March 2015 Newsletter No. 10 Newsletter The aim of these newsletters is to keep people with dementia and those close to them informed about the work of the Peterborough Dementia Action Alliance. Peterborough Dementia Action Alliance is a partnership of organisations, individuals, businesses and community groups working together with the shared aim of transforming the quality of life of people with dementia and helping Peterborough to become a dementia-friendly city. Want to write something for this newsletter? Email rob.henchy@peterborough.gov.uk In this newsletter: Prime Ministers Challenge on dementia 2020 Creating a dementia friendly generation New National Family Carers Involvement Network Volunteer Event at the DRC Synergy Timetable Worried about your memory? March Dementia Support Timetable P2 P3 P4 P5 P6 P6 P8 1
Peterborough Dementia Action Alliance Membership Prime Minister s Challenge on Dementia 2020 On 21 February 2015, the Prime Minister s challenge on dementia 2020 was launched. The 2020 Challenge is an aspirational document, which builds on the achievements of the Prime Minister s challenge on dementia 2012-2015, and aims to identify what needs to be done to ensure that dementia care, support, awareness and research are transformed by 2020. The main aspirations set out in the document include: Funding for dementia research on track to be doubled by 2025; In every part of the country people with dementia having equal access to dementia diagnosis; To reduce the national average wait for an initial assessment for dementia to six weeks; Every person diagnosed with dementia having meaningful care following their diagnosis, which supports them and those around them; All NHS staff having received training on dementia appropriate to their role, and newly appointed healthcare assistants and social care support workers having undergone training as part of the national implementation of the Care Certificate. An expectation that social are providers provide appropriate training to all other relevant staff; 2
Cures or disease modifying therapies on track to exist by 2025; An international dementia institute established in England. The full document is available here - https://www.gov.uk/government/publications/primeministers-challenge-on-dementia-2020 The document does not mandate actions, or make spending commitments. What happens in the five years to 2020 will be determined by the next government in the context of the Spending Review. DAA members played a key role in shaping this document through the DAA Impact Survey and 2020 Vision consultation following the Annual Event. Creating a Dementia-Friendly Generation Young people can play an important role in the creation of dementia-friendly communities. Not only do a third of young people know someone with dementia, but they are the leaders, employers, researchers, carers and adults of tomorrow. Increasing young people s awareness can help reduce stigma and help people to live well with dementia now and in the future. Alzheimer s Society is encouraging all schools and youth groups to include dementia awareness in their activities, to help us create a dementia-friendly generation. The new section of the website www.alzheimers.org.uk/youngpeople is aimed at young people, parents, teachers and youth leaders providing information and resources to increase young people s understanding of dementia, including new teaching resources for Key Stage 3 (11-14 year olds). All communities are encouraged to engage schools and youth organisations in their area, encouraging them to use the resources or host a Dementia Friends session. To let Alzheimer s Society know what you are doing, for further support, or to request the resources email youngpeople@alzheimers.org.uk 3
