All party parliamentary group on dementia: Five dementia priorities for the next Government

Size: px
Start display at page:

Download "All party parliamentary group on dementia: Five dementia priorities for the next Government"

Transcription

1 All party parliamentary group on dementia: Five dementia priorities for the next Government

2

3 FOREWORD The UK has much to be proud of in the progress made on dementia over the past decade. Both the previous Labour administration and current coalition government have made significant strides towards improved awareness and understanding of dementia and a better quality of life for people with the illness and their families. But the hard truth is that life is still very difficult for people with dementia and their carers. The All-Party Parliamentary Group (APPG) on Dementia is at the forefront of policy debates on dementia. We have influenced the government in a number of areas, such as the use of antipsychotic drugs, which fell dramatically after our inquiry, Always a last resort. We also influenced the content of England s first National Dementia Strategy. We ensure our work is rooted in what people with dementia want and need, and regularly hold meetings in parliament to give people with dementia and their carers the chance to hear from and question leaders in health in the UK. We are calling on the next government, of whatever colour, to maintain the momentum that has been generated over the last five years. Last year saw the end of the National Dementia Strategy for England (NDSE) and the Prime Minister s Challenge on Dementia will finish in March. There is no doubt that a new, more ambitious national dementia plan will be required, with the highest level of leadership, to take forward the change people with dementia need and deserve. The five areas identified here should be included in any new national plan. Whilst not exhaustive, they are achievable, practical suggestions that, if implemented, will considerably improve the lives of people living with dementia now and provide hope for those affected in the future. Baroness Greengross OBE Tracey Crouch MP Rt Hon Hazel Blears MP Co-chairs of the APPG on Dementia

4 1 Research Increase investment in research into and the search for a cure Finding a cure for dementia is of upmost importance. We hope that one day there will be a world without dementia. However, dementia research has suffered from a chronic lack of investment for far too long. A sustained increase in dementia research is needed to search for a cure and find a disease-modifying treatment by 2025, in line with the G7 commitments. By the time of the general election there will be 850,000 people living with dementia in the UK. 1 They are unlikely to benefit from current biomedical research, so it is vital that we see increased investment in dementia care research to improve their quality of life. Research into dementia care will always be important it is not just a stopgap until we find a cure. We call on the government to increase investment in dementia research from 66m in 2015 to at least 132m by the end of the next parliament. With the number of people living with dementia set to rise to almost one million by 2020, it is vital that this includes a proportional increase in the amount invested in care research. Increased public funding will in turn generate additional private investment evidence shows that for every 1 of government investment in research, the private sector invests around 5. Remove regulatory barriers to the development of new drugs From our conversations with industry, we know that a number of regulatory barriers make breakthroughs in dementia research harder to achieve. The government must create the best environment possible for research to thrive and play its part in facilitating conversations to enhance the international regulatory regime and speed up the process. We call for a commitment from government to work with regulatory authorities in the UK and other countries to agree new avenues that will encourage investment in drug discovery. By the time of the General Election in 2015 there will be 850,000 people living with dementia 1. Alzheimer s Society, 2014

5 2 Diagnosis and post-diagnosis support Raise the ambition on dementia diagnosis Despite a significant increase in dementia diagnosis rates, too many people with the illness still do not receive a formal diagnosis, denying them access to potential treatment and support to help them live well with the condition. At the start of this parliament, only 33% of people with dementia were getting a formal diagnosis. In England, the NHS aims to increase this to 66% by March 2015, although whether this target will be met remains to be seen. We call on the government to go beyond the 66% diagnosis ambition and look to ensure that, by 2017, 75% of people living with dementia have a diagnosis. This will give thousands more people the certainty of a diagnosis, allowing them to plan for the future and access potential treatment, care and support. Make post-diagnosis support a priority While it is crucial to ensure more people with dementia get a diagnosis, it is also vital to ensure they have access to the follow-up care and support services they need. With the right information and support, people can live well with dementia. However, throughout our in-depth inquiries and at the many events we hold in parliament, we regularly hear from people with dementia and their carers about the lack of support they received after their diagnosis. We call on the government to introduce a minimum standard of post-diagnosis support services for people with dementia. This would mean everyone having access to a support worker, such as a care co-ordinator or dementia adviser, after their diagnosis. The support worker s role would be to signpost people with dementia and carers to local services, provide emotional support to help them come to terms with the diagnosis and help them to plan for the future.. Dementia costs the UK economy 26.3bn each year

