Together HOW TO BE A TOP FUNDRAISER AND/OR THE MOST SPIRITED! Spirit Award!

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1 HOW TO BE A TOP FUNDRAISER AND/OR THE MOST SPIRITED! Top Fundraising Team! Top Fundraising Individual! Spirit Award! Answering TTP Foundation Prince George Dr. Toronto, ON M9A Y Contact@AnsweringTTP.org Charitable Registration # RR000

2 Thank you for registering to participate in the INTERNATIONAL! As a member of the Thrombotic Thrombocytopenic Purpura (TTP) community, you understand all too well how scary a TTP diagnosis can be for patients and their loved ones, how low TTP awareness is, how many questions are left in the wake of a diagnosis, and how important research is to help answer those questions! By participating in the and raising funds to help support TTP research, you will make an impact on the lives of those who have been affected by TTP. In fact, you are the key to the success for the Walk and helping the Answering TTP Foundation keep its commitment to continue funding meaningful international research to answer TTP! Finding answers for this complex and scary blood disorder is a top priority of the Foundation, but we need your help! As a participant, you have committed to help raise funds to support the Answering TTP Foundation in its commitment to funding international research, while also offering support programs and educational materials. To get things started, be sure to set up your personal or team fundraising page and set a fundraising goal! Aim high to reach your goals 00% because the TTP community is counting on you! This guide will help you with your fundraising leading up to, during, and after the Walk. The tips and tricks contained within this guide will also help you to attract lots of attention during your Walk. Awards will be given to the Top Fundraising Team (captain will claim the award), Top Fundraising Individual, and the most Spirited (eligibility requirements on page 9). REMEMBER: Every you send, every social media post you make, every time you ask someone for a donation, you re making a positive impact on the lives of those affected by TTP! We thank you for your dedication and commitment! Sincerely, Marie Dimech - Chair

3 How can you be the Top Fundraising Individual or Team this year? Ask everyone you know! The most successful fundraisers are those who aren t afraid to ASK everyone they know for support. So tell everyone you know about your Walk, why you re walking, and why you need their support! Remember, no one can say yes unless you ask! Who to ask?. Parents. Sisters. Brothers. In-laws 5. Aunts & Uncles 6. Cousins 7. Children 8. Nieces & Nephews 9. Grandparents 0. Accountant. Attorney. Babysitter. Dentist. Physician 5. Nurse 6. Landlord 7. Manager 8. Co-workers 9. Pet Groomer & Vet 0. Dry-cleaner. Florist. Barber & Hairdresser. Supermarket. Local businesses 5. Local restaurants 6. Gym 7. Pharmacist 8. High school friends 9. College friends 0. Children s friends. Children s teachers. Neighbours. Parents friends. Siblings friends 5. Don t forget to make a donation yourself! How to ask? In Person Phone Letter Mail Facebook Twitter Other Social Media Accounts 5 EASY steps to an ASK! Identify the need you are trying to address: Example: With no known cure, TTP patients are still living in fear! Explain why it is important to you: Example: I/my loved one is a TTP patient. Everyday I/they struggle with the uncertainty of a future relapse. Only research will help that uncertainty. Share what you are doing about it: Example: I registered to walk in the and am raising funds to help find an answer for TTP! Make the ask to your donor specific: Example: Will you make a $50 donation in support of me and others affected by TTP? 5 Let your donor answer!

4 How do I write a fundraising letter? Now that you have set up your individual or team fundraising page, and you have identified possible donors within your network, it s time to get fundraising! There is still power in the written word, so here are a few detailed hints to get you started! Create a list Using our example list on page, create a list of EVERYONE you know and can approach for support. Don t assume anyone you know will not support you! Send each person on your list a letter or and let them decide. Include a call to ACTION Don t just tell people what you are doing, ask them for help! Include your personal or team s fundraising goal in the text, and suggest giving levels. Do NOT diminish your request by adding I am sorry or I hope, be strong in your wording! Make it personal If you are sending through traditional mail, hand write the address on the envelope and hand sign the letter. For s, don t send a mass with everyone s address showing. It may take a little extra time, but personalizing your letters is key. Put your heart into it Let them know why you are fundraising. TTP is important to you, share why it is. Don t include too many facts and stats; instead include your personal experience. People will donate to you because they know you and want to support your efforts. Make it easy Include your personal fundraising page and encourage online donations. If mailing, include a copy of the offline donation form and a return envelope for them to send their donation to you, or to the Foundation. Set a deadline Deadlines motivate! We recommend that you set a deadline a week or two earlier than your Walk. This way you can assess your fundraising and revise your plan, if needed, before the actual event deadline. Send a reminder Keep a list of those who send in donations. Send a reminder to those that have not yet replied or donated. Include fundraising updates in your reminder. Be positive - fundraising is going great, but I still have a little further to go. Say thank you One of the most powerful things you can say to a donor is Thank you. If possible send a hand written note or personalized acknowledging their contributions, no matter the amount. Include pictures and updates from the event!

