STEPPING OUT TO CURE SCLERODERMA TEAM FUNDRAISING GUIDE

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1 2016 STEPPING OUT TO CURE SCLERODERMA TEAM FUNDRAISING GUIDE Delaware Valley Chapter of the Scleroderma Foundation Every step counts educate, advocate, cure

2 Welcome to Stepping Out to Cure Scleroderma Walk You ll move. You ll be moved. Joining the movement as a Stepping Out to Cure Scleroderma team captain with thousands of people across the country is an experience like no other. This team captain guide will help you keep your team organized and motivated and provide some great tips for having fun while fundraising. 50 walks. One destination. A world free of scleroderma. The Delaware Valley Chapter supports their walks with refreshments, team photographs, awards, raffles, and prizes. All walks are held rain or shine. SFDV Walks 2016 Race 4 Linda 5k and 1-mile fun walk Hershey, PA April 23, Ventnor Walk in Ventnor City, NJ May 14, 2016 Scleroderma.org/ventnorwalk Shore Walk at Historic Allaire Village Wall Township, NJ June 11, 2016 Scleroderma.org/allairewalk Susquehanna Valley Walk in York, PA August 13, 2016 Scleroderma.org/yorkwalk Teri's Run and Twilight Walk Downingtown, PA September 9,

3 Philadelphia Walk along Boathouse Row October 2, 2016 Scleroderma.org/phillywalk SFDV TEAM FUNDRAISING Your Fundraising Matters The National Scleroderma Foundation helps people affected by scleroderma by funding cutting edge research, driving change through advocacy, facilitating professional education and providing programs and services to assist people with scleroderma and their families maintain the quality of life they so deserve. Since its charter in 1988, the Delaware Valley Chapter has been in the forefront of providing programs and services for people with scleroderma and those who care for them. We serve clients and their families in eastern Pennsylvania, central and southern New Jersey and the state of Delaware. Clients turn to us for educational programs, news in the scleroderma community from the Pursuit, our newsletter and connection to other clients via our network of support groups. Furthermore, we campaign to bring awareness into the community and advocate for increased scleroderma research funding at the NIH. Most important we support the research grant program at the National Scleroderma Foundation with restricted research donations. The Delaware Valley Chapter appreciates the generosity of our donors and takes every step possible to ensure that funds are used responsibly and effectively as we work to achieve a world free of scleroderma. With lower than average administrative and fundraising costs, the National Scleroderma Foundation is committed to ensuring that the maximum amount of money raised funds innovative research and provides direct services for local people living with scleroderma. The Scleroderma Foundation rates 4 stars with Charity Navigator, an independent organization evaluating the financial health and transparency of more than 1000 nonprofit organizations. The more successful we are at fundraising the more we are able to contribute to our ultimate mission funding research and finding a cure for scleroderma.

4 FORMING A TEAM As a part of the Scleroderma movement, you and your team are taking part in creating a world free of Scleroderma. And we re committed to you! Here are the steps to form your team. Make copies and hand out when you recruit. Forming a Team 1. Go to or 2. Click on Start a Team 3. Complete Registration 4. Click Access Your Participant Center 5. Customize Your Fundraising Page 6. Share with all your contacts 1. Recruiting Team members can be anybody friends, family, co-workers or neighbors and they can all easily register as walkers online at or 2. Your Team s Mission Fundraising comes more naturally when you make it personal. If your team is walking for someone with scleroderma, ask them if they would be willing to tell their story to team members and on the team s fundraising page.

5 3. Having fun! Being a team captain is an opportunity to share a great experience with friends, family members or co-workers a community coming together for a common goal. With your co-workers, you can create awareness within your workplace. A first step toward eliciting corporate sponsorship for your team or the event. As a leader, it s up to you to motivate your teammates and remind them why they joined. The Stepping Out to Cure Scleroderma Walk can be more than a fundraising event. It can be a celebration of what we will achieve together! T Together E Everyone A Achieves M - More

6 KNOW YOUR NETWORKS WORKSHEET PERSONAL Write down your ideas of who to contact and how (reach out by phone, , Facebook Boundless Fundraising, letter-writing, fundraising events) Family - Go beyond your immediate family Who did you see at the last holiday party or reunion? Your children s activities Reach out to other parents you know through activities Friends - Include friends from other periods of your life Grade school, high school, college, graduate programs N Informal groups or clubs Book or knitting clubs, poker night Distant Contacts Review wedding or shower guest lists (put that guestbook to use!) n Your holiday card list n Sorority/fraternity sisters/brothers Community - How are you involved in your community? Volunteer activities/organizations Civic organizations Daily Activities - What does your average day or weekend look like? n What businesses do you frequent? Market, dry cleaners, pharmacy, gym, salon and doctors PROFESSIONAL Write down your ideas of who to contact and how (reach out by phone, , Facebook, Boundless Fundraising, letter-writing, fundraising events) Co-Workers - n Ask outside your department or direct contacts N Former co-workers from previous jobs or positions Clients, partners, vendors Who do you regularly interact with? n Where does your business regularly spend money? Reciprocated support Professional Groups Think of different organizations whose meetings you attend regularly n Do you pay membership dues anywhere? Industry groups, professional development, social networking organizations

