ESME MONIZ-COOK. PUBLICATIONS October 2017

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1 ESME MONIZ-COOK PUBLICATIONS October 2017 JOURNALS [* = PRACTITIONER JOURNALS ] Blundell, J., Burridge, S., Latham, C., Moniz, E.D. & Rogers, P. (1979) The Structural Analysis of the Actions of Amphetamine and Fenfluramine on Food Intake and Feeding Behaviour in Animals and Man. Current Medical Research & Opinions, 6,1, Moniz, E.D. (1982) Applied Behaviour Analysis within Institutions Irish Psychologist, 11, 15 Russell, V., Proctor, L. & Moniz, E.D. (1989) The Influence of a Relative Support Group on Carers Emotional Distress, Journal of Advanced Nursing, 14, *Moniz, E.D., Rogers, S., McCoomb, M. & Blair, M. (1988) Measuring Quality of Care, PSIGE, 28, 7-9. *Moniz, E.D. & Hare, D.J. (1991) Use of Community Services: Factors Affecting the Caring Strategies and Psychological Health of Carers of the Elderly Mentally Ill. PSIGE, 40, *Moniz, E.D., Hare, D.J. & Proctor, L. (1991) Education Groups for Carers of the Elderly Mentally Ill. Nursing the Elderly, July/August, *Sutton, L. & Moniz, E.D. (1995) Working with Older Survivors. PSIGE, 54, *Moniz, E.D. & Gill, A. (1996) The Deep Roots of Folklore and Superstition. Journal of Dementia Care, 4(2), *Moniz, E.D. & Gill, A. (1996) Superstitions & Challenging Behaviour in Residential Care. Journal of Dementia Care, 4(3), *Sainsbury, L., Gibson, G. & Moniz, E.D. (1996) Talking Man to Man. Journal of Dementia Care, 4(5), Moniz-Cook, E.D. (1996) Promoting Psychological Health in Relatives of Dementia Sufferers. British Psychological Society Proceedings, 4, 1, 34 *Moniz-Cook, E.D., Gibson, G., Win, T. (1997) Memory Clinics in General Practice - is there a role for crisis prevention and early psychosocial intervention? PSIGE, 60, Agar, S., Moniz, E.D., Elston, C., Orbell, S. & Wang, M. (1997) Measuring the outcome of psychosocial interventions for family caregivers of dementia sufferers: a factor analytical model. Aging & Mental Health, 1(2),

2 Moniz-Cook, E.D., Millington, D. & Silver, M. (1997) Residential Care for older people: job satisfaction and psychological health in care staff. Health and Social Care in the Community, 5,(2), Moniz-Cook, E.D & Woods, R.T. (1997) The Role of Memory Clinics and Psychosocial Intervention in the Early Stages of Dementia. Editorial. International Journal of Geriatric Psychiatry, 12, Moniz-Cook, E.D., Agar, S., Silver, M.,Woods, R.T., Wang, M., Elston, C. & Win T. (1998) Can Staff Training Reduce Behavioural Problems in Residential Care for the Elderly Mentally Ill? International Journal of Geriatric Psychiatry, 13, Moniz-Cook, E.D., Gibson, G., Win, T. Agar, S. & Wang, M.(1998) A Preliminary Study of the Effects of Early Intervention with People with Dementia and their families in a Memory Clinic. Aging & Mental Health, 2(3), * Bucks, R., Moniz-Cook, E.D., Lamers, C., Royan, L., Sutton, L. & Woods, R.T. (1998) Special Edition:Memory Clinics Past, Present and Future. PSIGE, 63,2-37. Silver, M., Moniz-Cook E.D. & Wang, M.(1998) Stress and Coping with Challenging Behaviour in Residential Settings for Older People. Mental Health Care, 2, (4), *Moniz-Cook, E.D. (1998) Training Staff to Meet the Challenge. *Alzheimer s Disease Society Newsletter, August, 5. *Moniz-Cook, E.D. (1998) Psychosocial Approaches to Challenging Behaviour in Care Settings - A Review. Journal of Dementia Care, 6, (5), Moniz-Cook, E.D., Gardiner, E. & Woods, R.T. (2000) Staff Factors Associated with the Perception of Behaviour as Challenging in Residential and Nursing Homes. Aging & Mental Health 4, (1), Moniz-Cook, E.D., Woods, R.T. & Richards, K. (2001) Functional Analysis of Challenging behaviour in Dementia: The Role of Superstition. International Journal of Geriatric Psychiatry, 16, Moniz-Cook, E.D., Woods, R.T., Gardiner, E., Agar, S. & Silver, M. (2001) The Challenging Behaviour Scales (CBS): Development of a New Scale for Staff Caring for Older People in Residential and Nursing Homes. British Journal of Clinical Psychology, 40, Moniz-Cook E.D., Elston C, Pratt R Woodhouse J, Warrington, T. Luter C Jarvis K Richards K & Duggan P (2001). Bio-psychosocial Intervention in Challenging Behaviour in Dementia in Residential and Nursing Homes. Gerontology, 47, 1, 62 Moniz-Cook E.D., Wang, M., Elston, C. & Agar, S. (2001). A randomised controlled trial of psychosocial intervention with dementia spouse caregivers - five year follow-up. Gerontology, 47, 1,

