European Collaboration on Dementia. Luxembourg, 13 December 2006

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1 European Collaboration on Dementia Luxembourg, 13 December 2006

2 2005 Call for projects Special attention has also to be given to information and definition of indicators on neurodegenerative, neurodevelopment, and non-psychiatric brain diseases relating to prevalence, treatments, risk factors, risk reduction strategies, cost of illness and social support as well as what constitutes a "healthy brain lifestyle". That includes Alzheimer and other dementias ( )

3 European Collaboration on Dementia 1. European Network 2. Guidelines and consensus statements on 1. Social support for people with dementia and their carers 2. Prevalence 3. Prevention 4. Diagnosis and treatment 5. Socio-economic cost 6. Psycho-social interventions

4 European Network Carers organisations Alzheimer Europe Alzheimer s Disease International Professional organisations European Federation of Neurological Societies European Association of Geriatric Psychiatry International Association of Gerontology (European Region) Research Networks European Alzheimer s Disease Consortium Cochrane Dementia and Cognitive Improvement Group North Sea Dementia Research Group Interdem (Early intervention and timely diagnosis)

5 Eurocode Progress Report Finalisation of contract (August 2006) Presentation of project at EAGP, EFNS, ADI conferences Dementia in Europe Yearbook 2006 Eurocode Partner Organisations Reimbursement systems Prevalence of dementia

6 WP 7 - Prevalence Inventory and comparative report of existing studies Consensual Prevalence Rates Break down between dementias (?) Break down according to severity/stages

7 The prevalence of dementia Men EURODEM Women EURODEM Ferri Hofman, A. et al. (1991), The prevalence of dementia in Europe: a collaborative study of findings, International Journal of Epidemiology, Volume 20, No.3, pages Ferri,C.L. et al. (2005), Global prevalence of dementia: a Delphi consensus study, The Lancet, Vol. 366, December 2005

8 The prevalence of dementia Age Euro Men Euro Women Ferri Hofman, A. et al. (1991), The prevalence of dementia in Europe: a collaborative study of findings, International Journal of Epidemiology, Volume 20, No.3, pages Ferri,C.L. et al. (2005), Global prevalence of dementia: a Delphi consensus study, The Lancet, Vol. 366, December 2005

9 The dimension of the problem Country Euro Euro% Ferri Ferri% Germany 1,118, % 1,010, % Italy 905, % 820, % France 847, % 760, % United Kingdom 660, % 621, % Spain 583, % 533, % Poland 350, % 300, % Netherlands 183, % 165, % Belgium 140, % 127, % Sweden 138, % 128, % Greece 135, % 123, % Portugal 129, % 119, % EU 25 5,832, % 5,277, % Alzheimer Europe (2006): Calculations based on the EURODEM and Ferri prevalence data and the EUROSTAT population statistics for 2005

10 A word of caution Underestimation of numbers in certain countries due to insufficient population statistics (or insufficiently detailed) Dementia NOT Alzheimer s disease Work to concentrate on Differentiating different types of dementia Differentiating different stages of dementia

11 WP 4 - Social support systems Inventory of support available to people with dementia and their carers Report on current situation, best practices and recommendations

12 Reimbursed anti-dementia drugs Country Donepezil Rivastigmine Galantamine Memantine Belgium Bulgaria France Germany Italy Latvia Luxembourg Malta Netherlands Poland Switzerland United Kingdom Alzheimer Europe (2006): Dementia in Europe Yearbook

13 Italy Country Belgium Czech Republic France Germany Luxembourg Netherlands Poland Slovenia Switzerland Reimbursement restrictions Presciption Specialists Specialists Specialists Any Alzheimer Evaluation Unit Any Specialists Any Specialists Any Diagnosis Protocol None None None Protocol Protocol Protocol None None None MMSE (ACHI) > None > 10 MMSE (Memantine) None R.C. Oude Voshaar et. Al. Alarming arbitrariness in EU prescription and reimbursement criteria for anti-dementia drugs, Int J Geriatr Psychiatry; 2006; 21: > 3

14 Access delays Galantamine MA. Memantine Launch Rivastigmine REIMB. First country Sweden (03/2000) Germany, Denmark, Iceland (08/2002) Switzerland (03/1997) Within 6 months Austria, Belgium, Denmark, Finland, Iceland, Ireland, Norway, Switzerland, UK Austria, Greece, Ireland, Netherlands, Norway, Sweden, United Kingdom Within 6 12 months France, Germany, Greece, Italy, Luxembourg, Poland, Portugal, Spain Finland, France, Hungary, Slovenia, Spain Finland, France, Hungary, Slovenia, Spain Within 1 to 2 years Czech Republic, Lithuania, Slovak Republic, Slovenia Belgium, Czech Republic, Poland, Portugal, Romania, Slovak Republic, Switzerland, Turkey France, Germany, UK Within 2 to 3 years Croatia, Italy, Serbia- Montenegro Spain, Netherlands Over 3 years Cyprus, Latvia, Malta, Netherlands Cyprus Austria, Belgium, Hungary, Ireland Alzheimer Europe (29006): Dementia in Europe Yearbook

15 Launch of Dementia Yearbook

16 This paper was produced for a meeting organized by Health & Consumer Protection DG and represents the views of its author on the subject. These views have not been adopted or in any way approved by the Commission and should not be relied upon as a statement of the Commission's or Health & Consumer Protection DG's views. The European Commission does not guarantee the accuracy of the data included in this paper, nor does it accept responsibility for any use made thereof.

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