Ohio Psychotropic Medication Quality Improvement Collaborative. Minds Matter. Toolkit. for You and Your Family. This is the property of

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1 Minds Matter Ohio Psychotropic Medication Quality Improvement Collaborative Minds Matter Toolkit for You and Your Family This is the property of

2 About Minds Matter Minds Matter is a project to help teens, families, and caregivers work with doctors to care for certain types of mental health problems among kids and teens. Problems like poor attention, or being depressed or angry a lot. This toolkit was made to help you make good choices about mental health. It can help kids and teens have a voice in their care, and guide family members, caregivers, and foster parents to help their children. It also helps professionals like doctors and social workers support their patients and clients. Minds Matter has resources for your family on its website: How to use this toolkit Personal Decision Guide Use this before, during, and after your doctor visit to: Prepare for a doctor s visit. Think through your options. Make good choices and share them with others. Medication Side Effects Watch List Use this during and after your doctor visit to: Learn about mental health medications. Discuss possible side effects and benefits of medications.

3 Personal Decision Guide Before Your Visit Information for Foster Care Your Decision Team: Makes the best choices together School Supports your learning. Other Family Members Provide support. Health Professional Listens to your needs and helps make a care plan. Youth and Parent/Caregiver Share needs and concerns. Follow through on what they agree to do. Other Important Adults Mentor/help you. Prepare for visit: Be ready to describe: Your Family A typical day. Any blood relatives with mental health problems. Any alcohol/drug use during the mother s pregnancy. You or Your Child Sickness or disability. Stressful or traumatic events. Things you have already tried or want to try. Anyone who is important in your life. What behaviors concern you or others the most? Poor attention Hyper Depressed or sad Angry Acts out Poor listening Moody Worried or stressed Other What do you want to get out of your doctor s visit?

4 Personal Decision Guide Before Your Visit Information for Foster Care NOTES : Who is on your decision team? Describe your family You or your child

5 Personal Decision Guide During Your Visit Today s appointment Date Time Have you had a complete evaluation? Yes No Should you see a specialist? Yes No Is there a diagnosis? Yes No What is it? Discuss Options Option 1 Option 2 Option 3 Is there a big benefit? Yes No Yes No Yes No Are the side effects/risks small? Yes No Yes No Yes No Is the cost ok? Yes No Yes No Yes No Will it help meet your goals? Yes No Yes No Yes No How much do you like this option? A lot Not much Some A lot Not much Some A lot Not much Some Check if you and the doctor have the same understanding. Other treatment options. Issues with getting the option you like (travel, cost, time). Will the medications interact with (or affect) each other? i Where can you get more information or help?

6 During Your Visit Personal Decision Guide NOTES : Evaluation/diagnosis: Options:

7 Personal Decision Guide During or After Your Visit Step 1: Think Are you ready to make choices? Yes Discuss how to begin with the doctor. Step 2: Choose Step 3: Set Goals How will you know you are making progress? Make Choices Step 4: Evaluate No That s ok. Take some more time to think. Make a follow-up appointment today. How long will it take to see results? Use the next page to keep track of how the treatment is working out. Take it to your next appointment. Date To ask questions or tell the doctor your choices over the phone, call: How often will you have check-ups? Time What should you do to get good results?

8 Personal Decision Guide During or After Your Visit NOTES : : Goals:

9 Personal Decision Guide Symptoms Follow-Up Appointments Today s appointment Date Time How are you doing? Describe Care Plan How is it going since your last visit? How many doses were missed? Any side effects? Medication More than 10 Yes Describe No Why? Counseling How many times did you go? More than 4 Describe How many days have you missed? School More than 4 Describe Other (like diet or exercise) Were you able to follow the plan? Yes No Somewhat Describe Is there anything else you would like to talk about today?