6 3 The dementia workforce Increase the status and pay of staff working in dementia-related roles across the spectrum A key change is needed in the status of people working across the field of dementia. There are huge numbers of talented individuals doing outstanding work across the sector, from care workers providing excellent personalised care to researchers working at the cutting edge of science or Admiral Nurses helping families at the end of a person s dementia journey. Looking after our older people should be seen as the highest calling, with those dedicating their lives to the search for a cure for dementia held in similar high regard. In our report, The National Dementia Strategy: Change, progress and priorities, published last year we called for a major culture shift to improve the status and morale of care work. We want to see this replicated across the sector in order to attract the very best people to dementia-related roles and give those working to improve the lives of people with dementia, whatever their profession, the recognition and reward they deserve. We call on the government for sustained investment in the recruitment, education and training of the dementia workforce to ensure the very best individuals are caring for our vulnerable older people. This should mean everyone working in the sector being paid at least the living wage.. 4 Carers Introduce a carers test for government policies Dementia doesn t just affect the person with the illness. It has a huge impact on their family members too in particular those who take on a caring role. Research from Alzheimer s Society shows that dementia costs the UK economy 26.3bn each year. 2 People with dementia, their families and carers pick up a staggering 17bn of these costs. They are regularly forced to dip into their savings to pay for day-to-day care costs, and often to cover the cost of a family member giving up work in order to provide unpaid care. For too long, carers of people with dementia have been the forgotten heroes, looking after their loved ones through challenging circumstances, often with little or no support. Without them, our health and social care system simply wouldn t be able to cope. The Care Act, which covers England, passed in this parliament enshrines in law the right of every carer to a carer s assessment. This is a good step forward and we commend the government for this piece of legislation. However, the needs of dementia carers are specific and unique, and many carers remain unsupported. For this to change, an in-depth understanding of carers needs must be integral to the development of policies that are designed to improve the lives of people with dementia. We call for the introduction of a carers test for all dementia-related Department of Health policies. Simple questions should be asked to ensure that the needs of carers are always considered when such polices are drafted. In addition, channels should be set up to enable discussions between policy makers and carers, so that carers can inform dementia policy at the drafting stage Alzheimer s Society, 2014

7 5 Dementia-friendly Communities Every public sector organisation to commit to becoming dementia friendly The scale of the dementia challenge calls for a response not just from policy makers, but from society as a whole. We know from talking to people with dementia and their carers that it is possible for those with dementia to play an active part in their local community. However, far too many people living with the illness do not currently do so. Research shows that nearly 50% of people diagnosed with dementia only go out to do things in their local area once a week or less. 3 Things are moving in the right direction. During this parliament, over 70 communities across the UK are committed to becoming dementia friendly. Alongside this, the Dementia Friends programme run by Alzheimer s Society aims to recruit one million dementia friends by This will mean a million more people will have a greater understanding of dementia and the small things they can do to make a difference to a person s life. The UK Parliament has also committed to becoming the first dementia friendly Parliament in the world. The initiative aims to increase awareness and understanding of dementia among MPs, Peers, their staff and staff across the parliamentary estate. However, more can be done to make sure that our communities, businesses and civic organisations are set up to be truly dementia friendly. We call for all public sector organisations to follow parliament s lead and commit to becoming dementia-friendly organisations. Nearly 50% of people diagnosed with dementia only go out to do things in their local community once a week or less Alzheimer s Society, 2014

8 About the APPG The All-Party Parliamentary Group (APPG) on Dementia is a group of cross-party parliamentarians with an interest in dementia. It was created to build support for dementia-related issues and encourage it to become a publically stated health and social care priority in order to meet one of the greatest challenges presented by our ageing population. APPG on Dementia Officers Baroness Sally Greengross OBE Tracey Crouch MP Rt Hon Hazel Blears MP Stephen Lloyd MP Rt Hon David Blunkett MP Rt Hon Paul Burstow MP Debbie Abrahams MP Tim Farron MP Mike Hancock MP Co-chair Co-chair Co-chair Acknowledgements Alzheimer s Society provide the Secretariat to the All Party Parliamentary Group on Dementia. The Group would like to thank Alzheimer s Society for its assistance in organising this work in We would like to thank Sam Gould, Senior Public Affairs and Campaigning Officer for writing the manifesto and Methela Haque, Public Affairs and Campaigning Assistant for organising and supporting the meetings.

Dementia 2014: Opportunity for change England summary

Dementia 2014: Opportunity for change England summary Dementia 2014: Opportunity for change England summary Dementia 2014: Opportunity for change England summary 2 Dementia 2014: Opportunity for change provides a comprehensive summary of the key areas affecting

More information

Agenda 2030: One Nation Labour s Plan for science Response from Alzheimer s Research UK

Agenda 2030: One Nation Labour s Plan for science Response from Alzheimer s Research UK Agenda 2030: One Nation Labour s Plan for science Response from Alzheimer s Research UK 1. Introduction 1.1. Alzheimer s Research UK is the UK s leading dementia research charity. As research experts,

More information

The Prime Minister s Challenge on Dementia Lorraine Jackson Deputy Director: Dementia Policy Department of Health 12 April 2016

The Prime Minister s Challenge on Dementia Lorraine Jackson Deputy Director: Dementia Policy Department of Health 12 April 2016 The Prime Minister s Challenge on Dementia 2020 1 Lorraine Jackson Deputy Director: Dementia Policy Department of Health 12 April 2016 Costs and impact of dementia Estimated 676,000 people in England with

More information

Ambitious Futures 2020 Strategy

Ambitious Futures 2020 Strategy Ambitious Futures 2020 Strategy About us Our vision A world where the ordinary is the everyday experience of children and young people with autism. Ambitious about Autism is the national charity for children

More information

National Dementia Vision for Wales Dementia Supportive Communities

National Dementia Vision for Wales Dementia Supportive Communities National Dementia Vision for Wales Dementia Supportive Communities Crown Copyright 2011 WAG11-11223 F641 Introduction In Wales, we are justifiably proud of the communities we have built, just as we are

