NSW Autism Advisor Program

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1 NSW Autism Advisor Program Call: or Website: Other Options for support SNSW Shoalhaven Eurobodalla and Eden Contents Support Groups Additional family support options Early Intervention Services Financial support Respite Playgroups Child Care Options Workshops Useful Resources Sibling support Autism Spectrum Australia (Aspect) does not in any way endorse or recommend these resources. We encourage parents and carers to conduct their own research before selecting an appropriate resource for their child.

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3 Support Groups A place to meet and talk with other families who have a child with Autism Nowra Autism Support Group Monthly meetings dependent on demand. Contact Tammy to express an interest Location: Nowra Contact: Tammy Price Phone: Luke Priddis Autism Support Group Location: Bega Contact: Natasha Wright Phone: info@lukepriddisfoundat ion.com Website: on.com Shoalhaven Living with Autism Network (SLAN) Contact: Jessica Carmichael Phone: teamcarmichael@bigpond.c om Grandparents raising Grandchildren Support Group Nowra Weekly meeting through Mission Australia at Nowra Family Day Care Location: Cottage 4, 80 Park Road, East Nowra Phone: Please contact us if you are aware of any other support groups in your area we do not have listed. You can the details to autismadvisor@autismspectrum.org.au we can then share the group s details with other families. Shoalhaven Autism Support Group Bay & Basin Location: Santuary Point Connect, based in the grounds of sanctuary point public school Phone: (Melinda) shoalhaven.asg@hotma il.com Facebook: m/home.php#!/groups/ / Nowra Autism Support Group For parents of older Children Location: Nowra Contact: Carmen Mitchell Phone:

4 Family Support Disability Trust Eurobodalla Family Support Service Information and referral service for people with a disability, their families/carers, or service providers in the Shoalhaven area. Call: Far South Coast Family Support Service Provides a range of family support to families with dependent children, including personal support, advocacy, support with family tasks such as parenting, discussion groups and workshops. Provides individual and family counselling, advocacy, information and referral and groups. Call: Nowra Family Support Service Parentline A 24 hour counselling/ support line for parents Location: Bega Call: fscfss@bigpond.com Supports families with young children who are experiencing difficult times. Services the Shoalhaven area, with an outreach service in Ulladulla. Also provide workshops throughout the year. Call: Carers NSW Information services and support for families caring for someone with a disability. Call: Early Start Diagnosis Support Service Information and support for families whose child has just been diagnosed with a disability or who are seeking a diagnosis Call: Mission Australia on Brighter Futures A program that will support your family if you have complex needs. They will help you find services and supports Shoalhaven: Misson Australia Call: Eurobodalla: SDN Children s Services Call: Bega: Bega Valley Shire Council Call: Call: Transcultural Mental Health Centre Provides support and information to carers from Culturally and Linguistically Diverse communities who look after a family member or friend with a mental health problem, including autism Phone: (02)

5 Early Intervention Services There are some other support options families can access along with the Helping Children with Autism package. Below you will find these services listed, please call each service to find out more information (services vary from area to area) ADHC Therapy Services Children with Autism and an Intellectual Disability may be eligible for services such as speech therapy, occupational therapy and psychology based services. Call: or (Southern NSW contact number) Department of Education Early Intervention Classes These classes are for children with a range of disabilities. Early intervention support classes consist of 5-8 children. Please contact the Disability Programs Consultant to see if there is a class in your area. Call: Website: nguagesupport/documents/e arlyintervention/services.php Aspect s South Coast Consultancy Service This is an ADHC funded Early Intervention service from Bateman s Bay to Eden. It includes a termly visit and follow up s and phone calls. Call: Early Intervention Service Your local early intervention service might be able to support you with some additional services. Contact Noah s Ark ~ Nowra/ Ulladulla Call: Playabilty ~ Eden/ Bega Call: Medicare Please see our Autism Advisor Medicare information sheet for more information

6 Financial Support ADHC NSW - Family Assistance Fund The Family Assistance Fund aims to increase family wellbeing and strengthen the capacity of families to provide ongoing care for a child or young person with a disability in their home. Small amounts of discretionary funding are provided to families to help them address needs that cannot be met through the standard range of services, are not available from other funding sources, or would otherwise be unaffordable. Unlike the recent Commonwealth Government s annual Child Disability Payment, Family Assistance Funding is not a grant or entitlement. Web: SpecificLink: Phone: ADHC s Sydney office on Carer's Allowance This is administered by Centrelink and assists Carers looking after a child or an adult with a severe disability and/or medical condition which requires much additional attention Autism included. Web: (Search for carer s allowance) Specific Link: Phone: Centrelink s Disability, Sickness and Carer s Line on Carer s Payment Carer's Payment is income and assets tested, similar to a full pension and difficult to qualify for. This factsheet provides a summary of the qualifications, payment rates and income/assets test for Disability Support Pension, Sickness Allowance, Carer Payment, Carer Allowance and Mobility Allowance. Web: (Search for carer s payment) SpecificLink: Phone: Centrelink s Disability, Sickness and Carer s Line on Health Care Card The Health Care Card may entitle the holder to significant discounts on visits to the doctor (bulk billing) / filling scripts at the pharmacy and entertainment venues (e.g. Easter Show, Sea World). Web: (Search for health care card) Specific Link: Phone: Centrelink s Disability, Sickness and Carer s Line on

7 Medicare Safety Net Web: (And search for safety net) Specific Link: Phone: Medicare on Medical Expenses Tax Rebate Taxpayers may claim a 20% rebate on their medical expenses over the first $1,500. Web: (And search for Medical Expenses Tax Rebate) Specific Link: Phone: ATO on

