Living in the Community with a Diagnosis of Dementia
|
|
- Lora Scott
- 5 years ago
- Views:
Transcription
1 Living in the Community with a Diagnosis of Dementia Tara A. Cortes PhD,RN,FAAN Executive Director and Professor The Hartford Institute for Geriatric Nursing, NYU College of Nursing 2014 Primary Care Symposium June 9, 2014
2 Alzheimer s Disease (AD) AD is different than other chronic diseases There is no proven way to prevent it or modify its progression It is strongly related to age The rate of new cases doubles in each five year age group after age 65 About 1 of 10 people over age 65 have AD Almost 1 of 2 people over age 85 have AD There is a need for supportive social care as cognitive abilities are lost resulting in caregiver burden There is a financial burden due to high cost of medical care
3 Burden of Alzheimer s Disease Medical costs Medications, doctor visits, hospitalizations Almost all a burden to Medicare Medicaid picks up direct costs for providing long term care in a nursing home or assisted living as people outlive their assets Taxpayers become the payer
4 Burden of AD Unpaid caregivers reduce the direct cost of long term supports Indirect costs Value of services provided by unpaid caregiver replacement costs if those services had to be purchased Caregiver reduces paid time in the workforce Recent estimates of providing care for all patients over 70 is $157-$215 Billion estimated to rise to $1.2- $1.6 Trillion in 2040 (Hurd et al.)
5 Memory and Getting Older Normal Aging As people get older they may forget things and remember them later Forgetting the name of a person or object Not knowing the day of the week Sometimes needing help to change a setting on a TV or phone Sometimes having trouble determining a tip Trouble balancing a checkbook
6 Dementia Dementia affects about 5% of individuals 65 and older Dementia describes the loss of memory and thinking that stops a person from doing their normal activities AD is the most common type of dementia Caused by changes that begin in the part of the brain that controls memory These changes spread to other parts of the brain Dementia can also be caused by vascular changes or other diseases, but AD is the cause of 60-80%
7 Dementia Dementia is common in acute care and post-acute care facilities and their transitions, but under-recognized. Symptoms of dementia can vary greatly, at least 2 core mental functions must be significantly impaired to be considered dementia. Individuals with clinically diagnosed dementia have clear cognitive loss in two or more intellectual domains but almost all individuals with Alzheimer's disease demonstrate short-term memory impairment. Personality changes can become evident in the early stages of dementia. Individuals with dementia may show symptoms of depression at any stage of the disease. Depression is treatable in the latter stages of dementia.
8 Normal Aging and Alzheimer s Disease Typical Age Related Changes Making a bad decision once in awhile Missing a monthly payment Forgetting which day it is and remembering later Sometimes forgetting which word to use Losing things from time to time Alzheimer s Disease Poor judgment and decision making Inability to manage budget Losing track of the date or season Difficulty having conversation Misplacing things and being unable to retrace steps to find them
9 Alzheimer s Disease AD progresses from mild to moderate to severe cognitive decline AD is a chronic disease that can go on for many years. The usual time from diagnosis to death is between 8 and 15 years. There is no cure but there are treatments that slow down the progression of the symptoms.
10 Mild Cognitive Impairment (MCI) A person s memory and thinking changes but they can still do all their normal activities Changes are noticed over several months Changes may include skills like: Inability to balance check book Trouble making change Trouble choosing a tip Searching for common words The person continues normal ADLs such as driving, cooking dressing, shopping
11 Moderate Cognitive Impairment Difficulty with decision making Inability to recall own address or telephone number Confused about where they are or what day it is Unable to select appropriate clothes for season or occasion Still independent in feeding and toileting
12 Severe Cognitive Impairment Person may show personality changes and mood disorders, or delusions May lose awareness of recent experiences and surroundings Distinguish familiar and unfamiliar faces but have trouble remembering the name of a spouse and caretaker. Need help dressing, toileting May wander or become lost May show compulsive behaviors like hand wringing or shredding tissues
13 Late Stage Alzheimer s Disease Individuals no longer respond to environment Cannot carry on conversation speak in single words or phrases Need help with ADLs eating, bathing, toileting May lose ability to smile, sit without support or hold head up Swallowing is impaired Muscles grow rigid
14 Remember It is difficult to place a person with Alzheimer's in a specific stage as stages may overlap. Although usually considered a chronic disease of older adults, about 5-10% of people diagnosed with AD are <65 years of age. Payment for care of this progressive disease can be challenging. People with AD are at risk for abuse and neglect by others and themselves.
15 Concerns for Families and Loved Ones Payment resources Elder abuse Caregiver burden Resources for assistance End of Life planning
16 Payment resources Medicare Does not pay for long term care Pays for office visits, hospital care, short term rehab, home care for 60 days post hospital Pays for hospice Medicaid Pays for long term care in home or nursing home Must met income requirement
17 Elder Abuse People with Alzheimer s Disease are particularly vulnerable abuse and mistreatment Caregivers both family and professionals are most often the abusers of older people. In many cases, stress and frustration may provoke unintentional violent There are different kinds of abuse One sign of abuse may not be indicative, but repetitive signs must be taken seriously Elder Justice Act Part of the Affordable Care Act Provides funds and grants to investigate sysematic abuse and stop it
18 Caregiver Burden Caregivers of persons with Alzheimer s disease and other dementias shoulder a particularly heavy burden of care. Compared with other caregivers, the type of care they provide is more physically and emotionally demanding and more timeconsuming, and it takes a heavier toll on work and family life.