3 Moniz-Cook E.D., Wang, M., Campion, P., Gardiner, E., Carr, I., Gibson, G. & Duggan, P. (2001) Early Psychosocial Intervention through a Memory - A Randomised Controlled trial. Gerontology, 47, 1, Moniz-Cook E.D (2002) Psychosocial Interventions at Transitions: When care at home breaks down. Neurobiology of Aging 23, 15 S3 *Moniz-Cook, E.D. (2002) Supporting Staff Caregivers in Residential and Nursing Homes. Signpost, 7, 2, *Moniz-Cook, E.D. (2002) Folklore Superstition and Dementia *Alzheimers Society Newsletter, March, Richards, K., Duggan, P., Carr, I., Wang, M. & Moniz-Cook E.D. (2003) Early Intervention for people with dementia: What are important outcomes for families? Aging & Mental Health, 7, 1, 7-14 Orani, M., Moniz-Cook, E.D., Binetti, G., Zaneri, G., Frisoni, G.B., Geroldi, C., DeVreese, L.P. & Zanetti, O. (2003) An electronic memory aid to support prospective memory in patients in the early stages of Alzheimers Disease. Aging & Mental Health, 7, 1, Moniz-Cook, E.D. & Bird, M. (2003) Sensory Stimulation and Dementia: Cause of behavioural and psychological symptoms of dementia needs to be established first. British Medical Journal 326, 661. Clare, L., Baddley, A., Moniz-Cook, E. & Woods, R. (2003) Psychology and Dementia: A quiet revolution dementia. Psychologist, 16, 5, Moniz-Cook, E.D., Stokes, G. & Agar, S. (2003) Difficult Behaviour and Dementia in Nursing Homes: Five Cases of Psychosocial Intervention. International Journal Clinical Psychology and Psychotherapy, 10, 3, Woods, R., Moniz-Cook, E.D., Iliffe, S., Campion, P., Vernooij-Dassen, M., Zanetti, O. Franco, M. & the INTERDEM group (2003) Dementia: issues in early recognition and intervention in primary care. Journal of the Royal College of Medicine, 96, July, Clare L, Woods RT, Moniz Cook ED, Orrell M, Spector A. (2003) Cognitive rehabilitation and cognitive training for early-stage Alzheimer's disease and vascular dementia (Cochrane Review). In: The Cochrane Library, Issue 4, Chichester, UK: John Wiley & Sons, Ltd. Vernooij Dassen M, Iliffe, S, Moniz-Cook E, De Lepeleire, J (2003) Public Policy: Different venues but similar problems around the world. International Psychogeriatrics 15, 126 Vernooij Dassen M, Iliffe, S, Moniz-Cook E, De Lepeleire, J for the INTERDEM group (2003) New advances to timely dementia diagnosis in EU countries: A quality Improvement Approach International Psychogeriatrics 15, S , 126 3

4 Haworth, J., Moniz-Cook, E.D. Clark, A.L., Wang, M., Waddington, R., Cleland, J.G.F. (2003) Depression and anxiety in a sample of UK Chronic Heart Failure out-patients: prevalence predictors and validity of the Hospital Anxiety and Depression Scale (HADS). European Journal of Heart Failure 2, 1, 50. Moniz-Cook E.D. (2003) The Memory Clinic as a Psychosocial Intervention. British Psychological Society 11, 2, 15 *Clare, L., Baddley, A., Moniz-Cook, E. & Woods, R. (2003) Psychology and Dementia: A quiet revolution dementia. Psychologist, 16, 5, De Lepeliere J Vernooij-Dassen M Moniz-Cook E Aergeerts B on behalf of the INTERDEM group (2004) Diagnosing Dementia in Primary Care Age & Ageing 33, 321 Hilton C & Moniz-Cook E (2004) Examining the personality dimensions of sociotropy and autonomy in older people with dementia: their relevance to person centred care Behavioural and Cognitive Psychotherapy 32, Moniz-Cook E, De Lepeleire, J & Vernooij-Dassen, M (2004) Chronic Disease Management What can be learned from Dementia Management? BMJ 328, 99 (7453) d Frizelle, D.J., Lewin, B., Kaye, G., Hargreaves C Hansey K Beaumont N & Moniz-Cook, E (2004) Cognitive Behavioural Rehabilitation Programme for Patients with an implanted cardioverter defibrillator The British Journal of Health Psychology 9, *Moniz-Cook E.D. (2004) Psychosocial Strategies for the management and prevention of disability in citizens with dementia, their family and societies across Europe: Developing a Research Agenda] Ecopsy-online 2004 numero 2 Speciale Alzheimer and Quality of Life *Moniz-Cook E.D., Vernooij-Dassen M, Lamers, C., Wilcock J., Cantegreil, I., de Rotrou J Gianelli MV & the DIADEM group (2004) Diadem - Management of Dementia Related Problems in Europe [timely support for people with dementia and their families in primary care in Europe] Ecopsy-online 2004 numero 2 Speciale Alzheimer and Quality of Life *Iliffe, S. De Lepeleire, J van Hout, H Kenny, G Lewis,A. Moniz-Cook E & Vernooij-Dassen M for the INTERDEM group ( 2004) Diadem 1: A Modified Focus Group Study using Multinational, Multi-Disciplinary Expert Groups to understand Obstacles to the Recognition of and Response to Dementia in different European Countries] Ecopsy-online 2004, numero 2 Speciale Alzheimer and Quality of Life 2005 Iliffe S, De Lepeleire J. van Hout H, Kenny G, Lewis A, Vernooij-Dassen M and the Diadem group, Moniz-Cook, E.D. (2005) Understanding Obstacles To The Recognition Of And Response To Dementia In Different European Countries: A 4

5 Modified Focus Group Approach Using Multinational, Multi-Disciplinary Expert Groups. Aging & Mental Health 9, 1, 1-6 Vernooij-Dassen, M Moniz-Cook, E. Woods, R., De Lepeleire, J. Leuschner, A Zanetti, O. de Rotrou, J., Kenny, G,. Franco, M., Peters, V., Iliffe S. & the INTERDEM group (2005) Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma International Journal of Geriatric Psychiatry 20, Vernooij-Dassen M &. Moniz-Cook E (2005) Improving The Quality of In-Home Interventions In Dementia Care Dementia; The International Journal of Social Research and Practice 4, 2, Haworth, J., Moniz-Cook, E.D. Clark, A.L., Wang, M., Waddington, R., Cleland, J.G.F. (2005) Prevalence and Predictors of Anxiety and Depression in Chronic Heart Failure out-patients. European Journal of Heart Failure 7, *Moniz-Cook E D (2005) About me Signpost 9, 3, Moniz-Cook E (2006) Editorial: Cognitive Stimulation in dementia Aging & Mental Health, 10, 3, Moniz-Cook, E & Vernooij-Dassen M (2006) Editorial: Timely psychosocial intervention in dementia: a primary care perspective Dementia: The International Journal of Social Care 5, 3, Moniz-Cook, E Manthorpe, J Carr, I Gibson, G & Vernooij-Dassen M (2006) Facing the future: a qualitative study of older people referred to a memory clinic prior to assessment and diagnosis. Dementia: The International Journal of Social Care 5, 3, Vernooij-Dassen, M Derksen, E., Scheltens P & Moniz-Cook E ( 2006) Receiving a diagnosis of Dementia: the experience over time. Dementia: The International Journal of Social Care 5, 3, Frizelle, D.J., Lewin, B., Kaye, G., Moniz-Cook, E.D. (2006) Development of a new tool for assessing automatic implanted cardioverter defibrillator patient concerns: the ICD-TCQ. The British Journal of Health Psychology 11, Rewston, C. Clarke, C. Moniz-Cook, E. Waddington, R. (2007). Distinguishing worry from rumination in older people: A preliminary investigation. Aging & Mental Health, 11, Haworth, J., Moniz-Cook, E.D., Clark, A.L., Wang, M., Cleland, J.G.F. (2007) An evaluation of two self report screening measures for mood in an out patient chronic failure population International Journal of Geriatric Psychiatry 22, 11,

