Psychosocial Factors in Arthritis
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1 Psychosocial Factors in Arthritis
2
3 Perry M. Nicassio Editor Psychosocial Factors in Arthritis Perspectives on Adjustment and Management
4 Editor Perry M. Nicassio, PhD Clinical Professor Department of Psychiatry School of Medicine University of California, Los Angeles Los Angeles, CA, USA ISBN DOI / ISBN (ebook) Library of Congress Control Number: Springer Cham Heidelberg New York Dordrecht London Springer International Publishing Switzerland 2016 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Printed on acid-free paper Springer International Publishing AG Switzerland is part of Springer Science+Business Media (
5 Preface The growing worldwide prevalence of arthritis has had a major impact on a range of populations across gender, different socioeconomic strata, ethnicities, and particularly among the elderly, who disproportionately are affected by the disability, role limitations, and deficits in quality of life that arthritis may cause. Arthritis has sparked considerable interest among psychologists, behavioral medicine specialists, and rheumatology health professionals in examining the adjustment of patients using an interdisciplinary lens. Their contributions have led not only to new insights about the plight of arthritis patients but also to new paradigms that are applicable to studying chronic illnesses in general. Importantly, much can be learned from examining processes of adjustment in arthritis that may be generalizable to other chronic illnesses. The pain, fatigue, and psychological distress that are hallmark features of arthritis are found in many other chronic conditions that create significant burdens for patients, challenge the expertise of clinicians, and place a strain on the capacity of health care systems to respond appropriately to patients multifaceted health care needs. In many respects, arthritis can be viewed as a model chronic illness in which processes of adaptation can be examined that may enlighten our understanding of other medical conditions. Most importantly, however, the harmful effects of arthritis have created a need for understanding the interplay between psychological, social, and biomedical factors in the adjustment of affected patients. Accordingly, the struggles of arthritis patients have created a heightened demand for novel and effective treatment approaches that complement medical treatments, mitigate the deleterious impact of arthritis, and improve patients ability to cope with difficult symptoms and enhance functional adaptation. There is considerable evidence that a range of health professionals have embraced the challenge of researching and applying new treatment paradigms and approaches that can be translated into more effective and efficient models of care. The major purposes of this book are to provide a synthesis of the empirical research that provides a foundation for the biopsychosocial care of arthritis patients and to highlight trends and developments in psychosocial treatment approaches. Specifically, this edited book addresses the following aims: (1) to increase understanding of the contribution of psychosocial variables and processes to health outcomes in arthritis, (2) to analyze mechanisms of arthritis pain, coping processes, and the role and efficacy of behavioral treatment approaches, (3) to address the role of socioeconomic status and health care v
6 vi Preface disparities in the adjustment to arthritis, access to care, and quality of life, (4) to examine psychiatric comorbidities in arthritis such as depression and anxiety, and (5) to provide an overview of psychological and behavioral approaches to management. The book is divided into two sections. The first section addresses theory and research on the adjustment to arthritis with a focus on psychosocial processes. Chapters provide an overview of such topics as arthritis pain, psychiatric comorbidity, the impact of arthritis on minority and disadvantaged populations, resilience, stress, disability, sleep, and the doctor patient relationship. The second section specifically focuses on psychosocial management, with chapters addressing the need for psychological screening and evaluation, complementary treatments, self-help and community interventions, the role of physical activity, and challenges for behavioral interventions. The book has an interdisciplinary focus that is reflected not only in its content but also in the expertise of the chapter contributors whose backgrounds span the fields of health psychology, behavioral medicine, rheumatology, epidemiology, nursing, and health services research. As such, the book is designed for an interdisciplinary audience that is involved in research on arthritis and health care professionals who provide service to arthritis patients across a range of clinical and community settings. The book also provides a theoretical and empirical foundation for researchers and clinicians of other chronic diseases and health problems. Moreover, the book illustrates the importance of integrative care in arthritis, which represents a natural extension of the biopsychosocial model and the contribution of interdisciplinary research to health promotion and disease management. While the philosophy of integrative care has been increasingly embraced across the health professions over the last decade, its adoption in rheumatology practice has been limited. Integrative care focuses on patients and their needs, deemphasizes the effects of professional boundaries and rigid disciplinary frameworks, and fosters the importance of shared paradigms of understanding adjustment and treatment that include better teamwork on the part of health care professionals in clinical settings. Integrative care is a central and necessary component in the clinical application of the biopsychosocial model. It is hoped that this book will provide a framework for the expansion and dissemination of integrative care for the arthritis patient. I would like to express my sincere appreciation to the chapter authors and coauthors who have demonstrated their scientific and clinical expertise in contributing to the book, and to the staff at Springer for their encouragement and efforts in developing the themes of the book and for its production. Importantly, I would like to acknowledge the efforts of arthritis patients for their cooperation in the research that has provided the foundation for this book, and their impressive resilience and courage in coping with the challenges that they face on a daily basis. Los Angeles, CA Perry M. Nicassio
