SGEC Webinar Handouts 7/17/12
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1 Please visit our website for more informa4on - hdp://sgec.stanford.edu/ 2012 WEBINAR SERIES PART II: TACKLING THE TOUGH TOPICS IN ETHNOGERIATRICS Sponsored by Stanford Geriatric Educa4on Center in conjunc4on with American Geriatrics Society, California Area Health Educa4on Centers, & Na4vidad Medical Center PAIN MANAGEMENT IN DIVERSE OLDER ADULTS Anne Hughes, MN, PhD, ACHPN July This project is/was supported by funds from the Bureau of Health Professions (BHPr), Health Resources and Services Administra4on (HRSA), Department of Health and Human Services (DHHS) under UB4HP19049, grant 4tle: Geriatric Educa4on Centers, total award amount: $384,525. This informa4on or content and conclusions are those of the author and should not be construed as the official posi4on or policy of, nor should any endorsements be inferred by the BHPr, HRSA, DHHS or the U.S. Government. Pain Management in Diverse Older Adults Natividad Medical Center CME Committee Planner Disclosure Statements: The following members of the CME Committee have indicated they have no conflicts of interest to disclose to the learners: Kathryn Rios, M.D.; Janet Bruman; Tami Robertson; Christina Mourad and Nobi Riley Stanford Geriatric Education Center Webinar Series Planner Disclosure Statements: The following members of the Stanford Geriatric Education Center Webinar Series Committee have indicated they have no conflicts of interest to disclose to the learners: Gwen Yeo, Ph.D. and Kala M. Mehta, DSc, MPH Faculty Disclosure Statement: As part of our commercial guidelines, we are required to disclose if faculty have any affiliations or financial arrangements with any corporate organization relating to this presentation. Dr. Ann Hughes has indicated she has no conflicts of interest to disclose to the learners, relative to this topic. Dr. Hughes will inform you if she discusses anything off-label or currently under scientific research. 1
2 About the Presenter Dr Anne Hughes is an advanced prac4ce nurse in pallia4ve care at Laguna Honda Hospital and Rehabilita4on Center. She has worked for the San Francisco Department of Public Health, since 1989, ini4ally as the HIV Disease and Oncology Clinical Nurse Specialist at San Francisco General Hospital Medical Center. She holds a volunteer faculty appointment at UCSF School of Nursing as Clinical Professor in Nursing. Pain Management in Diverse Older Adults Anne Hughes, RN, PhD, ACHPN Advanced Practice Nurse, Palliative Care Clinical Professor in Nursing (volunteer) University of California San Francisco SGEC July
3 Acknowledgement Some material for this presentation was adapted from a curriculum developed for ACCESS to End of Life Care: A Community Initiative Chronic pain alone affects the lives of approximately 100 million Americans, making its control of enormous value to individuals and society. To reduce the impact of pain and the resultant suffering will require a transformation in how pain is perceived and judged both by people with pain and by the health care providers who help care for them. The overarching goal of this transformation should be gaining a better understanding of pain of all types and improving efforts to prevent, assess, and treat pain. (Relieving Pain in America: A Blueprint for Prevention, Care, Education and Research, IOM, 2011) Learning Objectives At the completion of the program the participant will be able to: Articulate the scope of the pain in older adults and disparities in pain management. Describe challenges in the assessment of pain in older adults. Identify unique management considerations managing pain in older adults. 3
4 Case Study: Mrs. Clark Mrs. Mary Clark, a 62 year old African-American widow, lives alone in subsidized housing. She was diagnosed with hypertension, arthritis and obesity by her primary care provider (PCP) several years ago. Her PCP retired two years ago and she has not received care since. Mrs. Clark was found down in her hallway. A neighbor called 911 and she was brought to the ER and admitted to acute care with CHF. The physicians (mostly European-Americans and ~ 30 yrs. younger than the patient) questioned why Mrs. Clark was not receiving care and taking better care of (her) self so (she) wouldn t wind up in the hospital. Case Study (cont.) Mrs. Clark became defensive. She thought no doctor would take care of her without getting paid. She hasn t had health insurance since her husband died and doesn t have money to pay for medicines, even if there was a neighborhood pharmacy. Mrs. Clark denies pain to her medical team. However, the nurses notice she winces