More information

All Party Parliamentary Group on Deafness

All Party Parliamentary Group on Deafness All Party Parliamentary Group on Deafness Extraordinary General Meeting 11am 30 June 2015 W1, Westminster Hall, Houses of Parliament Present Neil Carmichael MP, Conservative Kate Green MP, Labour Lilian

More information

Dementia in England. Dr Charles Alessi Senior Advisor on Dementia, Public Health England

Dementia in England. Dr Charles Alessi Senior Advisor on Dementia, Public Health England Dementia in England Dr Charles Alessi Senior Advisor on Dementia, Public Health England The health and care system in England National Health Service (NHS) World s largest publicly funded health service

More information

Progress on the Prime Minister s Challenge on Dementia: Year Two

Progress on the Prime Minister s Challenge on Dementia: Year Two David Cameron Prime Minister 10 Downing Street London SW1A 2AA 7 May 2014 Dear Prime Minister, Progress on the Prime Minister s Challenge on Dementia: Year Two It is now two years since you set us the

More information

The Prime Minister s Challenge on Dementia. Lorraine Jackson Deputy Director: Domestic Dementia Policy Department of Health

The Prime Minister s Challenge on Dementia. Lorraine Jackson Deputy Director: Domestic Dementia Policy Department of Health The Prime Minister s Challenge on Dementia Lorraine Jackson Deputy Director: Domestic Dementia Policy Department of Health 1 Costs and impact of dementia Estimated 676,000 people in England with dementia,

More information

SECTION 3: WHAT DOES DIABETES UK DO?

SECTION 3: WHAT DOES DIABETES UK DO? SECTION 3: WHAT DOES DIABETES UK DO? By volunteering with us you re helping Diabetes UK tackle the diabetes crisis. This section will explain what we are doing to achieve this, the role volunteers play

More information

DOING IT YOUR WAY TOGETHER S STRATEGY 2014/ /19

DOING IT YOUR WAY TOGETHER S STRATEGY 2014/ /19 DOING IT YOUR WAY TOGETHER S STRATEGY 2014/15 2018/19 Why is Together s role important? Experiencing mental distress is frightening and can lead to long-term disadvantage. Mental illness still carries

More information

All Party Parliamentary Group for Children inquiry into children s social care invitation to submit written evidence

All Party Parliamentary Group for Children inquiry into children s social care invitation to submit written evidence All Party Parliamentary Group for Children c/o NCB (Policy) 8 Wakley Street London EC1V 7QE Dear Directors of Children s Services, All Party Parliamentary Group for Children inquiry into children s social

More information

TIME TO CHANGE Employer Pledge Action Plan

TIME TO CHANGE Employer Pledge Action Plan TIME TO CHANGE Employer Pledge Action Plan 1 ABOUT TIME TO CHANGE Time to Change is a growing movement of people changing how we all think and act about mental health problems. Led by the charities Mind

More information

What is the impact of the Allied Health Professional Dementia Consultants in Scotland?

What is the impact of the Allied Health Professional Dementia Consultants in Scotland? What is the impact of the Allied Health Professional Dementia Consultants in Scotland? An evaluation commissioned by Alzheimer Scotland [Executive Summary] Jacki Gordon and Dawn Griesbach [Jacki Gordon

More information

We need to talk about Palliative Care. Pancreatic Cancer UK

We need to talk about Palliative Care. Pancreatic Cancer UK We need to talk about Palliative Care Pancreatic Cancer UK 1. Pancreatic Cancer UK welcomes the opportunity to respond to the Health and Sport Committee s inquiry on palliative care. About Pancreatic Cancer

More information

Dementia 2014: Opportunity for change

Dementia 2014: Opportunity for change Dementia 2014: Opportunity for change Document purpose Dementia 2014: Opportunity for change provides a comprehensive summary of some key areas affecting people with dementia over the last year in England,

More information

All Party Parliamentary Group on Deafness

All Party Parliamentary Group on Deafness All Party Parliamentary Group on Deafness Meeting 25 January 2016 Minutes Committee Room 21, Palace of Westminster Present Jim Fitzpatrick MP (chair) Lilian Greenwood MP Baroness Randerson Lord Rennard

More information

Harry Stevenson, President, Social Work Scotland. Annual Conference and Exhibition 18 and 19 June 2014

Harry Stevenson, President, Social Work Scotland. Annual Conference and Exhibition 18 and 19 June 2014 Harry Stevenson, President, Social Work Scotland Annual Conference and Exhibition 18 and 19 June 2014 It is a great privilege to give the address to conference as first president of Social Work Scotland

More information

Dementia care - working together to support complex needs

Dementia care - working together to support complex needs Dementia care - working together to support complex needs Rachel Thompson Professional & Practice Development Lead for Admiral Nursing February 2015 Dementia - everyone s business 850,000 people in the

More information

HOW AUSTRALIA CAN BEAT DEMENTIA ALP FRINGE EVENT DEMENTIA: THE CHRONIC DISEASE OF THE 21 ST CENTURY

HOW AUSTRALIA CAN BEAT DEMENTIA ALP FRINGE EVENT DEMENTIA: THE CHRONIC DISEASE OF THE 21 ST CENTURY 1 HOW AUSTRALIA CAN BEAT DEMENTIA ALP FRINGE EVENT DEMENTIA: THE CHRONIC DISEASE OF THE 21 ST CENTURY SYDNEY CONVENTION AND EXHIBITION CENTRE PARKSIDE, DARLING HARBOUR ROOM 110B DECEMBER 2, 2011 ITA BUTTROSE

