EpiDoC data set. W0 EpiReumaPt (CESOP) W0 EpiReumaPt (CESOP)
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1 EpiDoC data set 1. Data collection Start date 19/09/ /03/ /09/2015 End date 20/12/ /07/2015 Face-to-face Clinical Telephonic Data collection interview assessment interviews n 10,661 3,877 7,591 Telephonic interviews 2. Data structure 2.1. Sociodemographic & socioeconomic data Se Date of birth Ethnicity Nationality Place of birth Marital status Education level Years of education Employment status Household income Household composition Number of people <18y in household Number of people >65y in household Region (NUT II) Location District Population size Home & neighborhood characteristics 1
2 2.2. Health data Anthropometric measures Height (in cm) Weight (in kg) Body Mass Inde (kg/m 2 ) Chronic diseases (self-report) High blood pressure Diabetes High cholesterol level Pulmonary disease Cardiac disease Gastrointestinal disease Neurologic disease Allergies Mental disease Neoplasic disease Thyroid and parathyroid disease Hypogonadism Hyperuricemia Urinary disease Rheumatic disease Rheumatic diseases Rheumatoid arthritis Spondyloarthritis Psoriatic arthritis Osteoarthritis Osteoporosis Gout 2
3 Polymyalgia rheumatica Systemic lupus erythematosus Fibromyalgia Periarticular diseases Low back pain Inflammatory low back pain Chondrocalcinosis SAPHO Bsehçet's disease Systemic sclerosis Sjögren's syndrome Inflammatory myopathy Undifferentiated connective tissue disease Mied connective tissue disease Juvenile arthritis Other RMD Who diagnosed RMD Rheumatic complaints Medical history Physical eamination Aniety, depression, physical function & quality of life Hospital Aniety and Depression Scale (HADS) Health Assessment Questionnaire (HAQ) Short Form Health Survey (SF-36) European Quality of Life questionnaire (EQ- 5D-3L) 3
4 Falls & bone fractures Suffered any fall Where the fall happened (home, street, work) Number of falls (home, street, work) Suffered any bone fracture Number of bone fractures Location of bone fracture Health & employment Retired due to disease Retired due to RMD Work absenteeism due to disease Work disabled due to RMD Unemployed due to disease Unemployed due to RMD Number working hours/week Changed employment status (last year) due to RMD 2.3. Health resources consumption Hospitalizations, home care assistance & medical appointments Was hospitalized (last 12 months/since last contact) Reason & duration of hospitalization Home care assistance (last 12 months/since last contact, currently) Who provides & who pays for home care assistance Medical appointments (last 12 months/since last contact) 4
5 Number private/public medical appointments Private medical appointments with/without insurance Public medical appointments in hospital/health care center Number private/public medical appointments by specialty Health care system (ADSE, subsystems, private insurance) Medications & other treatments Currently takes any medicine Medicine(s) that is currently taking Other treatments (physical and rehabilitation medicine, behavioral therapy, etc.) Alternative treatments (acupuncture, homeopathy, etc.) 2.4. Lifestyle data Smoking habits (current/past smoker, number of cigarettes, smoking duration) Alcohol intake (frequency, number of units) Coffee intake Physical eercise (frequency, type, age when started) Sleep habits (hours/day) Frequency of watching TV Frequency of using computer/videogames/tablets Frequency of using internet Number of meals/day Frequency of soup, vegetables, fruit, meat, fish, milk/diary, water consumption Frequency of olive oil, wine, beans, fat, sugar, consumption 5
6 Attitudes towards food Food insecurity scale Food acquisition and preparation 2.5. Biobank & imaging data Serum Whole blood DNA Wrist X-Ray Calcaneus X-Ray Hand X-Ray Hip X-Ray Knee X-Ray Lumbar spine X-Ray Thoracic spine X-Ray Cervical spine X-Ray 6
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