19 Caregiver Burden Family relationships change when Alzheimer s strikes and intense caregiving occurs regardless of living arrangements. Adult children are most often the primary caregiver, even when a spouse is present. Most family caregivers do not live with the person for whom they are caring, but they still provide a great deal of care and support, even when their loved one is in a residential care facility.
20 Caregiver Burden Alzheimer caregiving is about much more than activities of aily living (ADL). Caregivers face special challenges arising from their loved ones cognitive impairment, and even more than other caregivers, they are addressing basic health care needs and struggling to negotiate the care system. They are looking for information and help in carrying out these broader responsibilities.
21 Facts 65% of caregivers provide the most difficult kinds of personal care e.g. bathing, feeding and dealing with incontinence -- tasks that are even harder to do for a person with dementia who may be confused, disoriented, and unable to assist in even these most basic activities of daily living. They spend more hours a week providing that care than do other caregivers. Nearly 1 in 4 provide what the survey defines as constant care committing 40 hours a week or more. They do so for a long time -- 71% for more than a year and 32% for five years or more. Many spend substantial out of pocket expenses Many work reduced hours or leave their jobs to provide care In home care is expensive
22 More Facts 20% to 30% of caregivers report they are prone to depression, grief, fatigue, and physical health problems There is an increased use of alcohol, smoking and other drugs are not uncommon, as are poor health behaviors such as inadequate diet, exercise, and sleep. Additional risks are a suppressed immune system leading to frequent infection and an increased risk of heart disease, diabetes, stroke and premature mortality. Caregivers experience chronic conditions at nearly twice the rate of noncaregivers. Although individuals who take on the caregiving role are generally physically healthier than those who do not, evidence suggests that at least one in ten caregivers report caregiving as the cause of their physical health's deterioration.
23 Reducing Burden There is very little substantial research on reduction of stress in caregivers Health professionals need to educate caregivers on care of older patients Need to know when to call for help The patient and caregiver must be perceived as a part of the healthcare team Participate in health care plan assure them that guidance is available to help in managing patient Abandonment by the professional is most damaging as it makes the caregiver feel powerless
24 Reducing Caregiver Burden The Reducing Disability in Alzheimer s Disease (RDAD) program provides exercise training for people with Alzheimer s disease who live at home and simultaneous training for their family caregivers about how to manage behavioral symptoms. The program is intended to reduce behavioral symptoms and depression and improve the person s physical functioning. The RDAD intervention is 12 sessions over 11 weeks; each session is one hour in length. It could be done in-home or infacility. It is designed to be delivered by professionals (not lay leaders) with experience guiding and supervising exercise activities in older adults. Persons with dementia need to be living with a family caregiver or in a residential facility with caregiver staff that could guide and supervise the RDAD intervention.
25 Other Resources Local support groups Medical Day programs PACE programs Certified home health agencies Medicaid Hospice Assisted living or nursing home Alzheimer s Association hour helpline
26 End of Life Planning More difficult when a patient has dementia Includes a spectrum of decision making Capacity Health Care Proxy POLST
27 Dementia and Capacity to Create an AD If a patient with dementia can state the importance or implication of a choice on their future health state, they usually have the capacity to execute an AD The ability to appreciate consequences is a highly valued standard for determining capacity to execute an AD The capacity needed to name a proxy (e.g. execute a HCP) is less than that needed to execute a LW (Mezey, et al, 2000) Patients with early dementia typically can safely execute a HCP Patients with mild to moderate dementia typically lack capacity to execute an AD However, these patients may be able to make or at least participate in some treatment decisions
28 Determining When a Patient Lacks Capacity Decision making capacity is a clinical determination Competency is a legal determination Criteria as to who can determine capacity varies across states
29 Determining When a Patient Lacks Capacity A patient lacks the capacity to make health care decisions when they cannot: Understand and process information about their diagnosis, prognosis, and treatment options Weigh the relative benefits, burdens and risks (e.g. consequences) of a care or treatment option Apply a set of values to the analysis Arrive at a consistent decision Communicate the decision (Roth et al, 1977).