More information

in North East Lincolnshire Care Trust Plus Implementation Plan Executive Summary

in North East Lincolnshire Care Trust Plus Implementation Plan Executive Summary North East Lincolnshire Care Trust Plus Living Well with Dementia in North East Lincolnshire Implementation Plan 2011-2014 Executive Summary Our vision is for all Individuals with Dementia and their carers

More information

CHARTER FOR INVOLVEMENT. National Involvement Network

CHARTER FOR INVOLVEMENT. National Involvement Network CHARTER FOR INVOLVEMENT National Involvement Network 1 What is the Charter? 2 Who has written the Charter? 4 Why is there a tiger on the front? 5 What is the aim of the Charter? 8 The 12 Statements 46

More information

CORPORATE PLAN Supporting housing professionals to create a future in which everyone has a place to call home

CORPORATE PLAN Supporting housing professionals to create a future in which everyone has a place to call home CORPORATE PLAN 2018-2021 Supporting housing professionals to create a future in which everyone has a place to call home CIH s mission is to support housing professionals to create a future in which everyone

More information

City of Durham CLP Report November Standing up for NHS Services

City of Durham CLP Report November Standing up for NHS Services City of Durham CLP Report November 2016 Constituency & Community News Along with many Labour colleagues and members, I was extremely concerned to hear the news that North Durham Clinical Commissioning

More information

Alzheimer s Society. Consultation response. Our NHS care objectives: A draft mandate to the NHS Commissioning Board.

Alzheimer s Society. Consultation response. Our NHS care objectives: A draft mandate to the NHS Commissioning Board. Alzheimer s Society Our NHS care objectives: A draft mandate to the NHS Commissioning Board 26 September 2012 Delivering Dignity Securing dignity in care for older people in hospitals and care homes: A

More information

Improving mental health and wellbeing in North West London. Case for Change - a summary

Improving mental health and wellbeing in North West London. Case for Change - a summary Improving mental health and wellbeing in North West London Case for Change - a summary What this paper is about We are setting out the vision for improving mental health and wellbeing across North West

More information

All-Party Parliamentary Group on Dementia inquiry into dementia and co-morbidities - call for evidence

All-Party Parliamentary Group on Dementia inquiry into dementia and co-morbidities - call for evidence All-Party Parliamentary Group on Dementia inquiry into dementia and co-morbidities - call for evidence Date: October 2015 All rights reserved. Third parties may only reproduce this paper or parts of it

More information

G8 Dementia Summit. Joint Opening Plenary

G8 Dementia Summit. Joint Opening Plenary G8 Dementia Summit Joint Opening Plenary London, 11 December 2013 Speech by Yves Leterme Deputy Secretary-General, OECD 0 Secretary of State Jeremy Hunt, Director General of the World Health Organisation

More information

Improving the Lives of People with Dementia

Improving the Lives of People with Dementia Improving the Lives of People with Dementia Released August 2014 www.health.govt.nz Introduction Good health is essential for the social and economic wellbeing of New Zealanders. As the population of older

More information

All Party Parliamentary Group on Cancer

All Party Parliamentary Group on Cancer September 2010 Dear Colleague BRITAIN AGAINST CANCER 2010 A new cancer strategy, a new NHS making it work I am writing to invite you to participate in the Britain Against Cancer Conference 2010, hosted

More information

General Election 2015 Prioritising Mental Health Research

General Election 2015 Prioritising Mental Health Research General Election 2015 Prioritising Mental Health Research Alliance of Mental Health Research Funders We all know someone with a mental health problem and can see how lives would be improved with better

More information

JOB DESCRIPTION JOB TITLE: STATUS: HOURS: SALARY: HOLIDAY: LOCATION: REPORTS TO: DIRECT REPORTS: KEY INTERNAL RELATIONSHIPS:

JOB DESCRIPTION JOB TITLE: STATUS: HOURS: SALARY: HOLIDAY: LOCATION: REPORTS TO: DIRECT REPORTS: KEY INTERNAL RELATIONSHIPS: JOB DESCRIPTION JOB TITLE: Senior Policy and Public Affairs Officer STATUS: Permanent contract HOURS: 37.5 hours per week 9:00am 5:30pm (JDRF operates a flexible working hours policy) SALARY: 29,800 per

More information

Invisible and in distress: prioritising the mental health of England's young carers

Invisible and in distress: prioritising the mental health of England's young carers Invisible and in distress: prioritising the mental health of England's young carers Foreword Becoming a carer can be daunting at any point in a person s life. Caring can take its toll on health and wellbeing.

