Governing Board Meeting of the Euro-Mediterranean Universities Network TETHYS Amman, April 1 st 2015

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1 1-09:40 Governing Board Meeting of the Euro-Mediterranean Universities Network TETHYS Amman, April 1 st [emilio.dimaria@unige.it] Dept. of Health Sciences Unit of Medical Genetics Galliera Hospital, Genova 1

2 3 2

3 University of Genoa Partnerships: 152 agreements of academic cooperation with foreign Universities in 54 countries worldwide; Bilateral Agreements for students, faculty and staff mobility with more than 500 Universities in 33 European countries; 14 Networks, Associations, International Organisations. ACA Academic Cooperation Association ASEA UNINET Austrian South-East Asian University Partnership Network CMU Community of Mediterranean University CINDA Centro Interuniversitario de Desarrollo (32 Latin American and European Universities) EAIE European Association for International Education ECTN European Chemistry Thematic Network EMACA Euro-Mediterranean Academic Consortium Agreement (partnership EMUNI - University Centre for Euro-Mediterranean Studies) EUA European University Association EUCEN European Universities Continuing Education Network IAU International Association of Universities PRES Pôle de Recherche et d Enseignement Superieur REUNILAS Red de las Universidades Italianas y Latino Americanas Téthys 65 Universities of Mediterranean area UNEECC University Network of the European Capitals of Culture 3

4 Up to now the University of Genoa participates in several programmes funded by the EU, as co-ordinator and as partner: Erasmus+ Programme ( ) Key Action 1 Joint Master Degree European Master on Advanced Robotics + (EMARO +) Unige partner Key Action 2 Strategic Partnerships Jean Monnet - Chair Mediation in Civil and Criminal Cases to Foster European Wide Settlement of Disputes Unige partner European Union Environmental Law Jean Monnet - Module HOPEurope 2: Strenghtening Citizenship Democracy Peace and Sustainability in a Multilevel United Europe Jean Monnet Module European Union and the Law of the Sea Lifelong Learning Programme ( ): Intensive Programme (IP): Comenius Erasmus Multilateral Project Grundtvig School on Science Management for Scientists and Engineers (SoSME) UniGE co-ordinator Art of Sound Sound of Art - UniGE partner Mediation in Civil and Criminal Cases to foster European Wide Settlement of Disputes - UniGE partner ISSSM (International Summer School on Systematic Musicology, Sound and Music Computing) Former psychiatric hospitals: renewal of large urban complexes Chemistry is all around Network UniGE co-ordinator Stimulating Entrepreneurship through Serious Games UniGE co-ordinator Animals in Therapy Education (ATE) UniGE partner Leonardo da Vinci Jean Monnet Cargo Securing to prevent cargo damages at road, sea, rail and air (CARING) UniGE partner VET Quality in ICT Sector UniGE partner Futu.res UniGE partner An e-book for Europe Economic Policies in the EU and Third Countries Altiero Spinelli Genoa Jean Monnet Centre of Excellence EU Economic Governance and Polcies after Enlargement 4

5 Erasmus Mundus: MOBILITY DOUBLE/JOINT DEGREE COUNTRIES PROJECT AREA AND KIND OF MOBILITY (IF ESTABLISHED) Asia EMARO - European Master on Advanced Engineering Robotics (Action 1) Incoming and outgoing mobility Master course Algeria, Australia, Brazil, Japan, Vietnam, USA EMSHIP -European Education in advanced Ship Design (Action 1) Engineering Incoming and outgoing mobility Master course Third Countries SERP-Chem - International Master in Chemistry Surface, Electro, Radiation and Photo Incoming and outgoing mobility Chemistry Master course (Action 1) Third Countries Central Asia East Asia Third Countries Maghreb Middle East Tunisia ICE - Interactive and Cognitive Environments Doctorate Programme (Action 1: UniGe as co-ordinator) eastana - EuroAsian Starter for Technical Academic Network Application EMMA East - Erasmus Mobility with Asia EURMed - Etudes Urbaines en Régions Méditerranéennes AVERROES HERMES ALYSSA Engineering and Telecommunication Incoming and outgoing mobility PhD course Technology and Economics Incoming mobility; bachelor, master, PhD, PD and staff Multidisciplinary Incoming mobility: bachelor, master, PhD, PD and staff Sociology and City Planning Incoming and outgoing mobility: 1 st level University master Multidisciplinary Incoming mobility: bachelor, master, PhD, PD and academic staff Multidisciplinary Incoming and outgoing mobility: bachelor, master, PhD, PD and staff Multidisciplinary Incoming and outgoing mobility: bachelor(not for University of Genoa), master, PhD, PD, and academic staff TRANSNAT North and South Archimundus America (Action 3) Asia SCEE - Founding the Siberian Centre of European Education (Action 3) Architecture Multidisciplinary Governing Board Meeting of the Euro-Mediterranean Universities Network TETHYS Amman, April 1 st :40 5