5 Sample Fundraising Letter In case you need a little inspiration or help, here s a sample letter for you. Dear, I will be participating in the on Saturday, September 9, 05, in (your town/ city name). The purpose of the walk is to help Answering TTP Foundation raise funds for meaningful international TTP research, support programs and educational materials. As you already know, I / my loved one has battled TTP and (tell your / a loved one s story, try to keep it to - sentences). With no known cure for Thrombotic Thrombocytopenic Purpura (TTP), patients are living each day in fear of another relapse that could end in irreversible damage to the brain, heart and/or kidneys. Patients are still losing their battle with TTP because of a lack of awareness and understanding of this disorder. Moreover, treatment is tough. Research will ultimately help find a cure. In the shorter term, research can help to dramatically improve the current treatment regime. I/he/she remain puzzled as to why I/he/she was diagnosed with this rare blood disorder and I/he/she am/is concerned for the future that seems unknown and full of questions. Please help me support the Answering TTP Foundation and those affected by TTP by supporting my fundraising efforts. (Add information about how they can donate; such as, your fundraising page link) Everyone is welcome and encouraged to walk and fundraise with us - if you would like more information on the event or the Answering TTP Foundation, please visit AnsweringTTP.org. (Add a personal thank you quote or final thought) (Signature)

6 Social Media As we all know, Social Media sites are some of the most powerful tools that a fundraiser can use to reach potential donors! We encourage you to utilize accounts you hold on these sites to help you reach and surpass your fundraising goal. Below are some sample messages you can post to your Facebook, Twitter, etc., Once you have registered & set up your fundraising page... I ve registered to walk on September 9th in the! I am walking with the global TTP (Thrombotic Thrombocytopenic Purpura) community because (insert the reason you are walking i.e., a loved one or your battle) and I am asking you to join me, by registering or donating to my fundraising page (insert your fundraising page link here)! Throughout your fundraising campaign... With no known cure, TTP patients are still losing their lives to TTP & are fearful of relapses that could include life threatening complications! I am raising funds to help support meaningful international TTP research to change this! Visit my fundraising page (insert your fundraising page link here) to support my efforts. I am at (where are you in reaching your goal 5%, 50%...) of my fundraising goal, and only need $x more to reach it! Please help me to help improve the prognosis of all TTP patients by donating today! Visit my fundraising page (insert your fundraising page link here) to support my efforts. Just more weeks before the 05! I am so excited to walk and fundraise for a cause that is so close to my heart. As you all know (insert the reason you are walking i.e., a loved one or your battle). Please support my fundraising efforts by visiting my fundraising page (insert your fundraising page link here) and donating. After your walk... I would like to thank everyone who supported my fundraising efforts to raise funds for the Answering TTP Foundation! The was yesterday and I/we had such a fantastic time walking in our local community! With your generous support, I was able to (reach/surpass/ raise$x) that will be used to help improve the prognosis for all TTP patients! Please visit Answering TTP.org to learn more and get involved! Helpful Hints: Don t be afraid to post frequently! Remember how quickly posts get pushed down on news feeds because people are always posting! Making regular posts will help remind those who think I ll do it tomorrow to do it today! Always include a link to your fundraising page! Making it simple for people to donate to you will help ensure your success! Publicly thank your donors, so they know and feel appreciated!

7 Fundraising Ideas Fundraising can be a lot of fun, and there are lots of ways you can go that little extra mile and have a great time, all while raising more funds towards your goal! We have a whole page of our website dedicated to fundraising ideas (AnsweringTTP.org/get-involved/organize-fundraiser), but here are a few that are really easy to help jump start your fundraising efforts. 5 Host MATCHING GIFTS Corporations or even smaller companies will often match donations made by employees. This is a great way to easily double your fundraising efforts. Contact your HR department for more information and remember to ask friends and family to ask theirs too! DINNER PARTY Host a dinner party for friends and family, and ask that instead of bringing a dish or gift for the host that they make a donation towards your fundraising efforts. SPARE SOME CHANGE Bring a jar or container to work to leave on your desk or in a common area, such as the lunch room. Put information on or near your donation jar telling people where the funds are going and ask them to dump in their spare change. You ll be surprised how quickly it will add up! BAKE SALE Bake up some delicious treats and hold a bake sale with the proceeds going towards your goal! GAME NIGHT a game night for friends and family, and ask that instead of bringing a game or snack that they make a donation towards your fundraising efforts. 6 Gather CAR WASH some friends and family and host a local car wash with all proceeds going towards your goal! Haven t quite reached your fundraising goal by walk day (September 9 th ) OR want to surpass your goal? Dress up containers to carry along on your walk to ask those you talk to for a donation on the spot with their spare change!

