Act Early Regional Summit February 4 th and 5 th, 2010 Seattle Washington

Transcription

1 Act Early Regional Summit February 4 th and 5 th, 2010 Seattle Washington

2 EARLY INTERVENTION (BIRTH -2) 50 children EARLY CHILDHOOD (3YRS-5YRS) 578 children Part C: Oregon has a seamless birth to five program managed by the Oregon Department of Education and operated through 9 regional contractors.

3 Total number of children attending public school ages 3-22 with ASD label = 7,541 Prevalence ratio = 1 out of 77 No current prevalence data based on medical (DSM-IV TR) diagnosis

4 Oregon Department of Education Oregon Department of Human Services Oregon Council on Developmental Disabilities Oregon Services for Children and Youth with Special Health Care needs (Title V program) Oregon s 2 UCEDDs Oregon s state system of higher education Oregon Parent Training and Information Center Oregon Pediatric Society and health care centers Autism Society of Oregon Numerous other regional and local advocate groups

5 No specific ASD related child find activities Included as part of EI/ECSE child find activities ASD Diagnostic clinics: OHSU CDRC Program at OHSU is the only autism specific, inter-disciplinary clinic in the state and the only clinic to evaluate and serve adults Kaiser Permanente Providence Health Care Legacy Health Care

6 The Help Autism Now Society (HANS) provided a package of materials that HANS has created for all the pediatricians, family practitioners and child psychiatrists, almost 2000 physicians, throughout Oregon.

7 Autism Spectrum Disorder: Evaluation, Eligibility, and Goal Development (Birth-21) Technical Assistance Paper, Fall 2009 CDRC Autism Program and ASD Regional Education collaborative evaluation pilot project ARRA Special Project ASD Educational Evaluation Team Pilot Project

8 Four Oregon universities offer certificate of completion programs focusing on Autism Spectrum Disorders. Programs include both didactic coursework and practicum. Specific intervention strategies imbedded in EI/ECSE pre-service training programs.

9 Oregon Commission on ASD interagency commission created by the Governor s executive order. Funded by the Department of Education and the Department of Human Services Staff support for the Commission provided through the Oregon Council on Developmental Disabilities 7 subcommittees, one focusing specifically on screening, identification, and assessment

10 ASD Regional Programs 8 regional programs providing evaluations, training, and consultation to teams New ASD Specialist Training 14 days of training per year for new regional and local specialists Regional Program Autism Model Training Sites primary emphasis on intensive early intervention curriculum

11 Statewide inservice training to physicians in rural areas regarding screening and identification of ASD collaborative project between Oregon Pediatric Society and Title V

12 Insurance: There is no autism specific insurance mandate. Legislation has made it illegal to deny services to children with an ASD label if the procedure would be available to other children. Autism covered under mental health parity. Autism specific bill introduced during last session. Waivers: Katie Beckett Option Model Waiver for children experiencing significant behavioral challenges. Under 200 children. Home and Community Based Waivers for DD: Adult entitlement to minimal supports in family home or own home; crisis accessed comprehensive 24 hour services.

13 Numerous conferences and training offered by advocacy groups, state agencies, education, and nonprofit groups. Conferences and trainings not currently coordinated. Difficulty moving training to coaching model for increased effectiveness Lack of skilled professionals and other resources in all areas but mostly rural and frontier areas of state Lack of consistency between ASD education and medical identification Range and level of service inadequate for young children Growing Latino population and lack of bilingual professionals Funding is unstable. Projections are grim with significant reductions in services expected. Increasing numbers of children identified with ASD without increase in resources

14 Develop appropriate, collaborative and timely supports and services across the lifespan. This mission is accomplished by the creation and implementation of a long term strategic plan that increases coordination, promotes best available practice, makes efficient use of resources, and both directly engages with, and better responds to the needs of, people on the spectrum and their families.