ADC Directors Meeting

Transcription

1 ADC Directors Meeting (Grand Ballroom, The Roosevelt Hotel New York City, NY) 8:00 8:30 am Breakfast buffet 8:30 8:35 am Welcome: Jeffrey Kaye, MD, ADC Executive Committee Chair 8:35 9:00 am NIA Update: Richard Hodes PhD, Director, National Institute of Aging Marcelle Morrison-Bogorad PhD, Associate Director, NIA Neuroscience and Neuropsychology of Aging Program Creighton Phelps, PhD, Director, NIA Alzheimer s Disease Center Programs 9:00 9:15 am NACC Update Walter Kukull PhD, Director, National Alzheimer s Coordinating Center 9:15 9:45 am Proxy Consent Discussion moderator: Leon Thal, MD Director, University of California San Diego ADRC 9:45 10:00 am Coffee Break Symposium: Developing Technologies and New Approaches for Uncovering Genetic Mechanisms in Alzheimer s Disease 10:00 10:30 am Gene Array Technology: Identification of Novel Genes Involved in AD Pathogenesis (David Goldman, MD, Chief of Laboratory Neurogenetics, National Institute on Alcohol Abuse and Alcoholism) 10:30 11:00 am The Study of Single Nucleotide Polymorphisms and Their Role in AD (Jurg Ott, PhD, Professor and Head, Laboratory of Statistical Genetics, Rockefeller University) 11:00 11:30 am Informatics: Application of Information Sciences to Analysis and Interpretation of Novel Genetic Data (Christopher Dubay, PhD, Assistant Professor, Division of Medical Informatics and Department of Medical and Molecular Genetics, Oregon Health and Science University) 11:30 12:00 pm Early Lessons from Human AD Gene Expression Studies Perspectives from the ADC s (Patricia Kramer, PhD, Professor, Departments of Neurology and Medical and Molecular Genetics, Oregon Health and Science University) 12:00 1:30 pm Lunch Break

2 NACC Presentations (Grand Ballroom, The Roosevelt Hotel New York City, NY) 1:30 2:00 pm Development and Use of the NACC Neuropathology Form Elizabeth Cochran, MD Chair, ADC Neuropathology Core Steering Committee Rush-Presbyterian-St. Luke s Medical Center 2:00 2:25 pm NACC Center-Specific Neuropathology Procedures Survey Erin Pfeiffer, MS, NACC Research Consultant 2:25 2:35 pm Accessing the NACC Neuropathology Data and The Neuropathology Inventory System Duane Beekly, NACC Systems Manager 2:35 3:00 pm Data Analysis with the MDS and NP Data Roger Higdon, PhD, NACC Biostatistician 3:00 3:15 pm Coffee break

3 NACC Data Managers Workshop (The Roosevelt Hotel New York City, NY) room change: Vanderbilt Suite on 2 nd floor 3:15 3:30 pm MDS and Data Management Report Woody Deitrich, NACC Senior Computer Specialist 3:30 3:45 pm The Neuropathology Update Amber Clark, NACC Senior Computer Specialist 3:45 4:45 pm Group Discussions NACC staff members will moderate break-out groups (topics to be determined) 4:45 5:00 pm Discussion Wrap-Up

4 ADC Administrators Meeting Friday, October 11, 2002 (Plaza Suite, The Roosevelt Hotel New York City, NY) 7:30 8:00 am Breakfast buffet 8:00 8:05 am Welcome Mary Sundsmo, University of California San Diego 8:05 8:50 am NIA Update: Tony Phelps, ADC Program Director Elisabeth Koss, Assistant ADC Program Director 8:50 9:30 am Administrative business 9:30 9:45 am Coffee break 9:45 11:00 am Surrogate Consent and Decision-Making Capacity Assessment Daniel Marson, PhD, University of Alabama at Birmingham 11:00 12:00 pm Research under the Health Insurance Portability and Accountability Act of 1996 ( HIPAA ) Jeffrey P. Davis, JD, LLM Associate Vice President for HIPAA Compliance/Privacy Officer, Columbia University, Health Sciences Division 12:00 1:30 pm Lunch break (and travel to Columbia University) 1:30 4:30 pm Site presentations: Columbia University

5 ADC Education Core Leaders Meeting Monday, October 14, 2002 (Plaza Suite, The Roosevelt Hotel New York City, NY) 7:30 am Breakfast buffet 8:00 am Welcome Steering Committee 8:15 am NIA Update Tony Phelps, PhD, ADC Program Director Elisabeth Koss, PhD, Assistant ADC Program Director 8:30 am Presentations and discussion: Health First Cathleen Connell, PhD Educational Interventions in LTC Mary Guerriero Austrom, PhD Caregivers Cores: Opportunities and Pitfalls Mary Mittelman, PhD 10:15 am Break 10:30 am Committee Business New Member Nomination Operating Procedures 11:00 am Round Table Discussions; possible topics include: Collaborative Research M.D. Education Multi-cultural Outreach Early Stage Patients Caregiver Cores 12:00 pm Adjourn