8 Make a Plan Setting a fundraising goal is one thing, but creating a plan is a sure fire way to ensure you reach it! Here are a few suggestions for your plan. How to Raise $00 Ask family members for $5 each Ask 8 friends/co-workers for $0 each = $00 = $80 Sponsor yourself = $0 TOTAL = $00 How to Raise $500 Ask 5 team members or family & friends to commit to sending 0 s to their network asking for a donation of $5 towards your goal. If just 0% of those ed donate, you will have raised $750 towards your goal! 5 TOTAL = $500 How to Raise $000 Ask 6 team members or family & friends to commit to sending 5 s to their network, asking for a donation of $5 towards your goal. If just 0% of those ed donate, you will have raised $750 towards your goal! 5 6 Host an Event: See the previous page for our fundraising ideas! = $750 = $50 Social Media: Use your social media accounts to reach others! = $00 TOTAL = $000

9 Show Your Spirit - Get More Attention Now that you have raised funds to reach and even surpass your fundraising goal, it is time to plan how you are going to stand out, attract attention and raise awareness on your two hour walk! BALLOONS Carry red balloons with you on your walk! They re sure to attract a lot of attention when paired with your unique walk t-shirt(s) and if you have kids walking with you, they ll love getting to walk with a balloon! Line your walk route or rest area(s) with balloons! Remember: clean up and dispose of your balloons responsibly after your walk DECORATE YOUR ROUTE Decorate your walk route with streamers, information posters, etc., Remember: get the required permissions to decorate in public areas, if necessary, before your walk, and to clean up and dispose of your decorations after your walk! GET CREATIVE Dress up, bring props, get creative with how you can raise even more funds and awareness on your walk! We can t wait to see how you show your spirit! Helpful Hints: Take lots of pictures and video before, during and after your walk! Send in your pictures and videos after the walk so that they can be added to the official 05 photo album! If you would like to be considered for the Spirit Award you must () send in photos and () have an active, customized fundraising page with pictures and a personalized story of why you are fundraising and walking!

10 Frequently Asked Questions What is Thrombotic Thrombocytopenic Purpura (TTP)? Thrombotic Thrombocytopenic Purpura is a medical emergency causing small blood clots and potentially fatal complications. Early diagnosis is key to survival. TTP can strike anyone, at any stage of life. Approximately three in one million people are diagnosed with TTP every year. What is the? The is an international event for the entire TTP community! No matter where in the world you live, you can register, fundraise and then walk any distance for hours in your local community on Walk Day! Register as an individual or gather 9 friends and walk as a team of 0. The goal of the is to raise funds for international TTP research and raise awareness about Thrombotic Thrombocytopenic Purpura (TTP). When is the Walk? The 05 will take place on Saturday, September 9, 05. Where does the Walk take place? As an international event, there is not any ONE location that the Walk is held. Walks take place in cities and towns around the globe where registered participants live. If you would like to be connected with participants who are walking in your local community, after you register, you can visit AnsweringTTP.org/05-walk-together-request-form, to complete the form to be connected. What distance do I have to Walk on walk day? The does not have a set distance. Instead, to accommodate participants of all athletic abilities, it is asked that you walk in your community for hours, any distance, taking as many breaks as you need. Where can I donate to the Walk? Donations can be made online at or offline by sending a cheque to Answering TTP Foundation - at Prince George Dr., Toronto, ON, M9A Y. Cheques should be made payable to Answering TTP Foundation. How are funds raised from the Walk used? Funds raised support international TTP research that will ultimately one day find a cure for TTP. In the shorter term, research can help to dramatically improve the current treatment regime. To date the Foundation has committed over $67,000 to TTP research through 06! Funds are also used towards international support programs & educational materials. QUICK FACT: In 0, 90 cents of every dollar spent was directed towards charitable programs! Is there a minimum amount participants must raise? Yes, in order to receive your official Walk T-shirt to wear on walk day and an awareness package of educational and promotional materials, individual registrants MUST raise a minimum of $5 and teams, as a whole, $50, before August 5, 05. Answering TTP Foundation Prince George Dr. Toronto, ON M9A Y Contact@AnsweringTTP.org Charitable Registration # RR000