Spirituality and Religiosity as an Approach to Coping for Adolescents Living with Sickle Cell Disease: A Review of the Literature

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1 The Henderson Repository is a free resource of the Honor Society of Nursing, Sigma Theta Tau International. It is dedicated to the dissemination of nursing research, researchrelated, and evidence-based nursing materials. Take credit for all your work, not just books and journal articles. To learn more, visit Item type Format Title Authors Presentation Text-based Document Spirituality and Religiosity as an Approach to Coping for Adolescents Living with Sickle Cell Disease: A Review of the Literature Clayton-Jones, Dora; Haglund, Kristin Downloaded 23-Jul :59:12 Link to item

2 Spirituality and Religiosity as an Approach to Coping for Adolescents Living with Sickle Cell Disease: A Review of the Literature Dora Clayton-Jones PhD RN University of Wisconsin-Milwaukee Kristin Haglund PhD RN Marquette University

3 Overview Significance Purpose Literature Review Key Themes Limitations Implications

4 Significance Sickle cell disease is a serious debilitating chronic illness and global problem Spirituality and religiosity are common among adolescents Spirituality and religiosity increase coping and positively correlates with health outcomes (Cotton, Zebracki, Rosenthal, Tsevat, & Drotar, 2006)

5 Purpose To examine how adolescents living with sickle cell disease use spirituality and religiosity (S/R) to cope To determine how the use of S/R among adolescents living with sickle cell disease impact health outcomes

6 Spirituality and Religiosity Spirituality-Innate capacity to transcend and experience meaning and purpose in life beyond one s material, temporal, existence through contemplation and action aimed toward the sacred (Benson, Roehlkepartain, & Rude, 2003) Religiosity-Commitment to an organized way of knowing and orienting to the religious community s subject of worship (Schaefer, 2010)

7 Inclusion Criteria S/R among adolescents with SCD S/R among parents of children or adolescents with SCD S/R among adults with SCD Published in peer reviewed journals Qualitative and quantitative studies

8 Search Strategy Searched 6 computerized databases Author searches Reviewed 89 studies for possible eligibility A total of 11 studies reviewed 1 reported on children, 3 reported on children and adolescents, 1 reported on adolescents, and 6 reported on adults inclusive of year-olds

9 Coding Data Year of dissemination Participant characteristics Age Ethnicity Gender Study design

10 Literature Review- Key Themes S/R as sources for coping S/R enhances pain management S/R influences health care utilization S/R improve quality of life

11 Literature Review- Key Themes S/R as sources for coping Adolescents relied on their S/R when managing their SCD (Cotton, Grossoehme, Rosenthal, McGrath, Roberts, Hines, & Tsevat, 2009; Sibinga, Shindell, Casella, Duggan, & Wilson, 2006; Yoon & Black, 2006) Parents relied on S/R on behalf of their child to assist them in coping with their SCD (Sibinga et al., 2006: Yoon & Black, 2006) Parents desired to discuss further with their child s health care provider, but felt providers would not be interested (Sibinga et al., 2006: Yoon & Black, 2006)

12 Literature Review- Key Themes S/R enhances pain management Prayer, hoping, spiritual healing were aspects of S/R used when coping with pain (Anie, Stepsoe, Ball, Dick, & Smalling, 2002; Cotton, et al., 2009) Disease severity was associated with greater reliance of S/R (Sibinga et al, 2006) S/R used more often with those who were older and used two or more analgesics (Yoon & Black, 2006)

13 Literature Review- Key Themes S/R influences health care utilization Adolescents using active coping inclusive of their S/R were more likely to access health services (Anie, et al., 2002) Positive religious coping was related to fewer hospitalizations (Bediako, Lattimer, Haywood, Ratanawongsa, Lanzkron, & Beach, 2011) Low to moderate church attendance was associated with less health care utilization (O Connell-Edwards, Edwards, Pearce, Waccholtz, Wood, Muhammad, Robinson, E.,2009)