6 2008 Moniz-Cook E, Vernooij-Dassen M, Woods R, Verhey F, Chattat R, de Vugt M, Mountain G, O Connell M, Harrison J, Vasse E, Dröes RM, & Orrell M For the INTERDEM group. (2008) A European consensus on outcome measures for psychosocial intervention research in dementia care Aging & Mental Health 12,1, Moniz-Cook, E.D., Elston, C., Gardiner E Agar, S. Silver M Win, T. & Wang, M. (2008) Can training Community Mental Health Nurses to support family carers reduce behavioural problems in dementia? An exploratory pragmatic randomised controlled trial International Journal of Geriatric Psychiatry 23, 2, Lepeleire J, Wind AW, Iliffe, S Moniz-Cook E Wilcock J González VM, Derksen E Gianelli M, Vernooy-Dassen M and the INTERDEM Group (2008) The diagnosis of dementia in primary care in Europe: and analysis using multidisciplinary multinational expert groups Aging & Mental Health 12, 5, Jolley D and Moniz-Cook E. (2009) Memory clinics in context. Indian Journal of Psychiatry, 51:S70-6. Jolley D and Moniz-Cook E (2009) Memory clinics are all about stigma, not screening BMJ, 338: b860 Woods R T, Bruce E, Edwards R T, Hounsome B, Keady J, Moniz-Cook E D, Orrell M, Russell I T. (2009) Reminiscence groups for people with dementia and their family carers: pragmatic eight-centre randomised trial of joint reminiscence and maintenance versus usual treatment: a protocol. Trials, 10, 4 Fox C Boustani M & Moniz-Cook E (2009) Treatment of Dementia: where is it going? British Journal of Hospital Medicine, 70, 8, *Wolverson (Radbourne), Clarke C & Moniz-Cook E (2009) Hope-is it a relevant concept for dementia research? PSIGE *Moniz-Cook E (2009) Research Networks (with contributions from B Woods and M Vernooij-Dassen ). PSIGE 106, Robinson, L, Iliffe S, Brayne C, Godman C, Riat G, Manthorpe J Ashley P Moniz- Cook E and the DENDRON Primary Care clinical Studies group (2010) Primary Care in Dementia: 2 long-term care at home: psychosocial interventions, information provision, carer support and case management International Journal of Geriatric Psychiatry 25(7), Wolverson (Radbourne) E, Clarke C & Moniz-Cook E (2010) Remaining Hopeful in Early Stage dementia: A qualitative study Aging and Mental Health 14 (4)

7 *Moniz-Cook (2010) Psychosocial Interventions for 'living well' in care homes Alzheimers Society Research ejournal Issue 11, pp *Moniz-Cook E D (2010) National Institute of Health Research (NIHR) Research: Living well with dementia in care homes Alzheimers Society Newsletter 97 (April), 6-7 *Moniz-Cook E (2010) Early Psychosocial Interventions in Dementia: Translating Evidence into practice Healthcare Counselling and Psychotherapy Journal 10 (3) Moniz-Cook E.D (2011) Functional Analysis and Challenging Behaviour in Dementia in Family Care settings Aging Clin Exp Res, 23, Suppl. 1, 69 Moniz-Cook E.D, Vernooij-Dasssen M, Woods B Martin Orrell & the Interdem network (2011) Psychosocial Interventions in dementia care research: The INTERDEM manifesto Aging & Mental Health 15, 3, Banerjee S Hellier J Dewey M Romeo R Ballard C Baldwin R Bentham P Fox C Holmes C Katona C Knapp M Lawton C Lindesay J Livingston G McCrae N Moniz- Cook E Murray J Nunrock S Orrell M O Brien J Poppae M Thomas A Walwyn R Wilson K & Burns A (2011) Study of the use of anti depressants for depression in dementia: the HTA-SADD Trial a multicenter randomised double blind placebo controlled trial of the clinical effectiveness of sertraline and mirtazapine The Lancet, 378, doi: /s (11)60830 [18 July 2011 *Moniz-Cook E D and Clarke C (2011) Dementia Care: Coping with aggressive behaviour Nursing & Residential Care, 13 (2) February *Moniz-Cook E (2011) Psychosocial Interventions through Memory Clinics Nursing & Residential Care, 13 (4) April Vasse E, Vernooij-Dassen M, Cantegreil I, Franco M, Dorenlot P, Woods B & Moniz-Cook E (2012) Guidelines on psychosocial interventions in dementia care: a European survey and comparison International Journal of Geriatric Psychiatry 27, Woods, B. & Moniz Cook, E. (2012) Pain relief - a first-line response to agitation in dementia? Nat. Rev. Neurol. 8, 7-8 Moniz Cook ED, Swift K, James I, Malouf R, De Vugt M, Verhey F. Functional analysis-based interventions for challenging behaviour in dementia (2012). In Cochrane Database of Systematic Reviews 2012, Issue 2. Art. No.: CD DOI: / CD pub2. Corbett A Stevens A Aarsland D Day S Moniz-Cook E Woods R Brooker D and Ballard C (2012) Systematic review of services providing information and/or advice to people with dementia and/or their caregivers International Journal of Geriatric Psychiatry 27 (6)

