Strategies for Recruiting Low- Income Minority Fathers into an Adverse Childhood Experiences (ACE) Study

Transcription

1 Strategies for Recruiting Low- Income Minority Fathers into an Adverse Childhood Experiences (ACE) Study Khalida Saalim SUMR Scholar Georgetown University Mentor: Roy Wade Jr., MPH, PhD, MD, MSHP

2 Overview Our Paternal ACE Study My Project Appreciation

3 Our Paternal ACE Study

4 Background on Adverse Childhood Experiences (ACE) In , the CDC and Kaiser Permanente conducted an ACE study which surveyed 17,000 adults in Southern California about their childhood experiences of abuse, neglect, and household challenges. The study showed the correlation between ACE and poor health outcomes across their life course. Research has shown that mothers ACE can impact their child s health outcomes. However, the effects of fathers ACE have not been studied.

5 The Paternal ACE Study Purpose: To study the impact of a father s ACE on their child s behavioral health Our study population: 500 children seen across CHOP primary care network between Study Design: Both biological parents complete our survey about their parenting practices and their childhood experiences Survey responses will be merged with clinical data to examine the association between paternal ACE, parenting practices, and child behavioral disorders

6 Survey Completion Surveys Completed Since January 2018

7 Demographics of the Current Study Population Demographics of Respondent Fathers

8 My Project: Strategies for Recruiting Low- Income Minority Fathers into an Adverse Childhood Experiences (ACE) Study

9 Introduction Purpose: To enhance recruitment of low-income minority fathers in our paternal ACE study and to summarize the literature on effective recruitment methods for low-income minority fathers Our study population: Fathers who have not completed survey

10 Methods

11 Literature Review PubMed Searches: Recruitment AND low-income AND participation AND surveys (30 results) Recruitment AND minorities AND participation AND surveys (59 results) Recruitment AND men AND participation AND surveys (79 results) Recruitment AND parents AND participation AND surveys (69 results) Recruitment AND fathers AND participation AND surveys (5 results) Electronic mail AND surveys AND non-response (8 results) Telephone AND surveys AND nonresponse (94 results) Postal Services AND surveys AND non-response (60 results)

12 Conceptual Framework Conceptual Framework: Strategies to Increasing Recruitment in Low-Income Minority Males Who Are Fathers

13 Aim 1: Develop recruitment strategies to increase participation in our ACE study through literature review and conceptual framework Aims Aim 2: Revise these recruitment strategies based on input of low-income minority fathers Aim 3: Test the different recruitment strategies on our survey population

14 Intervention 1: Addressing Timing of Recruitment and Inaccessibility Intervention 1: Using postal mail as a survey contact method

15 Intervention 2a: Addressing Fathers Feelings of Insignificance Intervention 2a: A personalized card expressing our team s appreciation of fathers

16 Intervention 2b: Addressing Fathers Feelings of Insignificance Intervention 2b: An introduction paragraph on why their responses are significant to our study in the initial recruitment letter The Children s Hospital of Philadelphia is honored to invite fathers like you to participate in our research study. This research will help us understand how childhood stress can affect health. You have been asked to participate because your child, [CHILD NAME], visited one of the CHOP primary care locations between 2007 and As of today, most mothers have responded, but we are still missing information from some fathers. By completing the survey, your responses as a father may be used to create new ways to make our children healthier. Without your input, we will not be able to complete this study.

17 Intervention 2c: Addressing Fathers Feelings of Insignificance Intervention 2c: A modified version of the survey that includes only the questions relevant to fathers

18 Intervention 3: Addressing Insufficient Incentives and Medical Distrust Intervention 3: A pre-incentive with an initial $10-20 on a reloadable gift card allotted through postal mail upon providing their consent

19 Intervention 4: Addressing Unappealing Recruitment Materials Intervention 4: More noticeable postal letter with a solid color and IMPORTANT read on it to prevent it from being viewed as junk mail Original Letter Proposed Letter

20 Talk to an opportunistic sample of low-income minority fathers whose children are being seen at one of CHOPs pediatric care sites in West Philadelphia to: Next Steps: Review the wording of our recruitment materials Provide feedback on appearance of recruitment materials Revise and test our new recruitment strategies in our study population

21 Appreciation

22 How to conduct an in-depth and extensive literature review Lessons Learned Experience drafting a conceptual framework and specific aims The importance of understanding our study population and using this knowledge to strategize recruitment methods

23 Thank you... Dr. Roy Wade Macy Marcucci Danielle Collins The Leonard Davis Institute and the SUMR program

24 Questions?

25 Alexander, Gwen L., George W. Divine., Mick P. Couper, Jennifer B. McClure., Melanie A. Stopponi., Kristine K. Fortman., Dennis D. Tolsma Victor J. Strecher., Christine Cole Johnson Effect of Incentives and Mailing Features on Online Health Program Enrollment. American Journal of Preventive Medicine. Vol 37.: S Askelson, Natoshia M., Elizabeth H. Golembiewski., Barbara Baquero., Elizabeth T. Momany., Julia Friberg., Doris Montgomery. (2017). The importance of matching the evaluation population to the intervention population: Using Medicaid data to reach hard-to-reach intervention populations. Evaluation and Program Planning. Vol 60: References Davidson, Kirsten K., Jo N. Charles., Neha Khandpur., Timothy J. Nelson. (2017). Fathers Perceived Reasons for Their Underrepresentation in Child Health Research and Strategies to Increase Their Involvement. Maternal and Child Health Journal. Vol 21: Edwards, PJ., I. Roberts, MJ. Clarke; C., Diguiseppi., R. Wentz., I. Kwan., R. Cooper.,; LM Felix., S. Pratap. (2009) Methods to increase response to postal and electronic questionnaires. Cochrane Database. System Review. Vol 3: 3 Felitti, Vincent J., Robert F. Anda, Dale Nordenberg, David F. Williamson., Alison M. Spitz., Valerie Edwards., Mary P. Koss., James S. Marks. (1998). Relationship of Childhood Abuse and Household Dysfunction to Many of the Leading Causes of Death in Adults. American Journal of Preventive Medicine. Vol 14:

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