Notes of the Bamford Monitoring Group Meeting Friday 6 January 2017 Ormeau Baths, 18 Ormeau Avenue, Belfast

Transcription

1 Notes of the Bamford Monitoring Group Meeting Friday 6 January 2017 Ormeau Baths, 18 Ormeau Avenue, Belfast Members at the meeting: May McCann, Carer Justin Greenwood, Service User John McKee, Carer Paul McFall, Service User Brian Sinnamon, Carer Ursula Campbell, Service User Paul Greer, Carer Pat McDowell, Carer Present: Jackie McNeill, Patient and Client Council Briege McAlister, Patient and Client Council Page 1 of 20

2 Item Welcome and Introduction Action John chaired the meeting and wished everyone a Happy New Year and everyone introduced themselves. Item Apologies Action Jean Hale, Service User and Iolo Eilian, HSC Board Item Notes of the last meeting Action The notes were approved. Item Matters Arising Action Information from Trusts on the criteria used to decide whether to admit someone to a mental health inpatient unit, or to provide home treatment Jackie to follow this up with Andrew Dawson. Jackie Item Guest Speakers - Rodney Morton, HSC Board and Briege Quinn, Public Health Agency Recovery Colleges John invited Briege to speak on this item. Action Page 2 of 20

3 Briege said that within the next few weeks the latest Recovery Newsletter will be circulated which provides information on what is going on within the five Trust areas around recovery colleges, peer support workers, peer educators and the outcomes from the world mental health day regional event. Jackie said that the BMG is looking at the Three Year Action Plan and one of the service areas we wanted to look at is recovery colleges. Jackie had met with Briege and Rodney to try and tease out project ideas and ensure there would be no duplication of work. Briege said that part of the evaluation model is to see if the recovery colleges has made a difference and this has started in parts of England in Nottingham and Central North West London. She explained that two facilitators were brought over from England to help to develop and set up an 18 months programme to cover recovery colleges, peer support workers, peer educators and Page 3 of 20

4 looking at things that will help people move out of services and treatment but still be therapeutic. Every Trust was tasked to set up steering groups to take pieces of work forward and there had to be a split as far as service users, the statutory sector and third sector representation was concerned. The model that was chosen for Recovery Colleges was Hub and Spoke Model this meant there would be no building that everyone would come to, the hub. It would be the administrative base, where the recovery college co-ordinators and administrators develop programmes and maybe facilitate developing courses. People would then go out into different areas and communities using church halls, libraries, further education colleges etc, to deliver the courses. All recovery colleges have been formally launched. Recovery Colleges are providing up to courses, all co- Page 4 of 20

5 produced by service users, families and professionals and provided in very different areas rural and urban and mostly free of charge. The two facilitators from England are coming back in February/March time to see what has been done in the two years. They have already visited the South Eastern Trust in December and what they are seeing, hearing and experiencing, they could only dream off this in England. The South Eastern Trust were instrumental in developing an OCN Level 3 course for peer educators. The course has been extremely successful and they are now sharing this with other Trusts. The evaluation piece has already happened in England. They evaluated what difference did it make to the organisation and what difference did it make to the individual. They were measuring the satisfaction rates around the Page 5 of 20

6 experience of recovery colleges, 6 months later and 12 months later as in - How are you since. Some of the findings was that some people were less dependent on treatment services and this was a positive spin off. People who were attending a monthly CPN or a Psychiatrist are actually now seeing their GP once every three months or as and when required. People getting jobs but not only in health, people going out and getting jobs in their local towns and communities, etc. There was a positive correlation between recovery colleges, completion of courses, joining in and becoming a peer educator or designing a course. This opened up a whole network of support that people were not aware of before. The sensemaker audit has been carried out twice and Over 700 people replied to this. There were nine questions initially and a further three were added to the 2016 audit and two of these were specifically around recovery and the final one was Page 6 of 20

7 around physical health care. Across the Board there has been improvement in all areas. There is still more work to be done in certain areas. Each Trust has taken the information relevant to them and will use this as part of their evaluation work. The overall sensemaker report will not be launched before the Bamford evaluation is launched. There are many references to the sensemaker audit within the Bamford evaluation. John thanked Briege for her comprehensive review. Pat asked about accessing links to the recovery colleges and how do people know about them. Briege responded as part of the facilitation programme at the start of all of the work a conscious decision was made to ensure that it involved service users, carers, third sector organisations and statutory services, nurses, social workers, occupational therapists, etc. Part of the work within the Page 7 of 20

