Is That for Me? : Challenging the Assumptions of PrEP for Women. Dázon Dixon Diallo, DHL MPH SisterLove Inc Atlanta GA/Johannesburg SA
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2 Is That for Me? : Challenging the Assumptions of PrEP for Women Dázon Dixon Diallo, DHL MPH SisterLove Inc Atlanta GA/Johannesburg SA
3 SISTERLOVE S MISSION To eradicate the impact of HIV/AIDS and other sexual and reproductive oppressions upon women and their communities in the United States and around the We world. are a orga n sm izatio n doi all ng big th ings! really
4 SisterLove, Inc. Founded July 1989 Metropolitan Atlanta, GA 20+ county area Johannesburg, RSA + 4 Districts 18 Full time, 3 Part time, 3 Interns, 1 Law/Policy Fellow Serve over 5,000 women, men and youth per year 2+2 Office locations (USA & RSA) We are a big organization doing bigger things!
5 Principles of Practice Women-centered, feminist-based Human Rights & Reproductive Justice Lived Experiences/Power of Own Story Respect & Acknowledge Women s Sexuality and Sexual Rights n Non-judgmental, Inclusive and Trusted n The I Principles n n n n
6 The I Principles of Practice n Imagination n Inclusion n Innovation n Intersectional n Integration n Interrelated & Interdependent
7 SisterLove Programs n Health, Education And Prevention (HEAP) n Advocacy & Policy Mobilization n Positive Women s Leadership n Community-Based Prevention Research n SisterLove International/South Africa (SLISA)
8 CAN YOU SEE IT?
9 CAN YOU SEE IT?
10 CAN YOU FEEL IT?
11 CAN YOU CHANGE IT?
12 CAN YOU CHANGE IT?
13 CAN YOU CHANGE IT? SEXUAL & REPRODUCTIVE JUSTICE
14 What is Sexual/Reproductive Oppression? Reproductive oppression is the control and exploitation of women, girls, and individuals through our bodies, sexuality, labor, and reproduction. -- ACRJ
15 Sexual & Reproductive Justice (SRJ) Sexual & Reproductive Justice exists when all people have the social, political and economic power and resources to make healthy decisions about our gender, bodies, sexuality, and families for our selves and our communities
16 SRJ FRAMEWORK Health Services Delivery Sexual & Reproductive Oppression Policy/ Legal Advocacy Organizing & Movement Building
17 Locating HIV in Human Rights & SRJ Human Rights Sexual & Reproductive Justice HIV/AIDS Movement
18 HIV & RJ - Challenges Lack of HIV information, testing, and linkage to care Discrimination, bias, and stigma in health care settings Sex-negativity negative bias toward WLwH s sexuality and sexual expression Informed consent is not upheld Family planning options are limited Insufficient provider expertise and inadequate womencentered research
19 CDC: Numbers of Persons at Risk for HIV Remain High, but Percentages Vary by Population Estimated percentages and numbers of adults with indications for PrEP, by transmission risk group, United States, 2015 Transmission risk group Men who have sex with men, aged yrs Adults who inject drugs, aged >18yrs Heterosexually active adults, aged yrs % with PrEP Estimated number indication* (95% Cl) , , ,000 Men** ,000 62, ,000 Women , , ,000 1,232, ,000-1,803,000 Total 212, ,000 45, , , ,000 CI = confidence interval. *Percentage of all estimated persons in each transmission risk group and demographic subset with PrEP indications. Based on National Health and Nutrition Examination Survey (NHANES) data, weighted as recommended using current population estimates. Risk factors used to define PrEP indications included two or more male sex partners and at least one of the following: any condomless sex or sexually transmitted infection diagnosis in past 12 months. Based on 2013 National Survey on Drug Use and Health. Risk factors used to define PrEP indications included injection of heroin, methamphetamine, stimulants, or cocaine, and injecting with a needle used by someone else before them. Based on National Survey of Family Growth and NHANES data, weighted as recommended using current population estimates. Risk factors used to define PrEP indications included two or more opposite sex partners and at least one of the following: sex with an HIV positive partner; or any condomless sex in the last 4 weeks and sex with a male who injects drugs or bisexual male (females only) in last 12 months. **The relative standard error for males was 30.09%. Smith D, et al. MMWR Morb Mortal Wkly Rep 2015;64:1-6