More information

Dementia Strategy MICB4336

Dementia Strategy MICB4336 Dementia Strategy 2013-2018 MICB4336 Executive summary The purpose of this document is to set out South Tees Hospitals Foundation Trust s five year strategy for improving care and experience for people

More information

POLICY BRIEFING. Prime Minister s challenge on dementia 2020 implementation plan

POLICY BRIEFING. Prime Minister s challenge on dementia 2020 implementation plan POLICY BRIEFING Prime Minister s challenge on dementia 2020 implementation plan Date: 14th March 2016 Author: Christine Heron LGiU associate Summary The Prime Minister s challenge on dementia contains

More information

Dementia: Post Diagnostic Support Project

Dementia: Post Diagnostic Support Project Dementia: Post Diagnostic Support Project Sharon Adams WM SCN Georgina Owen ADASS/ IEWM April 2015 What outcomes are we ultimately trying to achieve? 7. I know that there is research going on that will

More information

Working together for families when they need it the most

Working together for families when they need it the most Working together for families when they need it the most Your guide to the Together for Families Programme Elena Heatherwick/Save the Children Magda Rakita/Save the Children Thanks a million Helping good

More information

You said we did. Our Healthier South East London. Dedicated engagement events

You said we did. Our Healthier South East London. Dedicated engagement events Our Healthier South East London You said we did This report summarises the deliberative events carried out in June and other engagement activities we have undertaken so far in developing the South East

More information

Putting Prevention First

Putting Prevention First Putting Prevention First BDA Manifesto 2017 About Us The British Dental Association is the voice of dentists and dental students in the UK. Dentists are critical to the health of the nation and we want

More information

The National Council for Palliative Care Awards 2017 Judges Profiles

The National Council for Palliative Care Awards 2017 Judges Profiles The National Council for Palliative Care Awards 2017 Judges Profiles Alison Penny Coordinator, Childhood Bereavement Network Alison coordinates the Childhood Bereavement Network (CBN) and provides project

More information

Commission on the Status of Women (CSW62) Challenges and opportunities in achieving gender equality and the empowerment of rural women and girls

Commission on the Status of Women (CSW62) Challenges and opportunities in achieving gender equality and the empowerment of rural women and girls Commission on the Status of Women (CSW62) Challenges and opportunities in achieving gender equality and the empowerment of rural women and girls Each year nearly 4,000 NGO representatives and UN member

More information

Our dementia STRATEGY

Our dementia STRATEGY South Tyneside and Sunderland Healthcare Group Our dementia STRATEGY 2018-2021 City Hospitals Sunderland and South Tyneside NHS Foundation Trusts working in partnership Introduction Dementia has become

More information

Earlier this year, I had the honour of visiting with the Hope Haven Society in Lac La Biche.

Earlier this year, I had the honour of visiting with the Hope Haven Society in Lac La Biche. Check Against Delivery Alberta Council of Women's Shelters AGM Friday, June 22 Delta Edmonton Centre Suite Hotel Edmonton Hon Dave Hancock, Minister, Human Services Good evening everyone. On behalf of

More information

National Dementia Policy in England Responding to the Prime Ministers Challenge

National Dementia Policy in England Responding to the Prime Ministers Challenge National Dementia Policy in England Responding to the Prime Ministers Challenge Kevin Mullins Head of Mental Health February 24 th 2016 www.england.nhs.uk National Performance: Dementia The ambition in

More information

provides services for drug and alcohol users, families and carers.

provides services for drug and alcohol users, families and carers. provides services for drug and alcohol users, families and carers. Blenheim s mission is to end dependency by enabling people to change. Along the way we also improve people s health and quality of life

More information

Homelessness: Far From Fixed Campaign Update

Homelessness: Far From Fixed Campaign Update Homelessness: Far From Fixed Campaign Update November 2017 Until there s a home for everyone. shelter.org.uk shelterscotland.org INTRODUCTION Shelter Scotland is Scotland s national housing and homelessness

More information

Strategy Strategic delivery: Setting standards Increasing and informing choice. Details: Output: Demonstrating efficiency economy and value

Strategy Strategic delivery: Setting standards Increasing and informing choice. Details: Output: Demonstrating efficiency economy and value Strategy 2017-20 Strategic delivery: Setting standards Increasing and informing choice Demonstrating efficiency economy and value Details: Meeting Authority Agenda item 7 Paper number HFEA (11/05/2016)

More information

Strategic Plan

Strategic Plan Strategic Plan 2015 18 President s message The Royal College of Psychiatrists is committed to improving the lives of people with mental illness. This strategic plan is based on the top three priorities

More information

The prevalence, economic cost and research funding of dementia compared with other major diseases. Executive summary

The prevalence, economic cost and research funding of dementia compared with other major diseases. Executive summary DEMENTIA 2010 The prevalence, economic cost and research funding of dementia compared with other major diseases Executive summary A report produced by the Health Economics Research Centre, University of

More information

Macmillan Cancer Support s manifesto for the 2017 General Election

Macmillan Cancer Support s manifesto for the 2017 General Election Macmillan Cancer Support s manifesto for the 2017 General Election Claire, diagnosed with brain cancer, and Shez, her Macmillan nurse Foreword The 2017 General Election is taking place in unique circumstances.