8 Vasse E, Moniz-Cook E, Olde Rikkert M, Cantegreil I, Charras K, Dorenlot P, Fumero G, Franco M, Woods B, Vernooij-Dassen. M. (2012) The development of quality indicators to improve psychosocial care in dementia. International Psychogeriatrics, 24 (6) Parker S Clarke C Moniz-Cook E & Gardiner E (2012) The influence of cognitive busyness on causal attributions of challenging behaviour in dementia: A preliminary experimental study Aging & Mental Health 16 (7) Lawrence V, Fossey J, Ballard C, Moniz-Cook E & Murray J (2012) Improving quality of life for people with dementia in care homes: making psychosocial interventions work British Journal of Psychiatry 201, Orrell M, Yates L, Burns A, Russell I, Woods RT, Hoare Z, Moniz-Cook E, Henderson C, Knapp M, Spector A, Orgeta V (2012) Individual Cognitive Stimulation Therapy for dementia (icst): study protocol for a randomized controlled trial Trials 13, 172 (22 September 2012) Woods, R.T., Bruce, E., Edwards, R.T., Elvish, R., Hoare, Z., Hounsome, B., Keady, J., Moniz-Cook, E., Orgeta, V., Orrell, M., Rees, J. & Russell, I.T. (2012). REMCARE: reminiscence groups for people with dementia and their family caregivers effectiveness and cost-effectiveness pragmatic multicentre randomised trial. Health Technol Assess, 16 (48). DOI: /hta16480 Romeo R Knapp M Hellier J Dewey M Ballard C Baldwin R Bentham Burns A Fox C Holmes C Katona C Lawton C Lindesay J Livingston G McCrae N Moniz-Cook E Murray J Nunrock S Orrell M O Brien J Poppae M Thomas A Walwyn R Wilson K & Banerjee S P (2012) Cost effectiveness analyses for mirtazapine and sertraline in Dementia: randomised controlled trial British Journal of Psychiatry,202, : Whitaker R, Ballard C Stafford J Orrell M Moniz-Cook E Woods RT, Murray J Knapp M Woodward Carlton B & Fossey J (2013) Feasibility of an optimised person-centered intervention to improve mental health and reduce antipsychotics amongst people with dementia in care homes: study protocol for a randomised controlled study Trials 14, 13 doo: / Banerjee,S, Hellier,J Romeo,R Dewey, M Knapp, M Ballard, C Baldwin,R, Bentham,P Fox, C Holmes, C Katona, C Lawton, C Lindesay, J Livingston,G. McCrae, N Moniz-Cook, E Murray, J Nurock, S Orrell, M O Brien,J Poppe,M Thomas, A Walwyn, R Wilson K & Burns A (2013) Study of the use of antidepressants for depression in dementia: the HTA -SADD trial - a multicentre, randomised, double-blind, placebo-controlled trial of the clinical effectiveness and cost-effectiveness of sertraline and mirtazapine. Health Technol Assess 2013;17 (7) Hodge, S Doncaster, E Moniz-Cook, E Purandare, N & Orrell, M (2013) Two sides of the same coin? Patients' and carers' views of UK memory services. Aging Health, 9 (3)

9 Fox C Maidment I Moniz-Cook E White J Thyrian JR Young J Katona C and Chew Graham C (2013) Optimising Primary Care for people with dementia Mental Health in Family Medicine Whitaker R Fossey J Ballard C Orrell M Moniz-Cook E Woods RT Murray J Stafford J Knap M Romero R Woodward-Carlton B Testad I & Khan Z (2014) Improving Well-being and Health for People with Dementia (WHELD): study protocol for a randomised controlled trial Trials 15, 284 doi: / Vernooij Dassen M & Moniz-Cook E (2014) Raising the standard of applied care research: addressing the implementation error Aging and Mental Health 18:7, Orgeta V, Leung P, Yates L, Kang S, Hoare Z, Henderson C, Whitaker C, Burns A, Knapp M, Leroi I, Moniz-Cook ED, Pearson