with transfers and has been seen rocking herself in the chair. When the physicians question her again, she continues to deny she is in pain and says, I leave everything in the Good Lord s hands. Case Study (cont.) Mrs. Clark is very worried about her medical bills and tells the MSW she s been using some of her deceased husband s medicines that are more than 5 yrs old. Mrs. Clark also tells the MSW that she stays in her apartment all the time because where she lives is dangerous and she s afraid to go out, There s a lot of drug dealing I ve seen the damage drugs have done to my community Consider the patient, provider and system barriers to the assessment and management of pain for Mrs. Clark. 4
5 Scope of Pain Problem Chronic pain affects 100 million U.S. adults exceeding the combined impact of heart disease, cancer and diabetes. (IOM, 2011) Direct medical costs and lost productivity related to pain costs between $560 - $635 billion annually; Medicare covers 25% of pain related medical costs. (IOM, 2011) Gaps in knowledge, practice, and policy prompted a recent IOM report (2011) to call pain a public health challenge. Pain in Older Adults Prevalence of chronic pain among community dwelling older adults ranges from 18-57% (noted in IOM 2011 report). Excluding older adults in nursing homes, the prevalence of pain in older adults in last 2 years of life averaged 28%; 1 month before death, pain increased to 46% (Smith et al, 2011). Persons with arthritis (60%) were at greater risk for pain than those without arthritis (26%), near time of death (Smith et al, 2011). Pain in Older Adults (cont) 62% of U.S. nursing home residents report pain (IOM, 2011): arthritis is the most common painful condition 17% have substantial daily pain (Teno, 2001) 5
6 Challenges in Pain Treatment Older adults, the age group with the highest prevalence of pain, are often excluded from randomized clinical trials, considered the gold standard for testing medications. (Zulman, 2011) Consequently the research basis for the pharmacological management of pain in older adults is extrapolated from studies with healthy younger adult subjects, who have few co-morbidities and Who do not have age-related organ changes that may affect drug metabolism and drug excretion. Challenges in Pain Treatment Self Report is gold standard for assessing pain. Self report means a person with pain, when asked or when if volunteers, is capable of reporting/describing symptom. Challenges assessing pain in diverse older adults include: How well is a person able to recognize and then communicate his/her pain if severely cognitively impaired, or with aphasia? (cont.) Pain Assessment Challenges/ Strategies (cont) What words does the person use to describe the symptom (hurt, ache, stitch, sore, pain.)? Are there language barriers? What attitudes or beliefs might the older adult hold that interferes with his/her reporting pain? When an older adult denies pain, and there is compelling behavioral information that contradicts this denial, such as with Mrs. Clark, what should the health care worker do? Pain intensity or severity is the most commonly reassessed aspect of pain. Many patients have difficulty quantifying this subjective experience on a 0-10 scale. 6
7 Methods to Assess Pain Pain Intensity Scales: Verbal descriptor (none, mild, moderate, severe, very severe/horrible) Numeric rating scale (e.g. 0-10, 0= no pain and 10= worst pain imaginable) Behavioral Pain Scales for those unable to report pain Pain Assessment in Advanced Dementia (PAINAD) PAINAD Behavioral Indicator 0 1 Breathing Independent of vocalization Normal Occasional labored breathing. Short period of hyperventilation Negative vocalization None Facial Smiling, or Inexpressive expression Body language Relaxed Consolability No need to console 2 Score Noisy labored breathing. Long period of hyperventilation. Cheyne-Stokes respirations Occasional moan or Repeated troubled calling groan. Low level out. Loud moaning or speech with negative or groaning. Crying. disapproving quality Sad. Frightened. Facial grimacing Frown Tense. Distressed pacing, fidgeting Rigid. Fists clenched, Knees pulled up. Pulling or pushing away. Striking out. Distracted or reassured Unable to console, by touch or voice distract or reassure Total Score Warden V, Hurley AC, Volicer L. (2003). Development and Psychometric Evaluation of the Pain Assessment in Advanced Dementia (PAINAD) Scale. JAMDA, 4(10): Common Patient Barriers Some persons are hesitant to report pain. Many older adults believe pain or suffering is normal part of aging that is to be endured. Many older adults do not believe pain can be relieved without troublesome side effects, e.g., constipation, cognitive changes, OR without becoming addicted. 7
