7th Annual Neuromuscular Colloquium

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1 7th Annual Neuromuscular Colloquium Friday, May 12, 2017 Balboa Bay Resort 1221 W. Coast Highway, Newport Beach, CA Approved for AMA PRA Category 1 Credits and ABPN Maintenance of Certification Program neurology.uci.edu/neuromuscular-cme/

2 Distinguished Guest Faculty Keynote Speaker Professor Zohar Argov Professor (Emeritus) of Neurology & Josephine Frank Kanrich Chair of Neuromuscular Diseases Hebrew University Hadassah Medical School, Jerusalem, Israel. Mathilda Spak Lecturer Ted M. Burns, MD University of Virginia Charlottesville, VA Course Directors Tahseen Mozaffar, MD Director, Neuromuscular Program Faculty and Moderators Nazem Atassi, MD Massachusetts General Hospital Boston, MA. Said Beydoun, MD Director, Neuromuscular Program University of Southern California Los Angeles, CA Suur Biliciler, MD University of Texas, Houston, TX. Diana Castro, MD Assistant Professor of Pediatrics and Neurology University of Texas Southwestern Dallas, TX. Luis Chui, MD Professor (Emeritus) of Neurology Summer Gibson, MD University of Utah, Salt Lake City, UT Michael Hehir, MD University of Vermont, Burlington, VT. Namita Goyal, MD HS Associate Director, Electrodiagnostic Laboratory Director, ALS clinic Chafic Karam, MD Assistant Professor of Clinical Neurology Oregon Health Sciences University Portland, OR. Jonathan Katz, MD Director, Neuromuscular Research Forbes-Norris ALS Center California Pacific Medical Center San Francisco, CA. Justin Kwan, MD University of Maryland, Baltimore, MD Richard Lewis, MD Director, EMG Lab Co-Director, Neuromuscular Clinic Cedars-Sinai, Los Angeles, CA Srikanth Muppidi, MD Stanford University School of Medicine Palo Alto, CA Cecile Phan, MD Assistant Clinical University of Alberta Edmonton, Alberta, Canada. Jeff Rosenfeld, MD, PhD Loma Linda University, Loma Linda, CA. Annabel K. Wang, MD HS Associate Director, Neuromuscular Program, VA Long Beach David S. Saperstein, MD Neuromuscular Neurologist Phoenix Neurological Associates Phoenix, AZ Perry Shieh, MD, PhD Associate Professor and Director, Neuromuscular Program UCLA David Geffen School of Medicine Los Angeles, CA Ericka Simpson, MD Associate Director, Neuromuscular Clinic and Research Houston Methodist Neurological Institute Weill Cornell Medical College Houston, TX. Werner Stenzel, MD, PhD Professor of Neuropathology Charite Center Charite Universitätsmedizin Berlin Berlin, Germany Sarah Youssof, MD University of New Mexico Albuquerque, NM.

3 Program 7:00 a.m. Registration and Continental Breakfast 8:00 a.m. Welcome and Opening Remarks Steven L. Small, PhD, MD Tahseen Mozaffar, MD 8:10 a.m. Keynote Lecture Know Your Patient Population: The Many Lessons of Clusters of Hereditary Myopathies Speaker: Professor Zohar Argov Introduction: Tahseen Mozaffar, MD 8:40 a.m. Live Case Presentation (2 cases, 30 minutes each) Moderators: Namita Goyal, MD, Ericka Simpson, MD 9:40 a.m. Morning Break 10:00 a.m. 7th Annual Mathilda Karel Spak Lecture Patient and Physician Reported Outcome Measures in Myasthenia Gravis: What are the Best Outcome Measures for Clinical Trials in MG? Speaker: Ted M. Burns, MD Moderator: Annabel Wang, MD 10:30 a.m. Live Cases (3 cases, 30 minutes each) Moderators: Richard Lewis, MD and David Saperstein, MD 12:00 p.m. Lunch Buffet 1:00 p.m. Poster Presentations (attendance required for CME credit) Moderators: Cecile Phan, MD and Said Beydoun, MD 1:30 p.m. Research Highlights Blitz (15 minutes each) Moderators: Chafic Karam, MD and Perry Shieh, MD PhD Summer Gibson, MD: ALS Research Talk Sarah Youssof, MD: Outcome measures in OPMD Michael Hehir, MD: Measuring and quantifying medication related side effects in myasthenia gravis Nazem Atassi, MD: Neuroimaging in ALS 2:30 p.m. The Evolution of our Understanding of the Myopathology in Myositis Antibody Associated Myositidites Speaker: Werner Stenzel, MD, PhD Introduction: Suur Biliciler, MD Moderator: Justin Kwan, MD 3:00 p.m. Afternoon Break 3:30 p.m. RRNMF Further cases from the RRNMF Jonathan Katz, MD Moderator: Jeff Rosenfeld, MD, PhD 4:00 p.m. Case Vignettes Round (6 cases, 10 minutes each with 5 minutes discussion) Moderators: Luis Chui, MD, Diana Castro, MD and Srikanth Muppidi, MD 5:30 p.m. Closing Remarks and Adjournment