10 Personal Decision Guide Follow-Up Appointments NOTES : What changes are you seeing? Anything going on at home? Questions you have for the doctor:

11 Share Your Choices Personal Decision Guide Who shares? You can complete this page and share it with others if you choose to. Why share? Professionals can help you if they know basic information about treatment. To get more support. Who to share with? School, counselors, caseworkers, family members, doctors, and others. How to share? 1. Decide who to share with and what to share. 2. Complete this checklist and make copies. 3. The doctor or nurse can help fill it in. Child s Information Name Date of birth Diagnosis Current treatments (include frequency/dose of medications) Goals: Goals: Goals: Needs How my team can help me succeed: School Caseworker/care manager Counselor Home Doctors Others Who to contact about this child Parent/legal guardian/authorized caregiver Relationship to child Best way/time to contact Cell phone

12 Share Your Choices Personal Decision Guide NOTES : : Needs:

13 Medication Personal Decision Side Effects Guide Watch List Medication General Side Side Effects Watch List S S Any medications may cause common, general side effects such as: About this watch list Common side effects are listed, but there may be others you want to discuss with your doctor. Sleepy Headache Tips about medications Medications treat the symptoms of mental conditions. They cannot cure the condition, but they can help you feel and function better. Medications work differently for different people. Use caution; medications can react with each other. There may be other uses for medications which is called off-label. You should have therapy along with your medication. Stomachache Changes in appetite/ weight Throwing up Don t take street drugs or medicines not prescribed to you. About side effects Some side effects go away with time. If they happen right after starting medication, they might be side effects. Changes in bowel habits Rashes

14 Medication Personal Decision Side Effects Guide Watch List Medication-Specific Side Effects Side Effects Watch List Symptoms Hyper Poor attention Poor listening Act without thinking Potential Conditions Medications Common Side Effects Rare Side Effects S S Attention Deficit Hyperactivity Disorder (ADHD) and Attention Deficit Disorder (ADD) Stimulants 1 such as methylphenidate or amphetamines Brands: Ritalin, Adderall Non-Stimulant: Atomoxetine, Strattera Loss of appetite Difficulty falling asleep High blood pressure and heart rate Strange feelings on skin or seeing/ hearing things that aren t there Mania (super hyper or moody) Hyper Poor attention Poor listening Act without thinking ADHD and ADD Alpha-agonist such as clonidine, guanfacine Brands: Kapvay, Intuniv Light-headed Dry mouth/eyes Trouble with liver or kidneys Changes in blood pressure Depressed or sad Moody Worries a lot Depression, Anxiety, PTSD, and Obsessive- Compulsive Disorder (OCD) Antidepressants such as fluoxetine, sertraline and escitalopram Brands: Prozac, Zoloft, Lexapro Dizziness Sweating Sleeping problems Depression worsens or suicidal thoughts Changes in heartbeat, body temperature or muscle tone Activation (repeated physical actions) Crying Cranky Complaints about health without a clear cause Seizure disorders, certain cases of severe anxiety (like panic attacks) Benzodiazepines 1 * such as alprazolam or clonazepam Brands: Xanax, Klonopin, Ativan *Not usually recommended for children Dizziness Gets annoyed easily Memory problems Seizures (might happen if you suddenly stop taking it) Dependency (body becomes used to medicine) Extreme moods or behavior changes Racing thoughts Changes in sleep habits Bipolar disorder Mood Stabilizers* such as lithium Brands: Eskalith such as valproic acid Brands: Depakote *Regular blood work is needed Tremors Thirsty Urinate a lot Nausea Tremors Weight gain Trouble with kidneys and/or thyroid Easy to bruise/bleed Trouble with liver and/or pancreas Confusion 1 High abuse potential

15 Medication Side Effects Watch List Medication-Specific Side Effects Atypical Antipsychotics Medication Type Potential Conditions Common Side Effects Rare Side Effects Aripiprazole like Abilify Asenapine like Saphris Weight gain Muscle stiffness Clozapine like Clozaril Iloperidone like Fanapt Lurasidone like Latuda Olanzapine like Zyprexa Quetiapine like Seroquel Risperidone like Risperdal Schizophrenia Bipolar Irritability with autism {Other Feeling sleepy Dry mouth Constipation Blurred vision Restless Unusual movement like jerking or twitching Changes in blood sugar and cholesterol Delay or changes in your period Breast enlargement in boys or girls Sudden high fever with confusion Ziprasidone like Geodon There may be other uses for medications which is called off-label. Key = Tell a nurse or doctor. = See a nurse or doctor right away and take your medication with you. Medication Legend bid=twice a day tid = three times a day qid = four times a day i =one ii = two iii = three prn = as needed hs = bedtime po = by mouth