Strategic Plan Publication No: EO-SP

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1 Strategic Plan Publicatin N: EO-SP pcg.ffice@sydney.edu.au

2 This dcument was prepared by the PCG Executive Office PCG Publicatin number: EO-SP Psych-nclgy Cperative Research Grup 2017 This material is subject t cpyright laws. Other than fr the purpses f and subject t the cnditins prescribed under the Cpyright Act, n part f it may in any frm r by any means (electrnic, mechanical, micrcpying, phtcpying, recrding r therwise) be altered, reprduced, stred in a retrieval system r transmitted withut prir written permissin frm the apprpriate authr, the Psych-nclgy C-perative Research Grup, The University f Sydney. 1

3 1. Intrductin PCG is an rganizatin f ver 1500 researchers, dctrs, nurses, psychlgists and ther health prfessinals wh share a cmmn missin f imprving the emtinal supprt and psychscial care f peple affected by cancer. PCG achieves this by develping and facilitating high quality, cllabrative and clinically relevant research that fcuses n innvative ways t imprve patients and families quality f life and psychlgical wellbeing. PCG prvides expert advice, resurces and supprt t researchers and health prfessinals t increase cllabratin and innvatin in psychscial and supprtive care research. PCG prvides an infrastructure beynd the scpe f any individual grup t supprt and imprve the quality f all psych-nclgy research. Its mandate ensures the mentring f new and yunger researchers, the prvisin f services and advice t all researchers and liaisn with ther cancer researchers natinally t increase psychscial and supprtive care research activity. Given the variable nature f research funding and the evlutin f cancer service delivery in Australia, it will be imprtant t review the plan and its gals as time prgresses. 2. Missin and aims What is PCG? The Psych-nclgy C-perative Research Grup (PCG) is ne f Australia s natinal cperative cancer clinical trials grups, wrking t increase cllabratin and innvatin in psych-nclgy research. PCG s purpse PCG aims t imprve utcmes fr peple affected by cancer by develping and facilitating high quality, cllabrative and clinically relevant research that fcuses n interventins and services t ptimise psychscial and supprtive care. What we d PCG prvides expert advice, resurces and supprt t researchers and health prfessinals t increase cllabratin and innvatin in psych-nclgy research. PCG: brings tgether researchers, clinicians, health care prfessinals and cnsumers t share ideas and frm new cllabratins and netwrks, develps natinal research capacity and cllabratins t cnduct large-scale, multi-centre research f clinical relevance and imprtance, which wuld be difficult fr a single team t undertake, encurages and cllabrates with cperative cancer trials grups t include psychscial r quality f life sub-studies in existing and planned research, prvides and prmtes resurces that supprt researchers in develping psychscial and quality f life research. 2

4 3. Operating envirnment Psych-nclgy research The psychscial challenges fr patients thrughut the time curse f cancer include existential cncerns, making decisins based n uncertain utcmes, cping with prblematic side effects f treatment (bth shrt and lng-term), scial disruptin and financial cncerns. It is knwn that psychscial cncerns and mrbidity ften g undetected and are under-treated in the nclgy setting. Yet these disrders have a majr impact n the persn s functining and that f their family. They may adversely impact n capacity t cpe with disease burden and reduce patient adherence t recmmended treatments. Strategies t ensure effective screening, referral and treatment f psychscial cncerns are urgently needed. Systematic reviews suggest that psychscial interventins imprve patients and carers QOL, understanding and satisfactin with care. Yet issues f quality in studies cnducted t date leave the evidence-base still weak. Rigrusly cnducted, multi-centre clinical trials are needed t imprve the supprtive care f patients with cancer and their families. PCG's missin f imprving the emtinal supprt and psychscial care f peple affected by cancer is directly in line with pririties set ut by majr cancer rganizatins in Australia. PCG s prtfli f research activities will have a great impact n reducing the impact f cancer n peple affected by cancer, including patients, caregivers, families and health prfessinal wrking with peple affected by cancer, bth within the health system and cmmunity. PCG is perating in a highly cmpetitive envirnment in which research is ften driven by supply f funding rather than being led by demand. Researchers are facing increasing pressure t justify the relevance and quality f their research. Stakehlders PCG has a range f stakehlders, including patients with cancer and their carers, health prfessinals, researchers/academics, funding agencies and gvernments. Cancer patients and carers are represented by a range f natinal and state-/territry-based cnsumer advcacy grups, sme representing patients with a particular cancer and thers representing all patients. Cancer Vices Australia and its state-based cunterparts are an integral part f the natinal cancer cntrl arena, with a cllabrative apprach t imprving services and care fr peple affected by cancer in Australia. Other natinal grups include Breast Cancer Netwrk Australia, the Prstate Cancer Fundatin f Australia and the Leukaemia Fundatin. The Clinical Onclgy Sciety f Australia (COSA) is Australia s peak natinal bdy representing health prfessinals wrking in cancer cntrl. PCG is an affiliated rganizatin f COSA. The Australian Psychscial Onclgy Sciety Inc. (OZPOS) is a natinal nn-prfit rganisatin whse aims are t prmte the psychscial care f patients with cancer, their families and carers, t enhance the capacity f health prfessinals t deliver ptimal 3