More information

Plain packaging of tobacco: Evidence and policy. ISM Institute for Social Marketing

Plain packaging of tobacco: Evidence and policy. ISM Institute for Social Marketing Plain packaging of tobacco: Evidence and policy ISM Institute for Social Marketing Moving towards plain packaging: the UK example Many countries have introduced legislation to restrict or remove tobacco

More information

Overcoming barriers. Our strategy for

Overcoming barriers. Our strategy for Overcoming barriers Our strategy for 2017 2022 2 We are the National Deaf Children s Society, the leading charity for deaf children. Together we will overcome barriers Our strategy will change deaf children

More information

A Framework for improving the experience of autistic adults using TEWV Services. MARCH 2018

A Framework for improving the experience of autistic adults using TEWV Services. MARCH 2018 A Framework for improving the experience of autistic adults using TEWV Services. MARCH 2018 Why does TEWV need an autism framework? Autism is more common than a lot of us think. It affects around one in

More information

Government urged to impose tech tax on social media firms that fail to help tackle children s mental health crisis

Government urged to impose tech tax on social media firms that fail to help tackle children s mental health crisis Government urged to impose tech tax on social media firms that fail to help tackle children s mental health crisis The UK government should consider introducing a duty on social media firms who do not

More information

All Party Parliamentary Group on Deafness

All Party Parliamentary Group on Deafness All Party Parliamentary Group on Deafness Meeting 21 March 2016 Minutes Committee Room 21, Palace of Westminster Present Jim Fitzpatrick MP (chair) Baroness Howe Apologies Baroness Randerson Kate Green

More information

Dementia Friendly London

Dementia Friendly London Dementia Friendly London Dementia Friendly London Dementia in London Estimated number of people living with dementia in London: 72,000 Estimated number of people under-65 living with dementia in London:

More information

Recruitment Information Pack. Events Fundraising Manager

Recruitment Information Pack. Events Fundraising Manager Recruitment Information Pack Events Fundraising Manager Introduction Thanks so much for taking the time to consider this exciting opportunity to become a key player in the fundraising team here at Ambitious

More information

The role of cancer networks in the new NHS

The role of cancer networks in the new NHS The role of cancer networks in the new NHS October 2012 UK Office, 89 Albert Embankment, London SE1 7UQ Questions about cancer? Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.uk

More information

Foreword. Our shared principles

Foreword. Our shared principles Our Digital Future Foreword The way we manage our lives is changing. 86% of households now have internet access, 82% of people go online every day and 72% of adults use a smartphone 1. It is now time to

More information

Ayrshire Employability Project

Ayrshire Employability Project Integration Joint Board 18 th January 2018 Agenda Item 8 Subject: Transforming Care After Treatment (TCAT) Ayrshire Employability Project Purpose: Recommendation: To update the Integration Joint Board

More information

Living Well With Dementia in North Yorkshire. Summary

Living Well With Dementia in North Yorkshire. Summary Living Well With Dementia in North Yorkshire Summary Signatories to the Living Well with Dementia Strategy: Contents The draft strategy... 5 Some facts about dementia... 6 How we developed Bring me sunshine...

More information

Communications and Engagement Approach

Communications and Engagement Approach Communications and Engagement Approach 2016-2020 NHS Cumbria CCG commissioning hospital and community services to get the best healthcare and health outcomes for our communities Contents Section 1 Section

More information

Children s Services Involvement Strategy

Children s Services Involvement Strategy Children s Services Involvement Strategy Our plan for involving you in your future... September 2014 May 2017 Norfolk County Council Forewords 1 Children s Services Leadership Team If you need this information

More information

A Youth Sector Summary of the Civil Society Strategy. Youth Work Youth Participation Funding for Young People NCS

A Youth Sector Summary of the Civil Society Strategy. Youth Work Youth Participation Funding for Young People NCS A Youth Sector Summary of the Civil Society Strategy Youth Work Youth Participation Funding for Young People NCS Youth Work (Pages 41-42) The government is committed to making sure all young people have

More information

The Prime Minister s Challenge on Dementia & 2013, G8 Dementia Legacy Making it Happen

The Prime Minister s Challenge on Dementia & 2013, G8 Dementia Legacy Making it Happen The Prime Minister s Challenge on Dementia & 2013, G8 Dementia Legacy Making it Happen 1 Gill Ayling Head of Department of Health, UK The Key Challenges The Dementia Journey 1. The Prime Minister s Challenge

More information

All-Party Parliamentary Group on Motor Neurone Disease

All-Party Parliamentary Group on Motor Neurone Disease All-Party Parliamentary Group on Motor Neurone Disease Inquiry into Access to Specialist Palliative Care for People with Motor Neurone Disease in England Call for Evidence 8 December 2009 Introduction

More information

Dementia Friendly Communities Recognition Process. Karishma Chandaria Dementia Friendly Communities Programme Manager

Dementia Friendly Communities Recognition Process. Karishma Chandaria Dementia Friendly Communities Programme Manager Dementia Friendly Communities Recognition Process Karishma Chandaria Dementia Friendly Communities Programme Manager Living well with dementia Development of DFCs Progress in creating dementia friendly

More information

Volunteering and Social Action for Health and Well Being

Volunteering and Social Action for Health and Well Being Volunteering and Social Action for Health and Well Being Duncan Tree Head of Policy and Performance Volunteering Matters Kings Fund Annual Conference 19 November 2015 About Volunteering Matters Leading

More information

Dementia Action Alliance survey for carers and professionals

Dementia Action Alliance survey for carers and professionals Dementia Action Alliance survey for carers and professionals Are we making any progress? To mark the fourth year of the National Dementia Declaration, the Dementia Action Alliance (DAA) is conducting a

More information

I hope this guide will be a useful tool to help us excel in all we do.

