Making dementia a European priority

Transcription

1 Making dementia a European priority Glasgow 1 June 2015 Jean Georges, Executive Director

2 Alzheimer Europe 36 associations in 31 countries 2

3 Paris Declaration Adopted by Annual General Meeting in Paris (May 2006) Dementia is a major public health challenge Need for national action plans and European programme Pan-European research into causes, prevention and treatment of AD Increased funding for AD research 3

4 National achievements 4

5 EU achievements 2008: French Presidency Conference on Alzheimer s disease Since 2008: European Alzheimer s Alliance (over 100 supporting MEPs) 2008: European Parliament Written Declaration signed by 465 MEPs (~60%) 2009: European Commission Alzheimer s Initiative 2009-today: European research collaboration: FP7, ALCOVE, IMI, EIP-AHA, JPND, Horizon2020, AAL 5

6 FP 7 ( ) Brain research identified as FP7 priority Over 300 projects funded EUR 555 million funding on dementia and EUR 327 on Alzheimer s disease 2013: Human Brain Project (10 year flagship initiative of ~EUR 100 million annually) Continued priority for Horizon2020 6

7 Innovative Medicines Initiative PharmaCog Name Aim Duration Funding EMIF (European Medical Information Framework) AETIONOMY EPAD (European prevention of Alzheimer s dementia) Better and more predictive tests for the safety and efficacy of new drugs Linking data from existing databases (health records, biobanks, research cohorts) New approach to disease classification PoC adaptive trial on AD prevention EUR 30.7 million EUR 56.3 million EUR 17.8 million EUR 64 million 7

8 IMI 2 Priority of Call 5 Inflammation and Alzheimer s disease (AD): modulating microglia function Understanding the role of amyloid biomarkers in the current and future diagnosis and management (from pre-dementia to dementia) Evolving models of patient engagement and access for earlier identification of Alzheimer s disease Apolipoprotein E (ApoE) biology to validate Alzheimer s disease targets 8

9 JPND (Joint programme ND research) Common vision, strategic research agenda and management structure for joint programming of research in neurodegenerative diseases 28 participating countries (including Albania, Canada, Israel, Norway, Switzerland, Turkey) Joint European priorities and evaluation but national funding 15 ongoing projects ( ) for EUR 68.5 million 9

10 Other EU programmes European Innovation Partnership on Active and healthy Ageing Prevention of frailty and cognitive decline Age-friendly environments E-Health and Ambient Assisted Living programme Assistive technologies (safety and autonomy) Cognitive training 10

11 ALCOVE Joint Action on Dementia ALzheimer COoperative Valuation in Europe Collaboration of 30 partners from 19 Member States: Models for timely diagnosis Prevalence of dementia in Europe (6.4 million cases in 2011) Support systems for behavioural and psychological symptoms in dementia Toolbox for reduction of anti-psychotics in dementia Advance directives and competence assessment 11

12 Alzheimer Europe European Dementia Ethics Network Assistive technologies, dementia research, perceptions and portrayal of people with dementia Comparative reports Dementia strategies, research funding, driving, carer support, legal issues (capacity, proxy decision making, consent) European Working Group of People with Dementia Involvement in IMI and FP 7 projects (dissemination and ethics) 12

13 Glasgow Declaration - Open for signature! Practice2/Glasgow-Declaration

14 The way forward Development of European dementia strategy/action plan Better coordination of European research initiatives and programmes in the field of dementia Appointment of EU Dementia Coordinator High level group of government representatives Full involvement in global action on dementia (WHO, OECD, G20, G7) 14

15 The way forward II Human rights approach for EU and global action on dementia Full involvement of people with dementia, carers and Alzheimer associations Holistic approach to dementia research Cure tomorrow, care today -> exchange of good practices 15

16 For more information 16