30 Standards for Proxy Decision Making 1. Voicing what the person said they would or would not want Asking the proxy to make a decision the person said they would make for themselves 2. Making a decision that is in the person s best interest Ask the proxy if the patient made prior statements Ask the proxy to make a decision based on what the patient would want if able to choose 3. Making a decision that a reasonable person would make
31 Health Care Proxy Empowers a patient to name a proxy (surrogate) to make health care decisions if they lack capacity Recognized in all states A proxy can legally interpret the patient s wishes to fit the actual situation Thus, more flexible than a living will Presumes that proxy knows the patient s wishes Not restricted to life sustaining treatment decisions Springing proxy : can make decisions prn Family consent laws Web sources for HCP documents: google health care proxy forms and your state
32 POLST Practitioner Orders for Life Sustaining Treatment A set of orders to give seriously ill or frail older adults more control over their end-of-life care Signed by MD/NP and patient/surrogate New Jersey law requires that medical orders in a POLST be followed and provides immunity from civil or criminal liability to those who comply with it. Complements Advance Directives which appoints a legal healthcare decision maker
33 POLST Document Goals of care Preferences regarding resuscitation Preferences regarding intubation Preferences for artificially administering nutrients Other preferences regarding medical interventions that are unique to that patient
34 Palliative Care and Hospice Palliative Care Empowers a patient to name a proxy (surrogate) to make health care decisions if they lack capacity Recognized in all states A proxy can legally interpret the patient s wishes to fit the actual situation Thus, more flexible than a living will Presumes that proxy knows the patient s wishes Not restricted to life sustaining treatment decisions Springing proxy : can make decisions PRN Family consent laws Web sources for HCP documents: google health care proxy forms and your state Hospice Care Defined benefit under Medicare and most insurers Must have less than 6 months to live Must forgo curative care for illness that patient is admitted to hospice for Pays for all care related to illness including meds, equipment Bereavement care included for family post-death Can occur at home, nursing home, or time-limited stays in hospital
35 PCP Management of Symptoms Advance Care Planning: determine when to begin palliative care Medicare billing allowed for palliative care evaluation and management Determine patient s values related to quality of life Have patient complete an advance directive Initiate symptom management Move to Hospice
36 Policy Issues It is essential that care for people with Dementia and AD be a policy priority Economic burden on our system Emotional, physical and financial burden of caregivers The President has placed AD as a national agenda item HHS is focused on AD with a national plan to have a cure by 2020
37 Public Policy Recommendations Support the development of an essential infrastructure to serve family caregivers with a national accessible support system After grant funding by Administration on Aging ends for successful programs, CMS should continue funding through waiver mechanisms The CLASS Act (Community Living Assistance Services and supports Act) under the ACA should be re-introduced to support the development of a new national long term insurance program to include caregiver support, education and training.
38 There are only four kinds of people in this world. Those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregiving. - Rosalyn Carter
In-Service Education. workbook 3. by Hartman Publishing, Inc. second edition
In-Service Education workbook 3 second edition by Hartman Publishing, Inc. Alzheimer s Disease Dignity Diabetes Restraints and Restraint Alternatives Abuse and Neglect Death and Dying Managing Stress Perf
More information10/17/2017. Causes of Dementia Alzheimer's Disease Vascular Dementia Diffuse Lewy Body Disease Alcoholic Dementia Fronto-Temporal Dementia Others
1 Dementia Dementia comes from the Latin word demens, meaning out of mind. It is the permanent loss of multiple intellectual functions. It is progressive deterioration of mental powers accompanied by changes
More informationPaying for Dementia Care. Mary Ann Forciea MD Clinical Professor of Medicine Division of Geriatric Medicine University of Pennsylvania Health System
Paying for Dementia Care Mary Ann Forciea MD Clinical Professor of Medicine Division of Geriatric Medicine University of Pennsylvania Health System Audience: Possible concerns about dementia care in my
More informationAlzheimer s Disease and Related Disorders: The Public Health Call to Action
Levine Alzheimer s Disease and Related Disorders: The Public Health Call to Action Jed A. Levine, M.A. Executive Vice President Director of Programs and Services Alzheimer s Association, New York City
More informationGERIATRIC SERVICES CAPACITY ASSESSMENT DOMAIN 5 - CAREGIVING
GERIATRIC SERVICES CAPACITY ASSESSMENT DOMAIN 5 - CAREGIVING Table of Contents Introduction... 2 Purpose... 2 Serving Senior Medicare-Medicaid Enrollees... 2 How to Use This Tool... 2 5 Caregiving... 3
More informationResearch & Policy Brief
USM Muskie School of Public Service Maine DHHS Office of Elder Services Research & Policy Brief Caring for People with Alzheimer s Disease or Dementia in Maine A Matter of Public Health Alzheimer s disease
More informationMichael A. Lobatz MD The Neurology Center Scripps Rehabilitation Center
Michael A. Lobatz MD The Neurology Center Scripps Rehabilitation Center Dementia an acquired syndrome consisting of a decline in memory and other cognitive functions Alzheimer s Disease Fronto temporal
More informationDementia Facts and Resources Dementia Warning Signs Getting a Diagnosis Dementia Communication Tips Dementia Risk Reduction.