7 Contents Part I Psychosocial Factors 1 The Importance of the Biopsychosocial Model for Understanding the Adjustment to Arthritis... 3 Lekeisha A. Sumner and Perry M. Nicassio 2 Mechanisms of Arthritis Pain David A. Williams, Kristine Phillips, and Daniel J. Clauw 3 Understanding and Enhancing Pain Coping in Patients with Arthritis Pain Tamara J. Somers, Sarah A. Kelleher, Rebecca A. Shelby, and Hannah M. Fisher 4 Psychological Factors in Arthritis: Cause or Consequence? Melissa L. Harris 5 Stress in Arthritis Dhwani J. Kothari, Mary C. Davis, and Kirti Thummala 6 Socioeconomic Disparities in Arthritis Antoine R. Baldassari and Leigh F. Callahan 7 The Heart of Clinical Relationships: Doctor Patient Communication in Rheumatology M. Cameron Hay 8 Resilience to Chronic Arthritis Pain Is Not About Stopping Pain That Will Not Stop: Development of a Dynamic Model of Effective Pain Adaptation John A. Sturgeon and Alex J. Zautra 9 Sleep Disturbance in Rheumatic Disease Faith S. Luyster 10 Disability, Limitations, and Function for People with Arthritis Kristina A. Theis 11 Revisiting Unequal Treatment: Disparities in Access to and Quality of Care for Arthritis Adria N. Armbrister and Ana F. Abraído-Lanza vii
8 viii Contents Part II Management 12 Evaluation of Psychological Distress in the Rheumatology Clinic Desiree R. Azizoddin, Cinnamon Westbrook, Angelyna M. Lowe, and Perry M. Nicassio 13 Physical Activity and Psychosocial Aspects of Arthritis Patricia Katz 14 Evidence-Based Complementary and Alternative Medical Approaches for Arthritis Diana Taibi Buchanan 15 Enhancing Clinical Practice with Community-Based Self- Management Support Programs Teresa J. Brady 16 The Nature, Efficacy, and Future of Behavioral Treatments for Arthritis Perry M. Nicassio and Desiree R. Azizoddin Index
9 Contributors Ana F. Abraido-Lanza, PhD Department of Sociomedical Science, Mailman School of Public Health, Columbia University, New York, NY, USA Adria N. Armbrister, PhD Gender and Diversity Division, Social Sector, Inter-American Development Bank, Washington, DC, USA Desiree R. Azizoddin, MA Department of Psychology, Loma Linda University, Loma Linda, CA, USA Antoine R. Baldassari Thurston Arthritis Research Center, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA Teresa J. Brady, PhD Arthritis Program, Centers for Disease Control and Prevention, Atlanta, GA, USA Diana Taibi Buchanan, PhD, RN Department of Biobehavioral Nursing and Health Systems, School of Nursing, University of Washington, Seattle, WA, USA Leigh F. Callahan, PhD Thurston Arthritis Research Center, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA Department of Medicine and Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA Daniel J. Clauw, MD Department of Anesthesiology, University of Michigan Health System, Ann Arbor, MI, USA Mary C. Davis, PhD Department of Psychology, Arizona State University, Tempe, AZ, USA Hannah M. Fisher Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Durham, NC, USA Melissa L. Harris, PhD Faculty of Health and Medicine, Research Centre for Gender, Health and Ageing, University of Newcastle, University Drive, Callaghan, NSW, Australia M. Cameron Hay, PhD Department of Anthropology, Miami University, Oxford, OH, USA Center for Culture and Health, Semel Institute for Neuroscience and Human Behavior, UCLA, Los Angeles, California, USA ix
10 x Contributors Patricia Katz, PhD Department of Medicine, School of Medicine, University of California, San Francisco, San Francisco, CA, USA Sarah A. Kelleher, PhD Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Durham, NC, USA Dhwani J. Kothari, MA Department of Psychology, Arizona State University, Tempe, AZ, USA Angelyna M. Lowe, MA Department of Psychology, Loma Linda University, Loma Linda, CA, USA Faith S. Luyster, PhD School of Nursing, University of Pittsburgh, Pittsburgh, PA, USA Perry M. Nicassio, PhD Department of Psychiatry, School of Medicine, University of California, Los Angeles, CA, USA Kristine Phillips, MD, PhD Department of Internal Medicine (Rheumatology), University of Michigan Health System, Ann Arbor, MI, USA Rebecca A. Shelby, PhD Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Durham, NC, USA Tamara J. Somers, PhD Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Durham, NC, USA John A. Sturgeon, PhD Department of Anesthesia, Perioperative, and Pain Medicine, Stanford University, Palo Alto, CA, USA Lekeisha A. Sumner, PhD, ABPP Department of Psychology, Alliant International University, Los Angeles, CA, USA Department of Psychiatry, University of California, Los Angeles, CA, USA Kristina A. Theis, PhD Division of Population Health, Centers for Disease Control and Prevention, Atlanta, GA, USA Kirti Thummala, MA Department of Psychology, Arizona State University, Tempe, AZ, USA Cinnamon Westbrook, MA Department of Psychology, Loma Linda University, Loma Linda, CA, USA David A. Williams, PhD Department of Anesthesiology, University of Michigan Health System, Ann Arbor, MI, USA Alex J. Zautra, PhD Department of Psychology, Arizona State University, Tempe, AZ, USA
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