20 African Americans Have the Highest Lifetime Risk of HIV Diagnosis Lifetime Risk of HIV Diagnosis Among MSM, Overall and by Race/Ethnicity1 Lifetime Risk of HIV Diagnosis by Ethnicity1 African American Men 1 in 20 African American Women 1 in 48 Hispanic Men 1 in 48 Hispani c Women White Men White Women MS M 1 in 6 African American MSM 1 in in 2 1 in 4 Hispani c MSM 1 in in 880 White MSM 1 in 11 African Americans are the most affected ethnic group with a lifetime HIV risk of 1 in 20 for men (compared to 1 in 132 for whites) and 1 in 48 for women (compared to 1 in 880 for whites)1 African American MSM and Hispanic MSM have a 1 in 2 and 1 in 4 lifetime risk of HIV infection, respectively accessed Sept. 2016
21 FTC/TDF for PrEP Utilization Compared With Population and New HIV Infections Estimated Population Distribution by Race/Ethnicity, 2014, USa AA Total FTC/TDF for PrEP Utilization by Race/Ethnicity, Sept 2015, USb White Hispanics Asians Estimated New HIV Infections, 2014, USc Multiracial/Other FTC/TDF for PrEP use among AA and Hispanics is low relative to the rate of new HIV infections a. b. c. These data represent 43.7% (n=21,463) of unique individuals who have started TVD for PrEP from Q2015. Other indicates American Indian or Alaska Native, and Native Hawaiian or other Pacific Islander. CDC. HIV Surveillance Report, 2014 Bush S, et al. ASM/ICAAC 2016; Boston, MA. #2651
22 Women and PrEP An estimated 468,000 women years of age have indications for PrEP use An unknown number of uninfected women in HIV discordant couples become pregnant each year Only 18,812 women have initiated PrEP, with 7,313 of those new starts being in 2015 Only 4% of women at risk have started Truvada for PrEP There is a discrepancy between the HIV epidemic in women and number of women using PrEP. Smith D, et al. MMWR Morb Mortal Wkly Rep 2015;64:1-6 Mera, R. et al. AIDS Durban, South Africa. Oral #TUAX0105LB
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24 What is istarshipp? istarshipp Initiative is an innovative suite of strategies that are intended to accelerate the reduction of new HIV infections among Adolescent Girls & Young Women (AGYW) and their male counterparts.
25 STARSHIPP STARSHIPP Strategies for Those at Risk Seeking High Impact Prevention & PrEP Screen, Identify & Link to Care Healthy Love Party Plus #PrEPflix & Chill I Desire: Campaign to Hear Women s Voices POWaR Workshops (Prevention Options for Women at Risk US Women & PrEP Working Group istarshipp 5 Highly Impacted Districts in South Africa
26 ISTARSHIPP Focus Areas (DREAMS) Capacity Building with CommunityBased Organizations Supporting the Implementation of PrEP (Pre-exposure Prophylaxis) Linking Men to Health Services
27 istarshipp Suite of Interventions Healthy Love Party Plus! Screen, Identify and Link to Care (SILC) I Desire: Campaign to Hear Women s Voices We Are Here Workshop #PrEPflix & Chill (new/pilot) Girls/Women & PrEP Working Group (GWPWG) Prevention Options for Women at Risk (POWaR) Workshops
28 Combination HIV Prevention & Advocacy Biomedical Interventions Behavioral/Social Interventions Structural Interventions Interpersonal Interventions
29 GAME CHANGE: Women Fight for Inclusion
30 In Context PrEP Implementation
31 The How Intersectionality - Our programs cannot be siloed because people s lives are not siloed Rights-based, Justice-based, Assets-based Approaches Voices, Engagement & Leadership of the Groups Most Affected (Key Populations) Bryanisms Bryan Stevenson s Formula for Justice
32 The How: Rights, Justice & Assets
33 The How: Voices, Engagement & Leadership of Most Affected (Key Populations) PLWH Leadership & Mentoring for Advocacy Community Education on HIV & Human Rights Engaging with public health programs & policies Advocacy for women in scientific advances in HIV treatment & prevention Sharing stories that inspire change and mobilization
34 The How: Bryanisms Formula for Justice
35 The How: Bryanisms Formula for Justice BE PROXIMATE
36 The How: Bryanisms Formula for Justice CHANGE THE NARRATIVE
37 The How: Bryanisms Formula for Justice PROTECT THE HOPE
38 The How: Bryanisms Formula for Justice GET/MAKE UNCOMFORTABLE
39 Save the Date July 19 21, 2018 Amsterdam A Summit at the Intersections of HIV, Sexual & Reproductive Health & Justice Among PanAfrican and Diasporan Women of African Descent
40 Thank you!
41 Contact Me and Follow Us! Dázon Dixon Diallo, DHL MPH Founder/President SisterLove Inc 3709 Bakers Ferry Rd, SW Atlanta, Georgia Office: Website:
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