Dementia Facts and Resources Dementia Warning Signs Getting a Diagnosis Dementia Communication Tips Dementia Risk Reduction Intermission Dementia Stages and Behaviors Caregiving and Self-Care Overview
More informationFor the Lifespan: The Caregiver Guide Module 2 Dementia and Memory Loss
For the Lifespan: The Caregiver Guide Module 2 Dementia and Memory Loss After completing this module, participants will be able to: Define dementia and memory loss. Recognize medical and social components
More informationCaring for a Family Member with Alzheimer s Disease
Caring for a Family Member with Alzheimer s Disease Barbara Moscowitz, MSW,LICSW Geriatric Medicine Unit, MGH September 3, 2015 Maxwell & Eleanor Blum Patient and Family Learning Center As a parent begins
More informationAlzheimer s disease affects patients and their caregivers. experience employment complications,
Alzheimer s Disease and Dementia A growing challenge The majority of the elderly population with Alzheimer s disease and related dementia are in fair to poor physical health, and experience limitations
More informationGetting Help for Patients with Dementia and their Caregivers. Erica Salamida Associate Director of Programs and Services Alzheimer s Association-NENY
Getting Help for Patients with Dementia and their Caregivers Erica Salamida Associate Director of Programs and Services Alzheimer s Association-NENY In this session you will learn about: Symptoms of dementia,
More informationSession outline. Introduction to dementia Assessment of dementia Management of dementia Follow-up Review
Dementia 1 Session outline Introduction to dementia Assessment of dementia Management of dementia Follow-up Review 2 Activity 1: Person s story Present a person s story of what it feels like to live with
More informationThe Role of POLST in the Care of People with Dementia
The Role of POLST in the Care of People with Dementia Kenneth Brummel-Smith, MD Charlotte Edwards Maguire Professor of Geriatrics Florida State University College of Medicine Objectives Describe the process
More informationMini Plenary: Direct Care Hands-On Workforce Leisa Easom, Ph.D., R.N.
Mini Plenary: Direct Care Hands-On Workforce Leisa Easom, Ph.D., R.N. Executive Director, Rosalynn Carter Institute for Caregiving Direct Care Hands-On Workforce 31 st Annual Rosalynn Carter Symposium
More information2013 Purple Ribbon Task Force Surveys on Alzheimer s Disease and Related Dementias
RICK SCOTT GOVERNOR CHARLES T. CORLEY SECRETARY 2013 Purple Ribbon Task Force Surveys on Alzheimer s Disease and Related Dementias elderaffairs.state.fl.us Bureau of Planning & Evaluation, May 2013 Table
More informationThere For You. Your Compassionate Guide. World-Class Hospice Care Since 1979
There For You Your Compassionate Guide World-Class Hospice Care Since 1979 What Is Hospice? Hospice is a type of care designed to provide support during an advanced illness. Hospice care focuses on comfort
More informationDementia. Information for service users and carers. RDaSH leading the way with care
Dementia Information for service users and carers RDaSH leading the way with care What is Dementia is a term that is used to describe the symptoms that occur when the brain is affected by specific diseases
More information10 steps to planning for Alzheimer s disease & other dementias A guide for family caregivers
10 steps to planning for Alzheimer s disease & other dementias A guide for family caregivers Caring for a person with memory loss or dementia can be challenging. The following ten steps can help caregivers
More informationEvaluations. Dementia Update: A New National Plan for Alzheimer s Disease Research, Care and Services. Disclosure Statements.
Dementia Update: A New National Plan for Alzheimer s Disease Research, Care and Services June 21, 2012 Featured Speaker David Hoffman M.Ed. C.C.E, NYS DOH Office of Health Insurance Programs Clinical Associate
More informationOur rapidly aging population means that more and more people will be diagnosed with Alzheimer s and other dementias in the next 20 years.
Only 1% of people aged 65 years old have Alzheimer s. 10% of people aged 75 years old have Alzheimer s. 20% of people aged 85 years old have Alzheimer s. Our rapidly aging population means that more and
More informationhomeinstead.com Each Home Instead Senior Care franchise office is independently owned and operated Home Instead, Inc.
Each Home Instead Senior Care franchise office is independently owned and operated. 2010 Home Instead, Inc. homeinstead.com Many of us may joke about having old timers disease, but when cognitive impairment
More informationCommunication with Cognitively Impaired Clients For CNAs
Communication with Cognitively Impaired Clients For CNAs This course has been awarded one (1.0) contact hour. This course expires on August 31, 2017. Copyright 2005 by RN.com. All Rights Reserved. Reproduction
More informationPALLIATIVE CARE IN NEW YORK STATE
Collaborative for Palliative Care In collaboration with its partners End of Life Choices New York Finger Lakes Geriatric Education Center at the University of Rochester COLLABORATIVE FOR PALLIATIVE CARE
More informationUnderstanding Alzheimer s Disease What you need to know
Understanding Alzheimer s Disease What you need to know From the National Institute on Aging For copies of this booklet, contact: Alzheimer s Disease Education and Referral Center P.O. Box 8250 Silver
More informationForgetfulness: Knowing When to Ask for Help
National Institute on Aging AgePage Forgetfulness: Knowing When to Ask for Help Maria has been a teacher for 35 years. Teaching fills her life and gives her a sense of accomplishment, but recently she
More informationTYPES & STAGES OF DEMENTIA AND WHAT IT MEANS FOR YOU. Dr John Mark Geiss Geiss MED, Senior Care Physicians June 28, 2017 Sponsored: ActivCare Living
TYPES & STAGES OF DEMENTIA AND WHAT IT MEANS FOR YOU Dr John Mark Geiss Geiss MED, Senior Care Physicians June 28, 2017 Sponsored: ActivCare Living AN OVERVIEW OF ALZHEIMER S AND OTHER RELATED DEMENTIAS
More informationASSOCIATION ALZHEIMER MAURITIUS WIN EVENT 26 TH SEPTEMBER 2013 DEMENTIA A JOURNEY OF CARING DR AMEENAH SOREFAN
ASSOCIATION ALZHEIMER MAURITIUS WIN EVENT 26 TH SEPTEMBER 2013 DEMENTIA A JOURNEY OF CARING DR AMEENAH SOREFAN ALZHEIMER MONTH 21 September International Day for Alzheimer s Disease Launch of World Report
More informationThe University of Iowa College of Nursing Alzheimer's Family Involvement in Care Study. Caregiver Stress Inventory (CSI) (4-9) (10-13)
1 The University of Iowa College of Nursing Alzheimer's Family Involvement in Care Study Caregiver Stress Inventory (CSI) ID# Date: (4-9) (10-13) DIRECTIONS: Each of the statements in this questionnaire
More information10 WARNING SIGNS OF ALZHEIMER S DISEASE EARLY DETECTION MATTERS
10 WARNING SIGNS OF ALZHEIMER S DISEASE EARLY DETECTION MATTERS UNDERSTANDING DEMENTIA Your memory often changes as you grow older. Some people recognize changes in themselves before anyone else notices.
