Dementia UK & Admiral Nurses

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1 Dementia UK & Admiral Nurses Susan Drayton Admiral Nurse Holloway road. London N7 6PA Holloway Road. London N7 6PA Registered Charity Number Registered Charity Number

2 What is dementia? Dementia is a term that is used to describe a collection of symptoms including memory loss, problems with reasoning and communication skills, and a reduction in a person's abilities and skills in carrying out daily activities. There are many different types of dementia including: Vascular dementia Alzheimer s Disease Lewy body dementia Pick s disease. It is a progressive condition and there is no cure. 04/07/2017

3 Dementia Chronic or progressive nature Disturbance of memory and other higher cortical functions Consciousness not clouded Commonly accompanied by deterioration in emotional control, social behaviour or motivation 3

4 Alzheimer s disease (about 50%) Most common form Characterised by the build-up of plaques and tangles in the brain leading to the death of brain cells. Progressive and irreversible. It tends to have a gradual onset and progression. Scans show cerebral atrophy and neuropsychological testing tends to indicate global deficits, where all aspects of cognition are impaired. 04/07/2017 This is the presentation title

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7 Vascular dementia (about 25%) Problems in the blood supply to the brain. Risk factors; high blood pressure, heart problems, high cholesterol and diabetes. Two main types of vascular dementia: caused by stroke, and caused by small vessel disease. Characterised by a sudden onset (after a vascular event). Progression is sometimes step-wise Scans show ischemic changes. Neuropsychological assessments reveal patchy deficits, where different parts of cognition are affected, depending on the location of damage. 04/07/2017 This is the presentation title

8 Mechanisms of cerebrovascular disease and vascular dementia

9 MRI Scans Vascular Dementia 9

10 Frontotemporal Dementia Around 10% of dementias Pick s Disease Cause: protein changes, pick bodies Early issues: changes in interpersonal awareness, emotional control, egocentricity, problem solving, motivation Course: insidious onset, gradual deterioration Treatment: medication for emotional and behavioural difficulties, psychosocial interventions 04/07/2017 This is the presentation title

11 Frontal Lobe Impairments Attention: difficulties focusing, switching and selecting, memory problems Emotion and Personality: lability, apathy, euphoria, inability to empathise with others, unable to pick up social cues, disinhibition Language: unable to start up conversation, lack of fluency, range and responsiveness Judgement: impulsivity, lack of creativity, poor abstract thinking, inability to self monitor or use feed-back, difficulty applying logic Planning: inability to organize, difficulty planning ahead, inability to plan or follow sequence of steps 04/07/2017 This is the presentation title

12 Lewy Body Dementia Unclear incidence, 5-20% Cause: protein changes Early issues: hallucinations, movement disorders, perceptual difficulties Course: Stepwise on / off pattern Treatment: Cognitive Enhancers; psychosocial interventions 04/07/2017 This is the presentation title

13 What might we notice? Concentration problems Working memory problems Decision making problems Changes in: communication, behaviour and mood, performance Appearance Isolation 1 3

14 There are currently over 850,000 people with the condition in the UK. 40,000 with young onset dementia This figure is expected to rise to 1.1 million by 2025 and 2 million by ,000 people will develop dementia in one person every three minutes. 04/07/2017

15 Implications Rise in population with dementia Majority live in their own homes Family members save the nation 17.4 billion by providing care Multiple health and social care needs Patchy services 1 5

16 Who are Dementia UK? Dementia UK offers specialist one-to-one support and expert advice for people living with dementia through Admiral Nurses. They were named by the family of Joseph Levy CBE BEM, who founded the charity. Joseph had vascular dementia and was known affectionately as Admiral Joe because of his love of sailing. We passionately believe that everyone who needs the support of an Admiral Nurse should get one. 04/07/2017

17 What is Admiral Nursing? Admiral Nurses are specialist nurses who work very closely with families affected by dementia. Admiral Nurses help families to live more positively with dementia in the present; and to face the challenges of tomorrow with more confidence, and less fear. Admiral Nurses work hand in hand with families, helping them cope with the fear, uncertainty and difficult everyday reality of dementia every step of the way. 04/07/2017

18 What do Admiral Nurses do? Family & relationship centred approach Work in partnership Specialist assessment & evidence based intervention Promote and implement best practice Provide supportive education Provide psychosocial support for the carer and person living with dementia Liaison with other professionals and organisations Work in consultancy and supervisory role 04/07/2017 This is the presentation title

19 Where do Admiral Nurses work? Admiral Nurses work with families, carers and professionals in the community: Care homes With families at home Hospitals They also work on Admiral Nursing Direct our national telephone and helpline. 04/07/2017

20 Admiral Nursing Direct Admiral Nursing Direct is the only nurse led dementia helpline in the country. Admiral Nursing Direct is open to families and carers for people with dementia, professionals and people living with dementia who have questions or concerns. The helpline is open seven days a week direct@dementiauk.org Tel: /07/2017

21 Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec Jan Feb Mar Apr May Jun Admiral Nursing Direct Contacts per month NEW CASES REOPENED CASES TOTAL CASES 04/07/2017

22 Kelly and Ian s Story I ve gone from him being my best friend, the person who gives me advice on things to caring for him. Nothing can prepare you for something like that. It s like I ve become a single parent to two children overnight. Kelly and her family are supported by Admiral Nurse, Jody. Watch their story to see the impact that Jody has had on their lives 04/07/2017

23 04/07/2017 Your Story

24 Prevention What s good for the heart is good for the head! Nutrition Reduce or stop smoking Exercise Active social life & mental stimulation Alcohol in moderation Stress management Quality sleep 2 4

25 How can you help? We currently have 180 Admiral Nurses across the country but we need more to ensure that there is one for every family who needs one. Donate Volunteer Tell 3 people about Admiral Nurses and Dementia UK you never know who might need their support 04/07/2017

26 THANK YOU FOR LISTENING ANY QUESTIONS? Admiral Nursing Direct: Holloway Road. London N7 6PA Registered Charity Number

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