8 Pain Assessment Strategies Appreciate that how you, your family, or your profession respond to pain may not be the same as others responses. Act unhurried in your data collection to establish rapport, convey caring, and insure more accurate information even when you are feeling rushed. Physical examination and other tests may help in determining the etiology of the pain when a person unable to provide detailed pain history. Pain Assessment cont. Avoid leading questions, Your pain is controlled right? Listen to the words the person uses to describe the pain symptom (e.g. ache, twinge, sore etc.) Use the patient s word to complete your assessment (e.g. location, quality, severity, impact on ADLs, duration, pharmacological and complementary strategies used, aggravating and alleviating factors) and reassessment. Pain Assessment cont. Interview persons who can report pain. Use a medical interpreter if you do not speak the patient s language, (not a family member) if at all possible. Monolingual Chinese persons may read a pain intensity scale displayed vertically, i.e. reading downward, better, rather than horizontally displayed, i.e., reading from left to right (McCaffery, Pasero, 1999). Elicit the person s interpretation of the meaning of the pain, and their hopes and concerns about pain management. 8
9 Disparities in Pain Management IOM report, Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care (2003) summarized research findings on disparities of analgesic use: African-Americans and Hispanic patients were less likely to receive analgesia than white patients with the same long bone fracture. African-American nursing home residents with cancer were less likely to receive treatment for pain compared with white NH residents. Unequal Treatment, IOM, 2003 Minority outpatients with cancer received less treatment when treated at a setting that cared for mostly persons of color, than those who received care at settings that served mostly white patients. Minority outpatients with cancer received less analgesia than white patients and the severity of their pain was underestimated by their MDs. For post op patients receiving Patient Controlled Analgesia (PCA), Hispanics and Asians had less medication prescribed than whites and African-Americans. Research Findings re. Pain Management 25% of NYC pharmacies in nonwhite neighborhoods vs. 72% of pharmacies in white neighborhoods carried sufficient opioids to treat pain (Morrison et.al. NEJM, 2000). African-American veterans with arthritis were more likely than whites to report prayer as helpful in managing their pain; their perception of the helpfulness of prayer influenced their decision not to have surgery (Ang et al., 2002). 9
10 Research Findings (cont.) African-Americans reported higher levels of clinical pain, greater pain-related disability, and demonstrated less tolerance for experimentally- induced ischemic pain than whites treated at a multidisciplinary pain center (Edwards et. al, 2001). African-Americans reported significantly more pain, greater degree of suffering, and less control of pain. In addition, African Americans exhibited greater disability and susceptibility to PTSD, compared to whites treated at a multidisciplinary pain center (Green et. al, 2003). Research Findings (cont.) Older Korean female immigrants living in the U.S. with osteoarthritis constructed a meaning of pain that included (Dickson, Kim, 2003) recognizing western medicine had no magic cure for the pain, appreciating the comfort of ethnic/folk remedies and seeing pain as a aspect of aging rather than a symptom of disease. Research Findings (cont.) Puerto Rican (PR) patients with pain treated in a U.S. pain center compared with those treated on the island (Bates et.al, 1997) observed: Anglo-providers own cultural assumptions about individualism and self-responsibility contrasted with PR values of collectivism, family, and a holistic view of illness. Anglo-providers practice was based on mind-body dualism (despite giving lip service to integrated approach) and their focus was on treating the pain and not the associated disability. Judgmental attitudes of staff were evident when patients were expressive in describing pain. These patients were characterized as being overly emotional. 10