4 Registration Information Registration Fees Breakfast, lunch and parking included with registration. $75 Physicians $50 Nurses and all other allied healthcare professionals $25 nursing Complimentary Residents, fellows, neurologists Registration Options Option 1: Registration online Visit to register and pay online with a credit card. Option 2: Registration by mail/check Checks must be made payable to UC Regents. Please fill out the form below and mail it with your check to Department of Neurology, 200 S. Manchester Ave. Ste 206, Orange, CA NAME (FIRST, MIDDLE, LAST) ADDRESS CREDENTIALS PHONE ADDRESS CITY STATE ZIP ORGANIZATION PRACTICE NAME/AFFILIATION PRACTICE ADDRESS CLINICAL LICENSE NUMBER PHONE FAX CITY STATE ZIP For more information, contact Michi Baylon at or mbaylon@uci.edu Cancellation Policy Refund of registration fees may be requested by sending a request to mbaylon@uci.edu. Cancellations received before April 15, 2017 will receive a full refund. Cancellations made after May 1, 2017 will be subject to a 75% cancellation fee.

5 Accommodations 55 Balboa Bay Resort 1221 W. Coast Highway Newport Beach, CA BALBOA BAY WAY DOVER DR Visit to reserve a room dedicated to conference participants. Room rate is $269 per night. Accreditation Statement The University of California, Irvine School of Medicine is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. Designation Statement The University of California, Irvine School of Medicine designates this live activity for a maximum of 8 AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity. California Assembly Bill 1195 This activity is in compliance with California Assembly Bill 1195 which requires continuing medical education activities with patient care components to include curriculum in the subjects of cultural and linguistic competency. For specific information regarding Bill 1195 and definitions of cultural and linguistic competency, please visit the CME website at ADA Statement In compliance with the Americans with Disabilities Act, we will make every reasonable effort to accommodate your needs. For any special requests, please contact Michi Baylon at or mbaylon@uci.edu Disclosure Statement It is the policy of the University of California, Irvine School of Medicine and the University of California CME Consortium to ensure balance, independence, objectivity and scientific rigor in all CME activities. Full disclosure of conflicts and conflict resolutions will be made prior to the activity in writing via handout materials, insert or syllabus. CS1823 2/17

6 Department of Neurology 200 S. Manchester Ave. Ste 206 Orange, CA FIRST-CLASS MAIL U.S. POSTAGE PAID Santa Ana, CA Permit No th Annual Neuromuscular Colloquium Friday, May 12, 2017 Register online at neurology.uci.edu/neuromuscular-cme/ Course Description The 2017 Neuromuscular Colloquium provides an academic forum for regional and national physicians who specialize entirely, or to a significant degree, in neuromuscular medicine. This activity is designed to encourage an atmosphere of collaboration and interaction between the various neuromuscular specialists in the region. It is a forum to discuss the latest topics and advances in neuromuscular medicine and review interesting and challenging cases, with several live patient presentations. Such activities are likely to improve patient care because they promote closer research collaboration and the development of new research projects between the various groups and institutions. Target Audience Physicians and all other healthcare providers working in the fields of neurology, neuromuscular disorders, and clinical neurophysiology. Learning Objectives After completing the learning activity, the participant should be able to: Describe current diagnostic and management strategies in rare and orphan neuromuscular diseases in ethnic clusters. Identify best outcome measures when assessing clinical and research outcomes in myasthenia gravis using current treatment and management strategies. Identify different patterns of clinical involvement in patients with neuromuscular disorders; recognize systemic and medical complications in these patients; understand current guidelines for management of patients with muscular dystrophies, Pompe disease, spinal muscular atrophy and amyloidosis.

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