14 Literature Review- Key Themes S/R improve quality of life There was a positive correlation between spirituality and perception of HRQOL among adolescents (Cotton et al., 2009) There was a positive correlation between spirituality and perception of HRQOL and adults (Adegbola, 2011; Mann-Jiles & Morris, 2009)

15 Literature Review-Limitations Lack of data from adolescents and children when parents surveyed Need to provide conceptual definitions for spirituality, religiosity, and related terms Longitudinal studies may provide further evaluation of the relational influence of S/R over time Detailed documentation of pain experiences in relationship to use of S/R is necessary Lack of current studies Most of the literature specific for adults

16 Literature Review-Implications Adolescents perspectives may complement parental reports and guide further inquiry Conceptual definitions of S/R and related concepts are essential especially when working with children/adolescents As the severity of illness and pain experiences increase, a holistic approach to managing pain may be effective Greater understanding of the role of S/R to QOL is warranted

17 References Adegbola, M. (2011). Spirituality, self-efficacy, and quality of life among adults with sickle cell disease. Southern Online Journal of Nursing Research, 11(1), Anie, K. A., Stepsoe, A., Ball, S., Dick, M., & Smalling, B. M. (2002). Coping and health service utilisation in a UK study of paediatric sickle cell pain. Archives of Disease in Childhood, 86(5), Bediako, S. M., Lattimer, L., Haywood, C., Jr., Ratanawongsa, N., Lanzkron, S., & Beach, M. C. (2011). Religious coping and hospital admissions among adults with sickle cell disease. Journal of Behavioral Medicine, 34(2), Benson, P. L., Roehlkepartain, E. C., & Rude, S. P. (2003). Spiritual development in childhood and adolescence: Toward a field of inquiry. Applied Developmental Science, 7(3),

18 References Cooper-Effa, M., Blount, W., Kaslow, N., Rothenberg, R., & Eckman, J. (2001). Role of spirituality in patients with sickle cell disease. Journal of the American Board of Family Practice, 14(2), Cotton, S., Grossoehme, D., & McGrady, M. E. (2012). Religious coping and the use of prayer in children with sickle cell disease. Pediatric Blood & Cancer, 58(2), Cotton, S., Grossoehme, D., Rosenthal, S. L., McGrath, M. E., Roberts, Y. H., Hines, J., Tsevat, J. (2009). Religious/Spiritual coping in adolescents with sickle cell disease: A pilot study. Journal of Pediatric Hematology Oncology, 31(5), Cotton, S., Zebracki, K., Rosenthal, S.L., Tsevat, J. & Drotar, D. (2006). Religion/spirituality and adolescent health outcomes: A review. Journal of Adolescent Health, 38,

19 References Harrison, M. O., Edwards, C. L., Koenig, H. G., Bosworth, H. B., Decastro, L. & Wood, M. (2005). Religiosity/Spirituality and pain in patients with sickle cell disease. The Chicago Journal of Nervous & Mental Disease, 193(4), Mann-Jiles, V., & Morris, D. L. (2009). Quality of life of adult patients with sickle cell disease. Journal of the American Academy of Nurse Practitioners, 21(6), O Connell-Edwards, C. F., Edwards, C. L., Pearce, M., Waccholtz, A. B., Wood, M., Muhammad, M., Robinson, E. (2009). Religious coping and pain associated with sickle cell disease: Exploration of a non-linear model. Journal of African American Studies, 13, Sibinga, E. M., Shindell, D. L., Casella, J. F., Duggan, A. K. & Wilson, M. H. (2006). Pediatric patients with sickle cell disease: Use of complementary and alternative therapies. Journal of Alternative and Complementary Medicine, 12(3),

20 References Yoon, S. L., & Black, S. (2006). Comprehensive, integrative management of pain for patients with sickle-cell disease. The Journal of Alternative and Complementary Medicine, 12 (10),

Text-based Document. Gaston-Johansson, Fannie. Downloaded 25-Jul :44:24.

Text-based Document. Gaston-Johansson, Fannie. Downloaded 25-Jul :44:24. The Henderson Repository is a free resource of the Honor Society of Nursing, Sigma Theta Tau International. It is dedicated to the dissemination of nursing research, researchrelated, and evidence-based