S, Simpson S, Spector A, Roberts S, Russell IT, de Waal H, Woods RT, Orrell M (2015) Individual cognitive stimulation therapy for dementia: a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial. Health Technol Assess;19(64) 2016 Joling K, Windle G, Droes R, Meiland F, Van Hout H, MacNeil Vroomen J, van de Ven P, Moniz-Cook E and Woods B (2015) The prevalence, determinants and long term effects of resilience in family caregivers of persons with dementia. A longitudinal analysis of multiple studies European Geriatric Medicine (September) 6S1, S32 S156 Ballard C, Orrell M, Moniz-Cook E, Stafford J, Whittaker R Woods R, Corbett A Garrod L Khan Z Woodward-Carlton B Wenbourne J & Fossey J (2016) Impact of antipsychotic review and non-pharmacological intervention on antipsychotic use, neuropsychiatric symptoms and mortality in people with dementia living in nursing homes: WHELD - A factorial cluster randomised controlled trial The American Journal of Psychiatry 173, 3, Wenborn J Hynes S, Moniz-Cook E, Mountain G, Poland F King M, Omar R Morris S Vernooij-Dassen M Challis D Michie S Russell I, Sackley C Graff M, O Keeffe A, Crellin N and Orrell M (2016) Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial Trials 17:65 DOI /s y Feast A, Orrell M, Charlesworth G, Melunsky N, Poland F and Moniz-Cook E (2016) Behavioural and Psychological Symptoms in Dementia (BPSD) and the challenges or family carers: a systematic review British Journal of Psychiatry 208 (5) DOI: /bjp.bp

10 Vernooij-Dassen M & Moniz-Cook E (2016) Person-centred dementia care: moving beyond caregiving Aging and Mental Health 20 (7) DOI: / Wolverson, E.L, Clarke, C. & Moniz-Cook, E.D (2016) Living positively with dementia: a systematic review and synthesis of the qualitative literature Aging and Mental Health 20 (7) DOI: / ] Hynes, S. M., Field, B., Ledgerd, R., Swinson, T., Wenborn, J., di Bona, L., Moniz-Cook, E., Poland, F. & Orrell, M. (2016) Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers: Community Occupational Therapy in Dementia (COTiD). A focus group study Aging and Mental Health 20(7) [online May DOI: / Woods R, Orrell M, Moniz-Cook E, Bruce E, Edwards R, Hoare Z Hounsome B, Keady J Moniz-Cook E, Orgeta O Rees J and Russell I (2016) REMCARE: pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers: effectiveness and economic analysis Plos One 11(4): e doi: / journal.pone Rajkumar, A, Ballard,C, Fossey, J Corbett, A Woods, B, Orrell, M Prakash, R, Moniz-Cook ED, Testad I (2016) Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes: WHELD - A factorial cluster randomised controlled trial Journal of the American Directors Association [ JAMDA], 17(8) doi: /j.jamda Feast, A, Moniz-Cook, E., Stoner, C., Charlesworth G & Orrell M (2016) A systematic review of the relationship between Behavioural and Psychological Symptoms (BPSD) and caregiver wellbeing International Psychogeriatrics 28:11, doi: Joling K., Windle G., Dröes R-M., Meiland F., van Hout H., MacNeil-Vroomen J., van de Ven P., Moniz-Cook E. and Woods B. (2016) The prevalence and associated factors of resilience in informal caregivers of people with dementia. An integrative international data-analysis Dementia and Geriatric Cognitive Disorders 42: Feast A, Orrell M, Russell I, Charlesworth G, & Moniz-Cook E (2017) The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia International Journal of Geriatric Psychiatry, 32, 1,76 85 DOI: /gps.4447 Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., Moniz-Cook, E., Knapp, M., Woods, B., Hoare, Z., Aguirre, E., Toot, S., Streater, A., Crellin, N., Whitaker, C., d Amico, F., Rehil, A. (2017) Support at Home: Interventions to Enhance Life in Dementia (SHIELD) evidence, development and evaluation of complex interventions. Programme Grants Appl Res 5(5) DOI /pgfar

