A Personal Story: Turning Tragedy into Triumph. Martha Lopez Anderson Chair, Board of Directors Parent Heart Watch
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1 A Personal Story: Turning Tragedy into Triumph Martha Lopez Anderson Chair, Board of Directors Parent Heart Watch
2 A Personal Story: Turning Tragedy into Triumph Sean Alexander, a seemingly healthy and active 10 year old boy. Never missed a day of school, never missed a well child checkup. This is my last photo of him.
3 A Personal Story: Turning Tragedy into Triumph Parent Heart Watch began as an informal collaboration of several families across the United States who all lost a seemingly healthy child unexpectedly to Sudden Cardiac Arrest (SCA). In October 2005, this collaboration was formalized into a 501(c)(3) public charity.
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5 PHW Members by State WA MT ND ME OR ID SD MN WI NY VT NH MA CA NV UT WY CO NE KS IA MO IL MI OH IN KY WV VA PA DE MD NJ RI CT AZ NM OK AR TN SC NC MS AL GA TX LA FL AK HI States with current PHW Members States without PHW members
6 Mission: Parent Heart Watch has never veered from its original mission of protecting youth from sudden cardiac arrest by focusing on life saving and prevention strategies including early detection and being prepared in the event of a cardiac emergency.
7 Focus Areas: Education & Awareness Heart screenings for early detection of conditions that may lead to SCA Preparedness when SCA strikes Recognizing SCA when it occurs CPR - push hard and fast on the center of the chest Access to AEDs in schools, athletic facilities and anywhere young people congregate Legislation
8 Free or Affordable Heart Screenings WA MT ND ME OR ID SD MN WI NY VT NH MA CA NV UT WY CO NE KS IA MO IL MI OH IN KY WV VA PA DE MD NJ RI CT AZ NM OK AR TN SC NC MS AL GA TX LA FL AK HI PHW Members - Heart Screenings Screenings Not Available
9 All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is accepted as being self-evident. Aurthur Schopenhauer
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12 Accomplishments Maintain a database on cases of death and survival that has been utilized in research studies Hosted 11 National Annual Conferences Collaborated with the University of Washington on two continuing medical education (CME) programs on Sudden Cardiac Arrest in the Young Annual educational campaigns (posters, postcards, clipboards, etc) Launched an awareness campaign targeted toward state and regional Child Death Review teams with the goal to educate these professionals about the causes and prevention of SCA in youth and ultimately served as the catalyst for the creation of the Sudden Death in the Young Registry.
13 In October 2013, the NIH and CDC came together to create the SDY Registry. The goals: Establish the incidence of sudden death in the young in the United States. Investigate the causes and risk factors that lead to sudden death in the young.
14 Vision: The work over the past ten years has built a strong foundation for our next challenge: Eliminate preventable deaths from sudden cardiac arrest in children and youth by 2030.
15 Preparing Your School for a Cardiac Arrest Emergency Case Studies Abel, age 15, collapsed during soccer game at a Florida high school (2008) was called approximately 3 minutes after collapse CPR was administered by school nurse and coach the AED required by Florida state statute was in a golf cart on the field, but it was not retrieved/used
16 Preparing Your School for a Cardiac Arrest Emergency Case Studies Brain was deprived of oxygen Abel is living in a persistent vegetative state requiring 24 hour care In 2015 his lifetime care was estimated to cost $15,657,279
17 Preparing Your School for a Cardiac Arrest Emergency Case Studies 17 year old, Claire, collapsed during volleyball game at Georgia high school gym (2015) School staff and a parent, called and administered CPR The AED mounted on the wall of the school s gym was retrieved and used within 3½ minutes
18 Preparing Your School for a Cardiac Arrest Emergency Case Studies A written Cardiac Emergency Response Plan was in place Emergency drills are practiced by faculty, staff and students! This is an event that you pray never happens at your school, but when it does, it's imperative to be prepared and we were--thanks to you.
19 Preparing Your School for a Cardiac Arrest Emergency Case Studies 14 year old, Michael, collapsed during wrestling practice at a California high school (2015) Coach called 9-1-1, started administering CPR and gave two orders: Someone grab the AED Someone else go outside and help guide the ambulance when it arrives
20 Preparing Your School for a Cardiac Arrest Emergency Case Studies Xhosa collapsed at age 17 while playing basketball for YMCA league at a middle school gym (2012) Bystander called His father administered CPR AED in school s gym was retrieved and used to restart his heart
21 Edison High School 'going beyond' to prevent sudden cardiac death Edison athletic director Jeff DiCocco and a Walmart store manager's donation of a bicycle, helmet and backpack for AED allows the track coach to carry a portable AED so that the lifesaving device is with him whenever he rides the bike to follow runners as they train.
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23 Thank you
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