LOGIC MODEL TEMPLATE ACT EARLY SUMMIT -WA

Transcription

1 Autism Society of America Chapters-resource manuals (3 currently)-expand to all 12 counties Parent s next step DVD LEND (training at all levels) Title V Community Trainings Child Profile Resource Hotline Medical Home Tricare as a potential model Coordinators Professionals Child Health Surveillance and Screening Tools Diagnostic Teams (network, working to expand) Workgroup to Identify Gaps in Diagnostic Teams 2 Research Centers (UW, Children s-major autism Identify best practice in general developmental and autism screening for Washington State o Explore the accuracy of the ASQ3 and ASQ-SE versus MCHAT and MCHAT follow-up interview in the screening for ASDs. o While MCHAT remains recommended tool of the AAP for autism screening, create a protocol/system for MCHAT Follow-Up interview to minimize over-referral to EI and diagnostic resources. o Continue to monitor recommendations for autism screening and available tools State Developmental Screening Partnerships group will Developmental screening plans 1. Universal Screening All Washington State children will be screened at 9, 18 and 24/30 months and at appropriate intervals for early head start/head start, birth to three home visiting programs, foster care, early intervention, and for parent or provider concern. Results will be available to the family and appropriate providers. Washington s children with developmental disabilities including autism spectrum disorders and their families of all racial, cultural, and linguistic backgrounds are identified early and receive supports and services that are evidence based, person centered, adequately funded and supported. These services will exist to maximize an individuals full potential without regard to geographical location and local resources.

2 center and research programs screening infants over grant period) CAAI grant CAAI Statewide Council (meet quarterly) Strong Infant Toddler Intervention Program LAUNCH grant early screening efforts Microsoft Health Plan (with specific benefits for autism) Maddigan Army Medical Center (developmental pediatrician training program) Tri-Care FEAT (parent support group) Autism Society family support groups SibSHOPS DDD (case management, develop, refine and implement an approach to universal developmental screening DOH Developmental Screening committee to support and guide the work of the State Developmental Screening Partnerships group Create a decision tree for awareness and marketing of participation in developmental screening (once decide on tools) Continue, and support other, efforts to implement reimbursement for developmental screening in primary care practices Ensure that children without a medical home are connected to a medical home Distribute Act Early Materials to: o FRCs statewide 10,000 total materials will be distribute statewide Increase awareness of parents, community and providers of the importance of early screening. This will become a standard expectation (similar to the use of car seats)

3 DD assessment, birth to 3, family support, waiver services-new waiver for older children w/autism and behavior issues) Head Start (collaboration with Part C/619) Parent Coalitions (lobbying arm for autism related activities) DD Council UCEDD Advisory Committee o CSHCN coordinators statewide o Childcare providers, working with Department of Early Learning o Primary health care providers o Educational Service Districts early childhood coordinators; special education teams, school nurse administrators Post-Screening System creation - Adapt CDC materials to link to screening system Investigate use of PSA s from the CDC Act Early in counties throughout the state, through LHJs, Local EI public awareness activities Promote Act Early Materials to the WCAAP newsletter, Wa

4 Chapter of the AAFP, NAPNAP, Family nurse practitioners,?midwives association and others Investigate the use of the PSA in the Skagit PCP DVD Post-Screening Activities Primary Care providers will be aware of information and community resources that will support families with additional needs o o Review, and edit as needed, information on key resources on the Washington State Medical Home Website Provide information in the WCAAP newsletter Parents will have credible information for their practice Next steps after screening will be clear to those receiving results Primary health care providers know how to connect with Part C birth to three, Part B, community resources and further information Early childhood programs and providers will know how to connect with medical homes, early intervention, community care coordinators and

5 and their families o Populate primary care practitioner practices Parent to parent connection with primary care providers o Libraries o Family to Family Health Information Center working with state autism groups to become a primary resource to primary care practitioners and their families Care Coordination o Improve the local communication system to regularly connect FRCs, LJH personnel, and others to update local resources Utilize community care coordinators, including FRCs, WithinReach Providers will reinforce the need for tracking of families with concerns Marketing and increasing awareness of resources (to the PCP, ECE, parents and others)

6 CSHCN coordinators, WithinReach and others 2. Healthcare Professionals. PCP to be able to refer parents to appropriate support groups and structures Someone to be a Care coordination between pediatricians and families, so the PCP doesn t have to do it all Unified materials for after the diagnosis to be given to pediatricians or other professionals? Materials should be accessible in a variety of formats Place to notify people where materials are available or

7 1. Identify current mechanisms (groups that impact the agencies) such as SICC, CAAC, Early Learning Advisory Council, Mental Health Advisory Council, primary care association to come to the table and address barriers to services for children: 2. Identify policies that need repairs to enhance benefits, ensure consistent eligibility and payment mechanisms, and bridge gaps in inter-agency agreements. 3. Assure inter-agency support for needed autism activities such as family support, parent training, provider training, cross-training for mental health and developmental professionals. 4. Develop and enhance inter- 1. List of policies that are questionable or contribute to gaps that need fixing. 2. Ensure that autism and developmental disabilities are listed on the agendas of the groups involved. 3. Revised inter-agency agreements to reduce the gaps and overlaps. 4. The visual to be used to illustrate overlaps and gaps in the system. accessible (newsletter, media, web 3. Interagency collaboration and funding Representatives from Education, health care, mental health, and DD services come to the table and remove barriers around requirement funding and laws, to help save on cost effectiveness. Develop a way for those agencies to talk together and discuss eligibility requirements for services. There will be some kind of form or consistency in communication between Medicaid and providers in the field