New National Family Carers Involvement Network The National Dementia Action Alliance and Life Story Network are pleased to inform you that following on from the successful Carers Call to Action Campaign a new National Family Carers Involvement Network for family carers of people with dementia is being established with support from the Department of Health. Life Story Network CIC will be hosting the new network and working hard to secure resources to ensure a sustainable legacy from the successful campaign The Carers Call to Action, which comes to its natural conclusion at the end of March 2015, with resources from the DAA being provided to support this transition period. The Carers Call to Action and Life Story Network share the same principle of recognising that family carers of people with dementia are experts by experience and can play a significant role in supporting other carers, influence policy and shape improved responsive local commissioned services. The objectives of the network will be to: Engage carers to raise the profile of the needs of people with dementia and family carers and influence policy. Equip carers with the knowledge and skills to advocate for improvements in standards and better services. Encourage and enable family carers to become involved and campaign for improved services and standards of care. Empower carers by developing confidence in their capacity to support each other and to make a difference in their community. Carers and former carers who wish to play a more active part in the network will be trained, coached, nurtured and supported in their role. Strategic support for the new network has been agreed with the Carers Trust and Mersey Care NHS Trust. In addition to this we have had considerable support from carers themselves, who recognise the value the involvement network will offer them to share their experiences and support other carers. Life Story Network CIC would welcome hearing from other partners who feel they can provide a contribution to establish this much needed national network for carers of people with dementia. Please contact Pat Broster via e-mail at pat@lifestorynetwork.org.uk if you believe you can support us in any way. 4
Dementia Resource Centre Volunteer Engagement Network Meeting Last month saw the first Alzheimer s Society Volunteer Engagement meeting take place at the Dementia Resource Centre. The event was attended by 12 volunteers from across the Peterborough area, all give up their valuable time to work with us at the Dementia Resource Centre. Kevin Bowyer Service Manager, Nyarai Maziso Information Worker, and Debbie Holmes Volunteering Officer, were present at the meeting. Kevin delivered an informative talk on the history of the Alzheimer s Society, our services and plans for the future which was followed by a short interactive quiz on dementia. An open forum then provided an opportunity for people to ask questions as well as share their thoughts and ideas on what works well or could be improved. The session then concluded with a buffet lunch. These events will run every 6 months as a thank you to all the volunteers, without whose help the Society would be unable to offer such a wide range of support groups. Anyone interested in volunteering for Alzheimer s Society should contact Debbie Holmes.Debbie.holmes@alzheimers.org.uk Tel: 01733 893853 5
What s on at this Month? 2/3/15 9/3/15 16/3/15 23/3/15 30/3/15 AM AM AM AM AM Reiki with Gill Kissaine Bowen Technique with Helen Perkins Reiki with Gill Kissaine Bowen Technique with Helen Perkins Reiki with Gill Kissaine PM PM PM PM CHAIR BASED EXERCISE SESSION AUDITORY QUIZ WITH JO RYTHMINAIRES JAZZ BAND IN THE PARLOUR PAIRS QUIZ WITH DONNA GAMES AFTERNOON IN THE PARLOUR Worried about your memory? If you, or someone you are close to, have been feeling confused, agitated or forgetful, it may be a good idea to visit the GP. If you are concerned about someone else, you may like to suggest that you accompany them on the visit. It is possible that these symptoms are an indication of dementia. This term describes a group of symptoms caused by the physical impact of disease or injury on the brain. There are a number of different conditions that lead to dementia, including Alzheimer's disease, vascular disease (including stroke) and dementia with Lewy bodies. Each person will experience dementia in his or her own individual way, but there will usually be: a decline in memory, reasoning and communication skills a gradual loss of the skills needed to carry out daily activities confusion If you want to know more about dementia please visitwww.alzheimers.org.uk Or call the Peterborough branch of the Alzheimer s Society on 01733 893853 6