11 Pain treatment: self management Self management Expectations about pain relief Medication knowledge, informed consent about risks/ benefits of opioids for nonmalignant pain, and monitoring for adherence/misuse Exercise and physical modalities, heat/cold, tub bath, swimming. Use of complementary approaches: meditation, massage, yoga, tai chi, music etc. Cultural/family comfort measures Pain treatment: Medications Classes of analgesics Non-opioids, e.g. acetaminophen, ASA, NSAIDs, OTC Opioids In combination with non-opioids, e.g. Vicodin, Percocet Plain (codeine, oxycodone, morphine, hydromorphone, fentanyl, methadone) Co-analgesics/adjuvants, e.g. antidepressants, antiseizure, Scheduling of medications Around the clock for persistent pain PRN, as needed for breakthrough pain or incident pain Long acting vs short acting Route of administration, oral (by mouth), transdermal (skin patch), suppository (by rectum), or topical (on skin). Side effect monitoring Pain treatment: Nonpharmacological Non-pharmacological (complementary) interventions include: Rehabilitation Therapies (PT/OT) for exercises, adaptive devices, strengthening, etc. Cognitive/Behavioral Therapy Massage, Feldenkrais Energy work: Reiki, Therapeutic Touch Yoga, Tai Chi Music Therapy Aromatherapy Meditation practices Swimming Walking program 11
12 Summary Older adults from diverse communities are at high risk for under recognition and under treatment of pain. Untreated pain has significant consequences to physical and psychosocial wellbeing. Pain management requires non-pharmacological and pharmacological interventions. Web Resources Joint Commission Facts about Pain Pain_Management.pdf National Comprehensive Caner Network: adult cancer pain guidelines for professionals and consumers f_guidelines.asp#senior Web Resources American Geriatric Society clinical_practice/clinical_guidelines_recommendations/ 2009/ American Pain Society, Guideline for the Management of Pain in Osteoarthritis, Rheumatoid Arthritis, and Juvenile Chronic Arthritis (Archival Version) ProductDetail/tabid/55/Default.aspx?ProductId=471 12
13 References IOM (Institute of Medicine) Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research. Washington, DC: The National Academies Press. AGS Panel on Persistent Pain in Older Persons. (2002). The Management of Persistent Pain in Older Persons. Journal of the American Geriatric Society, 50:S205-S224. Institute of Medicine [IOM]. (2003) Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington D.C.: National Academy Press References Mc Caffery M., Pasero C. (1999). Pain Clinical Manual, 2nd edition. St.Louis: Mosby Co. Morrison S. et al. (2000) We Don t Carry That Failure of Pharmacies in Predominantly Nonwhite Neighborhoods to Stock Opioid Analgesics, NEJM, 342: Ang DC et. al. (2002). Ethnic Differences in the Perception of Prayer and Consideration of Joint Arthroplasty, Medical Care, 40: References Dickson GL, Kim JI. (2003) Reconstructing a Meaning of Pain: Older Korean American Women s Experiences with Pain of Osteoarthritis. Qualitative Health Research, 13: Edwards et. al. (2001) Ethnic Differences in Pain Tolerance: Clinical Implications in a Chronic Pain Population. Psychosomatic Medicine, 63: Green et al. (2003). The Effect of Race in Older Adults Presenting for Chronic Pain Management: A Comparison Study of Black and White Americans, Journal of Pain, 4:
14 References Ferrell, B. A Pain evaluation and management in the nursing home. Annals of Internal Medicine 123(9): Hutt, E., G. A. Pepper, D. Vojir, R. Fink, and K. R. Jones Assessing the appropriateness of pain management prescribing practices in nursing homes. Journal of American Geriatrics Society 54: Reisman, M The problem of pain management in nursing homes. Pharmacy and Therapeutics 32(9): References Bates MS et. al. (1997). The Effects of the Cultural Context of Health Care on the Treatment of and Response to Chronic Pain and Illness. Social Science and Medicine, 45: Smith AK, Cenzer IR, Knight SJ et. al (2010). The Epidemiology of Pain During the Last Two Years of Life. Annals of Internal Medicine, 153: References Teno, J. M., S. Weitzen, T. Wetle, and V. Mor Persistent pain in nursing home residents. Journal of the American Medical Association 285: Papaleontiou, M., C. R. Henderson, Jr., B. J. Turner, A. A. Moore, Y. Olkhovskaya, L. Amanfo, and M. C. Reid Outcomes associated with opioid use in the treatment of chronic non-cancer pain among older adults: A systematic review and meta-analysis. Journal of American Geriatrics Society 58(7): Zulman, D. M., J. B. Sussman, X. Chen, C. T. Cigolle, C. S. Blaum, and R. A. Hayward Examining the evidence: A systematic review of the inclusion and analysis of older adults in randomized controlled trials. Journal of General Internal Medicine [Epub ahead of print]. in randomized controlled trials. Journal of General Internal Medicine [Epub ahead of print]. 14
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