Q. As noted in the NICE Quality Standard for ADHD (https://www.nice.org.uk/guidance/qs39), can you please provide information on: 1. What proportion of children and young people with symptoms of ADHD have been referred to an ADHD specialist for assessment in the past 12 months (Quality Statement 1) 2. What proportion of adults with symptoms of ADHD without a childhood diagnosis of ADHD have been referred to an ADHD specialist for assessment in the past 12 months (Quality Statement 2) 3. What proportion of adults who were diagnosed with ADHD as children or young people and present with symptoms of continuing ADHD have been referred to general adult psychiatric services in the past 12 months (Quality Statement 3) 4. What proportion of parents or carers of children with symptoms of ADHD who meet the NICE eligibility criteria have been offered a referral to a parent training programme in the past 12 months (Quality Statement 4) 5. What proportion of children and young people with moderate ADHD have been offered a referral to a psychological group treatment programme in the past 12 months (Quality Statement 5) 6. In the past 24 months, what proportion of eligible patients with ADHD who are starting drug treatment go on to have their initial drug dose adjusted and response assessed by an ADHD specialist (Quality Statement 6) 7. In the past 24 months, what proportion of eligible patients with ADHD who are taking drug treatment have a specialist review at least annually to assess their need for continued treatment (Quality Statement 7) In addition, can you please provide information on: 8. The number of people with symptoms of ADHD who have come into contact with your service in the past 12 months: Adults 9. The number of people referred with symptoms of ADHD who are currently waiting for their first outpatients appointment: 10. The average waiting time from referral to first outpatients appointment in the past 12 months for presenting with symptoms of ADHD Adults presenting for the first time with symptoms of ADHD 11. The range of waiting times (ie shortest to longest) for patients from referral to first outpatient appointment in the past 12 months for presenting with symptoms of ADHD
12. What specialist services are available for referral for adults presenting with symptoms of ADHD 13. Does your organisation provide a transition to an adult service for adolescents with ADHD 14. The age at which your organisation transitions a young person diagnosed with ADHD to general adult psychiatric services 15. Does your organisation receive out of area referrals for specialist ADHD services? A. As noted in the NICE Quality Standard for ADHD (https://www.nice.org.uk/guidance/qs39), can you please provide information on: 1. What proportion of children and young people with symptoms of ADHD have been referred to an ADHD specialist for assessment in the past 12 months (Quality Statement 1) To provide proportion, we would need to review the records of every child referred to our services to establish, firstly, if they were referred for any symptoms of ADHD, and then subsequently establish if they were referred to an ADHD specialist. This would take in excess of 18 hours. We could provide the number of children who were assessed by an ADHD specialist nurse. 2. What proportion of adults with symptoms of ADHD without a childhood diagnosis of ADHD have been referred to an ADHD specialist for assessment in the past 12 months (Quality Statement 2) To provide proportion, we would need to review the records of every adult referred to our services to establish, firstly, if they were referred for any symptoms of ADHD, secondly if they had previously been diagnosed with ADHD, and then subsequently if they were referred to an ADHD specialist either inside the Trust, or externally. This would take in excess of 18 hours. Please note; we only provide an Adult ADHD service within one of our boroughs Stockport. The Clinical Commissioning Groups in the area will be able to advise who provides Adult ADHD services on their behalf. Please contact Heywood, Middleton and Rochdale CCG, Bury CCG, Oldham CCG and Tameside and Glossop CCG for more information. 3. What proportion of adults who were diagnosed with ADHD as children or young people and present with symptoms of continuing ADHD have been referred to general adult psychiatric services in the past 12 months (Quality Statement 3) We would need to search all our mental health records to provide this information. This would take well in excess of 18 hours. 4. What proportion of parents or carers of children with symptoms of ADHD who meet the NICE eligibility criteria have been offered a referral to a parent training programme in the past 12 months (Quality Statement 4)
Parent training programmes are delivered by a range of external community children's services and can be accessed by any parent at any time. As we do not provide this service, we do not hold this information. 5. What proportion of children and young people with moderate ADHD have been offered a referral to a psychological group treatment programme in the past 12 months (Quality Statement 5) We do not offer group treatment options for children and young people with ADHD. Group social skills work is sometimes offered by individual schools, but we do not hold this information. 6. In the past 24 months, what proportion of eligible patients with ADHD who are starting drug treatment go on to have their initial drug dose adjusted and response assessed by an ADHD specialist (Quality Statement 6) This would require a manual review of all patient records, and as such would take in excess of 18 hours. Information regarding Trust compliance with NICE prescribing guidelines can be accessed via the Prescribing Observatory for Mental Health (POMH) ADHD Audit that the Royal College of Psychiatrists is publishing this year based on a large sample of cases in 2015. 7. In the past 24 months, what proportion of eligible patients with ADHD who are taking drug treatment have a specialist review at least annually to assess their need for continued treatment (Quality Statement 7) This would require a manual review of all patient records, and as such would take in excess of 18 hours. We can confirm, however, that regular review is built into each patient s care plan. Please also see findings from POMH audit. In addition, can you please provide information on: 8. The number of people with symptoms of ADHD who have come into contact with your service in the past 12 months: We can count patients recorded with a referral reason of ADHD or attention deficit disorder, a presenting problem of ADHD or a diagnosis encoded using ICD-10 of F90, with a referral date in the last 12 months. 9. The number of people referred with symptoms of ADHD who are currently waiting for their first outpatients appointment:
10. The average waiting time from referral to first outpatients appointment in the past 12 months for presenting with symptoms of ADHD 11. The range of waiting times (ie shortest to longest) for patients from referral to first outpatient appointment in the past 12 months for presenting with symptoms of ADHD 12. What specialist services are available for referral for adults presenting with symptoms of ADHD As explained above, we have one Adult ADHD service in our Stockport borough. 13. Does your organisation provide a transition to an adult service for adolescents with ADHD If there is an adult service available locally they are supported in their transition 14. The age at which your organisation transitions a young person diagnosed with ADHD to general adult psychiatric services Transition arrangements vary across boroughs depending on the disorder and commissioning arrangements but typically between 16-18yrs. 15. Does your organisation receive out of area referrals for specialist ADHD services? No, although we do accept referrals for Looked-after Children accepted into the area (i.e. where the child s permanent residency is out-of-area, but the child will require treatment while staying temporarily in the area) Therefore, as per Section 12(1) of the Freedom of Information Act 2000, the cost of providing you with the information is above the amount to which we are legally
required to respond i.e. the cost of locating and retrieving the information exceeds the appropriate level as stated in the Freedom of Information (Fees and Appropriate Limit) Regulations 2004. In accordance with the S.17 of the Freedom of Information Act 2000, this letter acts as a Refusal Notice. In accordance with S.16, the duty to advise and assist, I have provided some of the easily retrievable responses, as a gesture of goodwill. If you would like to submit a refined request, please consider the explanations above regarding the information held.