Alzheimer s Society A-Z Activity Information Age UK Free Benefit Information Surgery held weekly on a Thursday at the Dementia Resource Centre, times vary so please call 01733 893 853 for more information. Arts & Crafts 12 week programme run weekly for anyone diagnosed with dementia that enjoys Arts & Crafts. To book a place please phone Nicki on 01733 893 853. is on a Monday from 10.30am 12.00pm at the Dementia Resource Centre. Cookery Classes Basic cookery skill classes held at the City College for people with dementia and their carers, the first course will start in April please call Nicola Ebdon on 01733 893 853 for further information. CRiSP Carers Support & Information Programme is a 5 week course providing information and support to people caring for a person with dementia. This course is held at the Dementia Resource Centre, to book a place please call 01733 893 853. Crocus Organised by the Rotary Club and run at the Salvation Army Citadel, Bourges Boulevard PE1 2AU on the first Monday of the month. For further information or to book a place call Maureen on 07936 210 718. Free Car Park. Dementia First Thursday of the month at the Dementia Resource Centre. Runs from 2.00pm 4.00pm, open to all. Dementia Ferry Meadows - Third Thursday of the month. Runs from 2.00pm 4.00pm, everyone welcome. Free Car Park. A guest speaker will be present at every café. Eye Activity an 8 week programme of activities for people with dementia. For more information please phone 01733 893 853. Guided Walk Ferry Meadows Third Thursday of the month. Starts at 12.45pm 1.30pm, open to all, meet at the Ferry Meadows small café at 12.30pm. IPSAF Information Programme for South Asian Families. Please contact the office on 01733 893 853 for more information. Ladies Activity a weekly group for Ladies living with dementia offering a variety of peer support, discussion and activities at the Dementia Resource Centre on a Tuesday from 2.00pm 3.30pm. For more information please phone 01733 893 853. Memory Clinic Carers This group runs on a Thursday at the Dementia Resource Centre from 2.00pm invite only. Men s Activity - a weekly group for men living with dementia. The group offers a variety of peer support, discussion and activities. The group is on a Wednesday from 2.00pm 3.30pm at the Dementia Resource Centre. Please call 01733 893 853 for more details. Open Carers a weekly support service for carers of people with dementia. Open to all carers for peer support, advice and a cuppa! The group is held every Wednesday from 10.30am 12.00pm at the Dementia Resource Centre. Orton Wistow Activity an 8 week programme of activities for people with dementia. For more information please call 01733 893 853. Pathways 8 week programme of cognitive stimulation for people with mild to moderate dementia. These groups are by invitation only following an assessment by Alzheimer s Society Staff. To find out more please phone 01733 893 853. Singing for the Brain a fortnightly session of singing, music and fun. Open to people with dementia and their carers. Sessions take place at the Dementia Resource Centre on Fridays from 10.30am 12.00pm. Please phone 01733 893 853 for more information. Weekly 11am 3pm at Sue Ryder Thorpe Hall Hospice, Thorpe Road, Longthorpe PE3 6LW. For more information contact 01733 225 900. Younger Persons a group for people under 65 who have a diagnosis of dementia. runs on a Tuesday from 10.30am 12.00pm. Please contact Barbara or Tony if you would like to attend 01733 893 853. All the above service are free of charge Chair Yoga Run at the Dementia Resource Centre on Tuesdays from 11.15am 12.00pm by a qualified yoga teacher. These classes are open to people with memory problems and their carers. Cost is 3.00 per person. Vivacity Exercise Referral Scheme for those with dementia and Alzheimer s. Please phone 01733 864 764 for further information. There is a charge for this service. 7
March 2015 Monday Tuesday Wednesday Thursday Friday 2 Crocus 3 Ladies Activity Pathways 4 Men s Activity Open Carers 5 Dementia @ DRC Age UK Benefit Surgery @ DRC 6 Singing for the Brain (Nightingales) Arts & Crafts Orton Wistow Activity Vivacity Exercise Scheme CrISP Eye Activity 9 10 Yoga @ DRC Ladies Activity Young On-Set 11 Men s Activity 12 Age UK Benefit Surgery @ DRC Vivacity Exercise Scheme CrISP Eye Activity 13 Singing for the Brain (Larks) 16 17 Yoga @ DRC Ladies Activity 18 Men s Activity Open Carers 19 Guided Walk & Dementia @ Ferry Meadows Age UK Benefit Surgery @ DRC Vivacity Exercise Scheme CrISP Eye Activity 20 Singing for the Brain (Nightingales) 23 24 Yoga @ DRC 25 Men s Activity 26 Age UK Benefit Surgery @ DRC 27 Singing for the Brain (Larks) Ladies Activity Open Carers Vivacity Exercise Scheme 30 Young On-set 31 Yoga @ DRC CrISP Eye Activity 8