LIVESTRONG Patient Navigation Services Program (PNSP)

Transcription

1 Lance Armstrong Foundation LIVESTRONG Patient Navigation Services Program (PNSP) Caroline Huffman, LCSW, M.Ed.

2 Navigation Landscape Patient Navigation Center at Ralph Lauren Center Dr Freeman s model American Cancer Society, Patient Navigator Program NCI, Patient Navigation Research Program (PNRP) Association of Community Cancer Centers (ACCC), Cancer Care Patient Navigation Misc others

3 Lessons Learned Planning for a Patient Navigation Program that Works Need to distinguish from other healthcare professionals, including Case Managers Navigators are focused on addressing perceived barriers to care, rather than providing a particular service. Strength based approach. Rather than looking at what is wrong in an community and trying to fix it, LAF is taking a approach that builds on the community s unique resources, opportunities and strengths. Apply SOAR (Strengths, Opportunities, Aspirations, Results) analyses in place of more traditional SWOT analyses. Importance of culturally competent care (not just language translation).

4 Planning a Sustainable Model Building alliances with key decision makers in organization Finding a Champion(s) Determine adaptability and implementation At what point is a navigator engaged? And what do you want the navigator to do? Ongoing training needs Building a business plan

5 Cancer Care Continuum The Cancer Care Continuum Freeman HP, et al. Cancer Pract. 1995;3:19 30.

6 LIVESTRONG PNSP Patient Navigation is a strategic priority for LAF. Goal of the PNSP is to leverage synergies between existing national initiatives and encompass new initiatives to provide comprehensive navigation services to people affected by cancer. LIVESTRONG SurvivorCare, the LIVESTRONG Care Plan, the LIVESTRONG Survivorship Center of Excellence Network, and the LIVESTRONG Patient Navigation Center are all considered integral initiatives within the PNSP.

7 LIVESTRONG Patient Navigation Center In 2009, the LAF actively began to plan for the LIVESTRONG Patient Navigation Center (PNC), which will be housed in LAF headquarters. It is scheduled to open in Extensive research and analysis of existing Patient Navigator Programs being done. Do not want to compete with or duplicate other programs. Carve out a distinguishable niche that is meaningful to stakeholders. Building a systems based model, irrespective of cancer type. Planning a hybrid staffing model. If LAF is able to demonstrate strategic success, the PNC can potentially be replicated and branded outside of Austin, due to it being a systems based model.

8 LIVESTRONG SurvivorCare Within the PNSP, SurvivorCare is one service delivery program that the LAF offers. It is a collaboration of direct services to provide free, one on one support in English and Spanish to anyone affected by cancer from the moment of diagnosis and throughout their cancer experience, including: Persons with cancer Caregivers Family Friends Health care professionals

9 LIVESTRONG SurvivorCare CONTACT BY PHONE (English) (Spanish) Monday Friday 9:00 a.m. to 5:00 p.m. EST CONTACT ONLINE LIVESTRONG.org/survivorcare Complete the LIVESTRONG SurvivorCare form. LIVESTRONG SurvivorCare Intake Service Info provided about LAF services, including online education resources, brochures, worksheets, fertility information and financial assistance, and referrals to other partners Emotional Counseling Newly Diagnosed Hospice Bereavement Support Groups Communication Concerns Financial Assistance Insurance Issues Financial Assistance Debt Crisis Workplace Concerns Questions and education about Clinical Trials and Clinical Trial Matching

10 LIVESTRONG SurvivorCare Collaborative partners include: CancerCare Emotional support and counseling Support groups Limited financial assistance Patient Advocate Foundation Employment and financial concerns Co pay assistance and insurance issues Emerging Med Clinical trials matching service

11 LIVESTRONG Care Plan LAF and Penn Medicine s OncoLife have created a co branded survivorship care plan that can be accessed on the Internet by cancer survivors worldwide at Ongoing iterations of the product, including ways to enhance multimedia components. Multiple technical upgrades have been done. Overall high satisfaction with product and usability. Lists LIVESTRONG cancer survivorship support services on homepage. Engaging ACS leadership regarding collaborative opportunities. Engaging in outreach through professional associations (i.e. AARP, Senior Centers, Public Health Corps, Hispanic Nursing Society, Community Centers, Library Systems, US Oncology). Need to better inform PCP s; will be spotlighted in fall issue of JGIM.

12 Survivorship Center Network The LIVESTRONG Survivorship Center of Excellence Network seeks to: Harness the expertise, experience, creativity and productivity of leading NCI designated Comprehensive Cancer Centers working in tandem with Community Affiliate partners Provide clinical survivorship services Increase the effectiveness of survivorship care through Research Development of new interventions Sharing of best practices

13 COE A A A About the Network COE/COE Collaborations Semi-annual meetings Conference calls Working groups/joint projects COE/Affiliate Collaborations Frequent meetings Full-time coordinator Steering committees LAF Leadership Facilitation Oversight Evaluation COE A A A COE COE A A A A A A

14 Network Members 1. Abramson Cancer Center, University of Pennsylvania, Philadelphia 2. Dana Farber Cancer Institute, Boston 3. Fred Hutchinson Cancer Research Center, Seattle 4. James Cancer Center, Ohio State University, Columbus 5. Jonsson Comprehensive Cancer Center, UCLA, Los Angeles 6. Lineberger Cancer Center, University of North Carolina, Chapel Hill 7. Memorial Sloan Kettering Cancer Center, New York City 8. University of Colorado Cancer Center, Denver

15 Concluding Remarks Questions??