peer volunteers

36 National awareness campaign

37 Education opportunities CORE PROGRAMS Know the 10 Signs: Early Detection Matters The Basics: Memory Loss, Dementia and Alzheimer s Disease Legal and Financial Planning for Alzheimer s Disease Living with Alzheimer s Series: For Caregivers For People with Alzheimer s For Younger-Onset Alzheimer s CONFERENCES AND PARTNERSHIPS Several throughout our Chapter territory, including: 3rd Annual Holy Cross Hospital Dementia Conference (Oct. 4) Southern Maryland Dementia Care Conference (Nov. 7) Northern Virginia Dementia Care Conference (Nov. 12)

38 Safety services

39 TrialMatch

40 Professional training and certification Alzheimer s and Dementia Understanding Behavior Communication Person-centered Care Alzheimer s and Dementia Understanding Behavior Communication Person-centered Care Making a Connection Eating Well Recognizing Pain Minimizing Falls Rethinking Wandering Minimizing Restraints

41 Walk to End Alzheimer s Walk to End Alzheimer s in our Nation s Capital Signature event More than 600 Walks across the country Saturday, October 27 Washington, DC

42 Call on us. We re here to help. Alzheimer s Association National Capital Area Chapter 24/7 Help Line Susan Kudla Finn, PMP President and CEO

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