11 Rajkumar, A., Ballard, C., Fossey, J., Orrell, M., Moniz-Cook, E., Woods, R., Murray,J., Whitaker, R. Stafford, J., Knapp, M., Romeo, R., Woodward-Carlton, B. Khan, Z., Testad, I., Corbett, A. ( 2017) Epidemiology of Pain in People With Dementia Living in Care Homes: Longitudinal Course, Prevalence, and Treatment Implications. Journal of the American Directors Association [JAMDA] 18(5) DOI: Orrell, M., Yates, L., Leung, P., Hoare, Z., Burns, A., Kang, S., Knapp, M., Leroi, I., Moniz-Cook, E., Spector, A., Roberts, S., Whitaker, C. Woods, R.T., Russell, I., Pearson, S., Simpson, S., de Waal, H. & Orgeta, V. (2017) The impact of individual Cognitive Stimulation Therapy (icst) on cognition, quality of life, caregiver health, and family relationships in dementia: a randomized controlled trial, PloS Medicine 14(3): e DOI: *James, I A, Watson, R, Whitaker C, Stokes G, Hart C & Moniz-Cook E (2017) Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development Psychology of Older People: The FPOP Bulletin 138 (April) Ballard, C., Orrell, M., Yongzhong, S., Moniz-Cook, E., Stafford, J., Whitaker, R., Woods, B., Corbett A., Banerjee S., Testad I, Garrod L., Khan Z., Woodward - Carlton B., Wenbourne, J. & Fossey J (2017) Impact of antipsychotic review and non-pharmacological intervention on health-related quality of life in people with dementia living in care homes: WHELD-a factorial cluster randomised controlled trial International Journal of Geriatric Psychiatry 32, DOI: /gps.4572 Stansfield J., Stoner C., Wenbourne, J Vernooij-Dassen M, Moniz-Cook E & Orrell M (2017) Positive Psychology Outcome measures for family caregivers of people living with dementia: a systematic review International Psychogeriatrics 29(8) Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard R., O Brien,J., Mountain,G., Banerjee, S., Woods,B., Perneczky,R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth,G., Featherstone, K., Fox, C., Goodman,C., Jones, R., Lamb, S., Moniz-Cook, E., Schneider, J., Shepperd, S., Surr, C., Thompson-Coon, J., Ballard, C., Brayne, C., Burke, O., Burns, A., Clare, L., Garrard, P., Kehoe, P., Passmore, P., Holmes, C., Maidment, I., Murtagh, F., Robinson, L., & Livingston, G. (2017) Development of a core outcome set for disease modification trials in mild to moderate dementia: a systematic review, patient and public consultation and consensus recommendations Health Technol Assess 21( 26) Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard R., O Brien,J., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth,G., Featherstone, K., Fox, C., Goodman,C., Jones, R., Lamb, S., Moniz-Cook, E., Schneider, J., Shepperd, S., Surr, C., Thompson-Coon, J., Ballard, C., Brayne, C., Burns, A., Clare, L.,..& Livingston. G. (2017)Core Outcome Measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: systematic review and consensus recommendations PLOS 1 2(6): e

12 Moniz-Cook E, Hart C, Woods B, Whitaker C, James I, et al. (2017) Challenge Demcare: management of challenging behaviour in dementia at home and in care homes: development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families. Programme Grants Appl Res 2017; 5, 15 Feast A Orrell M Charlesworth C Poland F Featherstone K Melunsky N Moniz- Cook E (in press) Meta-Ethnography to Synthesise Relevant Studies: Capturing the Bigger Picture in Dementia with Challenging Behaviour within Families Research Methods Cases: Psychology (accepted Sept 2017) Patterson, K., Clarke, C., Wolverson, E. & Moniz-Cook, E.D (2017) Through the eyes of others the social experiences of people with dementia: a systematic literature review and synthesis International Psychogeriatrics DOI: /S Gove,D., Diaz-Ponce, A., Georges, J., Moniz-Cook, E., Mountain, G., Chattat, R., Øksnebjerg, L., & The European Working Group of People with Dementia (2017): Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement), Aging & Mental Health, online May 2017 DOI: / *Moniz-Cook E and James I (2017) Behaviour that challenges in dementia care : an update of