Bristol CCG Cancer Survivorship Consultation Event

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1 Bristol CCG Cancer Survivorship Consultation Event Thursday 12 th February 2015 Armada House, Bristol

2 Welcome Alison Moon Bristol CCG Director of Quality and Transformation Martin Jones Chair of Bristol CCG

3 Commissioning healthcare services in Bristol Improving cancer outcomes key priority for Bristol CCG 1 of 11 steering groups focused on improving the health of Bristol population 1 of 5 key projects currently being undertaken the cancer steering group Five Year Forward View Into Action 2015/16

4 Aim of the day To develop a common understanding of where Bristol is currently To continue the conversation at scale as to how survivorship of cancer should be commissioned locally To identify what needs to change to achieve this vision Develop a virtual network of people who can input into the development of this pathway

5 First Question Please can you answer the question in bold on the blue slip of paper in your delegate pack and put in the box in the middle of your table. 5 minutes

6 Bristol CCG Cancer Survivorship Strategy Making sure we are meeting the needs of our population

7 Setting the Scene 2 Million people in the UK are living with cancer By 2030 there will be between 3 and 4 million people living with cancer 3.2% annual increase in incidence of cancer 10% of >65y/o are cancer survivors By 2020 nearly 1 in 2 of us will get cancer but only 62% will die from the disease

8 England cancer survivorship in numbers 35% more survivors of childhood cancers between 2001 and % of survivors express a persistent (>5y) fear of their cancer recurring 40% of prostate cancer survivors report urinary leakage 19% of colorectal cancer patients report difficulty controlling their bowels Low Quality of Life reported by 8.9% breast, 11% colorectal, 13% NHL, 9.4% prostate

9 Current system makes assumptions about cancer: Incurable cancer inevitably leads to pain, suffering and rapid decline People who are cured of cancer are therefore well There is nothing that people can do themselves that will make a difference to quality and quantity of life Hospitals are the best place to manage and follow up all people with cancer

10 Effects of these assumptions are: Hospitals struggling to diagnose, treat and follow up increasing numbers Patients are disempowered and struggling with impersonal hospital service The system does not enable patients to help themselves Many patients have major, unmet needs as a long term consequence of cancer or treatment physical, psychological, emotional, spiritual

11 So we need a cancer survivorship plan that.. 1) Reframes Cancer as a Long Term Condition where Cancer specialists Primary Care Patients and Supporters/Carers all have active, expert roles to play 2) Assesses people s needs holistically and offers person-centred solutions and support 3) Encourages self-management from Day 1 4) Helps people live healthier & happier, as well as longer, lives

12 NCSI 2013 Self management Health and Wellbeing Choice and Control Information and Advice Support

13 But how do we actually make this happen in Bristol?.. We need your help to Identify most important gaps in current services Start to identify some possible solutions Give feedback on current suggestions Prioritise Create a virtual network of support for Bristol Cancer Survivorship

14 Structure of the Afternoon Small table work open questions, repeated over the afternoon opportunities for feedback and discussion User perspectives Examples from practice what needs are they addressing? Engaging our creative sides So let s get on with the work!

15 ICE breaker Please could you introduce yourself to the rest of the table. 10 minutes

16 Patient stories Dr Catherine Zollman talking with two patients about their experiences and what they would like to see improved in the future.

17 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Sam Thomas The Harbour

18 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Sophie Bayley Penny Brohn

19 Second Question Please can you answer the question in bold on the red slip of paper in your delegate pack and put in the box in the middle of your table. 5 minutes

20 Group work Individual vision On your own please can you answer the following question: From your perspective what does the survivorship pathway need to offer? 20 minutes

21 Coffee break 5 minutes

22 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Nick Ambler Psychology lead for cancer services North Bristol NHS Trust

23 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Kate Darch GRCC Lead for Older People s Projects Gloucestershire Village and Community Agent Manager

24 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Fiona Hamilton Creative arts in health and wellbeing The Orchard Foundation

25 Group work Perfect World Working in your group please can you answer the following question on the template provided. From the perspectives of the group what does the survivorship pathway need to offer? 30 minutes

26 Pitching the vision Please can you choose one person from your group to explain your group vision of a perfect world and why it is the best possible outcome. 15 minutes

27 Voting! Please vote for your perfect world vision. You have 5 voting stickers and you can distribute these in any way you feel fit. 5 minutes

28 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Kate Oldham Personal Trainer & Active Lifestyle Coach Cancer Rehabilitation Specialist

29

30 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Kate Oldham Personal Trainer & Active Lifestyle Coach Cancer Rehabilitation Specialist

31 What are the challenges that patients, families and carers face with cancer and cancer survivorship? Sam Cole Clinical Psychologist

32 The proposed Cancer Pathway

33 The Proposed Cancer Pathway Cancer diagnosed and survivorship starts to be planned for through early discussions about access to health and wellbeing services, undertaking joint care planning and ensuring good communication between hospital, GP and patients Treatment options agreed and prehab and pretreatment information given Treatment undertaken and planning for further support following treatment finishing agreed Based on need patient offered additional support at the hospital, in the community or through accessing self-management advice A range of different follow up options given, where necessary, and GPs undertake cancer care reviews with patients.

34 The Proposed Cancer Pathway Core Principles Compassionate Pace set by patient Understanding patient preferences Improved communication Plan for survivorship from the start Development of patient resilience Supported and empowered to self-manage Access to mental and emotional support Heath as part of a wider web of support

35 Group work Pathway activity You will have large versions on the pathway on your table, your job is to read through them and make as many changes amendments as you like. You will also have three questions to ask on A3 paper on your table the questions will guide you through the activity ensuring that you have covered everything. 30 minutes

36 Third Question Please can you answer the question in bold on the green slip of paper in your delegate pack and put in the box in the middle of your table.

37 And finally Thank you for all your hard work today

38 Creative Summary of the Day Fiona Hamilton

39 Plenary, feedback and close Sarah Warren Senior Project Manager Dr Catherine Zollman Clinical Lead and Macmillan GP

40 Next Steps from today Updates given through the Facebook page, website and twitter Outcomes from the day will be written up Set up virtual network of people to further input into the development Refine pathway and develop business case

41 Timescales CCG Survivorship strategy & business case completed and submitted to CCG Governing Body by May 2015 Decision taken on priority areas to be commissioned for 2016/2017 by March 2016 New survivorship pathway begins to be implemented from 2016/17

42 Thank you Please have a safe journey home

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