More informationThe Need to Address Alzheimer s Disease WOMEN IN GOVERNMENT CARROLL RODRIGUEZ ALZHEIMER S ASSOCIATION ST. LOUIS CHAPTER
The Need to Address Alzheimer s Disease WOMEN IN GOVERNMENT CARROLL RODRIGUEZ ALZHEIMER S ASSOCIATION ST. LOUIS CHAPTER PLAY VIDEO Alzheimer s Epidemic Over 5 million Americans are living with Alzheimer
More informationObjectives. 1) Define Dementia and it s symptoms. 2) Review the diagnostic process
Objectives 1) Define Dementia and it s symptoms 2) Review the diagnostic process 3) Learn about support services for persons with dementia and their families 2 The impact of Alzheimer s disease Ron Petersen,
More informationDepression: More than just the blues
Depression: More than just the blues August 2011 Knowing When to Get Help Is it depression? How do you know if you re depressed? That s a good question! Depression can be a byproduct of stress and anxiety.
More informationYour aging brain. Contact your local chapter to learn more. Find a chapter near you at or visit alz.org/findus.
Your aging brain. Being told that additional tests are needed because your inability to remember things or problems with talking or thinking can trigger fear, denial and other worries. You are not alone.
More informationInformation Session. What is Dementia? People with dementia need to be understood and supported in their communities.
Information Session People with dementia need to be understood and supported in their communities. You can help by becoming a Dementia Friend. Visit www.actonalz.org/dementia-friends to learn more! Dementia
More informationWhat You Need to Know When Your Loved One is Diagnosed with Alzheimer s or Dementia
What You Need to Know When Your Loved One is Diagnosed with Alzheimer s or Dementia Dementia is a general term referring to a mental decline serious enough to get in the way of everyday tasks. Whether
More informationWEBINAR SERIES: AGING IN INDIVIDUALS WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
WEBINAR SERIES: AGING IN INDIVIDUALS WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 1 CMS Medicare-Medicaid Coordination Office (MMCO) Established by Section 2602 of the Affordable Care Act Purpose:
More informationUnderstanding Dementia &
Understanding Dementia & Care Options for Those Suffering with the Disease Paige Landry BSN Hospice Care Consultant SouthernCare New Beacon Hospice Objectives Understand Dementia Understand Common Problems
More informationALZHEIMER S DISEASE, DEMENTIA & DEPRESSION
ALZHEIMER S DISEASE, DEMENTIA & DEPRESSION Daily Activities/Tasks As Alzheimer's disease and dementia progresses, activities like dressing, bathing, eating, and toileting may become harder to manage. Each
More informationDepartment of Geriatric Medicine
Department of Geriatric Medicine Pre-Visit Questionnaire for Dementia Evaluation Name: MR#: Imprint Area This questionnaire is to be filled out by someone who knows you well. Name of Person completing
More informationSenior Moments or Something More? Copyright James L. West Alzheimer s Center, 2013 All Rights Reserved
Senior Moments or Something More? Copyright James L. West Alzheimer s Center, 2013 All Rights Reserved Defining Dementia Dementia is a group of symptoms affecting intellectual and social abilities severely
More informationWhat If I Had Dementia?