psychological approaches for home and care home settings Psychology of Older People: The FPOP Bulletin 140 (October) Vernooij Dassen M, Moniz-Cook E and Jeon Y-H (2017) Social Health in dementia: harnessing an applied research agenda International Psychogeriatrics (accepted 11 October 2017) Hole D, Köller L, Moniz-Cook E & Halek M (accepted Autumn 2017) Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes. Journal of Nursing Measurement (probably due out late 2018) CHAPTERS Moniz-Cook, E.D. (2003) Mealtime challenges for people with dementia and staff in care homes- a psychological perspective In M Marshall (Ed) The Food Book. Chapter 5.9, pp , London: Hawker Publications Moniz-Cook, E.D. & Rusted J. (2004) Neurorehabilitation strategies for people with neurodegenerative conditions. L.H. Goldstein & J.E. McNeil (Eds) Clinical Neuropsychology, A Practical Guide to Assessment and Management for Clinicians. Chapter 19, pp , Chichester: UK: John Wiley & Sons, Ltd. Moniz-Cook E.D & Vernooij Dassen M (2005) DIADEM: European variations in diagnosis and post-diagnosis support for people with dementia In P. Dorenlot [Ed] Supporting and Caring for People with Early Stage Dementia: Challenges, Practice, Perspectives. Paris: Les Cahiers de la Fondation Médéric Alzheimer 1, ISBN Mountain GA & Moniz-Cook ED (2007) Rehabilitation for People with Dementia: 12

13 Development of an evidence-based framework. In P Dorenlot (Ed) Non Pharmacological Interventions in Dementia: Benefits, Potentials, Perspectives, Paris : Les Cahiers de la Fondation Médéric Alzheimer, 3, Bird M & Moniz-Cook ED (2008) Challenging Behaviour in Dementia; a psychosocial approach to intervention In B Woods & L Clare (Eds) Handbook of the Clinical Psychology of Ageing Wiley Chapter 33 pp Moniz-Cook ED (2008) Assessment and Psychosocial Intervention for older people with suspected dementia: a Memory Clinic perspective In K Laidlaw and B Knight Handbook of Emotional Disorders in Late Life: Assessment and Treatment Oxford University Press Chapter 18 pp Rewston C & Moniz-Cook E (2008) Understanding and Alleviating emotional distress In MG Downs and BJ Bowers (Editors) Excellence in Dementia Care: Principles and Practice. Open University Press McGraw Hill Berkshire Chapter 14 pp Moniz-Cook E & Manthorpe J (2009) Personalising Psychosocial Interventions to Individual Needs and Context In E Moniz-Cook and J Manthorpe Eds (2008) Early Psychosocial Interventions in Dementia: Evidence-based Practice. London: Jessica Kingsley Chapter 1 pp Moniz-Cook, E, Gibson, G, Harrison J, & Wilkinson H (2009) Timely Psychosocial Interventions in a Memory Clinic In E Moniz-Cook and J Manthorpe (Eds). Early Psychosocial Interventions in Dementia: Evidence-based Practice. London, Jessica Kingsley Chapter 3 pp Carr I, Jarvis K & Moniz-Cook E (2009) A host of golden memories: Individual and Couples Reminsecence In E Moniz-Cook and J Manthorpe (Eds). Early Psychosocial Interventions in Dementia: Evidence-based Practice. London, Jessica Kingsley Chapter 11 pp Manthorpe J & Moniz-Cook E (2009) Developing group support for men with mild cognitive difficulties and early dementia In E Moniz-Cook and J Manthorpe (Eds) Early Psychosocial Interventions in Dementia: Evidence-based Practice. London, Jessica Kingsley, Chapter 12 pp Rusted J. & Moniz-Cook, E.D. (2012) Neurorehabilitation strategies for people with neurodegenerative conditions. L.H. Goldstein & J.E. McNeil (Eds) Clinical Neuropsychology, A Practical Guide to Assessment and Management for Clinicians. Chichester: UK: Wiley Blackwell Chapter 23, pp Clarke C. Wolverson E. & Moniz-Cook E (2016) A Positive Psychology Approach to Dementia) In Clarke C & Wolverson E (Eds) Positive Psychology Approaches to Dementia. London Jessica Kingsley, Chapter 2 pp Book E Moniz-Cook & J Manthorpe Eds (2009) Early Psychosocial Interventions in Dementia: Evidence-based Practice. London: Jessica Kingsley 13