5 psychscial care, and t prmte the timely translatin f research int clinical practice. OZPOS is an interest grup f COSA. At a state level, psych-nclgy research is undertaken by researchers and academics in universities, behaviural research grups f state-based Cancer Cuncils, and by individuals. Sme states have cperative psych-nclgy research grups prviding pprtunities fr sharing f research ideas and cllabratin. PCG is ne f 13 established Cperative Trials Grups (CCTGs), the majrity f which cnduct trials with a fcus n specific cancer sites r mdes f treatment. Cancer Australia is a Cmmnwealth agency which prvides funding t Australia's Multi-site, Cllabrative Natinal Cancer Clinical Trials Grups t build their capacity t undertake cancer clinical trials and is the majr funding bdy f PCG s infrastructure. PCG s activities are guided by the Cancer Australia s Supprting Cancer Clinical Trials in Australia Principles Dcument and are assessed by means f Cancer Australia s evaluatin framewrk and perfrmance criteria. PCG is a Centre f The University f Sydney and as an unincrprated grup perates within the university s legal, financial and administrative framewrk. Fr all intents and purpses the University f Sydney acts n behalf f PCG as the legal entity n funding agreements and ther cntracts. As a centre f the University, PCG adds value t existing academic activities and structures and shares with it the verreaching gals f advancing certain teaching, research and cmmunity engagement. Funding bdies. Funding fr nclgy research, including psych-nclgy research, in Australia is available thrugh a number f agencies: Cancer Australia administers a natinal cancer research budget and has a remit t identify pririties in cancer research, supprt researchers and fster cnsumer participatin in cancer research prgrams. The Natinal Health and Medical Research Cuncil (NHMRC) prvides funding fr all areas f research relevant t human health and medical research. The Australian Research Cuncil administers research funding acrss a range f disciplines thrugh the Natinal Cmpetitive Grants Prgram. A number f fundatins prvide funds fr research in specific cancers such as: the Natinal Breast Cancer Fundatin (NBCF), the Prstate Cancer Fundatin f Australia, The Leukaemia Fundatin, the Australian Lung Fundatin, and the Melanma Fundatin, which prvide funds t supprt a range f grants, fellwships and schlarships. The Cancer Cuncil Australia funds independent cancer research and related activities in Australia, supprting research grants, research schlarships and fellwships. In additin, a number f state and territry Cancer Cuncils perate epidemilgical and behaviural research units. State-based gvernment bdies ffer a range f research grants, fellwships and schlarships t supprt cancer research in NSW. 4

6 4. Strategic aims PCG has fur key strategic aims t guide its activity during the funding perid Aim 1: Innvative high quality psych-nclgy studies T fster, prmte and supprt innvative, high quality psych-nclgy research including studies with the greatest ptential t impact n cancer utcmes, with an emphasis n thse that address interventins and mdels f service delivery fr patients with clinical levels f the mst prevalent psychiatric disrders Aim 2: Translatin T fster and prmte the translatin f research findings int: Further research Clinical practice Standards f care Plicy Aim 3: Capacity building and sustainability T cntinue t develp capacity in designing and cnducting high quality psych-nclgy research and wrking t ensure PCG sustainability Aim 4: Cnsumer and cmmunity Invlvement T prmte and fster cnsumer and cmmunity invlvement in PCG s activities and research 5. PCG Strategic Plan STRATEGIC AIM 1: Innvative high quality interventin trials Strategic Aim T fster, prmte and supprt innvative, high quality psychnclgy research including studies with the greatest ptential t impact n cancer utcmes, with an emphasis n thse that address interventins and mdels f service delivery fr patients with clinical levels f the mst prevalent psychiatric disrders. Appraches Cnduct targeted cncept develpment wrkshps (CDWs) t develp prpsals fr high quality research in psychscial and supprtive care Prvide scientific and cnsumer review and feedback n study prpsals Prvide supprt fr the high quality cnduct f PCG studies Priritise research fcussed n interventins and mdels f care fr clinical Depressin, Anxiety Disrders (General Anxiety Disrders, Fear f Cancer Recurrence) and Adjustment Disrders. 5

7 STRATEGIC AIM 2: Translatin Strategic Aim T fster and prmte the translatin f research findings int: Further research Clinical practice Standards f care Plicy Appraches Prmte and supprt the develpment f cncepts and prpsals that lend themselves t translatin int clinical practice, with applicability in a wide range f settings delivering cancer care Encurage the demnstratin f cst effectiveness f interventins by including health ecnmic utcme measures in trial design with the aid f the Cancer Australia Health Ecnmic Services (CREST) Enhance the demnstratin f benefits t Quality f Life (QOL) by including QOL and patient reprted utcme measures in trials with the aid f the Cancer Australia Chair in Cancer QOL Engage clinician, cnsumer and cmmunity cllabratrs that are able t facilitate translatin at all levels f care Encurage PCG members t seek pprtunities t incrprate psychscial and supprt care int cancer plicy STRATEGIC AIM 3: Capacity building and sustainability Strategic Aim T cntinue t develp capacity in designing and cnducting high quality psych-nclgy research and wrking t ensure PCG sustainability Appraches Build capacity by engaging the prfessinal grups represented by the membership in PCG s research and rganisatinal activities Wrk t maintain the current cre infrastructure capacity by ensuring high quality, efficiency and priritising f rganisatinal activities and regular strategic review f research pririties and quality f research utcmes Cntinue t prvide, maintain and further develp PCG s research supprt prtfli, including Standard Operating Prcedures (SOPs), prtcl training and develpment, supprting small pilt studies, feasibility assessments, and quality assurance prcesses Regularly infrm the membership f rganisatinal and research develpments 6

8 STRATEGIC AIM 4: Cnsumer and cmmunity invlvement Strategic Aim T prmte and fster cnsumer and cmmunity invlvement in PCG s activities and research Appraches Cntinue t supprt and develp the activities f the existing cnsumer grup Engage ther cnsumer and cmmunity grups t infrm them abut psychscial and supprtive care issues and research Thrugh these grups and the media, wrk t infrm the general public f the imprtance f psychscial and supprtive care research and practice in cancer 7

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