ASD Co-ordinator Fife Council / NHS Fife

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1 ASD Co-ordinator Fife Council / NHS Fife Autism Learning Event Glasgow 18 MARCH 2013

2 2 Introduction Background Common questions Independent living Achievements and developments National picture Summary

3 3 Background: National Policy Scottish Govt.: Same as You? Report (2000) Public Health Institute of Scotland: ASD Needs Assessment Report (2001) HMIe Report: Education for Pupils with Autism (2006) Scottish Govt.: Policy and Practice Guidance for Commissioners of Health & Social Care Services for People on the Autism Spectrum (2008)

4 4 Background Cont.d Local multi-agency ASD groups Personal experience ASD Co-ordinator ( ) Evaluation (2012)

5 5 Why Autism? Invisible condition Permeate any condition / disability Arcanum Inconsistent knowledge & understanding of ASD

6 6 What is Autism? Lifelong neuro-developmental disorder Spectrum & co-morbidities Key difficulties: Social development Language & communication Flexibility of thought & behaviour Sensory issues Processing information Co-ordination: motor-control

7 7 Where does it fit in? 1% of population (4:1 male:female) Estimated 55% of ASD population have LD (Baird et al 2006: study of children) FIFE Education: 720 children & young people ( ) 2,630 adults & older people (where are they?) Adult population LD with ASD: Estimate 1,446 in Fife e-say? Dataset: reflect figures?

8 8 Untapped potential Missed opportunities Financial AUTISM cost to society? Autism affects 1% of the population: approx. 50,000 adults and children have Autism in Scotland The estimated lifetime cost for someone with Autism ranges from 3.1million to 4.6million; depending on support required. 1 Reference: 1. Knapp, M., Romeo, R. and Beecham, J. (2007). The economic consequences of autism in the UK. London: Foundation for People with Learning Disabilities.

9 9 LIFE JOURNEYS Taking Direction TOWARDS INDEPENDENCE CAPACITY BUILDING: Self-help ~ Support to Skill ~ Preventative Support (COMPLEX ISSUES: i.e. sensory / challenging behaviour etc.) FOCUS: Risks / Rights / Responsibilities / Respect SERVICE PROVISION IN THE COMMUNITY FAMILY & SELF

10 0 Achievements Awareness raising / reflect on practise Policy / Plans / Strategy: input Adult ASD Steering Group: Action Plan Children / adolescents: assessment & diagnosis teams Data collation: Education, SW & Housing MH unscientific exercise

11 1 Achievements Cont.d Roving & Static Autism Resource Employment Taster Scheme: LET s Do It! Glass Wall Project Job Centre Plus Training Pack ASD webpages & Newsletter

12 2 Achievements Cont.d Parent / carer learning opportunities Emergency card Telecare Service Autism Training Needs Questionnaire Events

13 3 Housing Developments Post-school transition Self Directed Support Health & Social Care Partnership Plan: LD/ASD Commissioning Strategy for Complex Needs: LD/ASD

14 4 Developments Cont.d Autism Awareness: Training pack Local Learning Network: ALL-IN / ASD Champions One Stop Shop Adults: - assessment & diagnostic pathway - post-diagnostic care ASD Action Plan: active

15 5 National Picture Scottish Strategy for Autism (November 2011) Investment of 13.4m 1m Autism Development Fund (increased to 1.5m) Scottish Government / CoSLA partnership Open University / University of Strathclyde Other projects: Addressing waiting lists for assessment / diagnosis Autism Network Scotland Revision of Autism Toolbox (for schools)

16 6 SUMMARY Understanding of Autism Spectrum Disorders The right support at the right time Reach out.make a difference: Isolation inertia invisibility misunderstood Acceptance valued contributing - participating

17 7 Contact Details Stella Macdonald ASD Co-ordinator Tel: VOIP

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