I hope this guide will be a useful tool to help us excel in all we do. WDP Strategy We are extremely proud to introduce our strategy, which was agreed by the Board earlier this year. The Senior Management Team are in the process of rolling this out across the whole organisation,

More information

CANDIDATE PACK. Trustee

CANDIDATE PACK. Trustee CANDIDATE PACK Trustee Candidate Pack 2014 Background Information Introduction The Motor Neurone Disease (MND) Association is the only national charity in England, Wales and Northern Ireland that funds

More information

Contents. Introduction from our Chief Executive and Chairman. About Macmillan. Personal support that meant so much. How we helped

Contents. Introduction from our Chief Executive and Chairman. About Macmillan. Personal support that meant so much. How we helped Contents 2 6 8 10 12 14 16 18 20 Introduction from our Chief Executive and Chairman About Macmillan Personal support that meant so much How we helped Saying thank you for incredible support How we raised

More information

E News July RCPsych in Scotland Update

E News July RCPsych in Scotland Update E News July 2015 RCPsych in Scotland Update Dear All Summer is here, the schools are on holiday, commuting is a joy and I get a chance to tidy my office and do some planning for the Autumn. Hope our members

More information

What needs to happen in England

What needs to happen in England What needs to happen in England We ve heard from over 9,000 people across the UK about what it is like to live with diabetes and their hopes and fears for the future. Over 6,000 of them live in England;

More information

PROMOTION AND MAINTENANCE OF NEW ZEALAND SIGN LANGUAGE

PROMOTION AND MAINTENANCE OF NEW ZEALAND SIGN LANGUAGE Office of the Minister for Disability Issues Chair Cabinet Social Policy Committee PROMOTION AND MAINTENANCE OF NEW ZEALAND SIGN LANGUAGE Proposal 1 This paper proposes the establishment of an advisory

More information

2018 Candidate Guide. Leading in the fight to end Alzheimer's

2018 Candidate Guide. Leading in the fight to end Alzheimer's 2018 Candidate Guide Leading in the fight to end Alzheimer's Table of Contents Candidate Letter...2 2018 Alzheimer's Disease Facts and Figures...3 Federal Policies to Lead on Alzheimer's...4 State Policies

More information

Making social action part of life for all young people by 2020

Making social action part of life for all young people by 2020 Making social action part of life for all young people by 2020 2013-2016 / 2017-2020 The story so far Changing culture Youth Social Action makes sense We are failing to capitalise on the energy, talent

More information

Social Worker of the Year Awards 2017

Social Worker of the Year Awards 2017 Help us find the Social Worker of the Year 2017 Social Worker of the Year Awards 2017 The Social Worker of the Year Awards recognise the excellent and diverse work that takes place in the profession, celebrating

More information

Working Together to Support Dementia: The STEMS Model

Working Together to Support Dementia: The STEMS Model CAROLINE ELLIS MEMORY ASSESSMENT NURSE QUEENS NURSE. Working Together to Support Dementia: The STEMS Model Summary of the Memory Assessment Care Pathway. Screening Further Investigation Diagnostic Post

More information

A SAFE AND DIGNIFIED LIFE WITH DEMENTIA

A SAFE AND DIGNIFIED LIFE WITH DEMENTIA A SAFE AND DIGNIFIED LIFE WITH DEMENTIA NATIONAL ACTION PLAN ON DEMENTIA 2025 January 2017 A SAFE AN DIGNIFIED LIFE WITH DEMENTIA INTRODUCTION We can do much better In Denmark, we have come a long way

More information

Drugs, Alcohol & Justice Cross-Party Parliamentary Group and APPG on Alcohol Harm Alcohol Charter

Drugs, Alcohol & Justice Cross-Party Parliamentary Group and APPG on Alcohol Harm Alcohol Charter Drugs, Alcohol & Justice Cross-Party Parliamentary Group and APPG on Alcohol Harm Alcohol Charter A new national Alcohol Strategy must lead the way internationally in reducing the damage to society caused

More information

at a glance

at a glance at a glance WWW.IVC.GROUP OVER 1,000 CLINICS AND HOSPITALS ACROSS EIGHT COUNTRIES AND COUNTING... It s been an incredible journey. When we founded the group in 2011, we started with just 20 practices.

More information

Mental Health Conference 2018

Mental Health Conference 2018 Mental Health Conference 2018 Children and young people s mental health - 2035 Landing prevention - smoothing demand Prof Dame Sue Bailey, Chair, Children & Young People s Mental Health Coalition Conflicts

More information

Inquiry into NHS Service Provision for ME/CFS

Inquiry into NHS Service Provision for ME/CFS Inquiry into NHS Service Provision for ME/CFS This inquiry arose as a result of long-term concerns that the National Health Service (NHS) provision for people with ME/CFS was not meeting their needs. As

More information

Alzheimer s Society Society

Alzheimer s Society Society Alzheimer s Society Society R Recognition process for Dementia Friendly Communities Consultation paper 0 Consultation on a recognition process for dementia friendly communities Deadline: Monday 15 th October