7 Recruitment Checklist o I have modified my signature and my social network to let others know I am walking and recruiting team members. o I have encouraged every team member to recruit at least one new team member to join our team. o I have selected a co-captain and a team committee to assist me in organizing and motivating my team. o I have set my team recruitment goal (if I am a returning team captain, my goal is at least 25% higher than my previous year s team size). o I have publicized my team through posters, newsletters and word of mouth. o If I have a corporate team, I have secured support from my company s top executives. See next page for corporate sponsorship opportunities You will make a difference! How Can You Raise $100 in Just 10 days??? Easy Just ask 10 people for $10 Put in your own $10 Ask a significant other or roommate for $10 Ask your mom or dad for $10 Ask your boss for $10 Ask a co-worker for $10 Ask a friend for $10 Ask your neighbor for $10 Ask a relative for $10 Ask another co-worker for $10 a friend and ask for $10

8 Team Fundraising Incentives To thank those who become top fundraisers we offer the following prizes All team captains or single donors not affiliated with a team raising over $500 will receive a pair of Scleroderma Spirit Socks Those Team captains raising: $1000 to $2000 will receive a scleroderma tote bag $2000 to $3000 will receive a scleroderma beach bag $3000 to $4000 will receive a long-sleeved Scleroderma hoodie $4000 Plus will receive a $100 Amazon or Best Buy Gift Certificate The team captain who raises the most money will have their story written up in the Pursuit, the chapter newsletter. As always we award a plaque to the team with the most walkers and a plaque to the team having raised the most money the year before. The National Scleroderma Foundation would not be able to fund research, provide services, host programs or educate health-care professionals and the public if it weren t for the fundraising efforts of Walk scleroderma supporters. We d like to show our appreciation to the Stepping Out to Cure Scleroderma 2015 Walk teams who made the largest marks against scleroderma. Top Ventnor Walk Teams in 2015 Jaffari $2,621 Lankford $1,760 Arlene $1,171 Ventnor Walk Teams with the Most Walkers in 2015 Lankford Nonna's Famiglia Crowne Top Allaire Walk Teams in 2015 Dunn $6,811 Grandma Doris' Kids $3,414 Team Joy $2,205 Allaire Walk Teams with the Most Walkers in 2015 Grandma Doris' Kids Snow White Team Joy & Team Joan (tie)

9 Top York Walk Teams in 2015 Kay's Krew $9,157 Deb's Crusaders $3,223 Summer's Strength $2,225 York Walk Teams with the Most Walkers in 2015 Deb's Crusaders Summer's Strength Pappy Bob's Sock Pack Top Philadelphia Walk Teams in 2015 To be determined Philadelphia Walk Teams with the Most Walkers in 2015 Team Joey Team Bhagat Team Rosie Thank you for leading a Team in our Stepping Out to Cure Scleroderma Walk. As captain, your leadership and dedication will create a world free of scleroderma. It s awesome to take on the role of captain and inspire others to join you. From all the families touched by scleroderma that we are working to support, thank you. Scleroderma Walk Staff SPONSORS Do you know someone who might be interested in sponsoring our walk? Our sponsors help underwrite the costs associated with the Walk itself. Our sponsorship levels are as follows:

10 Scleroderma Foundation Delaware Valley Chapter 2016 Sponsorship Opportunities Stepping Out to Cure Scleroderma Walks Platinum $5,000 (all 4 walks) Premier $3,000 Diamond $2,000 Gold $1,000 Silver $750 Bronze $500 SPONSORSHIP BENEFITS Company logo on all walk t-shirts x x x x x x x Recognition in the SFDV newsletter Company logo on signs along walk path T-shirts for company employees Plaque of appreciation x x Ad in the SFDV newsletter Copper $250 x x x x x x x 10 signs 10 signs 7 signs 4 signs 3 signs 2 signs 50 t-shirts 50 t-shirts 20 t-shirts full page full page half-page quarterpage business card Certificate of appreciation x x Please complete and return to: Scleroderma Foundation Delaware Valley Chapter 385 Kings Highway North Cherry Hill, NJ Phone: DVchapter@scleroderma.org Website: Facebook.com/SFDelVal Twitter@SFDV1 Company Name: Contact: Address: Phone: Sponsorship Level: Please check the desired event for sponsorship and make checks payable to SFDV. Ventnor City, NJ Walk Historic Allaire Village, NJ Shore Walk York, PA Walk Philadelphia, PA Walk SF Delaware Valley Chapter is a non-profit 501(c)3 organization - EIN

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