8 steering groups around recovery colleges was the communication strategy and that looked at, how do they let people know. A lot of the Trusts are using their key workers to provide prospectuses so nurses, social workers, psychiatrists (not as much). There are posters in GP surgeries and in particular areas there are posters in libraries, in health centres, etc. The prospectus changes as it is a live document so there is a link provided to go in to the prospectus. There is a recovery college co-ordinator in every Trust area and it is their job to promote it. There is no referral system, people can ring up themselves to register for a course. There are primary care hubs developing and they will promote the recovery colleges. GP s are now referring people to the primary care hubs. Paul McFall confirmed that the hubs are promoting the recovery colleges in a big way. Page 8 of 20

9 May thanked Briege for a very comprehensive talk and one of the ideas she found exciting about recovery colleges is that people with mental health problems go to college and thinks it is a whole lot more than that. It is the bringing together of service providers, service users and carers and the participation of providers not just as coproviders/co-delivers but also as people who attend the college in other words bringing about a levelling of mutual learning. Briege replied that community staff are more able to access the courses than inpatient service staff (on a rota basis). Inpatient staff note it in their continuous professional development that they want to attend. This is why Team Leaders, Ward Sisters and Charge Nurses were all involved in the facilitation process at the start. If they were not championing the courses for their staff, the staff will not get time to be released. Community staff are much more able to handle their own diaries. The PHA have now got agreement that student Page 9 of 20

10 nurses will now becoming into recovery colleges. The Northern Trust have done tests with a few nurses from Queen s University. As far as starting a whole new branch of mental health student nurses in 2017 The Open University are auditing placements within Recovery Colleges to ensure they meet the requirements of student learning placement. Briege also informed the meeting that there has been an expression of interest for medical students to now have a placement in recovery colleges. Members were delighted to learn that the first recovery college CORE class in the Students Union at Queens University has been arranged. Paul Greer referred to his experience, that he has been very fortunate as he has been able to co-facilitate at recovery colleges. Paul thinks it is very important to value what recovery colleges have to offer and he would encourage Page 10 of 20

11 this work. Rodney thanked Paul for his comments and he said that the professionals need to be encouraged. There are three simple messages around the agenda in terms of mental health reform; the citizens comes first, need to do a couple of things really well, need to make sure at the heart of what is done that it is based on the best available outcomes and that citizens get access to good psychological care. This creates the opportunity for shifts in peoples mind-sets in order to enable them to become part of a recovery college movement. This can create the opportunity for people to benefit from psychological interventions, it is a dynamic process. It is not an either/or position, it is a process that at least in practice should blend together so when people are having psychological and recovery interventions that they work together for the person s good and their wellbeing. As holders of hope, that is the collective message, you can recover from mental ill health Page 11 of 20

12 and you can stay recovered from mental ill health. It is a journey of cultural change. Jackie said that the PCC could promote Recovery Colleges through their Facebook page. Briege to provide Jackie with a copy of the Recovery College Newsletter back page, which has all the contact details on it for each Trust area. Briege Quinn Jackie asked Briege for an update on the recovery colleges evaluation post mid-february. Briege to provide an update for the March BMG meeting. Jackie continued that looking at the Three Year Action plan and bearing in mind that the Department of Health would like the PCC to do a piece of work on the mental health care pathway; do the BMG members feel they could assist with a piece on the recovery college. Briege Quinn It was agreed that the BMG would not carry out a project on recovery colleges in light of the Page 12 of 20

13 work that is currently ongoing but they would like to be kept informed of the progress. Experience of HSC for people who have a dual diagnosis that being, people who have a learning disability who also suffer a mental illness Briege said in HSC terms it means that a person is identified with having both a primary and a secondary issue. In conjunction with this meaning, there is a dual diagnosis course being run at Queens University and this is for mental health and addictions. Jackie asked the group if they think it would be useful to hear from people who have a learning disability and a mental illness, regarding their experience of HSC John said that some people with a learning disability can have other serious aspects missed. Jackie said she had spoken to SMT re: Business Plan and they suggested having an event to scope to see what the experience Page 13 of 20