Health Directive for Dementia www.dementia-directive.org What If I Had Dementia? Planning for the future Alzheimer s disease is one of the most common problems people face in their 70 s and 80 s. One of
More informationRecognizing Signs and Symptoms of Alzheimer's Disease in Earlier Stages Can Lead to Diagnosis
A joint publication of the Illinois Health Care Association and CE Solutions November 2015 Recognizing Signs and Symptoms of Alzheimer's Disease in Earlier Stages Can Lead to Diagnosis Early diagnosis
More informationUnderstanding the Progression of Alzheimer s and Related Dementias And Planning for Future Changes
Town Hall Forum Making a Plan: The Smart Approach to Alzheimer s Care Needs May 25, 2017 Understanding the Progression of Alzheimer s and Related Dementias And Planning for Future Changes Daniel D. Sewell,
More informationDementia. Memory Evaluation Center Neurology
Dementia Memory Evaluation Center Neurology Topics Overview of dementia Stages Medications Advanced planning What is Dementia? Dementia = significant global decline in cognitive function not due to medicine
More informationLegislation POLST. Palliative and Hospice Care: End of Life Decisions. Palliative and Hospice Care End of Life Decisions John F. Bertagnolli, Jr, DO
Palliative and Hospice Care End of Life Decisions John F. Bertagnolli, Jr, DO Legislation On 12/21/11 Gov. Christie signed legislation that enables patients to indicate their preferences regarding life
More informationDementia in Independent Senior Housing: Concerns, Barriers and Solutions
Dementia in Independent Senior Housing: Concerns, Barriers and Solutions LeadingAge NY April 13, 2016 Kelly Papa, MSN, RN Masonicare Corporate Director of Learning The Big Question How can we create systems
More informationT1: RESOURCES TO ADDRESS THE NEEDS OF PERSONS WITH DEMENTIA AND THEIR CAREGIVERS 2014 GOVERNOR S CONFERENCE ON AGING AND DISABILITY
T1: RESOURCES TO ADDRESS THE NEEDS OF PERSONS WITH DEMENTIA AND THEIR CAREGIVERS 2014 GOVERNOR S CONFERENCE ON AGING AND DISABILITY Melanie Chavin, MNA, MS Alzheimer s Association, Greater Illinois Chapter
More informationTestimony of Robert Egge, Vice President of Public Policy Alzheimer s Association. December 8, 2010
U.S. Senate Special Committee on Aging Until There s A Cure: How to Help Alzheimer s Patients and Families NOW Testimony of Robert Egge, Vice President of Public Policy Alzheimer s Association December
More informationEvaluations. Featured Speakers. Thank You to Our Sponsors: 9/15/2015. Conflict of Interest & Disclosure Statements
Evaluations Nursing Contact Hours, CME and CHES credits are available. Please visit www.phlive.org to fill out your evaluation and complete the post-test. Conflict of Interest & Disclosure Statements The
More informationSeniors Helping Seniors September 7 & 12, 2016 Amy Abrams, MSW/MPH Education & Outreach Manager Alzheimer s San Diego
Dementia Skills for In-Home Care Providers Seniors Helping Seniors September 7 & 12, 2016 Amy Abrams, MSW/MPH Education & Outreach Manager Alzheimer s San Diego Objectives Familiarity with the most common
More informationDr. Adeniyi Mofoluwake and Stacy Kramer
Dr. Adeniyi Mofoluwake and Stacy Kramer Definition of Alzheimer s Disease Alzheimer's disease is a neurological disorder in which insidious onset of the death of brain cells causes memory loss and cognitive
More informationEnd of Life with Dementia Sue Quist RN, CHPN
End of Life with Dementia Sue Quist RN, CHPN Objectives: Describe the Medicare hospice benefit and services. Discuss the Medicare admission criteria for hospice patients with dementia due to Alzheimer
More informationdementia work training
dementia friendly @ work training Participant s Guide In our communities, nearly 60 percent of people with Alzheimer s disease, a form of dementia, live in their own homes and need support from families
More informationEND-OF-LIFE DECISIONS HONORING THE WISHES OF A PERSON WITH ALZHEIMER S DISEASE
END-OF-LIFE DECISIONS HONORING THE WISHES OF A PERSON WITH ALZHEIMER S DISEASE PREPARING FOR THE END OF LIFE When a person with late-stage Alzheimer s a degenerative brain disease nears the end of life
More informationAlzheimer's Disease and Other Dementias
Washington State Plan to Address Alzheimer's Disease and Other Dementias Executive Summary January 1, 2016 Preparing Washington for the Impacts of Alzheimer's Disease and Other Dementias GUIDING PRINCIPLES
More informationDementia Carer s factsheet
Dementia Carer s factsheet Who is this factsheet for? This factsheet is for people caring for someone who may be experiencing memory problems or who has a diagnosis of dementia. Contents Page What is dementia?...
More informationMinistry of Health and Long-Term Care. Palliative Care. Follow-Up on VFM Section 3.08, 2014 Annual Report RECOMMENDATION STATUS OVERVIEW
Chapter 1 Section 1.08 Ministry of Health and Long-Term Care Palliative Care Follow-Up on VFM Section 3.08, 2014 Annual Report RECOMMENDATION STATUS OVERVIEW # of Status of Actions Recommended Actions
More information2018 Candidate Guide. Leading in the fight to end Alzheimer's
2018 Candidate Guide Leading in the fight to end Alzheimer's Table of Contents Candidate Letter...2 2018 Alzheimer's Disease Facts and Figures...3 Federal Policies to Lead on Alzheimer's...4 State Policies
More informationSECTION 1: as each other, or as me. THE BRAIN AND DEMENTIA. C. Boden *
I read all the available books by other [people with] Alzheimer s disease but they never had quite the same problems as each other, or as me. I t s not like other diseases, where there is a standard set
More informationSeptemberNews April 2018 Newsletter. April 12 David Winchester April 19 Russ Barlow April 26 The Outsiders
SeptemberNews 2015 April 2018 Newsletter Happy Hour every Thursday starting at 3:30pm!! Bring your friends and family! Community Coordinators April 12 David Winchester April 19 Russ Barlow April 26 The
More informationOverview. Case #1 4/20/2012. Neuropsychological assessment of older adults: what, when and why?
