A pan European Dementia Strategy

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1 A pan European Dementia Strategy Luxembourg 13 June 2017 Vanessa Challinor, Policy Agenda Alzheimer Europe Campaign to recognise dementia as policy and research priority National and European achievements The way forward 2 Paris Declaration Alzheimer Europe 39 associations in 34 countries Adopted by Annual General Meeting in Paris (May 2006) Dementia is a major public health challenge Need for national action plans Increased funding for AD research Pan-European research into causes, prevention and treatment of AD 3 4

2 Public health impact 8.7 million people withdementiain European Union 1 Numbersexpectedto at least double by Available at Europe Last accessed 27 March Ferri et. al. (2005) Global prevalence of dementia: a Delphi consensus study, The Lancet, Vol. 366, December 17/24/31,

3 EU achievements Dementia as priority of EU Presidencies (France, Italy, Luxembourg, Netherlands, Slovakia and Malta) Commission group of government experts on dementia Focus on dementia of European research programmes (FP7, JPND, Horizon2020, AAL, EIP-AHA, IMI) Joint Actions on Dementia (ALCOVE and ActOnDementia) European Alzheimer s Alliance with over 125 MEPs AD as focus of EU Presidencies 2008: French Presidency Conference: The fight against Alzheimer s disease 2014: Italian Presidency Conference: Dementiain Europe: a challenge for our common future 2015: Luxembourg Presidency Conclusions: "Supporting people living with dementia 9 10 AD as focus of EU Presidencies (II) 2016: Dutch Presidency Conference: Living well with(out) dementia 2016: Slovak Presidency Conference: Alzheimer s disease epidemic of the third millennium: Are we ready to face it 2016: Maltese Presidency Meeting: European Commission Government Expert Group on Dementia Commission Government Expert Group on Dementia First meeting 2014 Meets twice per year Platform for exchange between Member States Implementing council conclusions 11 12

4 EU research AD as European research focus in FP7 JPND (Joint programme ND research) Innovative Medicines Initiative (IMI) EUR million funding under IMI 1 EUR 80.4 million funding under IMI 2 EU Joint Actions on Dementia ALCOVE: ALzheimerCOoperativeValuation in Europe ( ) Models for timely diagnosis, Prevalence of dementia in Europe, Support systems for behavioural and psychological symptoms in dementia, Toolbox for reduction of anti-psychotics in dementia, Advance directives and competence assessment DEM2: Act on Dementia ( ) Timely diagnosis and post-diagnostic support; Crisis and care coordination; Residential care; Dementia-friendly communities AE supporting dementia research projects Contributing to discussions on ethical issues raised by research projects Providing a voice to people with dementia Informed consent Participation in clinical trials Disclosure of genetic or biomarker risk status Supporting or leading communication and dissemination activities to wider dementia community and general public Representing the views of people with dementia, carers and Alzheimer associations in IMI and Horizon2020 projects 15 16

5 A Pan European Dementia Strategy Identification and exchange of good practices on Awareness/Stigma Care coordination Timely diagnosis Residential care Post-diagnostic support Acute and hospital care Legal issues Dementia-friendly initiatives 17 European Dementia Strategyresearch Better coordination of European research initiatives and programmes in the field of dementia Appointment of EU Dementia Coordinator Involvement and leadership of EU in WHO, OECD and G7 collaboration Holistic approach to dementia research (Care today, cure tomorrow) 18 Global initiatives The way forward Development of European dementia strategy/action plan World Health Organisation (WHO) Global Action Plan on Public Health Response to Dementia Improved coordination of European research initiatives and programmes in the field of dementia Full involvement of people with dementia, carers and Alzheimer associations Human rights approach for EU and global action on dementia based on sound ethical principles 19 Holistic approach to dementia research Cure tomorrow, care today 20

6 For more information 21

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