6 Background 11-09:40 Medical Genetics is a clinical specialty which deals with occurrence Diagnosis risk transmission of human genetic diseases Prevention Patient Family Therapeutical options i.e.: with illness related to a genetic disorder in a family Counselling Preconceptional Pregnancy Childhood Adult life Elderly Background 12-09:40 Medical Genetics classifies thousands of diseases mostly rare often associated with specific ancestries and geographic areas occasionally bound to local culture e.g. consanguineous marriage, pregnancy at older age Medical Geneticists have specific competence expertise committment e.g.: Congenital anomalies Skeletal dysplasia Neurological disorders Cancer etc. Preconceptional Pregnancy Childhood Adult life Elderly 6

7 Background 13-09:40 Medical Genetics classifies thousands of diseases mostly rare often associated with specific ancestries and geographic areas occasionally bound to local culture e.g. consanguineous marriage, pregnancy at older age Medical Geneticists have specific competence expertise committment e.g.: Congenital anomalies Skeletal dysplasia Neurological disorders Cancer etc. Preconceptional Pregnancy Childhood Adult life Elderly From local experience to shared initiatives HERMES programme 14-09:40 7

8 15-09:40 Telemedicine: in Medical Genetics? The delivery of health care services, where distance is a critical factor, by all health care professionals using information and communication technologies for diagnosis, treatment and prevention of disease and injuries, research and evaluation, and for the continuing education of health care providers, all in the interests of advancing the health of individuals and their communities (WHO) Background 16-09:40 8

9 17-09:40 Rationale: clinical genetics service serve ~one million inhabitants, are located in urban areas advanced services are committed to specific clinical areas patients experience inequalities in access to services, due to distance, physical disability and income language and cultural differences are often a barrier Objective: to develop an effective framework of telemedicine applied to medical genetics across the Mediterranean rims in order to improve quality of care and reduce health inequalities and promote higher education in the field 18-09:40 Objective: Specific aims: to develop an effective framework of telemedicine applied to medical genetics across the Mediterranean rims in order to improve quality of care and reduce health inequalities and promote higher education in the field Establish the information and communication technology infrastructure. Develop harmonised protocols for clinical examinations and genetic counselling. Educate staff Inform patients and carers Evaluate efficacy, limitations and optimisations of remote consultations Transfer telegenetics in clinical practice through structured evaluations (HTA) 9

10 19-09:40 Research Quality of care Education Networking Remote consultations TeleMedicine Innovative procedures ICTs Open questions 20-09:40 Is it worth? Innovative? Interesting? Compliant with National contexts? Partners? Can it be accomplished? Reliable? Time plan? Is it sustainable? Co-financing: Granting Agencies? Companies? [ICT] across Mediterranean? Added value: Quality of care Education Research Vs investements: Infrastructure Personnel 10

11 Governing Board Meeting of the Euro-Mediterranean Universities Network TETHYS Amman, April 1 st :40 [emilio.dimaria@unige.it] Dept. of Health Sciences Unit of Medical Genetics Galliera Hospital, Genova Credits: Italian Society of Human Genetics Italian Network for Public Health Genomics Ligurian Network for Health Technology Assessment Thanks: HERMES programme Saint Joseph University, Beirut Terapia antivirale e farmacogenomica 11

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