Neuropsychological assessment of older adults: what, when and why? Benjamin Mast, Ph.D. Associate Professor & Vice Chair, Psychological & Brain Sciences Associate Clinical Professor, Family & Geriatric
More informationJacksonville Center for Clinical Research Michael Koren, MD, Erin Doty, MD, Carolyn Tran, MD and Steven Toenjes, MD
Jacksonville Center for Clinical Research Michael Koren, MD, Erin Doty, MD, Carolyn Tran, MD and Steven Toenjes, MD Is Memory Loss Normal With Aging? There are normal age-related changes with cognitive
More informationALZHEIMER S ASSOCIATION
ALZHEIMER S ASSOCIATION Our mission: To eliminate Alzheimer s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through
More informationKnow the 10 Signs: Early Detection Matters
Know the 10 Signs: Early Detection Matters 1 Importance of Early Detection If we could have had a correct diagnosis even two years earlier, it would have given us more time to plan, to do the things that
More informationDementia in Maine: Characteristics, Care and Cost Across Settings. 2013
Maine State Library Maine State Documents Aging And Disability Services Documents Health & Human Services 12-2013 Dementia in Maine: Characteristics, Care and Cost Across Settings. 2013 Maine Office of
More informationChapter 6. Hospice: A Team Approach to Care
Chapter 6 Hospice: A Team Approach to Care Chapter 6: Hospice: A Team Approach to Care Comfort, Respect and Dignity in Dying Hospice care provides patients and family members with hope, comfort, respect,
More informationHome Sleep Test (HST) Instructions
Home Sleep Test (HST) Instructions 1. Your physician has ordered an unattended home sleep test (HST) to diagnose or rule out sleep apnea. This test cannot diagnose any other sleep disorders. 2. This device
More informationTransitions Guidelines: Chronic Illness Management. Revised 2016
Transitions Guidelines: Chronic Illness Management Revised 2016 1 Table of Contents Introduction Transitions Program Pillars General Principles Regarding Admission Cancer Cirrhosis Congestive Heart Failure
More informationUnderstanding Hospice, Palliative Care and of-life Issues
Understanding Hospice, Palliative Care and End-of of-life Issues Huntington's Disease Society of America June 2009 Roseanne Berry, MS, RN RBC Consulting, LLC roseanne@rbcconsultingllc.com The information
More informationPLEASE FILL OUT & RETURN
PLEASE FILL OUT & RETURN MEDICATION THERAPY MANAGEMENT (MTM) PROGRAM CONSENT and AUTHORIZATION for RELEASE of INFORMATION I agree to participate in the Medication Therapy Management (MTM) Program. I will
More informationUnderstanding late stage dementia Understanding dementia
Understanding late stage dementia About this factsheet This factsheet is for relatives of people diagnosed with dementia. It provides information about what to expect as dementia progresses to late stage.
More informationMultisectoral action for a life course approach to healthy ageing
SIXTY-SEVENTH WORLD HEALTH ASSEMBLY Provisional agenda item 14.4 21 March 2014 Multisectoral action for a life course approach to healthy ageing 1. The attached document EB134/19 was considered and noted
More informationEvaluating Functional Status in Hospitalized Geriatric Patients. UCLA-Santa Monica Geriatric Medicine Didactic Lecture Series
Evaluating Functional Status in Hospitalized Geriatric Patients UCLA-Santa Monica Geriatric Medicine Didactic Lecture Series Case 88 y.o. woman was admitted for a fall onto her hip. She is having trouble
More informationQuality of Life (F309 End of Life) Surveyor Train the Trainer: Interpretive Guidance Investigative Protocol
483.25 Quality of Life (F309 End of Life) Surveyor Train the Trainer: Interpretive Guidance Investigative Protocol 2 483.25 End of Life Each resident must receive and the facility must provide the necessary
More informationIs It Forgetfulness or Dementia?
Is It Forgetfulness or Dementia? Theia Senior Solutions September 2017 281 Witherspoon Street Princeton, NJ 08540 www.theiaseniorsolutions.com 1-844-843-4200 Understanding cognitive decline as a Family
More informationKnow the 10 Signs: Early Detection Matters
Importance of Early Detection Know the 10 Signs: Early Detection Matters If we could have had a correct diagnosis even two years earlier, it would have given us more time to plan, to do the things that
More informationKnow the 10 Signs: Early Detection Matters
Know the 10 Signs: Early Detection Matters 1 Importance of Early Detection If we could have had a correct diagnosis even two years earlier, it would have given us more time to plan, to do the things that
More informationCareFirst Hospice. Health care for the end of life. CareFirst
Hospice Health care for the end of life 1 What is Hospice? Hospice is a philosophy- When a person in end stages of an illness can no longer receive, or wants to receive, life sustaining treatment, he or
More informationThe progression of dementia
PBO 930022142 NPO 049-191 The progression of dementia Although everyone experiences dementia in their own individual way, it can be helpful to think of the progression of dementia as a series of stages.