14 is of people who have both a learning disability and a mental illness. Brian welcomed this as he has had personal experience of this over the last six to nine months with his son. Paul agreed with Brian as his daughter is coming into the transition period and feels that her voice is not heard all the time. It was agreed to proceed with this event. You In Mind Regional Mental Health Co-production Framework John welcomed Rodney to present on the paper. The HSC Board is planning to carry out consultations with the five Trust s during January and February around the framework and the purpose is to see if they have got it right, are there some things that are wrong, what do they need to do differently and then produce a final document. Hope to launch the framework in the new financial year. Page 14 of 20

15 The starting point was recognised lived experience and recognising the importance of citizens being more actively involved in creating it. Rodney talked through a powerpoint presentation a copy of which can be obtained on request. John thanked Rodney for a comprehensive presentation. Paul McFall asked if the word IMROC can be changed as it was a group that came over from England and taught us what we are doing now. Can we not call the forums something else? Rodney replied that IMROC is a concept, it is not a company, it is not a person. Rodney is a big advocate for it because the acronym is really important. It is about recovery through organisational change. Paul also raised an issue about peer advocates they have to be independent, they cannot be employed by Trusts. Rodney replied that there are Page 15 of 20

16 legislative requirements which capacity legislation will take care off, the guidance is still being written around this. Item Jackie asked Rodney had he any thoughts on the project regarding the Mental Health Care Pathway which the Department had assigned to the PCC. Rodney said he would speak to Andrew Dawson from the Department on this and will report back to Jackie. Updates from Commissioning Team/Programme Board The December meeting was cancelled. Rodney Action Item Project Updates Action 2016/17Project 1. Future planning for elderly carers of someone with mental ill health funding has been pushed back to 17/18. Jackie to follow up with Briege Quinn on this. Jackie Page 16 of 20

17 2. Carer s Assessments Jackie shared the draft report with members and she read the conclusion. Jackie asked members for comments before this goes to the PCC Board meeting on 17 January. Jackie continued that we need a Chairman s foreword for the report and asked members for their thought on this. Members agreed that it should include the following: outcomes are highly disappointing, obviously is a big problem, care model needs changed, waste of time and money, and carers see the assessment as a tick box exercise. Jackie to draft foreword. Jackie Jackie asked for ideas on the launch of the report perhaps a photo shoot with the Health Minister. Paul Greer suggested involving the 10 carers who done the interviews. Jackie said some people might like to remain anonymous. Page 17 of 20

18 2017/18 Project Learning Disability Project Jackie said the following was suggested in the PCC Business Plan The PCC through the BMG will seek to hear from young people with a learning disability who have a mental illness about their experiences of health and social care the PCC will hold an event with the community and voluntary sector organisations and young people and carers with a learning disability who live with a diagnosis of a mental ill health. Members felt that it needs changed to reflect all age groups (including young people and elderly). It was agreed the following wording, to be forwarded to SMT for inclusion in the business plan The PCC through BMG will seek to hear from service users, carers (including the elderly and young) people with a learning disability who have mental illness about their experiences of health and social care. Page 18 of 20

19 Item Risk Action No risks were noted. Item AOB Action BMG Membership Term most of the members were asked last year to stay on for a further year and this will end in April. We are still waiting on the outcome of the Bamford Evaluation and in light of this it was suggested that members stay on for a further year. Jackie is to raise this with SMT. Venue for BMG Meetings The PCC have to move out of Ormeau Baths and in the meantime we will be using The Mount for BMG meetings. John asked could we approach the HSC Board in Linenhall Street to see if they have a room that would accommodate the BMG meeting. Jackie replied that there rooms are always booked in advance but we can check it out. Pat suggested trying Inspire (new Jackie Page 19 of 20

20 name for NIAMH), they have moved to new premises in Lombard Street, Belfast. Briege to follow this up. Briege Home Treatment Crisis Response Service Report a poster will be presented at the Royal College of Psychiatrists International Congress in June All Party Group Brian informed the team that he has been asked by Caring Breaks to speak in relation to learning disability on his own personal perspective. The main issues for him are transition, day opportunities, respite and planning for the future. Brian will also speak on the carer s assessment issues. Item Next Meeting Friday 3 February 2017 at 11am, The Mount, 2 Woodstock Link, Belfast, BT6 8DD. END Page 20 of 20