TB/HIV policy monitoring & advocacy - an HIV institutional perspective. Alasdair Reid
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1 TB/HIV policy monitoring & advocacy - an HIV institutional perspective Alasdair Reid UNAIDS May 9, 2012
2 Outline Historical perspective International policy frameworks and commitments to addressing TB in people living with HIV Translating global commitments into local action Engaging civil society in M&E of national TB/HIV activities UNAIDS May 9, 2012
3 Advocacy A set of targeted actions in support of a specific cause A strategic process to influence positive political, social, economic and cultural change UNAIDS Getting influential people to do what you want them too.
4 GIPA principle Greater involvement of people living with HIV/AIDS People living with HIV - understand their situation better than anyone - best placed to support/educate one another - best placed to represent their needs in decision- and policy-making forums First voiced in 1983 at a national AIDS conference in Denver, USA Formally adopted as a principle at the Paris AIDS Summit in countries declared GIPA critical to national AIDS response GIPA now backbone of many AIDS interventions worldwide People living with/affected by HIV involved in wide variety of activities - appearing on posters, in videos, in plays - bearing personal testimony, and - supporting and counseling others with HIV - participating in major decision- and policy-making activities UNAIDS May 9, 2012
5 Civil society involvement in TB control Strong civil society movement against TB pre-antibiotic era - KNCV 1903 and UNION 1867/1920 DOTS strategy Community involvement not explicitly mentioned WHO Community TB care project Community-based care/role of community in delivering care rather than engagement of community in advocacy/activism, planning, M&E Amsterdam Declaration to Stop TB Recognised importance of building partnerships with community UNAIDS May 9, 2012
6 Civil society involvement in TB control Advocacy, Communication and Social Mobilization Working Group - Established 2005 Global Plan to Stop TB ( ) - Meaningful involvement of patients and affected communities Stop TB strategy Empower people with TB and communities WHO Global TB Control Report 2006 UNAIDS May 9, 2012
7 Power of advocacy HIV HIV epidemic began 25 years ago History of strong political advocacy/activism Rapid test on finger prick or saliva in minutes, simple and accurate Dozens of new drugs to treat HIV US research budget for HIV $3000 million (global at least $8bn) TB TB thousands of years old Recent adoption of advocacy/ activism Diagnostic test more than 120 years old, tedious & inaccurate No new TB drugs for >40 years Global research budget for TB $430 million
8 Civil society role in global policy & advocacy Global Plan to Stop TB ( ) - TAG and other civil society groups refused to endorse the TB/HIV WG component of the GP as it was too slow and not in line with Universal Access - Now (some of) TB/HIV WG targets being met in Africa UNGASS Shadow civil society reports - TAG and OSI lobbied country missions to include TB language in UNGASS political declaration - Emphasize the need for accelerated scale-up of TB/ HIV activities, in line with GP , and for investment in new drugs, diagnostics and vaccines that are appropriate for people with TB-HIV coinfection
9 Civil society role in global policy & advocacy UNAIDS Programme Coordinating Board, Chiang Mai Important role that the NGO delegation played in promoting TB as an important issue for people living with HIV at the PCB in Active participation of HIV and TB civil society groups in PCB presentations, panel debates and market place Recognizes the 2006 UNGASS commitment to Universal Access to address threat of TB, esp MDR/XDR TB, poses to people living with HIV Calls on member states to mobilize affected communities, CBOs & FBOs in addressing TB in people living with HIV including issues of stigma, human rights, migrants and other marginalized populations and adherence support Recognizes the need for a person-centered approach (one life two diseases) Requests UNAIDS and WHO to build capacity of affected communities to respond to the dual epidemics of TB and HIV
10 Civil society role in global policy and advocacy First HIV/TB Global Leaders Forum on HIV/TB - Major input from civil society - redrafted - Call to action reflects the decisions of the PCB UN High Level Meeting on HIV/AIDS Panel 4 At country level - OSI Public Health Watch projects supported 53 individuals and organizations in 38 countries to conduct monitoring and advocacy of policies on TB and HIV - Stop TB Partnership Challenge Facility Supports civil society engagement in advocacy and social mobilization activities to raise awareness and shape TB policy at local and national levels Awaiting evaluation of first year of funding
11 Thank you!
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