More informationMemory & Aging Clinic Questionnaire
Memory & Aging Clinic Questionnaire The answers you give to the questions below will assist us with our evaluation. Each section is equally important so please be sure to complete the entire questionnaire.
More informationAging may affect memory by changing the way the brain stores information and by making it harder to recall stored information.
Return to Web version Dementia Overview How does the brain store information? Information is stored in different parts of your memory. Information stored in recent memory may include what you ate for breakfast
More informationCARING FOR THOSE YOU LOVE
CARING FOR THOSE YOU LOVE PRESENTED BY: BILL CRAWFORD, Jr. Dementia Care Specialist COMFORT KEEPERS 8205 CAMP BOWIE WEST SUITE 216 FORT WORTH, TEXAS 76116 P: 817-560-8085 Bill Crawford, Jr., DCS, Director
More informationQuality of Life (F309 End of Life) Interpretive Guidance Investigative Protocol
483.25 Quality of Life (F309 End of Life) Interpretive Guidance Investigative Protocol 2 483.25 End of Life Each resident must receive and the facility must provide the necessary care and services to attain
More informationHospice & Palliative Care
Patient-centered Medical Neighborhood Hospice & Palliative Care Our Hospice of South Central Indiana 2626 East 17th Street Columbus, IN 47201 812-314-8089 Schneck Medical Center Hospice & Palliative Care
More information3 The definition of elder physical abuse is any action by a caregiver that is meant to cause harm or fear in another person. Physical abuse includes pain or injury, hitting, pushing, pinching, and
More informationAppendix C CHANGING THE TRAJECTORY:
Appendix C CHANGING THE TRAJECTORY: Impact of a Hypothetical Treatment That Slows the Progression of Alzheimer s In addition to the delayed onset scenario discussed in the report, another potential scenario
More informationBill 152. Poverty Reduction for All Ontarians: Focus on Dementia and Seniors Issues
Poverty Reduction for All Ontarians: Focus on Dementia and Seniors Issues April 2009 Submitted by Alzheimer Society of Ontario To the Standing Committee on Social Policy 1 Dementia in Ontario Dementia
More informationHospice and Palliative Care An Essential Component of the Aging Services Network
Hospice and Palliative Care An Essential Component of the Aging Services Network Howard Tuch, MD, MS American Academy of Hospice and Palliative Medicine Physician Advocate, American Academy of Hospice
More informationNational Stroke Association s Guide to Choosing Stroke. Rehabilitation Services
National Stroke Association s Guide to Choosing Stroke Rehabilitation Services Rehabilitation, often referred to as rehab, is an important part of stroke recovery. Through rehab, you: Re-learn basic skills
More informationFounded in 1978 as Hospice of the North Shore. Know Your Choices. A Guide for People with Serious Illness
Founded in 1978 as Hospice of the North Shore Know Your Choices A Guide for People with Serious Illness Advance Care Planning: Expressing Your Wishes In Massachusetts, all patients with serious advancing
More informationUCLA Alzheimer s and Dementia Care Program. 200 UCLA Medical Plaza, Suite 365A Los Angeles, CA
UNIVERSITY OF CALIFORNIA, LOS ANGELES UCLA BERKELEY DAVIS IRVINE LOS ANGELES MERCED RIVERSIDE SAN DIEGO SAN FRANCISCO SANTA BARBARA SANTA CRUZ Alzheimer s and Dementia Care Program 200 UCLA Medical Plaza,
More informationAlzheimer Disease and Related Dementias
Alzheimer Disease and Related Dementias Defining Generic Key Terms and Concepts Mild cognitive impairment: (MCI) is a state of progressive memory loss after the age of 50 that is beyond what would be expected
More informationLinda Willis Anne Carpenter Dementia Support Manager
Linda Willis Anne Carpenter Dementia Support Manager Dementia 2014 The Hidden voice of Loneliness Dementia Awareness Week 18-25 May 2014 Two thirds of people with dementia are women One in three people
More informationBrought to you by the Massachusetts Medical Society and its Committee on Geriatric Medicine
Brought to you by the Massachusetts Medical Society and its Committee on Geriatric Medicine What is palliative care? Care focused on helping support and guide patients who have life limiting and serious
More informationWhat is dementia? What is dementia?
What is dementia? What is dementia? What is dementia? Dementia is an umbrella term for a range of progressive conditions that affect the brain. It has been identified that there are over 200 subtypes of
More informationNeuroPI Case Study: Palliative Care Counseling and Advance Care Planning
Case: An 86 year-old man presents to your office after recently being diagnosed as having mild dementia due to Alzheimer s disease, accompanied by his son who now runs the family business. At baseline
More informationDEMENTIA Dementia is NOT a normal part of aging Symptoms of dementia can be caused by different diseases Some symptoms of dementia may include:
DEMENTIA Dementia is NOT a normal part of aging Symptoms of dementia can be caused by different diseases Some symptoms of dementia may include: 1. Memory loss The individual may repeat questions or statements,
More informationfor the grieving process How to cope as your loved one nears the end stages of IPF
Preparing yourself for the grieving process How to cope as your loved one nears the end stages of IPF 3 As your loved one nears the end stages of IPF, it s important that you be there for him or her as
More information