8 agency agreements around autism and DD; identify funding sources to support this additional activity. 5. Create a visual (? Venn diagram) to represent the service system where services overlap and where there are gaps. 6. Schedule meetings or teleconferences to gather the data and disseminate resulting information Ask the state or governor to discuss possibilities about Mental health services and autism exclusions Produce a DVD that highlights stories of parent concerns, physician discounts and later diagnosis Continue to fund P2P Support the P2P application for Infant Toddler Early Intervention Program ARRA (Federal stimulus) funds Mail copy of DVD to all Pediatricians on American Academy of Pediatrics Washington list 4. Family Support 100% of PCPs will listen to parental concerns Formal parent to parent network established with appropriate funding. Assuring that parent family

9 Develop a training module that addresses culturally appropriate components. Possibly develop a certification program Develop a Child s Map template that will assist families in knowing what to do next Include information in Child s Map Autism Society of Washington currently has a contract to keep and maintain an up-to-date calendar of trainings and events statewide that deal with autism education and services Mandate all P2P coordinators receive training in order to receive funding Work with Family to Family Health Information Center to finalize map, print and promote throughout the state Continue to monitor contract and provide information to ASW. Continue to fund contract coordinators have the training they need Prioritized information to the parents about what to do next. Which interventions are safe, helpful, and beneficial to the child. Parents, practitioners, and other providers understand what is available, what works, and what doesn t work. Support children across settings so they can be involved in the lives of their family Programs are based on parent s priorities and concerns. Families are educated and

10 aware 100% about their rights and access to Part C by service providers Resources are constantly updated and available via the web or other medias Fund wrap around support services for families of children with autism and other developmental disabilities Develop a training series on best practices in ASD screening and assessment. Choose 2-3 specific gold standard tools to target. Offer CE credits or certification for completion of training. (LEND and UW Autism Center) Develop a training series of EBPs List of gold standard ASD screening and assessment tools that will be used more universally by providers. WA State endorsed training curriculum, offering CE or certificate, on specific ASD screening and assessment 5. Training professionals Strengthen capacity of service providers Out in the field providing direct services in the care and management of children with developmental disabilities, including ASD, and their families.

11 in ASD early intervention. (LEND, UW Autism Center, grant from Ntl Professional Development Cntr) Establish a system for ongoing technical support and training for individuals completing the training series using distance learning strategies. (LEND, UW Autism Center, grant from Ntl Professional Development Cntr) Increase provider awareness of WA Autism Society website with listing of training opportunities statewide. Produce flyer or card announcing this resource. (CAAC Training Subcomittee) tools. Conduct 4- statewide trainings on use of specific ASD screening and assessment tools. WA State endorsed training curriculum on selected EBP early interventions for young children with ASD. Conduct 4- statewide trainings on selected EBP early interventions for young children with ASD. Distribute 500 copies of the card/flyer announcing the WA Autism Society website and list of training resources. Increase ASD awareness of all individuals who encounter children and their families. Strengthen capacity of service providers out in the filed for care and management of children

12 with DD Create autism certificate programs (possible) Establish standards in competency of Autism for providers (e.g., certificates for providing therapy, degrees for dx) Change law so that BCBAs with sole licenses in BCBA can provide services, separate recognition Establish a new provider category for BCBAs Expand professional disciplines eligible to make the diagnosis of Autism

13 Expand training opportunities for providers who serve children with autism and DD Expand training and support funding for parents of children with ASD and DD Activities Outputs 6. Funding (broken up into different groups) Provide a training model/ model of services where there are tutors that can provide services for children with autism who are under BCBAs or PhDs Medicaid payment? Public and private insurances and payment for screening?

14 Cost effectiveness for the screening. If they pay X how much will they save in Y. This taken to the policy leaders will be able to show people how much they save. Possibly matching the VR model. Medicaid to pay for the screening. Enhance funding for Part C services Establish stable funding for family support coordinators that are in each county Every parent should have a connection to another parent Fully fund and implement the IDEA

15 Expand neurodevelopment therapy mandate for broader coverage beyond age 6 Eliminate insurance exclusions for Autism Expand insurance coverage to address the needs of children ASD and DD Expand medicaid billing instructions for neurodevelopmental centers and other early intervention programs to allowing billing for services by more disciplines Expand children s intensive in home behavioral supports (CIIBS) waiver

16 Increase medicated rates for screening, diagnosis, and treatment services for children Expand Medicaid personal care benefits and uses to support more families with children with ASD and DD Distribute CDC Act Early materials to Early Head Start, Head Start, and ECEAP programs. Copy and distribute the Autism Awareness DVD (UW Autism Cntr) to parent coalitions, FRCs, CSHCN coordinators, Establish a list of all individuals we want to make aware of ASD and design an action plan for using existing resources to Distribute 1000 copies of materials Distribute 500 copies in English and Spanish Increased ASD awareness of 4 groups of individuals, i.e. first responders, foster families, juvenile justice personnel, Parking Lot Make Child profile materials more explicit. Education interventions to have an entry point for providing services Providers should be 100% aware of Part C services access and rights to parents and other providers Independent ombudsman

17 RESOURCES increase awareness that will meet the unique interests of these individuals. (CAAC Training Subcomittee) etc. mechanism that has authority to monitor compliance for IDEA ACTIVITIES OUTPUTS

18 OUTCOMES lead to the following IMPACTS lead to the following