8 Respite Emergency Respite Respite options (the amount of respite offered varies) Area Specific respite Commonwealth Carer Respite Commonwealth Carer Respite Centres will put you in contact with your local service (only shortterm / emergency service). They can also give you information regarding other services you may be eligible for. Call: th.gov.au/ Flexible Respite Aging, Disability and Home Care (ADHC) Apply to ADHC to access flexible respite services that include in and out of home care, group and individual programs, day and over night stays and holiday and after school care. Please note this is not emergency respite. Call: In-home Childcare services NSW In-home care offers child care in the child's home by an approved carer. It is targeted to families who have no existing access to childcare services. Call: om.au The Disability Trust Flexible respite options are available through the Disability Trust. Please contact them for more information. Call: Respite Care Bega Valley For parents/carers of people with a disability. Merimbula Call: respitebegavalley@nets pace.net.au

9 Playgroups Playgroups Australia can provide information on general playgroups in your area (not disability specific) PlayConnect playgroups can provide information on Autism specific playgroups in your area (run by Playconnect) MyTime is a playgroup for children with a variety of disabilities. There is a parent support group that runs alongside the playgroup. You can find out information about your local playgroup from the web link below

10 Child Care Options Pre Schools Provide early education and care for children 3-6 yrs. Web: org.au/find-a-preschool Family Day Care Family day care is care and developmental activities provided for other people s children by a caregiver in their own home. Web: Long day care centres (also known as childcare centres) For children 0-5yrs, with qualified and other staff. Generally open for at least 8 hrs/day and for 48 weeks/ yr Web: Occasional care services Are provided at a centre on an hourly basis for short periods of time. They provide developmental activities for children aged 0-5yrs Web: Inclusion Support Funding Inclusion support funding is funding that is provided directly to all types of child care centres to support any children with additional needs (including those with an Autism Spectrum Disorder). It is not for a direct one to one worker, but is to increase the adult to child staff ratio to support all children with additional needs. You can ask the child care centre to arrange this.

11 Workshops J Helping Children with Autism funded workshops Early Days workshops are free of charge for parents and carers to help them learn more about Autism Spectrum Disorders (ASD) Positive Partnerships are workshops are free of charge for parents and carers who have school age children with an Autism Spectrum Disorder (ASD). If you are unable to make a workshop you could access their online information through the training modules. Other workshops Autism Spectrum Australia (Aspect) offers a variety of workshops for parents/ carers and professionals focused on information about Autism Spectrum Disorders (click on the orange workshops tab to access the online calendar) Sue Larkey offers workshops for parent/ carers and professionals focused on information about ASD, social skills, play, visuals, behaviour, anxiety and school/ preschool strategies Tony Attwood is running workshops throughout NSW in 2013 which have a focus on Asperger s Syndrome. To find out more about dates and prices please access his website.

12 The following Helping Children with Autism panel providers offer workshops you may be able to pay for using your funding. Please look at their websites for more information. o Lizard Centre o RDI Family Connections o Aspire Early Intervention o Quirky Kids o Fabic

13 Autism Spectrum Australia (Aspect) Aspect is the state autism association and offers a number of services including family support programs, schools, intervention programs, adult programs and a diagnostic and assessment services. Aspect has also produced information booklets and manuals which are available on their website. Website Call: (1800 ASPECT) Autism Internet Modules Free online learning modules covering topics such as assessment and identification of ASDs, recognizing and understanding behaviors and characteristics, and numerous evidence-based practices and interventions. All module content has been written by ASD experts from across the U.S. Companion Card This card is designed to promote the rights of people with a disability who require a companion to fully participate in events. The Companion Card is issued to residents of NSW with a significant and permanent disability who are unable to participate in most community based activities without significant assistance with mobility, communication, self care, planning and where the use of aids and other technologies does not meet those needs. The companion card is not issued to every person with a disability. Families are encouraged to read the eligibility criteria to see if they would like to apply. Website: Call: Online Book Stores (ASD specific book store) (disability specific books) Sensory Room Families can hire the Macarthur Disability Service sensory room, it is essential that you book for this facility. The Australian Autism Handbook A handbook written by two parents of children with Autism in Australia. Useful Resources Through the Maze Information and support handbook for parents and carers of children and young people with a disability in NSW (can be downloaded for free) Men 4 Life A support group for men with any problems relating to relationship breakdown, separation, child contact, loneliness, depression and more. Meet at Nowra Youth Centre, Cnr Kinghrone & Plukett St, Nowra Contact: David Simister Tel: Useful Websites Autism Community Network Autism Awareness Australia

14 Activities and Clubs NICAN Information regarding leisure and recreation for people with disabilities throughout Australia Website: Call: NSW Sport and Recreation State government service offering sport and recreation programs for people with disabilities Website: Call: or (interpreting service) Riding for the Disabled Riding for the disabled is available to people with a disability throughout NSW Website: Sailability The focus of this organisation is to provide sailing and boating to people with a disability across Australia. Website: Daisy Brooke Participation Manager Yachting Australia or dbrooke@yachting.org.au Rainbow Club The rainbow club provides swimming lessons for people with a disability. Website:

15 Sibling Support Siblings Camp Aspect organises Siblings Camps once a year in the October school holidays. The camps are held in Sydney and are a great opportunity for children to connect with one another and partake in fun activities o Contact Beth Del Rossio on , bdelrosario@autismspectrum.org.au or access their website Young Carers Program The young carer program supports young people who are helping a family member with any health issue. It is a 24 hour support number. o Call or access on their website Below are some websites where you can get some online support Young Carers Siblings Australia Livewire

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