More information

Think Piece. Dementia 2014: A North East Perspective

Think Piece. Dementia 2014: A North East Perspective Think Piece Dementia 2014: A North East Perspective Debbie J Smith and Peter Otter July 2014 Introduction In June 2014, Northern Rock Foundation and the North East Dementia Alliance published a report

More information

Peer Work Leadership Statement of Intent

Peer Work Leadership Statement of Intent Peer Work Leadership Statement of Intent A National Professional Association for Mental Health Peer Workers Peer work leaders from Queensland, Victoria and NSW and colleagues from the USA participated

More information

OUR VISION AND PLAN We create places for people to call home and support them to live well

OUR VISION AND PLAN We create places for people to call home and support them to live well OUR VISION AND PLAN 2018-2023 We create places for people to call home and support them to live well 2 Contents Introduction 4 Our vision and values 6 Creating places to call home 9 Supporting people to

More information

DEMENTIA FRIENDLY SOCIETIES

DEMENTIA FRIENDLY SOCIETIES DEMENTIA FRIENDLY SOCIETIES Dr Ellen Skladzien, National Policy Manager Alzheimer s Australia 17 May 2013 WHAT IS A DEMENTIA FRIENDLY SOCIETY (DFS) "cohesive system of support that recognises the experiences

More information

A voice for positive change in NHS Wales

A voice for positive change in NHS Wales A voice for positive change in NHS Wales Foreward from Director Helen Birtwhistle The past 12 months have proved to be another busy year for NHS Wales. There is no doubt that with elections on the horizon

More information

LEADER S REPORT. For the period covering: 10 December February 2019

LEADER S REPORT. For the period covering: 10 December February 2019 LEADER S REPORT For the period covering: 10 December 2018 4 February 2019 The attached report gives a summary and brief details to Council, of meetings and events attended by the Leader of North Ayrshire

More information

Young People. & Brexit. New Age for. democracy. Our. Living. Minds. Wage for Everyone. Matter. Save our. Youth. Teach. Services. First Aid.

Young People. & Brexit. New Age for. democracy. Our. Living. Minds. Wage for Everyone. Matter. Save our. Youth. Teach. Services. First Aid. Young People & Brexit 16: A New Age for 2017 Our Minds Matter democracy Living Wage for Everyone Save our Youth Services Teach First Aid in Schools Contents A manifesto by young people calling for action...

More information

Bedfordshire, Luton and Milton Keynes (BLMK) Sustainability and Transformation Partnership (STP) Central Brief: October 2017

Bedfordshire, Luton and Milton Keynes (BLMK) Sustainability and Transformation Partnership (STP) Central Brief: October 2017 Bedfordshire, Luton and Milton Keynes (BLMK) Sustainability and Transformation Partnership (STP) Central Brief: October 2017 Issue date: 2 November 2017 News Work progresses on proposed merger of Bedfordshire

More information

ADVANCING WOMEN AND GIRLS, ONE CITY AT A TIME

ADVANCING WOMEN AND GIRLS, ONE CITY AT A TIME ADVANCING WOMEN AND GIRLS, ONE CITY AT A TIME It s Time Network s Mayors Guide: Accelerating Gender Equality is the first comprehensive guide for accelerating gender equality at the local level. The guide

More information

The G8 Dementia Summit: A Giant Step Forward for Dementia

The G8 Dementia Summit: A Giant Step Forward for Dementia The G8 Dementia Summit: A Giant Step Forward for Dementia January 28, 2014 Mimi Lowi-Young, M.H.A, Dip Bus. Admin., FACHE, FCCHL Chief Executive Officer, Alzheimer Society of Canada Overview 1. Background

More information

PROFESSIONALISM THE ABC FOR SUCCESS

PROFESSIONALISM THE ABC FOR SUCCESS PROFESSIONALISM THE ABC FOR SUCCESS PROFESSIONALISM BOOKS CONTENTS What s it all About? 7 Choose Excellence 11 A for Attitude 19 B for Behaviour 33 C for Character 51 Make it Work for You 61 Guaranteed

More information

Royal College of Psychiatrists in Wales Consultation Response

Royal College of Psychiatrists in Wales Consultation Response Royal College of Psychiatrists in Wales Consultation Response RESPONSE OF: RESPONSE TO: THE ROYAL COLLEGE OF PSYCHIATRISTS in WALES The Autism Bill Date: 20 November 2017 The Royal College of Psychiatrists

More information

Mental Health & Wellbeing Strategy

Mental Health & Wellbeing Strategy getting it right for e ery child in Aberdeenshire Mental Health & Wellbeing Strategy 2016-2019 NHS Grampian 2 Our vision is that all children and young people are mentally flourishing! Introduction and

More information

Report by the Comptroller and. SesSIon January Improving Dementia Services in England an Interim Report

Report by the Comptroller and. SesSIon January Improving Dementia Services in England an Interim Report Report by the Comptroller and Auditor General HC 82 SesSIon 2009 2010 14 January 2010 Improving Dementia Services in England an Interim Report 4 Summary Improving Dementia Services in England an Interim

More information

Mental Capacity Implementation Programme. Mental Capacity Act 2005

Mental Capacity Implementation Programme. Mental Capacity Act 2005 Mental Capacity Implementation Programme Mental Capacity Act 2005 The Presentation Is an Overview and Will Cover: Part one - background and key policy Why we needed the act and who it affects The Mental

More information